Re: good description of FIBROMYALGIA

[Guest guest]

I have lots of info on fibromyalgia on my forum as its a chronic pain forum

for people with all kids of pain. I have crps/rsd and the same meds used

for fibro

they used first for complex regional pain syndrome. There is also a couple

new drugs coming out

for fibro the first approved one was lyrica and now cymbalta was approved

for it as well

Jolene www.peaceinpain.com

In a message dated 10/19/2008 1:58:57 P.M. Eastern Daylight Time,

clora4jesus@... writes:

Heide and group;

Omg I have went through this my entire adult life till I found out I

had fibro... Indeed its aweful to have fibro its a disease hard to

discrbe,,, can't take a physical test to see if you have it,,,, and

people still don't believe there is such a thing... My mom believes,,

she has seen me suffer with it for 30 years before I had a

diagnoses...diagnoses...<WBR>. read

gentle hugs

Clora

******************************************************************

>

> ____________ ________ ________ _____

>

>

>

>

> Hi....My Name is Fibromyalgia, and I'm an Invisible Chronic

Illness.

>

> I am now velcroed to you for life.

>

> Others around you can't see me or hear me,

> but YOUR body feels me. I can attack you anywhere and anyhow I

please.

>

> I can cause severe pain or, if I'm in a good mood, I can just

cause you to

> ache all over.

>

> Remember when you and Energy ran around together and had fun?

> I took Energy from you, and gave you Exhaustion.

>

> Try to have fun now! I also took Good Sleep from you and, in its

place, gave

> you Brain Fog.

>

> I can make you tremble internally or make you feel cold or hot

when everyone

> else feels normal. Oh, yeah, I can make you feel anxious or

depressed, too.

>

> If you have something planned, or are looking forward to a great

day, I can

> take that away, too. You didn't ask for me.

>

> I chose you for various reasons:

> That virus you had that you never recovered from, or that car

accident, or

> maybe it was the years of abuse and trauma.

>

> Well, anyway, I'm here to stay!

>

> I hear you're going to see a doctor who can get rid of me.

>

> I'm rolling on the floor, laughing. Just try.

>

> You will have to go to many, many doctors until you find one who

can help

> you effectively.

>

> You will be put on pain pills, sleeping pills, energy pills, told

you are

> suffering from anxiety or depression, given a TENs unit, get

massaged, told

> if you just sleep and exercise properly I will go away, told to

think

> positively, poked, prodded, and MOST OF ALL, not taken as

seriously as you

> feel when you cry to the doctor how debilitating life is every day.

>

> Your family, friends and coworkers will all listen to you until

they just

> get tired of hearing about how I make you feel, and that I'm a

debilitating

> disease.

>

> Some of them will say things like " Oh, you are just having a bad

day " or

> " Well, remember, you can't do the things you use to do 20 YEARS

ago " , not

> hearing that you said 20 DAYS ago.

>

> Some will just start talking behind your back, while you slowly

feel that

> you are losing your dignity trying to make them understand,

especially when

> you are in the middle of a conversation with a " Normal " person,

and can't

> remember what you were going to say next!

>

> In closing, (I was hoping that I kept this part a secret), but I

guess you

> already found out...

>

> The ONLY place you will get any support and understanding in

dealing with me

> is with Other People With Fibromyalgia.

>

>

>

>

>

>

>

>

> _____

>

>

>

>

> ************ ************<WBR>**New MapQuest Local shows what's

destination.

> Dining, Movies, Events, News & more. Try it out

> (_http://local.http://lohttp://lochttp://local.<WBh_

(http://local.mapquest.com/?ncid=emlcntnew00000002) )

>

>

> [Non-text portions of this message have been removed]

>

**************New MapQuest Local shows what's happening at your destination.

Dining, Movies, Events, News & more. Try it out

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[Guest guest]

Heide and group;

Omg I have went through this my entire adult life till I found out I

had fibro... Indeed its aweful to have fibro its a disease hard to

discrbe,,, can't take a physical test to see if you have it,,,, and

people still don't believe there is such a thing... My mom believes,,

she has seen me suffer with it for 30 years before I had a

diagnoses.... read the post below...

gentle hugs

Clora

******************************************************************

>

> ____________________________________

>

>

>

>

> Hi....My Name is Fibromyalgia, and I'm an Invisible Chronic

Illness.

>

> I am now velcroed to you for life.

>

> Others around you can't see me or hear me,

> but YOUR body feels me. I can attack you anywhere and anyhow I

please.

>

> I can cause severe pain or, if I'm in a good mood, I can just

cause you to

> ache all over.

>

> Remember when you and Energy ran around together and had fun?

> I took Energy from you, and gave you Exhaustion.

>

> Try to have fun now! I also took Good Sleep from you and, in its

place, gave

> you Brain Fog.

>

> I can make you tremble internally or make you feel cold or hot

when everyone

> else feels normal. Oh, yeah, I can make you feel anxious or

depressed, too.

>

> If you have something planned, or are looking forward to a great

day, I can

> take that away, too. You didn't ask for me.

>

> I chose you for various reasons:

> That virus you had that you never recovered from, or that car

accident, or

> maybe it was the years of abuse and trauma.

>

> Well, anyway, I'm here to stay!

>

> I hear you're going to see a doctor who can get rid of me.

>

> I'm rolling on the floor, laughing. Just try.

>

> You will have to go to many, many doctors until you find one who

can help

> you effectively.

>

> You will be put on pain pills, sleeping pills, energy pills, told

you are

> suffering from anxiety or depression, given a TENs unit, get

massaged, told

> if you just sleep and exercise properly I will go away, told to

think

> positively, poked, prodded, and MOST OF ALL, not taken as

seriously as you

> feel when you cry to the doctor how debilitating life is every day.

>

> Your family, friends and coworkers will all listen to you until

they just

> get tired of hearing about how I make you feel, and that I'm a

debilitating

> disease.

>

> Some of them will say things like " Oh, you are just having a bad

day " or

> " Well, remember, you can't do the things you use to do 20 YEARS

ago " , not

> hearing that you said 20 DAYS ago.

>

> Some will just start talking behind your back, while you slowly

feel that

> you are losing your dignity trying to make them understand,

especially when

> you are in the middle of a conversation with a " Normal " person,

and can't

> remember what you were going to say next!

>

> In closing, (I was hoping that I kept this part a secret), but I

guess you

> already found out...

>

> The ONLY place you will get any support and understanding in

dealing with me

> is with Other People With Fibromyalgia.

>

>

>

>

>

>

>

>

> _____

>

>

>

>

> **************New MapQuest Local shows what's happening at your

destination.

> Dining, Movies, Events, News & more. Try it out

> (http://local.mapquest.com/?ncid=emlcntnew00000002)

>

>

>