Guest guest Posted August 7, 2008 Report Share Posted August 7, 2008 It's kind of like a TENS but it covers more area. My TENS would get irritating but my stimulator doesn't bother me, it's a soothing vibration and it helps cover up the pain. And no question is a dumb question here, we're all here to learn and help others so don't feel bad about asking, that's the way we all learn. Take care. Ginny >---------------------------------------------------------------- > > > - In Stimulator , " cobranine " <cobranine@> wrote > > > > Sorry but I know this is a Dumb question, But with the > Stimulator does > > it kind of feel like the TENS Unit? > > > > > > ---> > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 7, 2008 Report Share Posted August 7, 2008 Mike My stim is model is 37713 from Medtronics and a Medtronics remote " My Stim " 37742. Hey, Mike my PM Dr put me on morphine, what dosage in mg is everyone on if they don,'t care saying. a > > I would like to know what company everyone here stimulator is and > model? mine is a medtronic snynger 7350 mike group owner > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 7, 2008 Report Share Posted August 7, 2008 My VNS is a Vagus Nerve Stimulator is from Cyberonix. -Sue Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 7, 2008 Report Share Posted August 7, 2008 I am on the Duregesic patch 100mg morphine equal the dose i am on. Have a good day mike group owner > > > > > > I would like to know what company everyone here stimulator is and > > > model? mine is a medtronic snynger 7350 mike group owner > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 7, 2008 Report Share Posted August 7, 2008 -Mine is the Restore Advance... I got my case out and looked it up,,,lol,,,, -- In Stimulator , " Trisha Gruszecki " <lucky_elf_0317@...> wrote: > > yes, mine is the rechargeable one. There are 2 rechargeables. The restore advanced & restore ultra. they are pretty much the same > Re: group Question > From: " " <bluejeans412003@...> > > --- Im thinking thats what mine is,,, is yours the rechargeable one?? > > In Stimulator , Trisha Shaneyfelt > <lucky_elf_0317@> wrote: > > > > Mine is a Medtronic Restore Advanced. > > ~Trisha > > > > mike2boys <mike2boys@> wrote: > > I would like to know what company everyone here > stimulator is and > > model? mine is a medtronic snynger 7350 mike group owner > > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 11, 2008 Report Share Posted August 11, 2008 MIke, Mine is a Medtronics unit. My remote model #37742 it is a My Stim, my actual battery unit # 37713. I hope this helps. a From: mike2boys <mike2boys@...> Subject: group Question Stimulator Date: Tuesday, August 5, 2008, 6:48 PM I would like to know what company everyone here stimulator is and model? mine is a medtronic snynger 7350 mike group owner Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 11, 2008 Report Share Posted August 11, 2008 THANKS, JUSTINA....THIS WILL BE ADDED TO THE FILE. KATHY G. CO-OWNER **************Looking for a car that's sporty, fun and fits in your budget? Read reviews on AOL Autos. (http://autos.aol.com/cars-BMW-128-2008/expert-review?ncid=aolaut00050000000017 ) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 20, 2008 Report Share Posted August 20, 2008 Hey Sue!! My stim is an ANS....and the life of the battery is 7 years. Mine has just ran out also. I think that it depends on how high we all have it set and how often we change the stim....sometimes higher, sometimes lower, sometimes faster etc. I wish you the best of luck today at the appointment. Let us know how you made out. I had to cancel my surgery to replace the battery and to add 3 more leads to the existing stim, since my dad was in the hospital, and my husband was out of town on business. Hopefully I can get it done soon!! Gentle hugs to you and all, Kathy G. Co-owner **************It's only a deal if it's where you want to go. Find your travel deal here. (http://information.travel.aol.com/deals?ncid=aoltrv00050000000047) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 20, 2008 Report Share Posted August 20, 2008 my battery was supposed to last 7 yrs but because of how hi i had to set it for relief the first only lasted 15 months the dr put in a more powerfull battery when he replaced it **************It's only a deal if it's where you want to go. Find your travel deal here. (http://information.travel.aol.com/deals?ncid=aoltrv00050000000047) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 20, 2008 Report Share Posted August 20, 2008 JUST GOT BACK FROM THE DR. IT'S NOT THE BATTERY THAT NEEDS REPLACEMENT. I WAS TAKEN OFF THE CYMBALTA, AND THE PAIN PUMP WAS REDUCED JUST A WEE BIT. THE DR. WANTED TO SEE IF THIS WAS PART OF THE REASON THAT I WAS SWELLING THE WAY I WAS. THE SWELLING IN MY LEGS IS SO MUCH BETTER. MY LEFT LEG WILL ALWAYS BE TWICE OR THREE TIMES THE SIZE OF THE RIGHT, AS THE LEFT LEG IS SO MUCH WORSE THAN THE RIGHT. THE DR INCREASED THE PAIN PUMP BACK UP TO WHERE IT HAD BEEN. IF NEED BE, WE CAN INCREASE IT AGAIN. I NOW KNOW I'M ALLERGIC TO CYMBALTA. AT LEAST FOR NOW I DON'T HAVE TO HAVE THE BATTERY REPLACED. SUE C MODERATOR From: KGAVI@... <KGAVI@...