Re: Why I love this list (please feel free to add on)

[Guest guest]

Everyone treats me equal even though I don't have RA. I really love

this group also.

Debbie L

>

> I love this list because....

>

> This is one of the few lists out there that is not " competitive " in

the sense that someone is always trying to " one up " each other with

symptoms and illnesses.

>

> This is, by far, THE MOST supportive list to which I have ever

belonged. When I am having a rough day, I log into my email and

without a doubt SMILE when I go to my " RA-Support " folder. I may not

have posted that I needed a pick me up or anything like that however

there is always someone on this list wishing good thoughts to someone

and THAT ITSELF warms my heart.

>

> Care you add anything? Feel free! Let's remind ourselves WHY we are

here and what we need from this list!

>

>

> *~ Kami ~*

>

>

>

>

>

[Guest guest]

And, we all help the 'whole body and mind', not just the RA. There are a

number of lists that wouldn't allow even a word that doesn't directly

pertain to the list subject.

Dennis in eastexas

On Mon, Oct 27, 2008 at 9:50 AM, deebs87 <dlohf@...> wrote:

> Everyone treats me equal even though I don't have RA. I really love

> this group also.

> Debbie L

>

>

> >

> > I love this list because....

> >

> > This is one of the few lists out there that is not " competitive " in

> the sense that someone is always trying to " one up " each other with

> symptoms and illnesses.

> >

> > This is, by far, THE MOST supportive list to which I have ever

> belonged. When I am having a rough day, I log into my email and

> without a doubt SMILE when I go to my " RA-Support " folder. I may not

> have posted that I needed a pick me up or anything like that however

> there is always someone on this list wishing good thoughts to someone

> and THAT ITSELF warms my heart.

> >

> > Care you add anything? Feel free! Let's remind ourselves WHY we are

> here and what we need from this list!

> >

> >

> > *~ Kami ~*

> >

>

[Guest guest]

I love the list because it's science based, does an amazing job of not just

sending us information, but distilling it into useable form.  The members

support one another through bad times and celebrate good times.  I've argued

with people while maintaining civil discourse and not having hurt feelings.  I

feel like I have instant access to a group of people who know how scary it can

be to have RA and how important it is to work toward carving out a life despite

it all!

________________________________

From: ~ Kami ~ <kamilleon@...>

< >

Sent: Sunday, October 26, 2008 7:56:47 PM

Subject: [ ] Why I love this list (please feel free to add on)

I love this list because....

This is one of the few lists out there that is not " competitive " in the sense

that someone is always trying to " one up " each other with symptoms and

illnesses.

This is, by far, THE MOST supportive list to which I have ever belonged. When I

am having a rough day, I log into my email and without a doubt SMILE when I go

to my " RA-Support " folder. I may not have posted that I needed a pick me up or

anything like that however there is always someone on this list wishing good

thoughts to someone and THAT ITSELF warms my heart.

Care you add anything? Feel free! Let's remind ourselves WHY we are here and

what we need from this list!

*~ Kami ~*

[Guest guest]

I love this list for all the knowledge, support, thoughtfulness, and humor.

Thank you.

Heidi

In a message dated 10/26/2008 8:57:17 P.M. Eastern Daylight Time,

kamilleon@... writes:

I love this list because....

This is one of the few lists out there that is not " competitive " in the

sense that someone is always trying to " one up " each other with symptoms and

illnesses.

This is, by far, THE MOST supportive list to which I have ever belonged.

When I am having a rough day, I log into my email and without a doubt SMILE

when

I go to my " RA-Support " folder. I may not have posted that I needed a pick

me up or anything like that however there is always someone on this list

wishing good thoughts to someone and THAT ITSELF warms my heart.

Care you add anything? Feel free! Let's remind ourselves WHY we are here and

what we need from this list!

*~ Kami ~*

[Non-text portions of this message have been removed]

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[Guest guest]

Well said, Kami. I proclaim you the official RA Support Cheerleader.

