New to this group

[Guest guest]

Hi Marcy! Welcome to the group! Sounds like you are already moving

along well with your son's treatment. Where is he going for

treatment? what is his name? we would love to see a picture of him!

Natasha

Atlanta

--- In Plagiocephaly , " cowtroy8 " <cowtroy8@a...>

wrote:

> Hi. My name is Marcy. I have been searching the web for info on

> plagiocephaly, and I came upon this board. My son is 5 months old,

> and was diagnosed with positional brachycephaly. He has been

sleeping

> the night (9pm to 9am) since he was about 2 months old. He sleeps

in

> one position-on his back with his hands behind his head facing

> directly at the ceiling. He never moved his head from side to side.

> Me being a new mom never realized that I should move his head back

> and forth each night. I thought, " hey, my baby is sleeping through

> the night. This is great! " I think his head started to flatten

early

> on from him being in the same position every time he slept (night

and

> daily naps). I now put him to sleep on his tummy for his daily

> naps....a little late though. Anyway, we had the casting today.

> Everything went well. The band will be here on 8/30. I am excited

to

> finally be starting. Wish me luck!

[Guest guest]

Hi Marcy,

Welcome to the group. Your son is at a great young age to start

helmet therapy. Where will you be getting his helmet? I'm sure

we're bound to have members in your area to give you some local

advice. Please don't feel guilty about the plagio either. You did

everything they told you by backsleeping him. Sheesh, my daughter

will be two in a few months and still doesn't sleep through the

night, but still managed to have severe plagio . Let us know how

the fitting goes!

, mom to Hannah, DOCgrad

Cape Cod, Ma

--- In Plagiocephaly , " cowtroy8 " <cowtroy8@a...>

wrote:

> Hi. My name is Marcy. I have been searching the web for info on

> plagiocephaly, and I came upon this board. My son is 5 months old,

> and was diagnosed with positional brachycephaly. He has been

sleeping

> the night (9pm to 9am) since he was about 2 months old. He sleeps

in

> one position-on his back with his hands behind his head facing

> directly at the ceiling. He never moved his head from side to

side.

> Me being a new mom never realized that I should move his head back

> and forth each night. I thought, " hey, my baby is sleeping through

> the night. This is great! " I think his head started to flatten

early

> on from him being in the same position every time he slept (night

and

> daily naps). I now put him to sleep on his tummy for his daily

> naps....a little late though. Anyway, we had the casting today.

> Everything went well. The band will be here on 8/30. I am excited

to

> finally be starting. Wish me luck!

[Guest guest]

Marcy, WELCOME Good luck and GOOD FOR YOU for doing something about

it. My, I could've written your post myself, it all sounded very

familiar! You will be so happy you did this. He should tolerate it

just fine and continue sleeping well for you. We have had no

problems whatsoever. I look forward to hearing from you again.

Sue

Colin F. 10 mos.

StarBand 6/29

Buffalo, NY

--- In Plagiocephaly , " cowtroy8 " <cowtroy8@a...>

wrote:

> Hi. My name is Marcy. I have been searching the web for info on

> plagiocephaly, and I came upon this board. My son is 5 months old,

> and was diagnosed with positional brachycephaly. He has been

sleeping

> the night (9pm to 9am) since he was about 2 months old. He sleeps

in

> one position-on his back with his hands behind his head facing

> directly at the ceiling. He never moved his head from side to side.

> Me being a new mom never realized that I should move his head back

> and forth each night. I thought, " hey, my baby is sleeping through

> the night. This is great! " I think his head started to flatten

early

> on from him being in the same position every time he slept (night

and

> daily naps). I now put him to sleep on his tummy for his daily

> naps....a little late though. Anyway, we had the casting today.

> Everything went well. The band will be here on 8/30. I am excited

to

> finally be starting. Wish me luck!

[Guest guest]

Hi Natasha. Thanks for the welcome. My son's name is , and he

is being treated at the Paramus, NJ site. I don't have my scanner

hooked up yet, but I hope to soon to show you all his picture.

> > Hi. My name is Marcy. I have been searching the web for info on

> > plagiocephaly, and I came upon this board. My son is 5 months

old,

> > and was diagnosed with positional brachycephaly. He has been

> sleeping

> > the night (9pm to 9am) since he was about 2 months old. He sleeps

> in

> > one position-on his back with his hands behind his head facing

> > directly at the ceiling. He never moved his head from side to

side.