> Subject: Re: GROUP QUESTION Stimulator Date: Wednesday, August 20, 2008, 6:34 PM Hey Sue!! My stim is an ANS....and the life of the battery is 7 years. Mine has just ran out also. I think that it depends on how high we all have it set and how often we change the stim....sometimes higher, sometimes lower, sometimes faster etc. I wish you the best of luck today at the appointment. Let us know how you made out. I had to cancel my surgery to replace the battery and to add 3 more leads to the existing stim, since my dad was in the hospital, and my husband was out of town on business. Hopefully I can get it done soon!! Gentle hugs to you and all, Kathy G. Co-owner ************ **It's only a deal if it's where you want to go. Find your travel deal here. (http://information. travel.aol. com/deals? ncid=aoltrv00050 000000047) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 20, 2008 Report Share Posted August 20, 2008 Hey Sue! Glad to hear that it wasn't your stim battery! Sorry you had to go through the reaction to the med, though! Take care and get plenty of rest. I am sure that the pain has tripled from all the swelling. Hang in! Kathy G. Co-owner **************It's only a deal if it's where you want to go. Find your travel deal here. (http://information.travel.aol.com/deals?ncid=aoltrv00050000000047) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 20, 2008 Report Share Posted August 20, 2008 KATHY THANKS. THEY HAD GIVEN ME THE CYMBALTA BECAUSE I HAD EXCRUCIATING ABDOMINAL PAINS LAST YEAR. I HAD PROBLEMS WITH THE PANCREAS, HAD MY GALL BLADDER TAKEN OUT AND THEY DISCOVERED THE RSD HAD SPREAD TO MY ABDOMEN. THE CYMBALTA HELPED THE ABDOMINAL PAIN TREMENDOUSLY. I JUST HOPE THAT THE STOMACH PAIN DOESN'T COME BACK. I HAVE HAD PROBLEMS WITH ALOT OF THE OTHER MEDS. I'LL HAVE TO WAIT AND SEE. I'VE BEEN EXHAUSTED. BEEN HAVING GREAT DIFFICULTY WALKING BECAUSE OF THE SWELLING IN LEGS AND THE PAIN, BUT IT'S GETTING BETTER. SUE C MODERATOR From: KGAVI@... <KGAVI@...> Subject: Re: GROUP QUESTION Stimulator Date: Thursday, August 21, 2008, 2:39 AM Hey Sue! Glad to hear that it wasn't your stim battery! Sorry you had to go through the reaction to the med, though! Take care and get plenty of rest. I am sure that the pain has tripled from all the swelling. Hang in! Kathy G. Co-owner ************ **It's only a deal if it's where you want to go. Find your travel deal here. (http://information. travel.aol. com/deals? ncid=aoltrv00050 000000047) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 20, 2008 Report Share Posted August 20, 2008 Hey Sue... I am so sorry you are going through so much pain and frustration!!!!! I hope that it ends here and now! I will pray that your stomach pain does not come back!! Please know I am here for you...any time day or night. hang in!! Love, kathy G. Co-owner **************It's only a deal if it's where you want to go. Find your travel deal here. (http://information.travel.aol.com/deals?ncid=aoltrv00050000000047) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 26, 2008 Report Share Posted August 26, 2008 Hi, Sue!! An awesome topic of discussion, Sue!! I find that if I don't go to the hospital where all my records are kept, that in some hospitals the doctors and nurses just look at me.....like ok...yeah right...RSD uh uh...sure...Let's see what this so called RSD looks like...and since my left leg is so advanced.....then I get them falling all over me. If they only look at my arms, then it is like ok....doesn't really look that bad...what do you mean I can't touch them??? Then...when they touch my arms, after my pleas not to and my BP bottoms out from the pain and I pass out from the pain and the low pressure.....they now are believers...but why do they not just believe us when we tell them. It is a shame that this has to be. I know that there are folks out there that are drug seekers....but they are NOT us.....if they could walk an hour..forget the day, in our shoes...they would never try to say they are in chronic pain. I have had RSD now for 25 years. I have dealt with amazing and wonderful, loving physicians who really, truly are healers and are doing their job out of concern for their patient, and I have been in offices where I was waiting for the cows and sheep to come through the door as I felt like I was being pushed through like cattle...you know....a number instead of a human being in pain and of needing compassion and understanding. I will give everyone two examples...one a great and positive one and the other....not so great. Let's start with the great one... My doctor now...is out of this world. After having a block done on my groin and right leg, since the RSD had spread to that leg too, I forgot to keep my knee straight when I got up out of bed to use the commode next to my bed at home....well if you guys have ever had blocks done there...you know you are totally numb for at least 1 or 2 days .....and if you keep your knee locked straight you will be okay...if not...you will fall down....hard and fast! Well..I fell down hard and fast..and landed on my left wrist. I was taken to the hospital..(.which will be the not so great example by the way) I then called my pm dr when I got home. he was not happy at all with the treatment that I had received at the other hospital...so he told me to come to the ER immediately. It was his day off...but I have his cell number...I have never used it except for the time that he gave it to me and my husband when he met us in Washington, DC for a seminar on RSD...he arranged for the speaker...a guru in RSD...a Dr. Racz to meet with me the night prior to him speaking. He not only arranged it, but stayed for the entire physical that the other Dr gave me...neither one of them charged me a dime. Sorry...I got off topic...so...he came into the ER on his night off and did the conscious sedation himself while the head of hand surgery placed my wrist back into place, as it was severely displaced, fractured and dislocated. he stayed with me and my husband until I left to go home and arranged for me to come back in the hospital in three days (so the swelling would go down some) and then he would do my anesthesia for the surgery on my badly fractured wrist....I now have a plate and 8 screws in my wrist. To this day, he and his entire staff goes out of their way with their kindness, love and compassion. He is truly a healer....he is one of the great ones. Now...the flip side of that beautiful doctor... when I was taken