My day

[Guest guest]

I have really enjoyed your posts Rick. I am a new list member so I am not too

familiar, but guessing that your daughter is an adult that doesn't live at home

with you.

Most of the parents I know have young children. The future is always uncertain

with any child with or without DS, but it makes me feel happy to read about your

relationship with your daughter and I hope one day to have the same with all my

children.

[Guest guest]

Way to Go Gretchen! Are you on a high protein, high starch diet?

Whatever it is, it seems to be working for you!

I also do some catching up at night or early morning otherwise I am

scrambling with my daughter for computer time.

I'm glad you had a great day! Good for you girl.

Eleanora

> Hello ladies, good evening. I am so far behind everyone that I

have

> to time at night to catch up. I had a really great day today!!

>

> And yes Mert I did exercise today. I got 10 mins on the glider!! I

> think I would have gone longer if my feet didnt hurt so much. I

> think I need better shoes because I keep getting cramps and today

my

> arches were killing me.

>

> I think I will do 20 mins of yoga tonight yet.

>

> Well lets see my food for the day:

>

> Breakfast- 2/3 subway sandwich (I was running late this morning)

> 3.5pts

> Lunch- Lean Cusine meatloaf and mashed potatos 5pts

>

> Snack- sm cup of noodles 4pts

>

> Dinner- 3oz turkey breast, 1cup rice a roni, 1 1/2 cup mixed

> veggies, 1/2 cup corn.

>

> I have only had about 48 oz of water today. My water bottle froze

> in the car (kinda hard to drink solid ice).

>

> Ok so that was today!! Since you are all reading this tomorrow

have

> a great day and I will check in in the morning!!!

>

> Gretchen

[Guest guest]

> >

> > I think I will do 20 mins of yoga tonight yet.

> >

> > Well lets see my food for the day:

> >

> > Breakfast- 2/3 subway sandwich (I was running late this morning)

> > 3.5pts

> > Lunch- Lean Cusine meatloaf and mashed potatos 5pts

> >

> > Snack- sm cup of noodles 4pts

> >

> > Dinner- 3oz turkey breast, 1cup rice a roni, 1 1/2 cup mixed

> > veggies, 1/2 cup corn.

> >

> > I have only had about 48 oz of water today. My water bottle

froze

> > in the car (kinda hard to drink solid ice).

> >

> > Ok so that was today!! Since you are all reading this tomorrow

> have

> > a great day and I will check in in the morning!!!

> >

> > Gretchen

[Guest guest]

,

How long ago was your daughter implanted before swithing to the BTE?

I just hope it is a small thing that the audi can fix. Please keep

us informed of what they found>

Bill

>

> Okay, I don't even know what to say other than I believe every CI

patient's worst nightmare just came through for us. Annika went to

bed early last night so she woke up early today. I thought what a

great start, she will be pleasant getting dressed this morning and

we can get going on time this a.m. Well, I put on both her implants

so she could watch a little bit of cartoons before I had to finish

getting her ready. Just popped them on and thought I would worry

about it later.

>

> Of course, my boys did not get up on time and so I was a little

rushed by the time we got back to Annika. I put on her left implant

and she wasn't responding to me at all. Okay, is she being just a

stubborn 3 year old and ignoring me. So we put on the right side.

She did her ling check just like that. Okay, back to the left

side. Still nothing. Okay, let's see check her headpiece and

cable. Well, that didn't make any difference. At this point, I

have forgotten that I have the BWP still around that we could do

something with. My thought is just that it was the hardware-bad

processor.

>

> So started to take her to school and made a call to her

audiologist. Said that I think we are having some problems can we

see you today? I will take her in and let her staff at school do

some trouble shooting in case I had forgotten something(we just

switched to the BTE a little over a month ago). We get to school and

still nothing on that left side. She is still talking and

responding because the right side is working fine.

>

> So to the audi we go. Still in my mind it is just the hardware.

Well, we were there an hour and the longer we were in the room the

more things changed. We believe that Annika had internal device

failure on the left side. It is intermittent so it might have been

going for a few days now. We have to do one more test with a rep

from AB and I am waiting for the phone call from the audi re this.

