Re: Scared, 5mg Predisone and side effects.....Genes.........

[Guest guest]

LL,

The exact cause of RA is unknown.

Genes are partially responsible. Environment also plays a role. RA is

also more common in women.

Even identical twins have only a 20% concordance rate, so please don't

worry a lot about your kids - it's not passed directly from a parent

to a child.

****************

Arthritis Foundation

Arthritis Today Magazine

Frequently Asked Questions About Rheumatoid Arthritis

04 Jan 2008

Will my children be at risk for rheumatoid arthritis?

While it is certainly possible that your children could develop RA, it

is not likely. That's because RA is not caused by a single gene passed

down from parent to child. It is a complex disease probably involving

a number of genes. Each individual gene makes a small contribution to

disease risk. Your children would likely need to inherit most if not

all of those genes to be at great risk. And even if they did, that's

no guarantee they would have RA, because environmental factors also

are involved.

Although the risk of having RA is slightly greater if a parent or

other close family member has RA, most people with RA don't have a

family history of the disease.

http://www.arthritis.org/faqs-future-may-hold.php

************************************************

How is your wife feeling?

Not an MD

On Mon, Oct 27, 2008 at 8:15 PM, letchu_2001 <letchu_2001@...> wrote:

> Hello Dennis, Group and all the friends :

>

> Thanks a lot for your updates and information Predisone.

> Its good to know 2 things, we are now walking alone and there is lot

> of people who are sharing their experiences with us.This RA brings

> all of us together . ( Eventhough it affects my wife and not me, I

> dont think that makes a difference for me personally).

>

> Just to introduce ourselves 1st. We are blessed with 2 kids a boy and

> a girl. Life had been so smooth until the last 2 months when my wife

> in late 20's after giving birth to our son started to have problem

> with inflammation and pain in the early morning. I was and had been

> always an optimist about what brings out of life.

>

> But after the blood examination on the spe 13th life changed

> totally. Now I am scared of every single side affect I read out of

> medicines , the future of our kids. May be, we can call it scared

> unto death..

>

> As i mentioned in the previous mail . My wife's doses are 1.5g

> Sulfazaline, 400mg plaquenil, 10mg MTX with Calcium, Folic acid, Fish

> oil and 5mg of Predisone.

>

> Now , i start to wonder , why it is my wife.......and the other

> question, why not she?

>

> To my question. Is RA a Gentic disease? do we inherit and pass it on

> to children. My wife's family had totally no idea of what RA is and i

> believe she is the 1st one at least in their immediate

> family....aunt , uncle, cousin, brother, sister , father ,

> mother....and nobody has it.

>

> I am not in self pity, just to understand.....is it a genetic

> disease??

>

> Thanks and regards

> LL

[Guest guest]

RA is genetic that is triggered by some sort of stressor.  Probably in your

wife's case, as it was mine, it was triggered by the hormonal changes of child

birth.  There are all kinds of theories about what can and cannot trigger

disease activation.  For us who already have it, there is no reason to dwell on

what cause it, we won't know and it won't help.

 

Are your children at risk?  Yes.  They are more likely to get an autoimmune

illness because your wife has one, but not necessarily RA.  My son is 13 years

old and was diagnosed with Type 1 Diabetes, an autoimmune disease, when he was

10 years old.  However, it is no reason to stay up at night worrying about it. 

There is a greater chance that your children will be disease free than with it.

 

There are SO many issues that go along with RA, other than the disease itself. 

I have been lucky.  I haven't suffered from depression, but it can cripple some

patients.  There can also be a financial burden.  Medication and care gets

expensive, even with decent insurance.  If your wife works, she may not or may

not be able to work in the near future, which could adversely effect your

finances, so plan now.

 

The best thing you can do is be a support.  I am lucky to have a supportive

family, but many on here don't have that luxury.  Your wife will hurt, she will

get fatigued, sometimes she will get extra cranky, things might not get done

around the house as you are used to, and sex drive usually decreases.  This all

doesn't happen tomorrow, but progresses as the disease does.  It sounds like her

RD is being proactive.  Some patients progress quickly, some are more

manageable.  But I think that the statistic is that 50% of RA patients are

disabled in 10 years; mine was extremely aggressive and was disabled in 3

years.  You won't know her course until it happens.

 

Mercedes

From: letchu_2001 <letchu_2001@...>

Subject: [ ] Scared, 5mg Predisone and side effects.....Genes.........

Date: Monday, October 27, 2008, 9:15 PM

Hello Dennis, Group and all the friends :

Thanks a lot for your updates and information Predisone.

Its good to know 2 things, we are now walking alone and there is lot

of people who are sharing their experiences with us.This RA brings

all of us together . ( Eventhough it affects my wife and not me, I

dont think that makes a difference for me personally).

Just to introduce ourselves 1st. We are blessed with 2 kids a boy and

a girl. Life had been so smooth until the last 2 months when my wife

in late 20's after giving birth to our son started to have problem

with inflammation and pain in the early morning. I was and had been

always an optimist about what brings out of life.

But after the blood examination on the spe 13th life changed

totally. Now I am scared of every single side affect I read out of

medicines , the future of our kids. May be, we can call it scared

unto death..

As i mentioned in the previous mail . My wife's doses are 1.5g

Sulfazaline, 400mg plaquenil, 10mg MTX with Calcium, Folic acid, Fish

oil and 5mg of Predisone.

Now , i start to wonder , why it is my wife.......and the other

question, why not she?

To my question. Is RA a Gentic disease? do we inherit and pass it on

to children. My wife's family had totally no idea of what RA is and i

believe she is the 1st one at least in their immediate

family....aunt , uncle, cousin, brother, sister , father ,

mother....and nobody has it.

I am not in self pity, just to understand.. ...is it a genetic

disease??