by ambulance to the closest hospital (as that is what they need to do...now we have an ambulance service that will take me to the hospital that I want to go to unless there is a chance of me coding or something serious...you know.) so ...I get to that ER and am told that I have a slight break and they want to cast it here and now while the ortho Dr is here.... I asked the pompous ER Dr didn't it have to wait until some of the swelling is down to do anything....and I cannot ever have a cast put on as I am an RSD patient, with RSD in this limb and it will cause me grave harm to cast anything on my body. His response was actually this.. " .oh you are one of those, huh? " well..let's see first of all what drugs you are taking. I told him what meds I was on and that I have a pain management Dr who is the only one who prescribes them for me, as well as controls my pain pump. he scoffed at me and said didn't anyone ever tell you that RSD is a made up disease? Wow..you say you have had this for 25 years...I would like you to see our psychiatrist before leaving...you really must be very susceptible to suggestion...it is like if I were to tell you that you had bronchitis...you most likely would start coughing even though you are not sick...do you see where I am going with this? I answered him...yeah...the floor...get my husband in here now! I was so angry and outraged at him I said that to him... I know that I was out of line ....but I was just so enraged by his comments..I couldn't help myself he then told the nurse that I am delusional and not to let me go until I spoke with the " shrink " as he called him. Well..when my loving hubbie came into the cubical and I told him what he had said to me....we had the head of the ER in there, the head of nursing in there, and the patient advocate manager. My husband was told time after time that he can go back in a few minutes, that I was having Xrays done..when I was sitting back there waiting for him as this Dr was saying all this to me! Of course he denied ever saying anything but I was yelling at him and I was delusional for no reason....until one nurse had the guts to tell administration that she heard everything he had said and was keeping a record of it to give to the chief of the ER. her sister has RSD...so she was almost as enraged as my husband and I were. The radiologist tech at the first hospital had me in tears screaming from the pain..she kept on twisting my arm to get the pictures she needed. I thought that I was so sensitive from the existing RSD and the agonizing pain from the break, that it was me....until I got to the better hosp..where the man moved the machine and not me.....I begged them not to take any more X-rays..since I just couldn't take the pain.....and he looked me like are you kidding me...I am not touching that arm...he told me that he could see the fracture and dislocation without even an X-ray...my wrist was deformed from it. Now..if an X-ray tech can see this...why not an ER Dr!!!?? Well..now that I have wrote the longest post in my life and probably the record longest in any group...lol will let my fingers and wrists get a break. Thanks again for the idea, sue...great topic! Welcome to our new members.....we are so happy to have you!! Gentle hugs to all, Kathy G. **************It's only a deal if it's where you want to go. Find your travel deal here. (http://information.travel.aol.com/deals?ncid=aoltrv00050000000047) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 26, 2008 Report Share Posted August 26, 2008 Sue asks a good question. There have been several times I haven¹t been taken seriously. Sometimes it¹s because I¹m a woman, or when my weight increases to obese numbers (it fluctuates depending on meds and exercise), and sometimes it¹s because I have a LONG medical history so they assume I¹m a chronic complainer or they think I¹m too much in tune with what I perceive to be wrong with me. Also, I intimidate some doctors because I believe knowledge is power and so I¹m a very proactive patient. I used to work with doctors and so I speak medicalese lingo without effort. Some doctors love it that they don¹t have to ³dumb down² their medical communication with me, and some think I¹ve read the internet too much. ) A couple of results of doctors who didn¹t take symptoms seriously with me: --long term infections not addressed in a timely manner even after brought to their attention, and after a year of not taking it seriously, it caused me to have body scarring surgery. --I do not stay with a doctor very long if they don¹t show respect to me. I will give them three opportunities to redeem themselves and if after a few months I think they aren¹t giving me the best care possible, I find someone who will. The main thing I¹ve learned is to realize that WE pay the salaries of doctors and their staff, whether through our insurance or through our own accounts, and so we can expect a certain quality of care. By trying to see it as a business rather than through our emotions, we can respect ourselves enough to know to insist on the right treatment. And also, if we can learn to streamline our reporting of symptoms, they won¹t think we are being overly dramatic. Just my observations, Kathy W. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 26, 2008 Report Share Posted August 26, 2008 Kathy you are so right. Every time I was sent to hosptial due to my pain It was like the doctors would not beileve me even when I walk in there with records. I gotten to the point where I go there with my cat scan and make them call my Doctor. It the only way I get proper treatment. Mike group owner > > Hi, Sue!! > > An awesome topic of discussion, Sue!! > > I find that if I don't go to the hospital where all my records are kept, > that in some hospitals the doctors and nurses just look at me.....like ok...yeah > right...RSD uh uh...sure...Let's see what this so called RSD looks > like...and since my left leg is so advanced.....then I get them falling all over me. > If they only look at my arms, then it is like ok....doesn't really look that > bad...what do you mean I can't touch them??? Then...when they touch my arms, > after my pleas not to and my BP bottoms out from the pain and I pass out > from the pain and the low pressure.....they now are believers...but why do they > not just believe us when we tell them. > > It is a shame that this has to be. I know that there are folks out there > that are drug seekers....but they are NOT us.....if they could walk an > hour..forget the day, in our shoes...they would never try to say they are in chronic > pain. > > I have had RSD now for 25 years. I have dealt with amazing and wonderful, > loving physicians who really, truly are healers and are doing their job out > of concern for their patient, and I have been in offices where I was waiting > for the cows and sheep to come through the door as I felt like I was being > pushed through like cattle...you know....a number instead of a human being in > pain and of needing compassion and understanding. > > I will give everyone two examples...one a great and positive one and the > other....not so great. > > Let's start with the great one... > > My doctor now...is out of this world. After having a block done on my groin > and right leg, since the RSD had spread to that leg too, I forgot to keep my > knee straight when I got up out of bed to use the commode next to my bed at > home....well if you guys have ever had blocks done there...you know you are > totally numb for at least 1 or 2 days .....and if you keep your knee locked > straight you will be okay...if not...you will fall down....hard and fast! > > Well..I fell down hard and fast..and landed on my left wrist. I was taken > to the hospital..(.which will be the not so great example by the way) > > I then called my pm dr when I got home. he was not happy at all with the > treatment that I had received at the other hospital...so he told me to come to > the ER immediately. It was his day off...but I have his cell number...I > have never used it except for the time that he gave it to me and my husband when > he met us in Washington, DC for a seminar on RSD...he arranged for the > speaker...a guru in RSD...a Dr. Racz to meet with me the night prior to him > speaking. He not only arranged it, but stayed for the entire physical that the > other Dr gave me...neither one of them charged me a dime. > > Sorry...I got off topic...so...he came into the ER on his night off and did > the conscious sedation himself while the head of hand surgery placed my wrist > back into place, as it was severely displaced, fractured and dislocated. > > he stayed with me and my husband until I left to go home and arranged for me > to come back in the hospital in three days (so the swelling would go down > some) and then he would do my anesthesia for the surgery on my badly fractured > wrist....I now have a plate and 8 screws in my wrist. > > To this day, he and his entire staff goes out of their way with their > kindness, love and compassion. He is truly a healer....he is one of the great ones. > > Now...the flip side of that beautiful doctor... > > when I was taken by ambulance to the closest hospital (as that is what they > need to do...now we have an ambulance service that will take me to the > hospital that I want to go to unless there is a chance of me coding or something > serious...you know.) so ...I get to that ER and am told that I have a slight > break and they want to cast it here and now while the ortho Dr is here.... > > I asked the pompous ER Dr didn't it have to wait until some of the swelling > is down to do anything....and I cannot ever have a cast put on as I am an RSD > patient, with RSD in this limb and it will cause me grave harm to cast > anything on my body. > > His response was actually this.. " .oh you are one of those, huh? " > well..let's see first of all what drugs you are taking. I told him what meds I was on > and that I have a pain management Dr who is the only one who prescribes them > for me, as well as controls my pain pump. > > he scoffed at me and said didn't anyone ever tell you that RSD is a made up > disease? Wow..you say you have had this for 25 years...I would like you to > see our psychiatrist before leaving...you really must be very susceptible to > suggestion...it is like if I were to tell you that you had bronchitis...you > most likely would start coughing even though you are not sick...do you see > where I am going with this? > > I answered him...yeah...the floor...get my husband in here now! I was so > angry and outraged at him I said that to him... I know that I was out of line > ...but I was just so enraged by his comments..I couldn't help myself he then > told the nurse that I am delusional and not to let me go until I spoke with > the " shrink " as he called him. > > Well..when my loving hubbie came into the cubical and I told him what he had > said to me....we had the head of the ER in there, the head of nursing in > there, and the patient advocate manager. My husband was told time after time > that he can go back in a few minutes, that I was having Xrays done..when I was > sitting back there waiting for him as this Dr was saying all this to me! > > Of course he denied ever saying anything but I was yelling at him and I was > delusional for no reason....until one nurse had the guts to tell > administration that she heard everything he had said and was keeping a record of it to > give to the chief of the ER. her sister has RSD...so she was almost as > enraged as my husband and I were. > > The radiologist tech at the first hospital had me in tears screaming from > the