> > Me being a new mom never realized that I should move his head

back

> > and forth each night. I thought, " hey, my baby is sleeping

through

> > the night. This is great! " I think his head started to flatten

> early

> > on from him being in the same position every time he slept (night

> and

> > daily naps). I now put him to sleep on his tummy for his daily

> > naps....a little late though. Anyway, we had the casting today.

> > Everything went well. The band will be here on 8/30. I am excited

> to

> > finally be starting. Wish me luck!

[Guest guest]

Thanks . We are at the Paramus, NJ site. I know I shouldn't feel

guilty, and usually I don't. But some people just say the stupidest

things like, " Oh I have never seen any baby with a helmet on. How did

his head get like that? Did you keep in his a swing or carseat all

day? " It gets me so angry because I did not keep him in a swing or

carseat all day. I interacted with him so much. I held him, but him

on his tummy to play, etc....but his darn 12 hour nights did it. Oh

well. I don't listen to negative comments anymore. I am excited to

get this for , not embarrassed.

How is 's head now?

> > Hi. My name is Marcy. I have been searching the web for info on

> > plagiocephaly, and I came upon this board. My son is 5 months

old,

> > and was diagnosed with positional brachycephaly. He has been

> sleeping

> > the night (9pm to 9am) since he was about 2 months old. He sleeps

> in

> > one position-on his back with his hands behind his head facing

> > directly at the ceiling. He never moved his head from side to

> side.

> > Me being a new mom never realized that I should move his head

back

> > and forth each night. I thought, " hey, my baby is sleeping

through

> > the night. This is great! " I think his head started to flatten

> early

> > on from him being in the same position every time he slept (night

> and

> > daily naps). I now put him to sleep on his tummy for his daily

> > naps....a little late though. Anyway, we had the casting today.

> > Everything went well. The band will be here on 8/30. I am excited

> to

> > finally be starting. Wish me luck!

[Guest guest]

Thank you Sue. Yes, I hope he continues to sleep great too. But if he

doesn't. It's OK. It is worth some sleepless nights to make my son

look/feel normal when he is older, ya know. Everyone says their

babies had no problem sleeping, so I hope he is the same!

> > Hi. My name is Marcy. I have been searching the web for info on

> > plagiocephaly, and I came upon this board. My son is 5 months

old,

> > and was diagnosed with positional brachycephaly. He has been

> sleeping

> > the night (9pm to 9am) since he was about 2 months old. He sleeps

> in

> > one position-on his back with his hands behind his head facing

> > directly at the ceiling. He never moved his head from side to

side.

> > Me being a new mom never realized that I should move his head

back

> > and forth each night. I thought, " hey, my baby is sleeping

through

> > the night. This is great! " I think his head started to flatten

> early

> > on from him being in the same position every time he slept (night

> and

> > daily naps). I now put him to sleep on his tummy for his daily

> > naps....a little late though. Anyway, we had the casting today.

> > Everything went well. The band will be here on 8/30. I am excited

> to

> > finally be starting. Wish me luck!

[Guest guest]

Hi Marcy. My name is Lori and I am pretty new to this group too. My son is 4.5 months old and we had the same problem. He too sleeps on his back with his hands up behind his head but he sleeps with his neck tilted a little to the side. Don't feel bad we all listened to the "Back to Sleep" doctors. I should have listened to my mother who told me to put him on his stomach and sides some of the time, but the hospital had us so paranoid about SIDS. The pamphlets we got said the ONLY way to sleep is on their back. Now he won't sleep in any other position.

Anyway let us know how it goes. I am getting ready to appeal our insurance's denial for my son's DOC Band.

Loricowtroy8 <cowtroy8@...> wrote:

Hi. My name is Marcy. I have been searching the web for info on plagiocephaly, and I came upon this board. My son is 5 months old, and was diagnosed with positional brachycephaly. He has been sleeping the night (9pm to 9am) since he was about 2 months old. He sleeps in one position-on his back with his hands behind his head facing directly at the ceiling. He never moved his head from side to side. Me being a new mom never realized that I should move his head back and forth each night. I thought, "hey, my baby is sleeping through the night. This is great!" I think his head started to flatten early on from him being in the same position every time he slept (night and daily naps). I now put him to sleep on his tummy for his daily naps....a little late though. Anyway, we had the casting today. Everything went well. The band will be here

on 8/30. I am excited to finally be starting. Wish me luck!For more plagio info

[Guest guest]

Hi Marcy,

Welcome to the group! I can't wait to see his pics. Your son is at a

great age to receive excellent correction from a band! Keep us posted.