But they are still going to try to get her a slot on the surgery

schedule just in case. Both Josie and the on-call audi from AB

really think that we are having a problem.

>

> The only thing that is keeping my sanity is that I know that she

will still hear from the one side and we hopefully won't lose any

time during this process. I will keep you posted. Oh yeah, on top

of it all, I get a call from the nurse at the boys' school. My 13

year old had vomitted and needs to be picked up. I am about 70

miles from him at this point and cannot do anything. Thank goodness

for his grandparents!!!!

>

> Mom of 4

> Marcus 15

> 13

> Jon 11

> Annika 3

> Bilaterally implant 3/1/04

> Hookup 3/25/04

> spastic diaplegic CP

>

>

[Guest guest]

Oh no, ! Hope the problem can be remedied without the need for

reimplantation.

[Guest guest]

She had been implanted for about 1 1/2 year before we switched to the BTE. The

main reason was because she has balance issues with her CP and we wanted to ease

the amount of weight she was carrying. We have seen an improvement with balance

but now we go with this.

The longer it takes the more I think we won't be looking at an easy fix. I can

always hope but I did put on her BWP like requested and it worked for about a

minute after putting it on and then nothing. They are still trying to get

things set up with the rep from

AB so either I will know in the next 1/2 hour or I will hear something tomorrow

morning. I have to go to the U of MN for a rehab session anyway so hopefully we

can work something out while we are there. She still may have to see the

surgeon tomorrow too. Time will only tell.

[Guest guest]

In a message dated 6/20/2006 4:33:55 PM Pacific Standard Time, brgk44@... writes:

Anyone else have their cycle thrown off while losing weight? Ugh.

"I'm not sure Bonnie" LOL... I am 38 and my periods have been wacked since having kids. Of course, I have been heavy since having kids and the doctor jumps so quickly to blame it on obesity. I have also been under *major* stress since then too and that is a 2nd excuse according to my doctors. Who knows. TOM came a visiting early April last for me.... stress? fat? WAAAAH!!!!

[Guest guest]

You really don't want to do that. One, you'll have a backache like you wouldn't

believe. And

I've heard hysterectomies are counterproductive to weight loss, anyway.

Now, there is a procedure where they effectively put in a balloon and 'scald'

your uterine

walls and you don't have periods anymore, but I think that's used to treat a

problem with

insanely heavy periods, not just to get rid of them.

SulaBlue

>

> So I don't know what's going on, but I'm about to march into my doc's

> office and ask her to take out my uterus. I do *not* want to do this

> for the next 15+ years. Is this normal weight loss type stuff or

> what? Anyone else have their cycle thrown off while losing weight? Ugh.

>

> Time to put my grumpy, overly tired boys to bed. :-)

>

> -Bonnie

> 338/266/258 (mini-goal...80 pounds gone)

>

[Guest guest]

That's part of the problem--over the last 5+ years, in between having

kids and then after the last one, I've had problems with really hard

periods. The first couple days are almost unbearable. I don't like

taking medications for any reason (unless I have to), and without a

regular dose of 800mg ibuprofen every 5-6 hours, I can barely move. I

go through an overnight pad in less than an hour. It really is

miserable. And I guess it's in the back of my mind that my mom had

similar problems after having us kids, and got so bad that eventually,

by age 35, she was to the point of 2-3 weeks of heavy bleeding out of

the month. She wound up having her uterus out. I'll explore other

options first, though. Thanks for telling me about that new

procedure...definitely something to ask about.

-Bonnie

> Now, there is a procedure where they effectively put in a balloon

and 'scald' your uterine

> walls and you don't have periods anymore, but I think that's used to

treat a problem with

> insanely heavy periods, not just to get rid of them.

>

> SulaBlue

>

[Guest guest]

> So I don't know what's going on, but I'm about to march into my doc's

> office and ask her to take out my uterus.

Hang in there! I'm in my menopausal years now and it *does* get better!

> Is this normal weight loss type stuff or

> what? Anyone else have their cycle thrown off while losing weight? Ugh.

It's possible. You can't go by me because the only time I was regular was

when I was on oral progesterone, but remember, your estrogen is stored in

your fat cells. When you lose weight, those cells shrink, so it would only

be natural for some of that estrogen that's getting squeezed out to start

floating around your bloodstream, right? And of course, excess estrogen can

cause your cycle to do crazy things.

