Re: Fwd: good description of Fibromyalgia

[Guest guest]

Group

You must read this.. please

I read the story written by FIBROMYALGIA to my husband.. After

reading it to him he said .. Get ready to be appalled... He said

" Oh Fibromyalgia is just someone getting old.. "

OMG... He still don't get it... I can't believe he said that.. after

I read who Fibromyalgia really is... I was old at 24 I guess cause

that is when Fibro took over my body... It wasnt diagnosed for 30

years and now they still don't understand... My husband is very good

to me... He believes me and he is very supportive with my life...

I will leave the post of who Mr/Mrs Fibromyalgia is... below here...

just in case someone may have missed it..

gentle hugs

Clora

***********************************************************

>>

> >___________ _________ _________ _______

> >

> > Hi....My Name is Fibromyalgia, and I'm an Invisible Chronic

Illness.

> >

> > I am now velcroed to you for life.

> >

> > Others around you can't see me or hear me, but YOUR body feels

me.

> > I can attack you anywhere and anyhow I please.

> >

> > I can cause severe pain or, if I'm in a good mood, I can just

cause

> > you to ache all over.

> >

> > Remember when you and Energy ran around together and had fun? I

> > took Energy from you, and gave you Exhaustion.

> >

> > Try to have fun now! I also took Good Sleep from you and, in its

> > place, gave you Brain Fog.

> >

> > I can make you tremble internally or make you feel cold or hot

> > when everyone else feels normal. Oh, yeah, I can make you feel

> > anxious or depressed, too.

> >

> > If you have something planned, or are looking forward to a great

> > day, I can take that away, too. You didn't ask for me.

> >

> > I chose you for various reasons:

> > That virus you had that you never recovered from, or that car

> > accident, or maybe it was the years of abuse and trauma.

> >

> > Well, anyway, I'm here to stay!

> >

> > I hear you're going to see a doctor who can get rid of me.

> >

> > I'm rolling on the floor, laughing. Just try.

> >

> > You will have to go to many, many doctors until you find one who

> > can help you effectively.

> >

> > You will be put on pain pills, sleeping pills, energy pills, told

> > you are suffering from anxiety or depression, given a Tens unit,

> > get massaged, told if you just sleep and exercise properly I will

> > go away, told to think positively, poked, prodded, and MOST OF

ALL,

> > not taken as seriously as you feel when you cry to the doctor how

> > debilitating life is every day.

> >

> > Your family, friends and coworkers will all listen to you until

> > they just get tired of hearing about how I make you feel, and

that

> > I'm a debilitating disease.

> >

> > Some of them will say things like " Oh, you are just having a bad

> > day " or " Well, remember, you can't do the things you use to do 20

> > YEARS ago " , not hearing that you said 20 DAYS ago.

> >

> > Some will just start talking behind your back, while you slowly

> > feel that you are losing your dignity trying to make them

> > understand, especially when you are in the middle of a

> > conversation with a " Normal " person, and can't remember what you

> > were going to say next!

> >

> > In closing, (I was hoping that I kept this part a secret), but I

> > guess you already found out...

> >

> > The ONLY place you will get any support and understanding in

> > dealing with me is with Other People With Fibromyalgia.

> > -------------------------------

>

>

>

>

>

>

>

>

>

>

>

>

>

>

> __________________________________________________

>

[Guest guest]

Amazing!!!!! Tawny

> > >___________ _________ _________ ______

> > >

> > > Hi....My Name is Fibromyalgia, and I'm an Invisible Chronic

> Illness.

> > >

> > > I am now velcroed to you for life.

> > >

> > > Others around you can't see me or hear me, but YOUR body feels

> me.

> > > I can attack you anywhere and anyhow I please.

> > >

> > > I can cause severe pain or, if I'm in a good mood, I can just

> cause

> > > you to ache all over.

> > >

> > > Remember when you and Energy ran around together and had fun? I

> > > took Energy from you, and gave you Exhaustion.

> > >

> > > Try to have fun now! I also took Good Sleep from you and, in

its

> > > place, gave you Brain Fog.