--- In Plagiocephaly , " cowtroy8 " <cowtroy8@a...>

wrote:

> Hi. My name is Marcy. I have been searching the web for info on

> plagiocephaly, and I came upon this board. My son is 5 months old,

> and was diagnosed with positional brachycephaly. He has been

sleeping

> the night (9pm to 9am) since he was about 2 months old. He sleeps

in

> one position-on his back with his hands behind his head facing

> directly at the ceiling. He never moved his head from side to side.

> Me being a new mom never realized that I should move his head back

> and forth each night. I thought, " hey, my baby is sleeping through

> the night. This is great! " I think his head started to flatten

early

> on from him being in the same position every time he slept (night

and

> daily naps). I now put him to sleep on his tummy for his daily

> naps....a little late though. Anyway, we had the casting today.

> Everything went well. The band will be here on 8/30. I am excited

to

> finally be starting. Wish me luck!

[Guest guest]

Hi Lori. Is your son in the DOC band now, or is he out already? I

wish you luck with the appeal!

> Hi. My name is Marcy. I have been searching the web for info on

> plagiocephaly, and I came upon this board. My son is 5 months old,

> and was diagnosed with positional brachycephaly. He has been

sleeping

> the night (9pm to 9am) since he was about 2 months old. He sleeps

in

> one position-on his back with his hands behind his head facing

> directly at the ceiling. He never moved his head from side to side.

> Me being a new mom never realized that I should move his head back

> and forth each night. I thought, " hey, my baby is sleeping through

> the night. This is great! " I think his head started to flatten

early

> on from him being in the same position every time he slept (night

and

> daily naps). I now put him to sleep on his tummy for his daily

> naps....a little late though. Anyway, we had the casting today.

> Everything went well. The band will be here on 8/30. I am excited

to

> finally be starting. Wish me luck!

>

>

>

> For more plagio info

[Guest guest]

Thanks . As soon as I can scan pics in I will!

> > Hi. My name is Marcy. I have been searching the web for info on

> > plagiocephaly, and I came upon this board. My son is 5 months

old,

> > and was diagnosed with positional brachycephaly. He has been

> sleeping

> > the night (9pm to 9am) since he was about 2 months old. He sleeps

> in

> > one position-on his back with his hands behind his head facing

> > directly at the ceiling. He never moved his head from side to

side.

> > Me being a new mom never realized that I should move his head

back

> > and forth each night. I thought, " hey, my baby is sleeping

through

> > the night. This is great! " I think his head started to flatten

> early

> > on from him being in the same position every time he slept (night

> and

> > daily naps). I now put him to sleep on his tummy for his daily

> > naps....a little late though. Anyway, we had the casting today.

> > Everything went well. The band will be here on 8/30. I am excited

> to

> > finally be starting. Wish me luck!

[Guest guest]

Hi Marcy!

My son's name is and we got to CT in paramus also. He is 6

months old and has had his band for a week. Good luck!

Jenn & in NJ (brachy)

> > > Hi. My name is Marcy. I have been searching the web for info

on

> > > plagiocephaly, and I came upon this board. My son is 5 months

> old,

> > > and was diagnosed with positional brachycephaly. He has been

> > sleeping

> > > the night (9pm to 9am) since he was about 2 months old. He

sleeps

> > in

> > > one position-on his back with his hands behind his head facing

> > > directly at the ceiling. He never moved his head from side to

> side.

> > > Me being a new mom never realized that I should move his head

> back

> > > and forth each night. I thought, " hey, my baby is sleeping

> through

> > > the night. This is great! " I think his head started to flatten

> > early

> > > on from him being in the same position every time he slept

(night

> > and

> > > daily naps). I now put him to sleep on his tummy for his daily

> > > naps....a little late though. Anyway, we had the casting

today.

> > > Everything went well. The band will be here on 8/30. I am

excited

> > to

> > > finally be starting. Wish me luck!