Then again, since you're already in your 30's you could be starting down the

road to your own Changes and hormone fluctuations. These can start 10 or

more years before The End before getting really irregular the last 5 or so

years.

Sue in NJ

[Guest guest]

> I

> go through an overnight pad in less than an hour. It really is

> miserable.

That's how mine were since I started at age 12 or so until, well, it was

still like that when I last had it in November. The first 3 days are

horrible and heavy, then they would lighten up each day afterwards and stop

on the 7th or 8th day. Some months I would spot in mid-cycle, other months I

would get a whole week of bleeding, just like 2 weeks before. When I was put

on the oral progesterone that time I was up to one week of bleeding, one

week not, and after about 3 months of that I started one day and didn't stop

until 21 days later. That's when the doc said something had to be done and

he put me on the pills.

> she was to the point of 2-3 weeks of heavy bleeding out of

> the month. She wound up having her uterus out. I'll explore other

> options first, though.

A few months of the oral progesterone helped me a lot. After that I was

almost on a regular 29 day cycle for a number of years. Then I started

getting wonky again, the beginnings of the Change, and I had a choice to

either live with it or go on birth control pills, but with the history of

heart disease and breast cancer in the family the doc didn't want me to take

the BC pills, so I lived with it.

Sue in NJ

[Guest guest]

> Hang in there! I'm in my menopausal years now and it *does* get better!

*lol* meanwhile life stinks for 1-2 weeks out of the month

> It's possible. You can't go by me because the only time I was

regular was

> when I was on oral progesterone, but remember, your estrogen is

stored in

> your fat cells. When you lose weight, those cells shrink, so it

would only

> be natural for some of that estrogen that's getting squeezed out to

start

> floating around your bloodstream, right? And of course, excess

estrogen can

> cause your cycle to do crazy things.

You know, now that you say that, I do remember reading that somewhere

a long time ago. It makes sense and this is probably at least part of

the problems.

> Then again, since you're already in your 30's you could be starting

down the

> road to your own Changes and hormone fluctuations. These can start 10 or

> more years before The End before getting really irregular the last 5

or so

> years.

*nods* A couple people have mentioned that, too. Gads, pretty

unbelievable what we women go through hormonally

-Bonnie

[Guest guest]

> I had an ugli fruit for snack (only bought them because they were

> marked down to 3/$.69).

So, what does an ugli fruit taste like, anyway?

> THEN... the kids found my open package of thin mints that I had

> forgotten about.. *ugh* yes, they had some, but I am sure I had at

> least 8-10 of the rotten little buggers!

Oy!

>

> *sigh* my steps were much less today, I am sure there is no way I

> am going to get in what I do when I am at work. I am about half of

> what I get on a work day.

>

> I did some cleaning today, I worked mostly on the kitchen, and

> living room. They both still have things that need to be done, but

> both look so much better! I still have the guest bathroom, the

> dinning room and the t.v./kids room, not to mention the horrible mud

> room and the kids bedrooms, oh yes and mine too..... I know baby

> steps.

Don't do too much at once! We took the day off today, since I'd already

accomplished

yesterday and today's Kitchen Challenges. (And then some, thankfully!) I really

do need to

start my 'Control Journal'

> So that is what I've been up to today. I need to run to the store

> tomorrow so I am sure I will have more steps in. I need to pick up

> some stuff for cleaning that I ran out of.

>

> It sounds like so far everyone has had a pretty good day.

>

> a

Good luck!

SulaBlue

[Guest guest]

~

I'm so sorry that you are feeling so unwell. It sounds as if you are

being stretched in so very many directions.

Take good care of yourself..... induldge yourself.... crochet if it

makes you feel better. Your mental health is so very important.

If you were told NOT to be alone and dh can't stay, find someone to

stay with you.... maybe a friend or family member. If that isn't an

option then you NEED to tell your psychiatrist that you WILL be alone

and don't have a choice about it. Let the doctor help you in deciding

what to do about it.

