Guest guest Posted August 21, 2008 Report Share Posted August 21, 2008 Yeah. It happens to me a lot. I blame the prednisone, sometimes my brain just won't quit, but I actually think it may be more than that. And, yes, the tireder I am, the worse it is. My doc has given me a bunch of stuff, but no sleep aids as I'm really afraid of my reaction to them. So far, Lyrica is working the best. I take 75 mg about an hour before bedtime, and it makes me drowsy. No surprise, I had to quit taking it in the AM because it makes me so drowsy. I also take 20mg of Celexa, as that makes the Lyrica work at a lower dose. My internist said it's ok to take Benadryl every now and then to help get to sleep. A hot bath helps, but a shower wakes me up. Go figure. (hmmm - can you take baths? doubt it). I feel guilty, too, because I'm so restless most nights, I know I keep Bill (my hubby) awake because he's a really light sleeper. Our partners may not have our disorders, but they sure do have our problems, don't they? Those of us with understanding partners and families are truly blessed. I hope you find something that works for you, because I can imagine how tired you must be when you're not sleeping well. At least I'm semi-retired and have an understanding boss (hubby and I have our own business). Gentle hugs to you, On Thu, Aug 21, 2008 at 9:43 PM, Dodge <medicdodge@...> wrote: > Hey all: > > I know I have been doing more asking than answering of late, and for that, I > apologize. I am having trouble with my ISPs webmail, which is making it very > difficult for me to read mail, as it is only loading like one email message > every five-ten minutes. Anyway, I have another question. > > Before I ask, let me say that I have been tested for sleep apnea *four* > times... Every time, I came out with a *definite* no. So, I don't have that. > > I know that a lot of us with Fibro have trouble getting enough stage IV > sleep. Here's what happens to me. I will lie down and begin to go to sleep. > I will start to drift off to sleep and be just conscious enough to realize, > " Hey Dodge, you're drifting off to sleep. " I will usually think " good " or > some other thought like that, and then... BAM!!! I will be back to full > wakefulness. > > I never feel out of breath, short of breath, or like I'm not getting air... > I just feel... Annoyed. This doesn't happen every night. In fact, oddly > enough, it happens on the nights when I am most tired and feel like my body > and mind both need restful sleep. I am a believer in sleep hygiene, so after > about twenty minutes of this, I get up, waste time for up to an hour, and > then try again. > > My questions are... Does anyone else go through what I have described? Did > your doc put you on medication for it? What medications have you tried and > what works best? > > My doc will pretty much give me whatever narcs I want, but is hesitant to > prescribe *me* sleep meds. Perhaps because I take so many different > narcotics. He did prescribe Zanaflex, which I don't like, either for sleep > or for muscle relaxant. Before that, I was taking Soma for both, and that > worked better. I'm going to ask him to switch back, as the Zanaflex in the > doseage range he has allowed me either, a. does nothing, b. makes me drunk > and does nothing, or c. makes me halucinate and does nothing. > > I know that this drifting-off-to-sleep-coming-awake-suddenly thing keeps me > up, and that keeps Rod up and I feel guilty... > > -- > Dodge > > A skeptic is a person who, when he sees the handwriting on the wall, > claims it's a forgery. > > Read my blog at: > http://jumpthis.wordpress.com > -- South Pasadena, CA / Lilydale, MN You can see my galleries at http://www.pbase.com/arenared986 M. Schulz - " All you need is love. But a little chocolate now and then doesn't hurt. " Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 21, 2008 Report Share Posted August 21, 2008 : I know I am truly blessed. For one thing, my Rod is a saint. I hate to say that, but it's true. He never complains, never gets angry, roles with all the punches, takes everything in stride, goes above and beyond the call of duty, to make my life easier and as pain free as possible. For another, he also has Fibro and " mild Lupus " . I was on Lyrica for my Fibro and neuropathy... I took a whopping 200mg three times daily, for a total of 600mg. It definitely made me sleepy! Unfortunately, as it did nothing for my pain, my doc took me off of it. It also gave me some other really nasty unwanted side effects. I would tend to blame my...I call them " sleep twitches " , on pred, except for the fact that I don't take pred that often, and when I do, I only need the occasional 20mg pill. I never take it in bursts...I just don't need to. Can I take baths? Absolutely. Although, I have to be real careful because of my burnt skin. -- Dodge A skeptic is a person who, when he sees the handwriting on the wall, claims it's a forgery. Read my blog at: http://jumpthis.wordpress.com ---- Overell <patricia.overell@...> wrote: ============= Yeah. It happens to me a lot. I blame the prednisone, sometimes my brain just won't quit, but I actually think it may be more than that. And, yes, the tireder I am, the worse it is. My doc has given me a bunch of stuff, but no sleep aids as I'm really afraid of my reaction to them. So far, Lyrica is working the best. I take 75 mg about an hour before bedtime, and it makes me drowsy. No surprise, I had to quit taking it in the AM because it makes me so drowsy. I also take 20mg of Celexa, as that makes the Lyrica work at a lower dose. My internist said it's ok to take Benadryl every now and then to help get to sleep. A hot bath helps, but a shower wakes me up. Go figure. (hmmm - can you take baths? doubt it). I feel guilty, too, because I'm so restless most nights, I know I keep Bill (my hubby) awake because he's a really light sleeper. Our partners may not have our disorders, but they sure do have