Re: Hello, I'm new/supps fish oils etc?

[Guest guest]

Leonie,

I hated breaking down and taking all the meds I am on...predisone, plaquenil and

methotrexate and cymbalta (for depression) but I was just diagnosed with RA in

April and I was in so much pain I couldn't get out of bed.  Every joint

hurt...fingers, elbows, shoulders, hip, knees, toes.  I couldn't bend by elbow

and hold a fork to eat.  I had to do something!!  I use to be very active since

I have 2 boys ages 10 & 12.  I did change my diet somewhat (got info out of

books from the library) and a friend recommended dark cherry concentrate.  (I

didn't see any improvement though but she did).  Good luck....Paris

[ ] Hello, I'm new/supps fish oils etc?

Hello all, i'm new, and in Australia..  I've had RA for ten years but haven't

succumbed to drugs yet.  I tried methotrexate initially but went off it in

favour of herbal stuff to control symptoms.  However i didn't realise this

disease is quite vicious and still eats you up even while controlling symptoms. 

It makes you sicker and sicker.  Now my joints are virtually destroyed, and i

need knee replacements.  I'm at the point where i must contemplate going on the

DMARDs - i'm having a hard time coming to terms with it all and making a

decision. 

Recently i started on the Antibiotics Protocol however and want to find out if

it works for me before i do metho again.  Since i'm a health nut and am

interested in alt methods of healing, if anyone needs some pointers in that

direction, i have some ideas and contacts which might help.  Stuff along the

lines of diet and detoxes and supplements etc. 

Has anyone else had a similar experience to me ?

I think all of you have enormous courage to take the drugs for RA and try and

live a normal life.  It's not easy whichever way you decide to go.  I don't

judge anyone for their course of action.

all the best,

~Leonie

leoniecent@...

[Guest guest]

Paris and group;

Oh Paris, I was like that a month ago. My entire body hurt every

crevice, every bone and even my fingers and toes. I talked gently to

my rheumy and she has been getting more agressive with my RA. It was

the group that made me relize I need to speak up. They told me in

other words. They didnt even relize they told me lol.

I still hurt but not as bad, and not in so many places. I pray you

feel better. I hope your rheumy can find the cocktail that works for

you. I don't know how people do it with little kids. My kids are all

grown. Prednisone made me feel like a new person.

I hope my husband gets back to take me to my appointment.

hugs

Clora

[Guest guest]

Welcome Leonie,

Wow, I would love to visit beautiful Australia one day. We are all

scared of this disease. We do what we feel that is right for us. The

RA drugs are VERY scary, we have to TRY, and stop the progression.

I'm taking Naproxen right now, which is anti-inflammatory med. I've

tried most of the other's, and they are hard on my tummy. My doc told

me Mobic, was the least to cause upset, but it didn't work. But, what

doesn't work for me, can work for the next. I am on Humira which is

one of the biologic meds, and mtx, I'm still hopeful. Without any

meds, I would be very bad off, and I know it. Enough about meds, I'm

so glad your here. This is a great place to be. Just know your never

alone here, Tawny

[Guest guest]

Each of us has to weigh the benefits against the risks. For me, it was

a no-brainer. My life was miserable when I was unable to open a jar or

bottle, squeeze out a wash cloth, cut my own meat, etc. The constant

pain that accompanied the disease was intolerable. I was glad to take

medication in spite of the risks involved. Since I've been on Enbrel, I

have been a happy camper. It controls my pain and inflammation without

any adverse side effects. I have no joint deformities.

Sue

On Thursday, August 28, 2008, at 05:18 AM, leonie cent wrote:

> I think all of you have enormous courage to take the drugs for RA and

> try and live a normal life. It's not easy whichever way you decide to

> go. I don't judge anyone for their course of action.