pain..she kept on twisting my arm to get the pictures she needed. I > thought that I was so sensitive from the existing RSD and the agonizing pain from > the break, that it was me....until I got to the better hosp..where the man > moved the machine and not me.....I begged them not to take any more > X-rays..since I just couldn't take the pain.....and he looked me like are you kidding > me...I am not touching that arm...he told me that he could see the fracture and > dislocation without even an X-ray...my wrist was deformed from it. Now..if > an X-ray tech can see this...why not an ER Dr!!!?? > > Well..now that I have wrote the longest post in my life and probably the > record longest in any group...lol will let my fingers and wrists get a break. > > Thanks again for the idea, sue...great topic! > > Welcome to our new members.....we are so happy to have you!! > > Gentle hugs to all, > > Kathy G. > > > > **************It's only a deal if it's where you want to go. Find your travel > deal here. > (http://information.travel.aol.com/deals?ncid=aoltrv00050000000047) > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 26, 2008 Report Share Posted August 26, 2008 > > Sue asks a good question. There have been several times I haven¹t been taken > seriously. Sometimes it¹s because I¹m a woman, or when my weight increases > to obese numbers (it fluctuates depending on meds and exercise), and > sometimes it¹s because I have a LONG medical history so they assume I¹m a > chronic complainer or they think I¹m too much in tune with what I perceive > to be wrong with me. > > Also, I intimidate some doctors because I believe knowledge is power and so > I¹m a very proactive patient. I used to work with doctors and so I speak > medicalese lingo without effort. Some doctors love it that they don¹t have > to ³dumb down² their medical communication with me, and some think I¹ve read > the internet too much. ) > > A couple of results of doctors who didn¹t take symptoms seriously with me: > --long term infections not addressed in a timely manner even after brought > to their attention, and after a year of not taking it seriously, it caused > me to have body scarring surgery. > --I do not stay with a doctor very long if they don¹t show respect to me. I > will give them three opportunities to redeem themselves and if after a few > months I think they aren¹t giving me the best care possible, I find someone > who will. > > The main thing I¹ve learned is to realize that WE pay the salaries of > doctors and their staff, whether through our insurance or through our own > accounts, and so we can expect a certain quality of care. By trying to see > it as a business rather than through our emotions, we can respect ourselves > enough to know to insist on the right treatment. And also, if we can learn > to streamline our reporting of symptoms, they won¹t think we are being > overly dramatic. > > Just my observations, > Kathy W. > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 26, 2008 Report Share Posted August 26, 2008 > > Sue asks a good question. There have been several times I haven¹t been taken > seriously. Sometimes it¹s because I¹m a woman, or when my weight increases > to obese numbers (it fluctuates depending on meds and exercise), and > sometimes it¹s because I have a LONG medical history so they assume I¹m a > chronic complainer or they think I¹m too much in tune with what I perceive > to be wrong with me. > > Also, I intimidate some doctors because I believe knowledge is power and so > I¹m a very proactive patient. I used to work with doctors and so I speak > medicalese lingo without effort. Some doctors love it that they don¹t have > to ³dumb down² their medical communication with me, and some think I¹ve read > the internet too much. ) > > A couple of results of doctors who didn¹t take symptoms seriously with me: > --long term infections not addressed in a timely manner even after brought > to their attention, and after a year of not taking it seriously, it caused > me to have body scarring surgery. > --I do not stay with a doctor very long if they don¹t show respect to me. I > will give them three opportunities to redeem themselves and if after a few > months I think they aren¹t giving me the best care possible, I find someone > who will. > > The main thing I¹ve learned is to realize that WE pay the salaries of > doctors and their staff, whether through our insurance or through our own > accounts, and so we can expect a certain quality of care. By trying to see > it as a business rather than through our emotions, we can respect ourselves > enough to know to insist on the right treatment. And also, if we can learn > to streamline our reporting of symptoms, they won¹t think we are being > overly dramatic. > > Just my observations, > Kathy W. > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 27, 2008 Report Share Posted August 27, 2008 After my first surgery on my cervical spine my pain had increased to the point where I could not take it any more. I call my surgon office and they did not give me much help. So I drove to there office and told them thy needed to help me. I had a Panic attack while I was there, and they did not expect me to walk in, over the phone they just forgot about me and they did not know what to do when I was there in person. Then after being there for an hour they sent me to the Hospital. I was thinking I was going for some Pain control, but NO they sent me to the Mental Ward! The dr tood the Hospita I was Crazy!!! When you are in that much Pain and not reciveing help you will go Crazy. > > Hi All > > Hope everyone is well today. I have a question for the group. Has anyone found that because they are a pain patient they are not being taken seriously? Has anyone ever gone to the hospital for other than your pain condition and were