[Guest guest]

Hello, and welcome to the group.

You are starting tx at a really good age, so will be on his

way to a rounder noggin soon. Let us know how the fitting goes on

the 30th.

Sandy Willow's jellous mom (b/c of the sleeping issues) lol

--- In Plagiocephaly , " cowtroy8 " <cowtroy8@a...>

wrote:

> Hi. My name is Marcy. I have been searching the web for info on

> plagiocephaly, and I came upon this board. My son is 5 months old,

> and was diagnosed with positional brachycephaly. He has been

sleeping

> the night (9pm to 9am) since he was about 2 months old. He sleeps

in

> one position-on his back with his hands behind his head facing

> directly at the ceiling. He never moved his head from side to side.

> Me being a new mom never realized that I should move his head back

> and forth each night. I thought, " hey, my baby is sleeping through

> the night. This is great! " I think his head started to flatten

early

> on from him being in the same position every time he slept (night

and

> daily naps). I now put him to sleep on his tummy for his daily

> naps....a little late though. Anyway, we had the casting today.

> Everything went well. The band will be here on 8/30. I am excited

to

> finally be starting. Wish me luck!

[Guest guest]

Hi Marci,

welcome to the group. My son Aidan got his helmet six days ago and my

husband and I think we can already see a little improvement, still

quite flat but maybe more symetrical?

We live in London and most people here seem to have the Cranio helmet

fitted by Dr Blecher rather than a band.

Let us know how the little one does!

Good Luck!

Cerstin (mum of Squishy (Aidan))

> > > Hi. My name is Marcy. I have been searching the web for info on

> > > plagiocephaly, and I came upon this board. My son is 5 months

> old,

> > > and was diagnosed with positional brachycephaly. He has been

> > sleeping

> > > the night (9pm to 9am) since he was about 2 months old. He

sleeps

> > in

> > > one position-on his back with his hands behind his head facing

> > > directly at the ceiling. He never moved his head from side to

> side.

> > > Me being a new mom never realized that I should move his head

> back

> > > and forth each night. I thought, " hey, my baby is sleeping

> through

> > > the night. This is great! " I think his head started to flatten

> > early

> > > on from him being in the same position every time he slept

(night

> > and

> > > daily naps). I now put him to sleep on his tummy for his daily

> > > naps....a little late though. Anyway, we had the casting today.

> > > Everything went well. The band will be here on 8/30. I am

excited

> > to

> > > finally be starting. Wish me luck!

[Guest guest]

Hi Shari,

Welcome to the group! You will read about many success stories on

this group. Please go to the PHOTOS section and check out some B &

A pix for a start. Where are you going for treatment? There could

be other members in your area. Ask anything, we are here for

support!

Natasha

Atlanta, GA

--- In Plagiocephaly , " sbcollns " <sbcollns@y...>

wrote:

> Hi. My daughter is 5.5 months old and she was just diagnosed with

> plagiocephaly. She has torticolis too. We just had a catscan

done

> this morning which wasn't so great...she was fine but I was

upset.

> Next week she is getting fit for a helmet. I am having concerns

> with the helmet and it does bother me but I know it will help

her.

> I would love some support, suggestions, feedback, success stories,

> etc...from anyone regarding treatments, PT and wearing the

helmet.

> I appreciate this. I have learned that support is important so I

> would love to hear from you.

>

> Thanks... Shari

[Guest guest]

Shari,

Welcome to the group. Glad to hear that your daughter is going to be

treated for her tort and plagio. I understand your concerns and

just wanted to let you know that it's not as bad as you think. My

daughter has been in her helmet for 2 1/2 weeks and has been

perfectly fine. Will she be scanned or casted for her helmet?

didn't like the casting but was back to normal as soon as

it was over. Bring a bottle, pacifier or sucker to the casting

appt. My daughter doesn't drink bottles(picky breastfed baby) and

doesn't like pacifiers. I wasn't sure about giving a 6 month old a

sucker but now I wish I had. You have a good chance of one of these

working for you and is only neccessary for 5-10 minutes.

My daughter also had tort. I did neck exercises for her several

times a day and was fortunate to see a big improvement in a short

period of time. I do know that some members go to physical therapy

as well.

