Re: RA MAKES ME SOOOOOOO MAD!!!!

[Guest guest]

Hi KD,

Well...where to start...take a deep breath. I can feel your

frustration....and your pain. Things will get better, they really will.

You've got to try

really hard to focus on all the positives you've got going on. You were able

to ride horses with your daughter, you were able to carve that pumpkin with

your son. With RA, you have to learn how to divide your time up. Sad but true.

Maybe do 10 min in, do something else while sitting or resting, and then go

back to the other activity. Bring in some adaptive equipment to help you in

the kitchen, you can use your husband and your son to open jars and cans

, but if they aren't home, there are things you can purchase to help you that

are relatively inexpensive. Once you get used to having to do things like

this, it gets a bit easier to adjust to. I'm so glad you joined this list.

It's a great place for you to be, and don't be afraid to vent. We do

understand. Do you have a supportive and understanding family? Regarding the

MTX,

yup it can be a little scary, but the benefits are great!!!! Get into a

routine and stick with it when taking it. Most likely it will take about 4 to

5

weeks to work, but everyone is different. Please remain positive that it

will help you.

It has done wonders for so many people including me. It's OK to get mad,

but don't get mad for too long, there is way too much to enjoy out there!

Hugs and Smiles,

Heidi in Mass....

In a message dated 10/22/2008 8:01:03 P.M. Eastern Daylight Time,

stablegal@... writes:

OK ... I'm so frustrated and mad with RA right now! I'm tired of being

tired and I'm tired of hurting!

A couple weeks ago I tried to have a fun day with my daughter riding horses

.... which is something we've been doing together for a couple years and I

absolutely love the time we get to spend together ... but, since my RA

diagnoses I've had a hard time having enough energy. A couple weeks ago I

had to stop and just watch (after sitting in my car and crying) because I

just couldn't do any more. It was still great to watch my daughter, but

nothing like sharing the fun with her.

And tonight ... I just tried to carve a small pumpkin with my son. By

small, I mean the diameter is only about 6-8 inches. I had the hardest time

even cutting the top off! My hands are killing me now. After cutting it

off and emptying the " guts " I had to tell my son we would have to wait to do

any more.

I know things will get better once I'm on the right meds, but I'm so just

freaking angry right now!!! I feel like I'm losing time with my husband and

both of my kids!!! I don't really want to say " why me " because if it wasn't

me it would have to be someone else and I don't wish this on anyone. But

.... why does it have to be so hard?!?!

Have others of you gone through this type of anger, frustration, pity ...

whatever you want to call it??? What did you do to help get past it?

Thanks for letting me vent .......

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[Guest guest]

Yes I've been there. Except I don't do the horse thing. I was making

dinner tonight and opening cans with a hand held opener, and I was

thinking " this is awesome I don't hurt and I'm not dependant on hubby

to open cans and jars anymore "

Before I started my meds and for weeks afterwards I wondered if I would

ever feel better. I do now and hope you do soon. Feeling like a

failure to your kids and family is the worst. I hope you kids and

family are understanding.

Diane

[Guest guest]

I go through these range of emotions daily! ((hugs))

I get so frustrated that I can't get down on the floor to play with my

2 yr old. That I can't color with my 8 year old. That I can't hold

cards to play UNO with my 11 year old. That I don't have to energy to

do much of anything with them anymore. That I can no longer knit or do

cross switch. That I can't open the stinking pull tab on my soup can.

And the list goes on & on...We are carving pumpkins this weekend & I

am already dreading it.

My kids & hubby are very supportive and understanding & that is what

helps pull me through each day. I never realized how taxing chronic pain

& exhaustion can be on your mind before this disease took over just

about one year ago. It stinks!

I hope each day gets easier for all of us real soon!!

>

> OK ... I'm so frustrated and mad with RA right now! I'm tired of being

> tired and I'm tired of hurting!

>

> A couple weeks ago I tried to have a fun day with my daughter riding

horses

> ... which is something we've been doing together for a couple years

and I

> absolutely love the time we get to spend together ... but, since my RA

> diagnoses I've had a hard time having enough energy. A couple weeks

ago I

> had to stop and just watch (after sitting in my car and crying)

because I

> just couldn't do any more. It was still great to watch my daughter, but

> nothing like sharing the fun with her.

>

> And tonight ... I just tried to carve a small pumpkin with my son. By

> small, I mean the diameter is only about 6-8 inches. I had the

hardest time

> even cutting the top off! My hands are killing me now. After

cutting it

> off and emptying the " guts " I had to tell my son we would have to

wait to do

> any more.

>

> I know things will get better once I'm on the right meds, but I'm so

just

> freaking angry right now!!! I feel like I'm losing time with my

husband and

> both of my kids!!! I don't really want to say " why me " because if

it wasn't

> me it would have to be someone else and I don't wish this on anyone.

But

> ... why does it have to be so hard?!?!

>

> Have others of you gone through this type of anger, frustration,

pity ...

> whatever you want to call it??? What did you do to help get past it?

>

> Thanks for letting me vent .......

>

>

>