not taken seriously? This has happened to me and thought it would be an interesting topic to discuss. > > Sue C > Moderator > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 27, 2008 Report Share Posted August 27, 2008 I know how this feels so deeply. Having epilepsy and back problems and birth deffects on hands. I have not been taking seriosly. nothing like going to E.R for sezuires then having them set off my back. now i need sommething for pain while at the same time a anti sezuire med. mike group owner > > Hi, Sue!! > > An awesome topic of discussion, Sue!! > > I find that if I don't go to the hospital where all my records are kept, > that in some hospitals the doctors and nurses just look at me.....like ok...yeah > right...RSD uh uh...sure...Let's see what this so called RSD looks > like...and since my left leg is so advanced.....then I get them falling all over me. > If they only look at my arms, then it is like ok....doesn't really look that > bad...what do you mean I can't touch them??? Then...when they touch my arms, > after my pleas not to and my BP bottoms out from the pain and I pass out > from the pain and the low pressure.....they now are believers...but why do they > not just believe us when we tell them. > > It is a shame that this has to be. I know that there are folks out there > that are drug seekers....but they are NOT us.....if they could walk an > hour..forget the day, in our shoes...they would never try to say they are in chronic > pain. > > I have had RSD now for 25 years. I have dealt with amazing and wonderful, > loving physicians who really, truly are healers and are doing their job out > of concern for their patient, and I have been in offices where I was waiting > for the cows and sheep to come through the door as I felt like I was being > pushed through like cattle...you know....a number instead of a human being in > pain and of needing compassion and understanding. > > I will give everyone two examples...one a great and positive one and the > other....not so great. > > Let's start with the great one... > > My doctor now...is out of this world. After having a block done on my groin > and right leg, since the RSD had spread to that leg too, I forgot to keep my > knee straight when I got up out of bed to use the commode next to my bed at > home....well if you guys have ever had blocks done there...you know you are > totally numb for at least 1 or 2 days .....and if you keep your knee locked > straight you will be okay...if not...you will fall down....hard and fast! > > Well..I fell down hard and fast..and landed on my left wrist. I was taken > to the hospital..(.which will be the not so great example by the way) > > I then called my pm dr when I got home. he was not happy at all with the > treatment that I had received at the other hospital...so he told me to come to > the ER immediately. It was his day off...but I have his cell number...I > have never used it except for the time that he gave it to me and my husband when > he met us in Washington, DC for a seminar on RSD...he arranged for the > speaker...a guru in RSD...a Dr. Racz to meet with me the night prior to him > speaking. He not only arranged it, but stayed for the entire physical that the > other Dr gave me...neither one of them charged me a dime. > > Sorry...I got off topic...so...he came into the ER on his night off and did > the conscious sedation himself while the head of hand surgery placed my wrist > back into place, as it was severely displaced, fractured and dislocated. > > he stayed with me and my husband until I left to go home and arranged for me > to come back in the hospital in three days (so the swelling would go down > some) and then he would do my anesthesia for the surgery on my badly fractured > wrist....I now have a plate and 8 screws in my wrist. > > To this day, he and his entire staff goes out of their way with their > kindness, love and compassion. He is truly a healer....he is one of the great ones. > > Now...the flip side of that beautiful doctor... > > when I was taken by ambulance to the closest hospital (as that is what they > need to do...now we have an ambulance service that will take me to the > hospital that I want to go to unless there is a chance of me coding or something > serious...you know.) so ...I get to that ER and am told that I have a slight > break and they want to cast it here and now while the ortho Dr is here.... > > I asked the pompous ER Dr didn't it have to wait until some of the swelling > is down to do anything....and I cannot ever have a cast put on as I am an RSD > patient, with RSD in this limb and it will cause me grave harm to cast > anything on my body. > > His response was actually this.. " .oh you are one of those, huh? " > well..let's see first of all what drugs you are taking. I told him what meds I was on > and that I have a pain management Dr who is the only one who prescribes them > for me, as well as controls my pain pump. > > he scoffed at me and said didn't anyone ever tell you that RSD is a made up > disease? Wow..you say you have had this for 25 years...I would like you to > see our psychiatrist before leaving...you really must be very susceptible to > suggestion...it is like if I were to tell you that you had bronchitis...you > most likely would start coughing even though you are not sick...do you see > where I am going with this? > > I answered him...yeah...the floor...get my husband in here now! I was so > angry and outraged at him I said that to him... I know that I was out of line > ...but I was just so enraged by his comments..I couldn't help myself he then > told the nurse that I am delusional and not to let me go until I spoke with > the " shrink " as he called him. > > Well..when my loving hubbie came into the cubical and I told him what he had > said to me....we had