She has adjusted beautifully to her DOC Band and only had minor heat

rash the first day which went away with one application of 1%

hydrocortisone cream. She hasn't had any problems sleeping in it

either. Overall, its been a pleasant experience so far and I'm

grateful we decided to do it.

Good Luck,

Dianna

Mom to

DOC Band 9/13

plagio/brachy

Plagiocephaly , " sbcollns " <sbcollns@y...> wrote:

> Hi. My daughter is 5.5 months old and she was just diagnosed with

> plagiocephaly. She has torticolis too. We just had a catscan

done

> this morning which wasn't so great...she was fine but I was

upset.

> Next week she is getting fit for a helmet. I am having concerns

> with the helmet and it does bother me but I know it will help

her.

> I would love some support, suggestions, feedback, success stories,

> etc...from anyone regarding treatments, PT and wearing the

helmet.

> I appreciate this. I have learned that support is important so I

> would love to hear from you.

>

> Thanks... Shari

[Guest guest]

Shari,

You've already gotten some great replied from group members about

banding, etc. We do have a large section of before and after photos

in the photos/before and after section that show helmets and bands

DO work! Also, you can check out other sections of the group; in

the Files section, there is a file on tips for helping baby adjust

to a first helmet that you might find helpful!

I just wanted to post and welcome you to the group. I may have

missed one of your other posts, but where are you going for your

daughter's helmet,and what kind are you getting? We have a large

and active group, so there may be a member who has been to the

facility you are going to, or has experience with your brand of

helmet, that can provide some specific advice and support.

Take care, and do let us know how the helmet fitting goes,

Christie (Mom to Repo'd Remy)

--- In Plagiocephaly , " sbcollns " <sbcollns@y...>

wrote:

> Hi. My daughter is 5.5 months old and she was just diagnosed with

> plagiocephaly. She has torticolis too. We just had a catscan

done

> this morning which wasn't so great...she was fine but I was

upset.

> Next week she is getting fit for a helmet. I am having concerns

> with the helmet and it does bother me but I know it will help

her.

> I would love some support, suggestions, feedback, success stories,

> etc...from anyone regarding treatments, PT and wearing the

helmet.

> I appreciate this. I have learned that support is important so I

> would love to hear from you.

>

> Thanks... Shari

[Guest guest]

Hi- I am taking her to Hanger on Tuesday to get her hemlet. What do you think of that place? Give me any feedback or advice that you have. Thanks...Shariredlocks2003 <redlocks@...> wrote:

Shari,You've already gotten some great replied from group members about banding, etc. We do have a large section of before and after photos in the photos/before and after section that show helmets and bands DO work! Also, you can check out other sections of the group; in the Files section, there is a file on tips for helping baby adjust to a first helmet that you might find helpful!I just wanted to post and welcome you to the group. I may have missed one of your other posts, but where are you going for your daughter's helmet,and what kind are you getting? We have a large and active group, so there may be a member who has been to the facility you are going to, or has experience with your brand of helmet, that can provide some specific advice and support.Take care, and do let us know how the

helmet fitting goes,Christie (Mom to Repo'd Remy)> Hi. My daughter is 5.5 months old and she was just diagnosed with > plagiocephaly. She has torticolis too. We just had a catscan done > this morning which wasn't so great...she was fine but I was upset. > Next week she is getting fit for a helmet. I am having concerns > with the helmet and it does bother me but I know it will help her. > I would love some support, suggestions, feedback, success stories, > etc...from anyone regarding treatments, PT and wearing the helmet. > I appreciate this. I have learned that support is important so I > would love to hear from you.> > Thanks... ShariFor more plagio info

[Guest guest]

Hi, Natasha. Thanks for the welcome. I am taking Hannah to Hanger

for her helmet on Tuesday. I am not looking forward to the casting

but hope for it to go quickly. I know it will last an hour. I

think when I get the helmet and she starts wearing it than I will be

more comfortable. I think it is the unknown about how others will

react and how emotional I will feel that bothers me. Thanks for

your words of welcome!!

Shari

> > Hi. My daughter is 5.5 months old and she was just diagnosed

with

> > plagiocephaly. She has torticolis too. We just had a catscan

> done

> > this morning which wasn't so great...she was fine but I was

> upset.

> > Next week she is getting fit for a helmet. I am having concerns

> > with the helmet and it does bother me but I know it will help

> her.