our problems, don't they? Those of us with understanding partners and families are truly blessed. I hope you find something that works for you, because I can imagine how tired you must be when you're not sleeping well. At least I'm semi-retired and have an understanding boss (hubby and I have our own business). Gentle hugs to you, Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 22, 2008 Report Share Posted August 22, 2008 Dodge and Group; I have been through similar Dodge and I was the type who loved to sleep all the time. I would just get to sleep and wake up wide awake a few hours. Similar to you. I would get to sleep but unlike you I could sleep a couple hours. Still thats not enough sleep for anyone. I am speaking of a 24 hour period. I went to mental health cause at the time my dad passed away. The doctor at mental health put me on effexor for depression and xanax to help me sleep. It worked good. I am taking a half of xanax now to wean me off of it. I sleep fine now. I hope you find what can help you since your on a lot of narcartics. gentle hugs Clora > Hey all: Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 22, 2008 Report Share Posted August 22, 2008 Dodge, Yes, this is something I suffered from for a long time until 1994, My doc at the time put me on Trazadone to take at night and she described it as a muscle relaxant to help me sleep. But recently I found out that it's an antidepressent but works in a different way than the Zoloft I take in the morning. It makes you relaxed body and mind and genltly brings sleep. Takes from 30 - 60 min. I started with 50 mgs and since my body is very sensative to drugs that work on the central nervous system, I slowly worked up to 150 mg by 2006 after my breast cancer treatment. Of all the meds I take, this the one I could not live without because this is the best sleep I can get. I took Ambien with it during treatment and it helped at that time but it is not something I would take daily. I take Xanex once in a while also, but it can be addictive. Trazadone is not addictive nor narcotic, but you get dependent on it for sleep. Hope this helps and good luck. Stella > Hey all: > > I know I have been doing more asking than answering of late, and for that, I apologize. I am having trouble with my ISPs webmail, which is making it very difficult for me to read mail, as it is only loading like one email message every five-ten minutes. Anyway, I have another question. > > Before I ask, let me say that I have been tested for sleep apnea *four* times... Every time, I came out with a *definite* no. So, I don't have that. > > I know that a lot of us with Fibro have trouble getting enough stage IV sleep. Here's what happens to me. I will lie down and begin to go to sleep. I will start to drift off to sleep and be just conscious enough to realize, " Hey Dodge, you're drifting off to sleep. " I will usually think " good " or some other thought like that, and then... BAM!!! I will be back to full wakefulness. > > I never feel out of breath, short of breath, or like I'm not getting air... I just feel... Annoyed. This doesn't happen every night. In fact, oddly enough, it happens on the nights when I am most tired and feel like my body and mind both need restful sleep. I am a believer in sleep hygiene, so after about twenty minutes of this, I get up, waste time for up to an hour, and then try again. > > My questions are... Does anyone else go through what I have described? Did your doc put you on medication for it? What medications have you tried and what works best? > > My doc will pretty much give me whatever narcs I want, but is hesitant to prescribe *me* sleep meds. Perhaps because I take so many different narcotics. He did prescribe Zanaflex, which I don't like, either for sleep or for muscle relaxant. Before that, I was taking Soma for both, and that worked better. I'm going to ask him to switch back, as the Zanaflex in the doseage range he has allowed me either, a. does nothing, b. makes me drunk and does nothing, or c. makes me halucinate and does nothing. > > I know that this drifting-off-to-sleep-coming-awake-suddenly thing keeps me up, and that keeps Rod up and I feel guilty... > > -- > Dodge > > A skeptic is a person who, when he sees the handwriting on the wall, > claims it's a forgery. > > Read my blog at: > http://jumpthis.wordpress.com > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 22, 2008 Report Share Posted August 22, 2008 Hi Stella: Thanks for the input. Yes, I am very familiar with Trazadone. It gave me some nasty side effects that I didn't like, like major irritability, so I stopped it. Glad to know I'm not going crazy, though. -- Dodge From acquaintances we conceal our real selves. To our friends we reveal our weaknesses. --Basil Hume Read my blog at: http://jumpthis.wordpress.com ---- smf1mom <smf1mom@...> wrote: ============= Dodge, Yes, this is something I suffered from for a long time until 1994, My doc at the time put me on Trazadone to take at night and she described it as a muscle relaxant to help me sleep. But recently I found out that it's an antidepressent but works in a different way than the Zoloft I take in the morning. It makes you relaxed body and mind and genltly brings sleep. Takes from 30 - 60 min. I started with 50 mgs and since my body is very sensative to drugs that work on the central nervous system, I slowly worked up to 150 mg by 2006 after my breast cancer treatment. Of all the meds I take, this the one I could not live without because this is the best sleep I can get. I took Ambien with it during treatment and it helped at that time but it is not something I would take daily. I take Xanex once in a while also, but it can be addictive. Trazadone is not addictive nor narcotic, but you get dependent on it for sleep. Hope this helps and good luck. Stella Quote Link to comment Share on other sites More sharing options...
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