the head of the ER in there, the head of nursing in > there, and the patient advocate manager. My husband was told time after time > that he can go back in a few minutes, that I was having Xrays done..when I was > sitting back there waiting for him as this Dr was saying all this to me! > > Of course he denied ever saying anything but I was yelling at him and I was > delusional for no reason....until one nurse had the guts to tell > administration that she heard everything he had said and was keeping a record of it to > give to the chief of the ER. her sister has RSD...so she was almost as > enraged as my husband and I were. > > The radiologist tech at the first hospital had me in tears screaming from > the pain..she kept on twisting my arm to get the pictures she needed. I > thought that I was so sensitive from the existing RSD and the agonizing pain from > the break, that it was me....until I got to the better hosp..where the man > moved the machine and not me.....I begged them not to take any more > X-rays..since I just couldn't take the pain.....and he looked me like are you kidding > me...I am not touching that arm...he told me that he could see the fracture and > dislocation without even an X-ray...my wrist was deformed from it. Now..if > an X-ray tech can see this...why not an ER Dr!!!?? > > Well..now that I have wrote the longest post in my life and probably the > record longest in any group...lol will let my fingers and wrists get a break. > > Thanks again for the idea, sue...great topic! > > Welcome to our new members.....we are so happy to have you!! > > Gentle hugs to all, > > Kathy G. > > > > **************It's only a deal if it's where you want to go. Find your travel > deal here. > (http://information.travel.aol.com/deals?ncid=aoltrv00050000000047) > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 27, 2008 Report Share Posted August 27, 2008 I'm horrified to hear of your experience!! That doctor should be shot. You went for help and he feed you to the wolves. This is the problem, we go for help and we're told we're crazy. We are not crazy, we are people in pain desperate for answers, seeking a solution. You are in the right place. You are with people who know what you are going through and know how you are feeling. I know how I felt when I kept being told that there wasn't anything wrong, it's in my head. I started to question it. But I knew my body and I knew me. The treatment you got was barbaric, but all too common. When you're not receiving help, the only solution is to go somewhere else, go to a different dr. Keep going until you find one that is able to help. Unfortunately it might not be possible to eliminate all your pain, but there has to be someone who can help. It took over 4 years to find a dr that diagnosed my RSD. Even now, if I go to a dr, that doesn't treat me the way I should be treated, i go to another dr. Stand up for yourself, believe in yourself. Sue C Moderator From: Bad Boy <candelariaorlando@...> Subject: Re: Group Question Stimulator Date: Wednesday, August 27, 2008, 1:45 PM After my first surgery on my cervical spine my pain had increased to the point where I could not take it any more. I call my surgon office and they did not give me much help. So I drove to there office and told them thy needed to help me. I had a Panic attack while I was there, and they did not expect me to walk in, over the phone they just forgot about me and they did not know what to do when I was there in person. Then after being there for an hour they sent me to the Hospital. I was thinking I was going for some Pain control, but NO they sent me to the Mental Ward! The dr tood the Hospita I was Crazy!!! When you are in that much Pain and not reciveing help you will go Crazy. > > Hi All > > Hope everyone is well today. I have a question for the group. Has anyone found that because they are a pain patient they are not being taken seriously? Has anyone ever gone to the hospital for other than your pain condition and were not taken seriously? This has happened to me and thought it would be an interesting topic to discuss. > > Sue C > Moderator > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 27, 2008 Report Share Posted August 27, 2008 > > > > Hi All > > > > Hope everyone is well today. I have a question for the group. Has > anyone found that because they are a pain patient they are not being > taken seriously? Has anyone ever gone to the hospital for other than > your pain condition and were not taken seriously? This has happened to > me and thought it would be an interesting topic to discuss. > > > > Sue C > > Moderator > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 27, 2008 Report Share Posted August 27, 2008 You know I had issues with the first few doctors I met because of the knowledge I had about my own condition. I'm not sure if it was because of the fact I was female, I was a woman in general, I knew what I was talking about or they felt the need to be superior over their patients. Needless to say, The two doctors whom I dealt with at first did not last for very long because of their attitude as they would not allow me to speak my own thoughts and opinions on certain issues regarding my epilepsy. When that happened, I went ballistic and literally went into defensive mode, I'm not kidding either. I've been known to bring a doctor back from the clouds because I have always believed they put their pants on one leg at a time just like me. Just because they have the Dr and the MD in their name does not give them the right to misjudge or belittle me as a person or as a woman. Truth be known, I have literally chewed a medical doctor out before because of his arrogance and basically told him where to shove his diploma and his education because he was not helping my health concerns. My current neurologist was