Rah, rah, rah! Sis, boom, bah!! **roflmbo**

Seriously though, I love this list for the camaraderie we all share -

and to repeat Kami's words, I love that we can vent and not feel

someone is trying to compete with our words or " one up " our symptoms.

I have a sister who is always trying to copy or " one up " people (me

especially). For example, one time I mentioned that my shoulder was

just screaming out in pain. Next thing I knew, she was using the word

" screaming " to describe just about everything involving herself. Ok,

'nough said *lol*...Next?.....Doreen

>

> I love this list because....

>

> This is one of the few lists out there that is not " competitive " in

> the sense that someone is always trying to " one up " each other with

> symptoms and illnesses.

>

> This is, by far, THE MOST supportive list to which I have ever

> belonged. When I am having a rough day, I log into my email and

> without a doubt SMILE when I go to my " RA-Support " folder. I may

> not have posted that I needed a pick me up or anything like that

> however there is always someone on this list wishing good thoughts

> to someone and THAT ITSELF warms my heart.

>

> Care you add anything? Feel free! Let's remind ourselves WHY we are

> here and what we need from this list!

>

>

> *~ Kami ~*

>

[Guest guest]

I PERSONALLY LOVE IT CUZ I CAN COME & CHAT WITH OTHERS WHO KNOW EXCACTLY THE WAY

I FEEL.I CAN FINALLY RELATE TO OTHERS AS THEY CAN ME. IT'S AWESOME!!! SOMETIMES

UR FAMILY JUST DON'T UNDERSTAND.

HERE WE ALL UNDERSTAND! GOD BLESS,MELYNDA GAMEZ 10/27/08 4:35P.M.CDT

________________________________

From: Dennis W <betnden@...>

Sent: Monday, October 27, 2008 12:07:31 PM

Subject: Re: [ ] Re: Why I love this list (please feel free to add on)

And, we all help the 'whole body and mind', not just the RA. There are a

number of lists that wouldn't allow even a word that doesn't directly

pertain to the list subject.

Dennis in eastexas

On Mon, Oct 27, 2008 at 9:50 AM, deebs87 <dlohf@...> wrote:

>  Everyone treats me equal even though I don't have RA. I really love

> this group also.

> Debbie L

>

>

> >

> > I love this list because.....

> >

> > This is one of the few lists out there that is not " competitive " in

> the sense that someone is always trying to " one up " each other with

> symptoms and illnesses.

> >

> > This is, by far, THE MOST supportive list to which I have ever

> belonged. When I am having a rough day, I log into my email and

> without a doubt SMILE when I go to my " RA-Support " folder. I may not

> have posted that I needed a pick me up or anything like that however

> there is always someone on this list wishing good thoughts to someone

> and THAT ITSELF warms my heart.

> >

> > Care you add anything? Feel free! Let's remind ourselves WHY we are

> here and what we need from this list!

> >

> >

> > *~ Kami ~*

> >

>

[Guest guest]

Yes, and some moderators let the power go to their head and rule with

an iron fist. They seem to enjoy reprimanding members for the slightest

infraction.

Our dear , however, rules with a velvet glove. She is great!

Sue

On Monday, October 27, 2008, at 12:07 PM, Dennis W wrote:

> And, we all help the 'whole body and mind', not just the RA. There are

> a

> number of lists that wouldn't allow even a word that doesn't directly

> pertain to the list subject.

>

[Guest guest]

I used to belong to those groups with mods like that. So glad is

very good at posting great information and uses the " velvet glove "

Debbie

>

> Yes, and some moderators let the power go to their head and rule with

> an iron fist. They seem to enjoy reprimanding members for the

slightest

> infraction.

>

> Our dear , however, rules with a velvet glove. She is great!

>

> Sue

>

>

[Guest guest]

Melynda and all.

