Guest guest Posted October 20, 2008 Report Share Posted October 20, 2008 Hi, I hate prednisone. LOL. Although I understand it's helpfulness, it turns me into a tazmanian devil on speed. And that's at 10 mg. I remember when I first went to the Rheumatologist, the one I loved, who left me for Cleveland! waaaaaaaaaaaaaaaaaa. Anyway, see, I must be ADD...anyway...I had to tell him how crazed I get, so he bargained with me, and told me I had to take some, so we made a deal that I would take 5 mg, BUT...if I called him with a headache, AND HE WOULD KNOW IT...that he would allow me to cut it in half without a problem.....lol. I lasted 29 days on 5mg, and approx 31 days on 2.5......it's awful, I cannot take the headache I get from it, not even tylenol helps...I don't get hungry for it, for food anyway. I want to eat people. One of my friends likes to take me shopping, because she says I am not afraid to get good buys in the stores if I see something priced wrong...I'm a " go getter " ....I'm never mean, just real....assertive, I guess. But it makes me feel out of control at 5, so 10 is flat out scary to me and unsafe for others!!!! hehehehe. Heidi in Mass. aka Semi-Colon aka Tazmanian Devil Go for it Clora!!! LOL In a message dated 10/20/2008 10:26:37 A.M. Eastern Daylight Time, clora4jesus@... writes: Bob and group; Yes indeed Bob we do have a love/hate relationship with prednisone..prednisone..<WBR>. I was waiting to use that line ever si I couldnt wait to find out what it meant too. Finally my rheumy put me on prednisone while I wait approval for humira injections from my insurance company thus I learned the love/hate relatioship we have with prednisone..wit Awe yes I also gained weight while my brief time on prednisone..Awe think it was about 20 pounds... My weight was already a problem I definately didnt need an extra 20 pounds... MTX I am alergic to it so I can't take it... Yes take notes to your rheumy,,, I forget to bring something every time I see her.. gentle hugs Clora ************************************************************* > After failing to wean down from 20MG to 15MG a couple weeks ago, I > tried once again this last week to make the leap. Partially justified > in my mind due to the fact that it was urged by my Rheumy, even though > it was she who told me to return to 20MG after the failure, but also I > felt another week had gone by since starting the Methotrexate, albeit > a small training wheels dose, and I have not been happy with the side > effects that comes along with Prednisone. > > Since going on a regular dose of 20MG of Prednisone, while it's > allowed me to function in society with RA, I'm gained a good 20 > pounds, I've begun to retain water and I'm beginning to see that > chubby cheek chipmunk look that seems to being one of the more visible > signs of Prednisone. Not to mention I can't sleep without the help of > a sleep aid which then in turn makes me feel like I'm not fully rested > despite 6 hours of sleep. Not sure if depression is a direct side > effect of Pred. but I'm seeing the early signs of that too but I > suspect it's just the collective effects of everything that goes along > with RA. > > I see my Rheumy later today and I suspect we'll have a lot to talk > about. Not sure what to talk about first. I know we need to adjust > the MTX since the starting dose of 7.5MG I don't believe will stave > off the symptoms of RA is we're going to be able to bring the Pred > down any further. We'll talk about going directly to injections > because of my GI history. We'll also talk about my sleep issues and > that Lunesta isn't really helping all that much. We'll also talk > about the depression and maybe I need to consider an anti-depressant > (Cymbalta?). Then there is the fluid retention issue. Ohh, the joys > of RA. I suspect I may need to brings some notes with me since I'm > sure I'll forget something. Of course we'll talk about the pain. > That's always a topic. > Hope everyone has a great day. > Bob **************New MapQuest Local shows what's happening at your destination. Dining, Movies, Events, News & more. Try it out (http://local.mapquest.com/?ncid=emlcntnew00000002) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 20, 2008 Report Share Posted October 20, 2008 Bob and group; Yes indeed Bob we do have a love/hate relationship with prednisone... I was waiting to use that line ever since I heard it.. I couldnt wait to find out what it meant too. Finally my rheumy put me on prednisone while I wait approval for humira injections from my insurance company thus I learned the love/hate relatioship we have with prednisone.... Awe yes I