Re: OT Fwd: good description of illness

[Guest guest]

Hi Heidi:

Whoever wrote this knew what they were talking about. Either disease

makes you feel this way.

Wouldn't you like to give a copy of this to those that say " Just take a

aspirin, and you will be fine " . Or, " you can't be that bad off " . Or,

" Just normal aches and pains. " So you think????

Thanks for this, and wishing you pain free days. Hang in there this

week. My prayers are always with you. I care.

Hugs,

Barbara

>

> This is about Fibromyalgia but some can apply to those of us with RA

and

> some have this also.

>

> Heidi in Mass.

>

>

>

> ____________________________________

>

>

>

>

> Hi....My Name is Fibromyalgia, and I'm an Invisible Chronic Illness.

>

> I am now velcroed to you for life.

>

> Others around you can't see me or hear me,

> but YOUR body feels me. I can attack you anywhere and anyhow I please.

>

> I can cause severe pain or, if I'm in a good mood, I can just cause

you to

> ache all over.

>

> Remember when you and Energy ran around together and had fun?

> I took Energy from you, and gave you Exhaustion.

>

> Try to have fun now! I also took Good Sleep from you and, in its

place, gave

> you Brain Fog.

>

> I can make you tremble internally or make you feel cold or hot when

everyone

> else feels normal. Oh, yeah, I can make you feel anxious or depressed,

too.

>

> If you have something planned, or are looking forward to a great day,

I can

> take that away, too. You didn't ask for me.

>

> I chose you for various reasons:

> That virus you had that you never recovered from, or that car

accident, or

> maybe it was the years of abuse and trauma.

>

> Well, anyway, I'm here to stay!

>

> I hear you're going to see a doctor who can get rid of me.

>

> I'm rolling on the floor, laughing. Just try.

>

> You will have to go to many, many doctors until you find one who can

help

> you effectively.

>

> You will be put on pain pills, sleeping pills, energy pills, told you

are

> suffering from anxiety or depression, given a TENs unit, get massaged,

told

> if you just sleep and exercise properly I will go away, told to think

> positively, poked, prodded, and MOST OF ALL, not taken as seriously as

you

> feel when you cry to the doctor how debilitating life is every day.

>

> Your family, friends and coworkers will all listen to you until they

just

> get tired of hearing about how I make you feel, and that I'm a

debilitating

> disease.

>

> Some of them will say things like " Oh, you are just having a bad day "

or

> " Well, remember, you can't do the things you use to do 20 YEARS ago " ,

not

> hearing that you said 20 DAYS ago.

>

> Some will just start talking behind your back, while you slowly feel

that

> you are losing your dignity trying to make them understand, especially

when

> you are in the middle of a conversation with a " Normal " person, and

can't

> remember what you were going to say next!

>

> In closing, (I was hoping that I kept this part a secret), but I guess

you

> already found out...

>

> The ONLY place you will get any support and understanding in dealing

with me

> is with Other People With Fibromyalgia.

>

>

>

>

>

>

>

>

> _____

>

>

>

>

> **************New MapQuest Local shows what's happening at your

destination.

> Dining, Movies, Events, News & more. Try it out

> (http://local.mapquest.com/?ncid=emlcntnew00000002)

>

>

>

[Guest guest]

Wow - Thanks, Heidi! That is an awesome description of EXACTLY what

that bugger, FMS, has done to me and many others. I copied/pasted it

into a Word Document - I'm emailing this to family who just " don't get

it " ...............Doreen

>

> This is about Fibromyalgia but some can apply to those of us with

> RA and some have this also.

>

> Heidi in Mass.

>

>____________________________________

>

> Hi....My Name is Fibromyalgia, and I'm an Invisible Chronic Illness.

>

> I am now velcroed to you for life.

>

> Others around you can't see me or hear me, but YOUR body feels me.

> I can attack you anywhere and anyhow I please.

>

> I can cause severe pain or, if I'm in a good mood, I can just cause

> you to ache all over.

>

> Remember when you and Energy ran around together and had fun? I

> took Energy from you, and gave you Exhaustion.

>

> Try to have fun now! I also took Good Sleep from you and, in its

> place, gave you Brain Fog.

>

> I can make you tremble internally or make you feel cold or hot

> when everyone else feels normal. Oh, yeah, I can make you feel

> anxious or depressed, too.

>

> If you have something planned, or are looking forward to a great

> day, I can take that away, too. You didn't ask for me.

>

> I chose you for various reasons:

> That virus you had that you never recovered from, or that car

> accident, or maybe it was the years of abuse and trauma.

>

> Well, anyway, I'm here to stay!

>

> I hear you're going to see a doctor who can get rid of me.

>

> I'm rolling on the floor, laughing. Just try.

>

> You will have to go to many, many doctors until you find one who

> can help you effectively.

>

> You will be put on pain pills, sleeping pills, energy pills, told

> you are suffering from anxiety or depression, given a Tens unit,

> get massaged, told if you just sleep and exercise properly I will

> go away, told to think positively, poked, prodded, and MOST OF ALL,

> not taken as seriously as you feel when you cry to the doctor how

> debilitating life is every day.

>

> Your family, friends and coworkers will all listen to you until

> they just get tired of hearing about how I make you feel, and that

> I'm a debilitating disease.

>

> Some of them will say things like " Oh, you are just having a bad

> day " or " Well, remember, you can't do the things you use to do 20

> YEARS ago " , not hearing that you said 20 DAYS ago.

>

> Some will just start talking behind your back, while you slowly

> feel that you are losing your dignity trying to make them

> understand, especially when you are in the middle of a

> conversation with a " Normal " person, and can't remember what you

> were going to say next!

>

> In closing, (I was hoping that I kept this part a secret), but I

> guess you already found out...

>

> The ONLY place you will get any support and understanding in

> dealing with me is with Other People With Fibromyalgia.

>