Yes thats the truth. We understand each others pain. I always love to

read your post Melynda. You have such a sweet and caring posts. As a

the others do.

god bless

Clora

>

> I PERSONALLY LOVE IT CUZ I CAN COME & CHAT WITH OTHERS WHO KNOW

EXCACTLY THE WAY I FEEL.I CAN FINALLY RELATE TO OTHERS AS THEY CAN ME.

IT'S AWESOME!!! SOMETIMES UR FAMILY JUST DON'T UNDERSTAND.

> HERE WE ALL UNDERSTAND! GOD BLESS,MELYNDA GAMEZ 10/27/08 4:35P.M.CDT

>

>

>

>

[Guest guest]

Sue and group;

Yes but dont upset her group.. I did one time (by accident of course)

and she said CLORA MAY WHAT HAVE YOU DONE. Haaaaaaaaaa. I changed

my name to Clora. haaaaaaa. Yes is great. Thats why God lead

me here for help.

gentle hugs

clora

*****************************************************

> Yes, and some moderators let the power go to their head and rule

with

> an iron fist. They seem to enjoy reprimanding members for the

slightest

> infraction.

>

> Our dear , however, rules with a velvet glove. She is great!

>

> Sue

>

> On Monday, October 27, 2008, at 12:07 PM, Dennis W wrote:

>

> > And, we all help the 'whole body and mind', not just the RA.

There are

> > a

> > number of lists that wouldn't allow even a word that doesn't

directly

> > pertain to the list subject.

> >

>

[Guest guest]

That's very sweet of you, Sue. Thank you.

I'm wondering if you could please write the members who left in a huff

because they believe I'm a maniacal tyrant. And that we are a cult,

LOL.

Not an MD

On Mon, Oct 27, 2008 at 5:22 PM, Sue <marysue@...> wrote:

> Yes, and some moderators let the power go to their head and rule with

> an iron fist. They seem to enjoy reprimanding members for the slightest

> infraction.

>

> Our dear , however, rules with a velvet glove. She is great!

>

> Sue

[Guest guest]

I love this group of people because they are caring, supportive,

informative, and they know exactly how it feels with dealing with the

pain of RA every day. They are always here for us with compassion and

understanding.

> > >

> > > I love this list because.....

> > >

> > > This is one of the few lists out there that is not " competitive "

in

> > the sense that someone is always trying to " one up " each other with

> > symptoms and illnesses.

> > >

> > > This is, by far, THE MOST supportive list to which I have ever

> > belonged. When I am having a rough day, I log into my email and

> > without a doubt SMILE when I go to my " RA-Support " folder. I may not

> > have posted that I needed a pick me up or anything like that however

> > there is always someone on this list wishing good thoughts to

someone

> > and THAT ITSELF warms my heart.

> > >

> > > Care you add anything? Feel free! Let's remind ourselves WHY we

are

> > here and what we need from this list!

> > >

> > >

> > > *~ Kami ~*

> > >

> >

>

>

>

[Guest guest]

10/28 7:40 pm and I just read all the comments and I agree with ALL

of them. This is the best support group out there and I've learned a

lot and hopefully passed on some of my experiences to benefit others.

But people here are really caring and concerned for eachother

emotionally and with the illnesses we are all suffering with.

Thank you to everyone,

Stella

>

> I love this list because....

>

> This is one of the few lists out there that is not " competitive " in

the sense that someone is always trying to " one up " each other with

symptoms and illnesses.

>

> This is, by far, THE MOST supportive list to which I have ever

belonged. When I am having a rough day, I log into my email and

without a doubt SMILE when I go to my " RA-Support " folder. I may not

have posted that I needed a pick me up or anything like that however

there is always someone on this list wishing good thoughts to someone

and THAT ITSELF warms my heart.

>

> Care you add anything? Feel free! Let's remind ourselves WHY we are

here and what we need from this list!

>

>

> *~ Kami ~*

>

>

>

>

>