also gained weight while my brief time on prednisone... I think it was about 20 pounds... My weight was already a problem I definately didnt need an extra 20 pounds... MTX I am alergic to it so I can't take it... Yes take notes to your rheumy,,, I forget to bring something every time I see her.. gentle hugs Clora ************************************************************* > After failing to wean down from 20MG to 15MG a couple weeks ago, I > tried once again this last week to make the leap. Partially justified > in my mind due to the fact that it was urged by my Rheumy, even though > it was she who told me to return to 20MG after the failure, but also I > felt another week had gone by since starting the Methotrexate, albeit > a small training wheels dose, and I have not been happy with the side > effects that comes along with Prednisone. > > Since going on a regular dose of 20MG of Prednisone, while it's > allowed me to function in society with RA, I'm gained a good 20 > pounds, I've begun to retain water and I'm beginning to see that > chubby cheek chipmunk look that seems to being one of the more visible > signs of Prednisone. Not to mention I can't sleep without the help of > a sleep aid which then in turn makes me feel like I'm not fully rested > despite 6 hours of sleep. Not sure if depression is a direct side > effect of Pred. but I'm seeing the early signs of that too but I > suspect it's just the collective effects of everything that goes along > with RA. > > I see my Rheumy later today and I suspect we'll have a lot to talk > about. Not sure what to talk about first. I know we need to adjust > the MTX since the starting dose of 7.5MG I don't believe will stave > off the symptoms of RA is we're going to be able to bring the Pred > down any further. We'll talk about going directly to injections > because of my GI history. We'll also talk about my sleep issues and > that Lunesta isn't really helping all that much. We'll also talk > about the depression and maybe I need to consider an anti-depressant > (Cymbalta?). Then there is the fluid retention issue. Ohh, the joys > of RA. I suspect I may need to brings some notes with me since I'm > sure I'll forget something. Of course we'll talk about the pain. > That's always a topic. > Hope everyone has a great day. > Bob Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 20, 2008 Report Share Posted October 20, 2008 Heidi in Mass and group; Haaaaaaaaaaaaa... tazmanian devil.. I remember watching that devil Saturday mornings... Indeed I can just see you twirling around like taz through the house and yard haaaaaaaaaaaaa ,, I will leave your very funny post below so everyone knows what I am talking about. Oh also everyone please erase the other post beneath you when posting except the one your talking about ... If needed there.. our moderator has to read everything to pass it on to us... Most of the time I forget to do this procedure.. I just brought it up for our newbees who doesnt already know... OMG Heidi you really got me laughing ROFL haaaaaaaaaaaaaa.... When I am on prednisone cardboard taste good.. (no I dont eat cardboard) When eating a hamburger I ate part of the wrapper by accident and it taste as good as the burger haaaaaaaaa.... gentle hugs Clora ****************************************************************** > > Hi, > > I hate prednisone. LOL. Although I understand it's helpfulness, it turns me > into a tazmanian devil on speed. And that's at 10 mg. I remember when I > first went to the Rheumatologist, the one I loved, who left me for Cleveland! > waaaaaaaaaaaaaaaaaa. Anyway, see, I must be ADD...anyway...I had to tell him > how crazed I get, so he bargained with me, and told me I had to take some, so > we made a deal that I would take 5 mg, BUT...if I called him with a headache, > AND HE WOULD KNOW IT...that he would allow me to cut it in half without a > problem.....lol. I lasted 29 days on 5mg, and approx 31 days on 2.5......it's > awful, I cannot take the headache I get from it, not even tylenol helps...I > don't get hungry for it, for food anyway. I want to eat people. One of my > friends likes to take me shopping, because she says I am not afraid to get good > buys in the stores if I see something priced wrong...I'm a " go > getter " ....I'm never mean, just real....assertive, I guess. But it makes me feel out of > control at 5, so 10 is flat out scary to me and unsafe for others!!!! > hehehehe. > > Heidi in Mass. > aka Semi-Colon > aka Tazmanian Devil > > Go for it Clora!!! LOL > > Quote Link to comment Share on other sites More sharing options...
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