Re: Clora and rheumy appt

[Guest guest]

Good Luck Clora,

Thinking of you today. Let us know how it went. I have my 'fingers crossed'* for

you and others waiting on news.I know you will post when you can.

*: just writing  these words  makes me think of  that 'simple' action,'crossing

fingers,a thing non-RA sufferers take for granted, similarly my (albeit clumsy)

tapping at the keyboard when I know that doing the same can be such a painful

struggle for so many of you here.

 

Best wishes,Clora, Shirley and group.

Chris

UK

From: CLORA <clora4jesus@...>

Subject: [ ] Re: introduction-long/ OT Melynda

Date: Thursday, 28 August, 2008, 5:03 PM

Melynda and group;

I am so sorry melynda, you had RA since you was a wee little girl.

Your still in aweful pain? You have tried everything and can't get

relief?, or we always have some pain with RA?

I will see my rheumy in a few hours. Will let everyone know whats

going on. I got all my posts done. I have a few more new ones to go

over. I had a 105 post this morning. I love to read my post from the

best RA group.

gentle hugs

Clora

Send instant messages to your online friends http://uk.messenger.

[Guest guest]

Good luck Clora! I am late posting but just sending a prayer your

way, Tawny

[Guest guest]

Chriss and group;

Awe how sweet Chriss. Yes crossing the fingers can be so painful for

a lot of us. I left what happen at the rhemys office in the last

post I sent. No humira till I get a TB test. I did get another

script for prednisone. WOO HOO, I love prednisone haaaaaaa.

gentle hugs

Clora

@...> wrote:

>

> Good Luck Clora,

> Thinking of you today. Let us know how it went. I have my 'fingers

crossed'* for you and others waiting on news.I know you will post

when you can.

>

> *: just writing  these words  makes me think of  that 'simple'

action,'crossing fingers,a thing non-RA sufferers take for granted,

similarly my (albeit clumsy) tapping at the keyboard when I know

that doing the same can be such a painful struggle for so many of

you here.

>  

> Best wishes,Clora, Shirley and group.

> Chris

> UK

>

>

> From: CLORA <clora4jesus@...>

> Subject: [ ] Re: introduction-long/ OT Melynda

>

> Date: Thursday, 28 August, 2008, 5:03 PM

>

>

>

>

>

>

> Melynda and group;

>

> I am so sorry melynda, you had RA since you was a wee little girl.

> Your still in aweful pain? You have tried everything and can't get

> relief?, or we always have some pain with RA?

>

> I will see my rheumy in a few hours. Will let everyone know whats

> going on. I got all my posts done. I have a few more new ones to

go

> over. I had a 105 post this morning. I love to read my post from

the

> best RA group.

>

> gentle hugs

> Clora

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

> Send instant messages to your online friends

http://uk.messenger.

>

[Guest guest]

Tawny and Group;

TAwny thanks so much. Your such a dollbaby. Oh I forgot to add I

got 4 shots of steroids. One in each shoulder and one in each hip

for the bursitis. I get them every 4 months. I needed them too. I

also have pain patches for my back for osteo. They took a blood

test at the rheumys today also.

My rheumy said we will work on the osteo when we get the RA calmed

down. The pain patches help a lot. I just have to have some one

stick them on cause I cant put them on my back myself. I am allowed

to put 3 on a day. I wanted 4 on each day but the doc said that

would be to many. One for each side of my back. I didnt get the

humira yet but she did write me a script for another month of

prednisone woo hoo lol.

gentle hugs

Clora

>

> Good luck Clora! I am late posting but just sending a prayer your

> way, Tawny

>

[Guest guest]

Clora,

It sounds like you had a great doc visit. The shots should help you a

lot. I have bursitis below my knees, it hurts so bad. Those patches

will help you lots, so happy for you, way to go. I used some patches,

and they never wanted to stay on, hope they work better for you.

Well, I'm glad you will be able to take the Prednisone, until you

start the Humira. Take care of yourself, Tawny

[Guest guest]

Tawny and Group;

Yessssssss I had a great day at the rheumys. Omg, it feels so good

where I got the shots. She made it stronger than last time. Bursitis

is so painful sorry you got it too. My knees hurt also I have it on

my knees too. I put patches on my knees haaaaaaa. It kept falling off.

Anything that bends the patches seem to come off. Most of the time the

patches stays on my back.

I use alcohol to wipe the area clean of oil and they stay on. If I lie

still for about 10 minutes after I get them on, they stay on pretty

good. Oh it helps a lot too if you hold your hand on it for one

minute, the heat from your hand activates the glue, thats what a

doctor told me. I don't know what I would do without the pain patches

right now for my osteo. My rheumy won't give me pain pills.

