Re: need any information about radiation in the spine

[Guest guest]

Hi Netta,

So sorry to hear about your MRIs!! I have had spinal radiation this

spring. I had it done at a cancer center in the city. They did C-1 through

C-7 because the tumors there are soooooo scary. They are in my spinal

column and very involved with the cord. The Dr says its a hairs breath from

real trouble. This treatment is painless. Its like getting an X-ray

everyday. I had 22 treatments at 200 rad, a total of 4400 rad. I have

found no evidence of tumors growing after this treatment. I am looking!!

Swelling in the spine is not an issue like the brain. This treatment will

take up to 3 years before bad effects are known, paralysis, numbness,

weakness. I haven't found any proof of regrowth for the radiated tumors or

the area radiated. They (the Dr has told me because of the NF, new tumors

may form) I made this decision because I was told surgery was not an

option, also surgery scares the hell outta me I don't recover from it

well either. My heart goes out to you in your choice. I also had gamma

knife surgery on my right AN, so any questions on either, feel free to throw

my way, I can answer by my experience.

Lori:) lphibbs@...

need any information about radiation in the spine

[Guest guest]

Hi Netta,

So sorry to hear about your MRIs!! I have had spinal radiation this

spring. I had it done at a cancer center in the city. They did C-1 through

C-7 because the tumors there are soooooo scary. They are in my spinal

column and very involved with the cord. The Dr says its a hairs breath from

real trouble. This treatment is painless. Its like getting an X-ray

everyday. I had 22 treatments at 200 rad, a total of 4400 rad. I have

found no evidence of tumors growing after this treatment. I am looking!!

Swelling in the spine is not an issue like the brain. This treatment will

take up to 3 years before bad effects are known, paralysis, numbness,

weakness. I haven't found any proof of regrowth for the radiated tumors or

the area radiated. They (the Dr has told me because of the NF, new tumors

may form) I made this decision because I was told surgery was not an

option, also surgery scares the hell outta me I don't recover from it

well either. My heart goes out to you in your choice. I also had gamma

knife surgery on my right AN, so any questions on either, feel free to throw

my way, I can answer by my experience.

Lori:) lphibbs@...

need any information about radiation in the spine

[Guest guest]

Hi Netta,

So sorry to hear about your MRIs!! I have had spinal radiation this

spring. I had it done at a cancer center in the city. They did C-1 through

C-7 because the tumors there are soooooo scary. They are in my spinal

column and very involved with the cord. The Dr says its a hairs breath from

real trouble. This treatment is painless. Its like getting an X-ray

everyday. I had 22 treatments at 200 rad, a total of 4400 rad. I have

found no evidence of tumors growing after this treatment. I am looking!!

Swelling in the spine is not an issue like the brain. This treatment will

take up to 3 years before bad effects are known, paralysis, numbness,

weakness. I haven't found any proof of regrowth for the radiated tumors or

the area radiated. They (the Dr has told me because of the NF, new tumors

may form) I made this decision because I was told surgery was not an

option, also surgery scares the hell outta me I don't recover from it

well either. My heart goes out to you in your choice. I also had gamma

knife surgery on my right AN, so any questions on either, feel free to throw

my way, I can answer by my experience.

Lori:) lphibbs@...

need any information about radiation in the spine

[Guest guest]

Lori..Hey!! Are your tumors IN your spinal cord or around it?? I have two

INSIDE, which makes surgery very risky. Wondering if radiation is an option for

me?

Carol

Lori Phibbs wrote:

> Hi Netta,

>

> So sorry to hear about your MRIs!! I have had spinal radiation this

> spring. I had it done at a cancer center in the city. They did C-1 through

> C-7 because the tumors there are soooooo scary. They are in my spinal

> column and very involved with the cord. The Dr says its a hairs breath from

> real trouble. This treatment is painless.

[Guest guest]

Carol?? Me, Lori. The tumors (and there a lots, big and small, throughout

the whole spine) are IN my spinal cord and also around the cord, within the

spinal column. I've done the neck (C-spine) looking into the T-spine now

while on Hydroxyurea.. Basically I am so screwed!!!

Re: need any information about radiation in the spine

> Lori..Hey!! Are your tumors IN your spinal cord or around it?? I have two

> INSIDE, which makes surgery very risky. Wondering if radiation is an

option for

> me?

> Carol

>

> Lori Phibbs wrote:

>

> > Hi Netta,

> >

> > So sorry to hear about your MRIs!! I have had spinal radiation this

> > spring. I had it done at a cancer center in the city. They did C-1

through

> > C-7 because the tumors there are soooooo scary. They are in my spinal

> > column and very involved with the cord. The Dr says its a hairs breath

from

> > real trouble. This treatment is painless.

>

>

>

>

>

[Guest guest]

Carol?? Me, Lori. The tumors (and there a lots, big and small, throughout

the whole spine) are IN my spinal cord and also around the cord, within the

spinal column. I've done the neck (C-spine) looking into the T-spine now

while on Hydroxyurea.. Basically I am so screwed!!!

Re: need any information about radiation in the spine

> Lori..Hey!! Are your tumors IN your spinal cord or around it?? I have two

> INSIDE, which makes surgery very risky. Wondering if radiation is an

option for

> me?

> Carol

>

> Lori Phibbs wrote:

>

> > Hi Netta,

> >

> > So sorry to hear about your MRIs!! I have had spinal radiation this

> > spring. I had it done at a cancer center in the city. They did C-1

through

> > C-7 because the tumors there are soooooo scary. They are in my spinal

> > column and very involved with the cord. The Dr says its a hairs breath

from

> > real trouble. This treatment is painless.

>

>

>

>

>

[Guest guest]

Carol?? Me, Lori. The tumors (and there a lots, big and small, throughout

the whole spine) are IN my spinal cord and also around the cord, within the

spinal column. I've done the neck (C-spine) looking into the T-spine now

while on Hydroxyurea.. Basically I am so screwed!!!

Re: need any information about radiation in the spine

> Lori..Hey!! Are your tumors IN your spinal cord or around it?? I have two

> INSIDE, which makes surgery very risky. Wondering if radiation is an

option for

> me?

> Carol

>

> Lori Phibbs wrote:

>

> > Hi Netta,

> >

> > So sorry to hear about your MRIs!! I have had spinal radiation this

> > spring. I had it done at a cancer center in the city. They did C-1

through

> > C-7 because the tumors there are soooooo scary. They are in my spinal

> > column and very involved with the cord. The Dr says its a hairs breath

from

> > real trouble. This treatment is painless.

>

>

>

>

>

[Guest guest]

Lori! Are you my long lost sister??? I've been screwed since

birth.............very tired!

Carol

Lori Phibbs wrote:

> Carol?? Me, Lori. The tumors (and there a lots, big and small, throughout

> the whole spine) are IN my spinal cord and also around the cord, within the

> spinal column. I've done the neck (C-spine) looking into the T-spine now

> while on Hydroxyurea.. Basically I am so screwed!!!

> Re: need any information about radiation in the spine

>