> > I would love some support, suggestions, feedback, success

stories,

> > etc...from anyone regarding treatments, PT and wearing the

> helmet.

> > I appreciate this. I have learned that support is important so

I

> > would love to hear from you.

> >

> > Thanks... Shari

[Guest guest]

Hi Shari…For Hannah’s casting, take along her comfort things

like her blanket, pacifier, dolly, whatever makes her feel comfortable.

Also some moms swear that a lollypop does the trick. These things are so

much harder on us mom’s than on our wonderful babies. Hannah may

get really mad for the few minutes it takes to get the casting done, but one

hug from you afterwards and she will be all better.

You know, babies take the banding a lot

better than we do as well. They don’t really know they are being

stared at or asked about. And as long as you are confident ant proud of

what you are doing for Hannah, people will notice that and be more likely to

ask you about the band out of curiosity. Look at it as a great way to

approach the subject of plagio with people. You and Hannah could be a

two-woman plagio education team. I repositioned my to achieve her

correction so I didn’t get the opportunity to approach the subject with

strangers in the grocery store. Make the best of the situations you find

yourself in. If you tell even one person why she is wearing her band,

that is one person who is going to tell one other person and you have gotten

the word out to someone who may then not have to go thru what we did. Best

of luck! Please let us know how the casting goes. We are here any

time you need advice.

Becky (’s mom) in Pgh, PA

Re: New to this

group

Hi, Natasha. Thanks for the welcome. I am

taking Hannah to Hanger

for her helmet on Tuesday. I am not looking

forward to the casting

but hope for it to go quickly. I know it

will last an hour. I

think when I get the helmet and she starts wearing

it than I will be

more comfortable. I think it is the unknown

about how others will

react and how emotional I will feel that bothers

me. Thanks for

your words of welcome!!

Shari

> > Hi. My daughter is 5.5 months old

and she was just diagnosed

with

> > plagiocephaly. She has torticolis

too. We just had a catscan

> done

> > this morning which wasn't so great...she

was fine but I was

> upset.

> > Next week she is getting fit for a

helmet. I am having concerns

> > with the helmet and it does bother me

but I know it will help

> her.

> > I would love some support, suggestions,

feedback, success

stories,

> > etc...from anyone regarding treatments,

PT and wearing the

> helmet.

> > I appreciate this. I have learned

that support is important so

I

> > would love to hear from you.

> >

> > Thanks... Shari

For more

plagio info

[Guest guest]

Hello everyone. I am new to this group. In fact, I haven't ever

joined a forum before. I'd like to share my story and see if it's

relatable. My name is . I am 34 years old and I'm a nurse.

I speciallize in neonatology (newborns). My mother and maternal

grandfather have RA. When I was about 29 I began having symptoms of

RA. I had major unrelated surgery last winter and now my RA is

getting bad. I had many blood tests to diagnose RA, but they all

turned up negative. I haven't had my blood drawn for it since the

surgery because I fear it, too will be negative. Not that I want

RA. I just want a REASON for my pain. My body hurts all over and

stems from every single joint. I swear, every joint from my fingers

to my toes hurt! I have minor swelling in every joint, but pitting

edema below my knees by the end of the day. I am so tired all the

time and in so much pain. Motrin isn't touching the pain anymore. I

am a single mother (men!) and I fear that I won't be able to do my

job too many more years if I can't get this under control. Who is

going to pay my bills? They call me " butterfingers " at work because

I drop everything. I have no strength in my hands. I also have to

do things like start IV's on infants and draw their blood every day.

My fingers and hands hurt so bad every time! I feel like people I

work with just think I'm lazy and can't take a little body aches and

pains. Am I just a wimp? Anxious to hear back from you. I am off

to work now.

[Guest guest]

Hi, ,

Welcome to this very supportive group. Have you been to a

rheumatologist? They are best equipped to diagnose your condition. Some

people have seronegative RA, and they are diagnosed based on their

symptoms, not the blood work. I'm hoping that some of those here in the

group will respond, because they know a lot more about it than I do. We

all want a reason for our pain. I myself like to assign blame, LOL.

If you haven't been to a rheumatologist, my advice is to get an

appointment with one. Since they're scarce in some areas, sometimes it

takes a while to get in to see one.

Good luck!