The prednisone is so good too. I don't know all the side affects and I

don't care. The pain is to much without them. I know one side affect

and its insominia. I go to sleep about 11 pm and wake up wide awake at

3 or 4 in the morning. I don't mind. I just play my pogo games or

read my posts. I only gained 4 pounds in one month on the prednisone

and thats great. last time I took it for poison ivy I gained about 20

lbs.

My husband and son-n-law broke the ignition and started the van. The

ignition wouldnt turn it was stuck. It don't look pretty but it starts

lol. My husband looked pityful today at the doctors he was so worried

about our van. We really need transportation. We also have jeep

cherokee a 94. We can't afford the insurance so we turned in the

plates. At least we got that as a back up.

I am sorry everybody. I want to write post but my hands and shoulders

are always hurting. I see a lot of post where people say what I want

to say and I am so glad they do that. The lady that daughter and

grandaughter was in the hospital, the group was so happy they are ok

as I am. Sorry I can't remember their name. I am so happy they are

home and on the road to recovery. I prayed and prayed for them. God is

so merciful and wants us to have life and to have it abundantly.

gentle hugs everyone

Clora

> Clora,

>

> It sounds like you had a great doc visit. The shots should help you

a

> lot. I have bursitis below my knees, it hurts so bad. Those

patches

> will help you lots, so happy for you, way to go. I used some

patches,

> and they never wanted to stay on, hope they work better for you.

> Well, I'm glad you will be able to take the Prednisone, until you

> start the Humira. Take care of yourself, Tawny

>

[Guest guest]

Clora,

What type of patches did you get? I was using Lidoderm, they did

work OK, except for them staying on. I did find out later, by wiping

the area first with alcohol, did keep them on better. (What good

info we can find out on the group.)

Yes, the Prednisone is really good, especially during a flare. I

haven't had my RA meds for three weeks, and I am hurting so bad. I'm

thinking about pulling out my Prednisone. I also had insomnia, which

I have anyway, whether I take it or not.

OMG, bursitis is so painful. I have it in both knees, actually right

on the side, below the knee. Glad you got your shots, they will last

awhile.

Sorry about your van, I am glad you made it to your appointment. I

hope you can get it fixed soon. Everything is so expensive now, it's

just hard to do anything extra. I'm sure glad gas has went down. I

just don't understand why groceries are still going up.

I pray you will get Humira soon. Your doctor might need to holler at

them again, it might get the ball rolling this time. You have a good

night, and just know your in my prayers, Tawny

[Guest guest]

Tawny and Group;

Yes, lidoderm is the patches. Yes I have my husband wipe my back

with alcholol and gently hold the patch on. The heat from his hand

activates the glue, hold it on about 1 minute. Oh I am so sorry you

got bursitis. We are a mess lol. I put the patch on my knee once.

It worked, It fell off though haaaaaaa.

OMG the group has really kept me informed. Yes we can find out a lot

with this group. You guys are so nice. I want to hug everyone ever

so gently and make them not hurt if I only could. I pray a lot for

our gentle group. I want to cry for those in so much pain. I thought

I was the only sufferer with RA. I want everyone to have more pain

free days. I don't want anyone to ever suffer this kind of pain.

My daughter said she overdid her house work she is so sore. I said

baby I have done nothing and I feel like I worked a 14 hour job. She

felt so sorry for me. She has a 3 week old son. His name is Kane.

He is so tiny. She lives with me. Her name is Lilly. I love having

her here.

gentle hugs everyone

Clora

ps

The van is running fine.

> Clora,

>

> What type of patches did you get? I was using Lidoderm, they did

> work OK, except for them staying on. I did find out later, by

wiping

> the area first with alcohol, did keep them on better. (What good

> info we can find out on the group.)

> Yes, the Prednisone is really good, especially during a flare. I

> haven't had my RA meds for three weeks, and I am hurting so bad.

I'm

> thinking about pulling out my Prednisone. I also had insomnia,

which

> I have anyway, whether I take it or not.

> OMG, bursitis is so painful. I have it in both knees, actually

right

> on the side, below the knee. Glad you got your shots, they will

last

> awhile.

> Sorry about your van, I am glad you made it to your appointment.

I

> hope you can get it fixed soon. Everything is so expensive now,

it's

> just hard to do anything extra. I'm sure glad gas has went down.

I

> just don't understand why groceries are still going up.

> I pray you will get Humira soon. Your doctor might need to holler

at

> them again, it might get the ball rolling this time. You have a

good

> night, and just know your in my prayers, Tawny

>