referred to me by a neurosurgeon and neurologist who I worked with in another state. The neurologist I have now is wonderful. He and I have very open communication and we discuss everything. He has been very impressed with my own performance and the fact I keep up with my own medical research. When there are things I find which I don't know, I ask questions. My pain management doctor was another person. He was good at what he did but the problem which I did not like was every so often he had this cockiness about him and it just rubbed me the wrong way. Many of you recall me speaking of all the years I went through with this doctor. I had no other choice because I did not know of any one else at the time. I recall the one time I rose my voice to this doctor and asked him what he was going to do in order to fix my back issue I was in total tears because my back hurt so much. That's when he said he would send me to a neurosurgeon and we would be looking at back surgery. I remember one of the nurses at the front desk coming into the room and saying " good for you at standing up because even he needs to be brought back down to earth every now and again " She grinned, gave me a tissue and an ice pack then said he would be back with a doctor's name and time. That was that and from then on we got along. LOL! I suppose I have always been one of those types where I can put up with a lot but when it comes to my health that's where I draw the line of limitations. A doctor needs to respect me for who I am and if they are unable to, I will go elsewhere, period. The pain management doctor I had recently seen is wonderful and gave me a few things to review for therapy. I haven't had much issues lately with back pain either. I know it still needs help so I have been doing basic mechanics until I can start the heavier therapy suggested. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 28, 2008 Report Share Posted August 28, 2008 Hello Candelariaorlando!!! ( I apologize I don't have your name) I am SO SORRY you were abused by that doctor....the person who took an oath to do NO HARM....and to be a healer. He should not only lose his license as a physician, but his staff (who was involved in just sitting on their brains, I say sitting on their brains, since that is where their brains must be....since they were so STUPID!!) should be fired and blackballed from ever working for a healer again! The entire office should of been closed! I am so glad that you are here with us.....we have such great folks here who are not only willing to help you, listen to you and let you vent to them, as we are all too familiar with each other's problems. Please know that I am here for you...or anyone...just give me a hollar on my email address @ _Kgavi@..._ (mailto:Kgavi@...) OR _eyes4lenny@..._ (mailto:eyes4lenny@...) I will talk to everyone on Saturday, if my dad is not downtown @ Jefferson...we will have to see...the dr thinks he is in congestive heart failure from the pneumonia. I hope all is well with all you beautiful people. Please know that I love you, Kathy G. Co-owner **************It's only a deal if it's where you want to go. Find your travel deal here. (http://information.travel.aol.com/deals?ncid=aoltrv00050000000047) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 28, 2008 Report Share Posted August 28, 2008 Good for you.....You are sooo right...doctors, lawyers, everyone and anyone with a position of power, education, money or wealth....put their pant legs on one at a time...you go, girl!! This is not the same....but I have to share... I was not her patient...but her secretary/receptionist...When I was 18, I was a freshly graduate right out of High School..I graduated on Tuesday, the 10th and had my first day of work on Wednesday, the 11th. My first " real " job was the position of receptionist for the department of anesthesia at Jefferson University Hospital. I had 82 doctors in this department...all of whom got messages daily...and had 5 phone lines. I loved this job..to date, it is still my most favorite posistion, due to the people and the job...anyway...one of the docs came into the office and I swear to you did the following: She came in and THREW a chart on my desk and bellowed " GIRL " file this..then get me my coffee...2 sugars no cream...get it right...i need the caffeine.....when I looked at her in astonishment, she yelled " NOW! " . This was my response... I got up, picked up her coat that she just threw on the chair next to the closet provided with hangers and I hung up her coat...all he way in the back where you couldn't see it...I then handed her the chart and told her that if she wanted me to file anything from now on, my name is Kathy. I do not answer to anything else...but especially " Girl " . Oh..and if you want coffee..I am not the waitress and getting coffee for the doctors is NOT in my job description. I then sat back down at my desk and after realizing what I just had done to an attending physician.....I started to pack up my desk. My manager, who was the biggest female dog, told me that I was fired. The SAME doctor that I just had yelled at...told her no she isn't...she is now my secretary...I need someone with her type of spunk. The next day, she came in and gave me the most beautiful Lennox candy dish as an apology......and told me that I was right and I was great. I then became her secretary and made the same amount of money that my former boss did...she was in her late 40's...she quit a week later!!!!!lol thought that all would enjoy!! kathy G. Co-owner **************It's only a deal if it's where you want to go. Find your travel deal here. (http://information.travel.aol.com/deals?ncid=aoltrv00050000000047) Quote Link to comment Share on other sites More sharing options...
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