> > >

> > > I can make you tremble internally or make you feel cold or hot

> > > when everyone else feels normal. Oh, yeah, I can make you feel

> > > anxious or depressed, too.

> > >

> > > If you have something planned, or are looking forward to a

great

> > > day, I can take that away, too. You didn't ask for me.

> > >

> > > I chose you for various reasons:

> > > That virus you had that you never recovered from, or that car

> > > accident, or maybe it was the years of abuse and trauma.

> > >

> > > Well, anyway, I'm here to stay!

> > >

> > > I hear you're going to see a doctor who can get rid of me.

> > >

> > > I'm rolling on the floor, laughing. Just try.

> > >

> > > You will have to go to many, many doctors until you find one

who

> > > can help you effectively.

> > >

> > > You will be put on pain pills, sleeping pills, energy pills,

told

> > > you are suffering from anxiety or depression, given a Tens

unit,

> > > get massaged, told if you just sleep and exercise properly I

will

> > > go away, told to think positively, poked, prodded, and MOST OF

> ALL,

> > > not taken as seriously as you feel when you cry to the doctor

how

> > > debilitating life is every day.

> > >

> > > Your family, friends and coworkers will all listen to you until

> > > they just get tired of hearing about how I make you feel, and

> that

> > > I'm a debilitating disease.

> > >

> > > Some of them will say things like " Oh, you are just having a

bad

> > > day " or " Well, remember, you can't do the things you use to do

20

> > > YEARS ago " , not hearing that you said 20 DAYS ago.

> > >

> > > Some will just start talking behind your back, while you slowly

> > > feel that you are losing your dignity trying to make them

> > > understand, especially when you are in the middle of a

> > > conversation with a " Normal " person, and can't remember what

you

> > > were going to say next!

> > >

> > > In closing, (I was hoping that I kept this part a secret), but I

> > > guess you already found out...

> > >

> > > The ONLY place you will get any support and understanding in

> > > dealing with me is with Other People With Fibromyalgia.

> > > -------------------------------

> >

> >

> >

> >

> >

> >

> >

> >

> >

> >

> >

> >

> >

> >

> > __________________________________________________

> >

[Guest guest]

Sharon and group;

Ok now I am starting to write today's and yesterdays red flagged

post... I am sorry I made you sad.. I will try to do better... Yes

your right most of it can be applied to RA also..

It is early yet.. So far I am feeling ok.. I will be positive for

the rest of the day.. Awe ty for the hug.. Thes last day or so has

been a big RA flare for me... So today has started out real good..

NOt RA flare.. I am having a little IBS attack but that can be

remedied easy...

I will leave bottom post so everyone can understand what I am

saying..

gentle hugs

Clora

**************************************************************

> Clora

>

> Reading that made me feel sad, i guess most of it can be applied to

RA too.

>

> I just wanted to send you a hug and i hope your having a good day

>

> Sharon xx

>

******************************************************************>

> Group

>

> You must read this.. please

>

> I read the story written by FIBROMYALGIA to my husband.. After

> reading it to him he said .. Get ready to be appalled... He said

>

> " Oh Fibromyalgia is just someone getting old.. "

>

> OMG... He still don't get it... I can't believe he said that..

after

> I read who Fibromyalgia really is... I was old at 24 I guess cause

> that is when Fibro took over my body... It wasnt diagnosed for 30

> years and now they still don't understand.. . My husband is very

good

> to me... He believes me and he is very supportive with my life...

>

> I will leave the post of who Mr/Mrs Fibromyalgia is... below

here...

> just in case someone may have missed it..

>

> gentle hugs

> Clora

>

> ************ ********* ********* ********* ********* ********* **

> >>

> > >___________ _________ _________ _______

> > >

> > > Hi....My Name is Fibromyalgia, and I'm an Invisible Chronic

> Illness.

> > >

> > > I am now velcroed to you for life.

> > >

> > > Others around you can't see me or hear me, but YOUR body feels

> me.

> > > I can attack you anywhere and anyhow I please.

>