Sue

On Sunday, October 19, 2008, at 02:15 PM, wrote:

> My mother and maternal

> grandfather have RA. When I was about 29 I began having symptoms of

> RA. I had major unrelated surgery last winter and now my RA is

> getting bad. I had many blood tests to diagnose RA, but they all

> turned up negative. I haven't had my blood drawn for it since the

> surgery because I fear it, too will be negative. Not that I want

> RA. I just want a REASON for my pain.

[Guest guest]

,

Welcome to the group. I am sorry that you are going through all this

pain.

Honey, have you seen a rheumatologist? You do not have to test

positive to have RA and you are certainly at risk with it being in

your immediate family.

I hope you get your answer soon.

Shirley

>

> Hello everyone. I am new to this group. In fact, I haven't ever

> joined a forum before. I'd like to share my story and see if it's

> relatable. My name is . I am 34 years old and I'm a

nurse.

> I speciallize in neonatology (newborns). My mother and maternal

> grandfather have RA. When I was about 29 I began having symptoms

of

> RA. I had major unrelated surgery last winter and now my RA is

> getting bad. I had many blood tests to diagnose RA, but they all

> turned up negative. I haven't had my blood drawn for it since the

> surgery because I fear it, too will be negative. Not that I want

> RA. I just want a REASON for my pain. My body hurts all over and

> stems from every single joint. I swear, every joint from my

fingers

> to my toes hurt! I have minor swelling in every joint, but

pitting

> edema below my knees by the end of the day. I am so tired all the

> time and in so much pain. Motrin isn't touching the pain

anymore. I

> am a single mother (men!) and I fear that I won't be able to do my

> job too many more years if I can't get this under control. Who is

> going to pay my bills? They call me " butterfingers " at work

because

> I drop everything. I have no strength in my hands. I also have

to

> do things like start IV's on infants and draw their blood every

day.

> My fingers and hands hurt so bad every time! I feel like people I

> work with just think I'm lazy and can't take a little body aches

and

> pains. Am I just a wimp? Anxious to hear back from you. I am

off

> to work now.

>

[Guest guest]

WELCOME SHANNON, hello i'm 38yrs. old & have severe ra & osteo. yes it's very

scary to think about being positive for ra.

the pain that comes with it is so horrendous!!!!!!!!! mayb u should try aleve or

tylenol for ra to c if it relieves some of ur pain.

NO UR NOT A WIMP!! ra is a serious disease & it HURTS. i hope things get better

for u & check with ur about the meds..

god bless, melynda gamez 10/19/08 6:45p.m.cdt

[ ] Re: New to this group

,

Welcome to the group. I am sorry that you are going through all this

pain.

Honey, have you seen a rheumatologist? You do not have to test

positive to have RA and you are certainly at risk with it being in

your immediate family.

I hope you get your answer soon.

Shirley

>

> Hello everyone.  I am new to this group.  In fact, I haven't ever

> joined a forum before.  I'd like to share my story and see if it's

> relatable.  My name is .  I am 34 years old and I'm a

nurse. 

> I speciallize in neonatology (newborns).  My mother and maternal

> grandfather have RA.  When I was about 29 I began having symptoms

of

> RA.  I had major unrelated surgery last winter and now my RA is

> getting bad.  I had many blood tests to diagnose RA, but they all

> turned up negative.  I haven't had my blood drawn for it since the

> surgery because I fear it, too will be negative.  Not that I want

> RA.  I just want a REASON for my pain.  My body hurts all over and

> stems from every single joint.  I swear, every joint from my

fingers

> to my toes hurt!  I have minor swelling in every joint, but

pitting

> edema below my knees by the end of the day.  I am so tired all the

> time and in so much pain.  Motrin isn't touching the pain

anymore.  I

> am a single mother (men!) and I fear that I won't be able to do my

> job too many more years if I can't get this under control.  Who is

> going to pay my bills?  They call me " butterfingers " at work

because

> I drop everything.  I have no strength in my hands.  I also have

to

> do things like start IV's on infants and draw their blood every

day. 

> My fingers and hands hurt so bad every time!  I feel like people I

> work with just think I'm lazy and can't take a little body aches

and

> pains.  Am I just a wimp?  Anxious to hear back from you.  I am

off

> to work now.

>

------------------------------------