I'm so glad that you are reaching out for help.

warmly,

Kim

On 4/19/07, laurabutler6@... <laurabutler6@...> wrote:

>

> It has not been a good day today. I almost got put back in a locked ward

> today. My mind is doing some pretty weird things. I started off today by

> going to see my regular doctor. I have carpal tunnel I think it is called

> in both my hands now. I have a splint on my right hand and an ace bandage

> on my left hand. He didn't tell me I couldn't still crochet. I don't know

> what I'd do if he says I can't crochet. That is one of my let outs. The

> kid that shot people in VT has really gotten to me. I can relate to him. I

> feel like I'm in two worlds right now. Oh as far as the regular doctor goes

> there is something wrong with my shoulder too and I have to take meds for it

> too and I won't be able to drive with it. The doctor told me to go to see

> my psychiatrist and so I did. Oh before the psychiatrist I had to have

> xrays on my shoulder. It has been a busy day. Thankfully my psychiatrist

> didn't think I was bad enough to go to the hospital. I'm not to be alone.

> So don't know what I am going to do when my hubby goes to work Friday night

> and the rest of the weekend. Well, got to go place the dinner in the oven.

>

> from MO.

>

[Guest guest]

>So don't know what I am going to do when my hubby goes to work Friday night

and the rest of the weekend.

How are you doing today, ? Hope you're feeling a bit better now.

Sue in NJ

[Guest guest]

Hi ,

Sorry to hear you were having a rough day the other day. You mention not being able to be alone (at times) when your hubby is at work. Do you have family or friends that you can stay with in those instances, or are there any programs you can go to? I am glad you have crochet to keep your hands and mind busy.

(( Hugs ))

See what's free at AOL.com.

[Guest guest]

As I sat here this morning, watching the bunnies and squirrels playing outside

my window, my dogs running around just like my children did when they were

little, Listening to sounds of Fall, tractors out and about, the smells of

freshly harvested fields, and leaves turning colors. A sense of peace washed

over my body. Even the sick feeling from this mornings chemo took longer to set

in. I wish I could have sat like that all day.

But of course sitting for extended periods is one of my triggers for a flare up

and the sick stomach from chemo is inevitable every Monday and Tuesday. I praise

God daily for those little things we all still have in our lives though. Those

are the moments that keep me going from day to day.

I am going to go lie down now and rest so I can maybe feel well enough to cook

and visit with my husband some tonite.

Vicki

Iowa

[Guest guest]

Vicki,

Thank you for your post. You and everyone here today are on my gratitude

list. I appreciate your sharing that pretty fall scene...

In _ @groRA-SUPP_ (mailto: ) ,

" Vicki " <gramvick@..g> wrote:

>

> As I sat here this morning, watching the bunnies and squirrels

playing outside my window, my dogs running around just like my

children did when they were little, Listening to sounds of Fall,

tractors out and about, the smells of freshly harvested fields, and

leaves turning colors. A sense of peace washed over my body. Even

the sick feeling from this mornings chemo took longer to set in. I

wish I could have sat like that all day.

>

> But of course sitting for extended periods is one of my triggers

for a flare up and the sick stomach from chemo is inevitable every

Monday and Tuesday. I praise God daily for those little things we

all still have in our lives though. Those are the moments that keep

me going from day to day.

>

> I am going to go lie down now and rest so I can maybe feel well

enough to cook and visit with my husband some tonite.

>

> Vicki

> Iowa

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[Guest guest]

Hi everyone;

I have been dealing with a migraine all day. I hope the doctor gives

me something better than these lortabs. I had to take 2 about an

hour ago just to get the migraine bearable.

I go next week to get refills at the docs for my migrains. I am

telling him to give me something else these don't work. I feel so

miserable with this migrains every day. They never stop unless I

lie down in a dark room and than they dont stop they are only

bearable.

She put me on Volteran for the osteo and they work pretty good. I

don't have as much pain in my lower back. My neck still hurts. I do

some exercises that help some. I know we all suffer from some pain

here and I am so sorry. I have faith in God and I still keep praying

I know he will prevail.

I take my humira shot friday for the RA. It helps so much. THere

seems to be some pain all the time but it is manageable now. I

remember how mad Barbara got when I first came to the group a few

months ago. She got so upset my rheumy wasn't helping me and her

anger made me talk to my rheumy to get more agressive with my RA.