Thanks and regards

LL

[Guest guest]

LL,

Your wife is lucky to have such a supportive husband who will

understand the problems that RA will bring and help her out.

They have to list all side effects that anyone has ever had from any

medication. That doesn't mean that your wife will get all of them. She

may not even get any bad side effects. If she does, the medication can

be switched to something else. I'm sure that her doctor will do blood

work often to monitor her.

Best of luck to you, your wife, and kids.

Sue

On Monday, October 27, 2008, at 08:15 PM, letchu_2001 wrote:

> But after the blood examination on the spe 13th life changed

> totally. Now I am scared of every single side affect I read out of

> medicines , the future of our kids. May be, we can call it scared

> unto death..

[Guest guest]

LL,

In my case also, I have no family members with ra...when my sister

went with me to the rheumy she asked that question about gentics...He

responded not necessarily(sp). I also em newly diagnosed with ra this

summer...I think these feeling your are feeling are quit normal,we all

go through it..Matter fact I still feeling the why me syndrome..I also

think that maybe this isnt real or maybe my diagnosis is a mistake..I

have had two rheumys tell me now that its RA..( I had to do to another

one because of insurance)..HANG IN THERE...time will make a

difference..what a great husband, your wife is blessed with just havng

a concerned husband...

diane in ohio

[Guest guest]

LL and Group;

Welcome to our humble group LL. Yes RA has brought us together in

this battle with this dreadful disease RA. I am so sorry to hear

your precious wife has RA. I know that must be very hard for her.

She has you and 2 kids that is wonderful.

I always have to say something when I hear someone talk about

prednisone. It is a love/hate we have with prednisone. I love

taking prednisone but my doctor will only give me it on a temporary

basis.

I can understan you being concerned for your wife taking meds that

has many side affects. I myself don't care to take meds with their

aweful side affects, but for a family member I would be like you

also very concerned.

Yes I know LL, we cant stand it when it is a family member to be

ill. We can take it better if it is ourselves. That is a question

that has no answers. Why me or Why her? No one knows that answers

except for genes or life's experiences.

God bless and I hope everyone has pain free days. Take care and I

love you all.

gentle hugs

Clora

************************************************************

>

> Hello Dennis, Group and all the friends :

>

> Thanks a lot for your updates and information Predisone.

> Its good to know 2 things, we are now walking alone and there is

lot

> of people who are sharing their experiences with us.This RA brings

> all of us together . ( Eventhough it affects my wife and not me, I

> dont think that makes a difference for me personally).

>

> Just to introduce ourselves 1st. We are blessed with 2 kids a boy

and

> a girl. Life had been so smooth until the last 2 months when my

wife

> in late 20's after giving birth to our son started to have problem

> with inflammation and pain in the early morning. I was and had been

> always an optimist about what brings out of life.

>

> But after the blood examination on the spe 13th life changed

> totally. Now I am scared of every single side affect I read out of

> medicines , the future of our kids. May be, we can call it scared

> unto death..

>

> As i mentioned in the previous mail . My wife's doses are 1.5g

> Sulfazaline, 400mg plaquenil, 10mg MTX with Calcium, Folic acid,

Fish

> oil and 5mg of Predisone.

>

> Now , i start to wonder , why it is my wife.......and the other

> question, why not she?

>

> To my question. Is RA a Gentic disease? do we inherit and pass it

on

> to children. My wife's family had totally no idea of what RA is and

i

> believe she is the 1st one at least in their immediate

> family....aunt , uncle, cousin, brother, sister , father ,

> mother....and nobody has it.

>

> I am not in self pity, just to understand.....is it a genetic

> disease??

>

>

> Thanks and regards

> LL

>

[Guest guest]

i know how you feel,i came down with ra 2 months after my second child was born.

things to get better,my daughter is 27 and my son is 24.you have to get onto

the right meds.gold pills worked for 9 years for me then enbrel,plus a whole

lota

other meds,have faith

 

ann f

From: letchu_2001 <letchu_2001@...>

Subject: [ ] Scared, 5mg Predisone and side effects.....Genes.........

Date: Monday, October 27, 2008, 9:15 PM

Hello Dennis, Group and all the friends :

Thanks a lot for your updates and information Predisone.

Its good to know 2 things, we are now walking alone and there is lot

of people who are sharing their experiences with us.This RA brings

all of us together . ( Eventhough it affects my wife and not me, I

dont think that makes a difference for me personally).

Just to introduce ourselves 1st. We are blessed with 2 kids a boy and

a girl. Life had been so smooth until the last 2 months when my wife

in late 20's after giving birth to our son started to have problem

with inflammation and pain in the early morning. I was and had been

always an optimist about what brings out of life.

But after the blood examination on the spe 13th life changed

totally. Now I am scared of every single side affect I read out of

medicines , the future of our kids. May be, we can call it scared

unto death..

As i mentioned in the previous mail . My wife's doses are 1.5g

Sulfazaline, 400mg plaquenil, 10mg MTX with Calcium, Folic acid, Fish

oil and 5mg of Predisone.

Now , i start to wonder , why it is my wife.......and the other

question, why not she?

To my question. Is RA a Gentic disease? do we inherit and pass it on

to children. My wife's family had totally no idea of what RA is and i

believe she is the 1st one at least in their immediate

family....aunt , uncle, cousin, brother, sister , father ,

mother....and nobody has it.

I am not in self pity, just to understand.. ...is it a genetic

disease??

Thanks and regards

LL

[Guest guest]

Thanks for the encouraging words ann.Have a nice day. Hope i can reply

you when my kids are of Same age.

Hello Annette, Gilly and Phyillis:

Today was not a great day for my wife. She was a bit dejected. Hope

things improve. Have a nice sunday.

regards

LL