Guest guest Posted September 1, 2008 Report Share Posted September 1, 2008 Hey Mike! I can only imagine how more painful yor back is after seizures....I am sorry you go through that hell. love you Kathy **************It's only a deal if it's where you want to go. Find your travel deal here. (http://information.travel.aol.com/deals?ncid=aoltrv00050000000047) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 27, 2008 Report Share Posted October 27, 2008 Vicki, has your doc raised your Folic Acid? That sounds similar to your problems. My tongue swelled so much I couldn't talk, and I was on 1.2 cc MTX injected but still on 1 mg Folic Acid. It was immediately diagnosed on this group as too little Folc Acid, so I called the doctor's office. The reply was, " I meant to tell you to go to 5 mg per day " . Now I'm with the Rheumy I trust. That was the problem and now I'm fixed. I hope that's all that's wrong with you. Dennis in eastexas On Mon, Oct 27, 2008 at 12:18 PM, Vicki <gramvick@...> wrote: > About a week ago they increased my MTX to 2.5 mg injectable weekly. I > have been on the injectable for over 6 months now. However the last few days > I have developed some serious mouth and nose sores. I wear upper dentures > from the bone and tooth loss in my jaw bone which makes this extremely > painful. Has anyone experienced this and what if anything can be done about > it?? By the way this is the only change I have had in medications so am > assuming it is the MTX but I guess I am not sure. Any input would be > helpful. > > I am on my way for my monthly blood work up, flu shot and weekly chemo but > will be back on later. I go to the clinic here, but do have a call in to my > Rheumy to also call me. She is out of the office until Wednesday though. > > Thanks > Vicki > Iowa > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 27, 2008 Report Share Posted October 27, 2008 Dennis, No they did not raise my folic acid. I will certainly give that a try. Am waiting for the blood results to come back. Sometimes it is within hours others is the next day. I did do a typo earlier though. I went from 1 ML or 50 MG sub Q once weekly on the MTX. No idea what the CC would be. I do not want to have to go back down as it has helped my mobility so much and with the work that I do I really need that. Thanks so much for your help. Vicki Iowa Re: [ ] Group question Vicki, has your doc raised your Folic Acid? That sounds similar to your problems. My tongue swelled so much I couldn't talk, and I was on 1.2 cc MTX injected but still on 1 mg Folic Acid. It was immediately diagnosed on this group as too little Folc Acid, so I called the doctor's office. The reply was, " I meant to tell you to go to 5 mg per day " . Now I'm with the Rheumy I trust. That was the problem and now I'm fixed. I hope that's all that's wrong with you. Dennis in eastexas On Mon, Oct 27, 2008 at 12:18 PM, Vicki <gramvick@...> wrote: > About a week ago they increased my MTX to 2.5 mg injectable weekly. I > have been on the injectable for over 6 months now. However the last few days > I have developed some serious mouth and nose sores. I wear upper dentures > from the bone and tooth loss in my jaw bone which makes this extremely > painful. Has anyone experienced this and what if anything can be done about > it?? By the way this is the only change I have had in medications so am > assuming it is the MTX but I guess I am not sure. Any input would be > helpful. > > I am on my way for my monthly blood work up, flu shot and weekly chemo but > will be back on later. I go to the clinic here, but do have a call in to my > Rheumy to also call me. She is out of the office until Wednesday though. > > Thanks > Vicki > Iowa > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 27, 2008 Report Share Posted October 27, 2008 Hi Vicki - does your Rheumy have you on Folic Acid? I take 1mg every day EXCEPT the day of MTX and I have not had any troubles with mouth sores. I also wonder if it could be something related to your chemo, too - like maybe an interaction? Check with your doctor and let us know. We care.....Doreen About a week ago they increased my MTX to 2.5 mg injectable weekly. I have been on the injectable for over 6 months now. However the last few days I have developed some serious mouth and nose sores. I wear upper dentures from the bone and tooth loss in my jaw bone which makes this extremely painful. Has anyone experienced this and what if anything can be done about it?? By the way this is the only change I have had in medications so am assuming it is the MTX but I guess I am not sure. Any input would be helpful. I am on my way for my monthly blood work up, flu shot and weekly chemo but will be back on later. I go to the clinic here, but do have a call in to my Rheumy to also call me. She is out of the office until Wednesday though. Thanks Vicki Iowa Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 27, 2008 Report Share Posted October 27, 2008 No they did not raise my folic acid. I will certainly give that a try. Am waiting for the blood results to come back. Sometimes it is within hours others is the next day. I did do a typo earlier though. I went from 1 ML or 50 MG sub Q once weekly on the MTX. No idea what the CC would be. I do not want to have to go back down as it has helped my mobility so much and with the work that I do I really need that. Thanks so much for your help. Vicki Iowa [ ] Re: Group question Hi Vicki - does your Rheumy have you on Folic Acid? I take 1mg every day EXCEPT the day of MTX and I have not had any troubles with mouth sores. I also wonder if it could be something related to your chemo, too - like maybe an interaction? Check with your doctor and let us know. We care.....Doreen About a week ago they increased my MTX to 2.5 mg injectable weekly. I have been on the injectable for over 6 months now. However the last few days I have developed some serious mouth and nose sores. I wear upper dentures from the bone and tooth loss in my jaw bone which makes this extremely painful. Has anyone experienced this and what if anything can be done about it?? By the way this is the only change I have had in medications so am assuming it is the MTX but I guess I am not sure. Any input would be helpful. I am on my way for my monthly blood work up, flu shot and weekly chemo but will be back on later. I go to the clinic here, but do have a call in to my Rheumy to also call me. She is out of the office until Wednesday though. Thanks Vicki Iowa Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 27, 2008 Report Share Posted October 27, 2008 Vicki, 1 cc = 1 cubic centimeter = 1 ml Not an MD On Mon, Oct 27, 2008 at 4:36 PM, Vicki <gramvick@...> wrote: > Dennis, > No they did not raise my folic acid. I will certainly give that a try. Am > waiting for the blood results to come back. Sometimes it is within hours > others is the next day. I did do a typo earlier though. I went from 1 ML or > 50 MG sub Q once weekly on the MTX. No idea what the CC would be. I do not > want to have to go back down as it has helped my mobility so much and with > the work that I do I really need that. Thanks so much for your help. > Vicki > Iowa Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 26, 2009 Report Share Posted April 26, 2009 Mine is with the pain. Its either my hands or my foot flaring up then I I am flared up.. > > How long have you all had sleep apnea? Did you have this problem before your pain or did it develop after. My dr wants me to go for the sleep test. I'm wondering if there could be a connection between chronic pain and sleep apnea or is this just a coincidence. Thanks for your help. > > Sue C > Moderator > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 26, 2009 Report Share Posted April 26, 2009 I have had the sleep apnea for many years....long before my injury n pain. I was finally diagnosed around 29 years old. Took them years to figure it out because I stopped snoring when my tonsils were removed. I also lost weight when I started using mine...it was a freakin miracle! I was very active, ate healthy, and exercised daily and I couldn't even lose a pound...then I got cpap and it melted off like butter! The weight loss happened after the injury and the exercise n activity stopped....go figure! Deanna Sent from my iPhone On Apr 26, 2009, at 8:28 AM, Corn <butterfliesrfree309@...> wrote: How long have you all had sleep apnea? Did you have this problem before your pain or did it develop after. My dr wants me to go for the sleep test. I'm wondering if there could be a connection between chronic pain and sleep apnea or is this just a coincidence. Thanks for your help. Sue C Moderator Quote Link to comment Share on other sites More sharing options...
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