Wow she did.

I pray everyone has pain free day and I pray for a cure for all

arthritis. God bless everyone and take care.

gentle hugs

Clora

*************************************************************

> Hi Kami....I wasa diagnosed with l/s back in 2005..... always

something to

> add to our already growing list.

>

> Hugs..a

>

>

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[Guest guest]

Clora,

Honey, I am so sorry that you are having to endure that pain. I sure

hope your doctor gives you something that works!

I have a friend that takes a pill when she feels one coming on and

it makes the headaches so much better. I don't know what it is, but

I could as if you want me to. Maybe you could ask your doctor about

it.

Much love coming your way. I hope you are feeling much better soon.

Shirley

>

>

>

> Hi everyone;

>

> I have been dealing with a migraine all day. I hope the doctor

gives

> me something better than these lortabs. I had to take 2 about an

> hour ago just to get the migraine bearable.

>

> I go next week to get refills at the docs for my migrains. I am

> telling him to give me something else these don't work. I feel so

> miserable with this migrains every day. They never stop unless I

> lie down in a dark room and than they dont stop they are only

> bearable.

>

> She put me on Volteran for the osteo and they work pretty good. I

> don't have as much pain in my lower back. My neck still hurts. I

do

> some exercises that help some. I know we all suffer from some

pain

> here and I am so sorry. I have faith in God and I still keep

praying

> I know he will prevail.

>

> I take my humira shot friday for the RA. It helps so much. THere

> seems to be some pain all the time but it is manageable now. I

> remember how mad Barbara got when I first came to the group a few

> months ago. She got so upset my rheumy wasn't helping me and her

> anger made me talk to my rheumy to get more agressive with my RA.

> Wow she did.

>

> I pray everyone has pain free day and I pray for a cure for all

> arthritis. God bless everyone and take care.

>

> gentle hugs

> Clora

[Guest guest]

Clora,

Does your physician know how bad your headaches are and that you have

them every day?

Why not give your doctor a call and ask for help now instead of

waiting until next week?

Healing hugs,

Not an MD

On Mon, Oct 27, 2008 at 5:20 PM, CLORA <clora4jesus@...> wrote:

>

>

> Hi everyone;

>

> I have been dealing with a migraine all day. I hope the doctor gives

> me something better than these lortabs. I had to take 2 about an

> hour ago just to get the migraine bearable.

>

> I go next week to get refills at the docs for my migrains. I am

> telling him to give me something else these don't work. I feel so

> miserable with this migrains every day. They never stop unless I

> lie down in a dark room and than they dont stop they are only

> bearable.

>

> She put me on Volteran for the osteo and they work pretty good. I

> don't have as much pain in my lower back. My neck still hurts. I do

> some exercises that help some. I know we all suffer from some pain

> here and I am so sorry. I have faith in God and I still keep praying

> I know he will prevail.

>

> I take my humira shot friday for the RA. It helps so much. THere

> seems to be some pain all the time but it is manageable now. I

> remember how mad Barbara got when I first came to the group a few

> months ago. She got so upset my rheumy wasn't helping me and her

> anger made me talk to my rheumy to get more agressive with my RA.

> Wow she did.

>

> I pray everyone has pain free day and I pray for a cure for all

> arthritis. God bless everyone and take care.

>

> gentle hugs

> Clora

[Guest guest]

You're making me hungry! Lol. Sounds like a wonderful day of good eats.

   elisaannh

-- My day

Hi everyone. I'm just coming in to write about my day. Today brekfast 2

hardboiled eggs, and a bowl of Fiber 1 cereal. For a mid morning snack, one

hardboiled egg. Lunch, some deli roast beef and cheese. For a mid

afternoon snack, I stopped and got a apple pecan chicken salad at 's.

I ate the pecans for a snack. For supper I had the chicken apple and pecan

salad, it had cheese, crazens, and lettuces. It came with pomegranate

vinegrete dressing which I didn't put on. I just ate the salad plain.

Drank water today. I have practice at church tonight so I'll do my workout

when I get back and if I get hungry I'll eat the rest of the salad. There's

mostly lettuce left in it.

Ilniski and Nuncio

twitter: www.twitter.com/clady2009

------------------------------------