RE: It just keeps coming- Neurontin questions

[Guest guest]

, I take 900 mg of Neurontin a day. I have for over 2 years.

This was prescribed for my neuropathy and it is usually used for

neurological problems. It is also commonly prescribed for epilepsy. I

guess it is also used for fibromyalgia and I think a number in our group

have been diagnosed with that so should have more information for you.

Neurontin sometimes makes you sleepy, but 100 mg is a very low dose. Even

my 900 mg is considered low for neurological problems. I was put on Lyrica

at one point, but it made me feel spaced out so I went right back to

Neurontin within 2 or 3 days.

I hope that someone can relay their experience with Neurontin and fibro.

Good luck,

Dorothy

_____

From: [mailto: ] On

Behalf Of jaayimee

Sent: Thursday, August 14, 2008 5:51 PM

Subject: [ ] It just keeps coming- Neurontin questions

Hi all. Well since my rheumys blood test showed my vitamin D at 29 he

tols me to take a supplement and then see how it affects the different

joint pain and such. Well, as you can imagine, I was pretty upset with

that because I am hurting so I made an appointment with my internist

and saw her today. I told her about a new pain I have been having and

some memory issues. I really can't explain the pain. It starts at my

neck and just radiates through my body. I would have it every once in

awhile before and every time I would sneeze but now it has shown up

constantly for abot a month. Anyways she said fibromyalgia. I'm not

sure if I spelled it rght but she said that she is really leaning that

way with everything coming up normal and the pain I am describing and

some thing about pressure points. So, I am now on a drug called

Neurontin. She started me out at 100mg a day since I am so sensitive to

meds and we will see how it affects me and increase from there. So, who

has been or is on this med and what do I expect. Do I expect to feel

better quickly? And what about side effects? She wants me on Lyrica but

said my insurance will require we try this first.

Thank you,

[Guest guest]

,

I was started on Neurontin for IC. a bladder disease, it helps dull the

nerves to the bladder. My pain mgt Dr also kept upping the dose to help with

the Fibro pain. I think it helps, its not one of those you can just stop if

you want to. It has to be tapered down. I take 2700 mg a day and was told be

a friend that his Neuro has patients that take up to 5000mg a day ( that is

usually for those with seizures however.) The only side effect I had from it

was it made me a bid drowsy at first but no longer. Or if it does there is

no way to tell if its the culprit or one of the other bazillion pills I take

is LOL> Good luck and I hope it works well for you.

Heidi M

On Thu, Aug 14, 2008 at 7:23 PM, Dorothy <dorv@...> wrote:

> , I take 900 mg of Neurontin a day. I have for over 2 years.

>

> This was prescribed for my neuropathy and it is usually used for

> neurological problems. It is also commonly prescribed for epilepsy. I

> guess it is also used for fibromyalgia and I think a number in our group

> have been diagnosed with that so should have more information for you.

>

> Neurontin sometimes makes you sleepy, but 100 mg is a very low dose. Even

> my 900 mg is considered low for neurological problems. I was put on Lyrica

> at one point, but it made me feel spaced out so I went right back to

> Neurontin within 2 or 3 days.

>

> I hope that someone can relay their experience with Neurontin and fibro.

>

> Good luck,

>

> Dorothy

>

> _____

>

> From: < %40> [mailto:

> < %40>] On

> Behalf Of jaayimee

> Sent: Thursday, August 14, 2008 5:51 PM

> < %40>

> Subject: [ ] It just keeps coming- Neurontin questions

>

> Hi all. Well since my rheumys blood test showed my vitamin D at 29 he

> tols me to take a supplement and then see how it affects the different

> joint pain and such. Well, as you can imagine, I was pretty upset with

> that because I am hurting so I made an appointment with my internist

> and saw her today. I told her about a new pain I have been having and

> some memory issues. I really can't explain the pain. It starts at my

> neck and just radiates through my body. I would have it every once in

> awhile before and every time I would sneeze but now it has shown up

> constantly for abot a month. Anyways she said fibromyalgia. I'm not

> sure if I spelled it rght but she said that she is really leaning that

> way with everything coming up normal and the pain I am describing and

> some thing about pressure points. So, I am now on a drug called

> Neurontin. She started me out at 100mg a day since I am so sensitive to

> meds and we will see how it affects me and increase from there. So, who

> has been or is on this med and what do I expect. Do I expect to feel

> better quickly? And what about side effects? She wants me on Lyrica but

> said my insurance will require we try this first.

> Thank you,

>

>

>

[Guest guest]

Hi - I take Neurontin for my Fibromyalgia, too. My Rheumy

started me out at 600mg at night only (I also have restless legs).

Now he's increased me to 3 times daily and the only side effects I

ever had was some foot swelling in the very beginning, but that went

away in a few days. It does make me sleepy at times, but I don't

drive that often anymore, so its not an issue. When I was increased

to the 3x per day dosage, I noticed an improvement almost

immediately. I am nowhere near normal now, but I would say the

Fibromyalgia pain is considerably better than without the Neurontin.

Hope that helped to answer your question............Doreen

>

> Hi all. Well since my rheumys blood test showed my vitamin D at 29

> he tols me to take a supplement and then see how it affects the

> different joint pain and such. Well, as you can imagine, I was

> pretty upset with that because I am hurting so I made an

> appointment with my internist and saw her today. I told her about a

> new pain I have been having and some memory issues. I really can't

> explain the pain. It starts at my neck and just radiates through my

> body. I would have it every once in awhile before and every time I

> would sneeze but now it has shown up constantly for abot a month.

>

> Anyways she said fibromyalgia. I'm not sure if I spelled it rght

> but she said that she is really leaning that way with everything

> coming up normal and the pain I am describing and some thing about

> pressure points. So, I am now on a drug called Neurontin. She

> started me out at 100mg a day since I am so sensitive to meds and

> we will see how it affects me and increase from there. So, who

> has been or is on this med and what do I expect. Do I expect to

> feel better quickly? And what about side effects? She wants me on

> Lyrica but said my insurance will require we try this first.

> Thank you,

>

>

[Guest guest]

,

I didn't receive the relief from Neurontin that was wanted.The Lyrica

has helped me for the fibromyalgia but has led to significant weight

gain,which is not so good for the RA.I wanted to tell you of my

experiences with the two drugs.Hopefully,there will be more posts on

this subject.Hope you get relief from one of the two.

[Guest guest]

KS - don't feel bad about the weight gain with Lyrica. I gained back

every single one of the 8 pounds I had lost when they upped my

Neurontin. I just can't win for losing with my weight - I'm at 303

now . At least the med is working somewhat for the FMS - otherwise

that would have been a double insult....Doreen

>

> ,

> I didn't receive the relief from Neurontin that was wanted.The Lyrica

> has helped me for the fibromyalgia but has led to significant weight

> gain,which is not so good for the RA.I wanted to tell you of my

> experiences with the two drugs.Hopefully,there will be more posts on

> this subject.Hope you get relief from one of the two.

>