Guest guest Posted August 27, 2008 Report Share Posted August 27, 2008 Hi... I always wanted to be a member of an elite group, but the truth be told, a few months ago if someone told me about this group I never would have picked it. Now I feel like there isn't a better group anywhere and somehow I just got lucky for a change! Stan -------------- Original message -------------- From: " fullwave2 " <kg2bc@...> In my 59 years I've had some experience with support groups. Probably more than I'd like to admit. Some, I had been an active contributor and many, just a lurker. I have to say though that this group is pretty special. I have not experienced such a vast group of non- judgmental, well informed and compassionate people as there are assembled here. You have found the right formula of intelligent sharing and compassion tempered with the sometimes needed gentle nudge. This along with the sheer volume of data that is available here makes this forum stand out above the rest. Thank you for this and thank you for being there for each other. You should all be proud and appreciative of what you have here. I know I am. I suspect I'll hang around for a while. Bob Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 27, 2008 Report Share Posted August 27, 2008 Bob, You better stick around a long time here! I have been here for about four years, and even though I don't post often, I do try to read the posts. I have made so many friends here, and we write email often, to see how were doing. We all stick together around here, we need that. It's so hard to have a chronic disease, and not have someone to talk to. I have RA, and it's a devastating disease, sometimes it is still a little too much to deal with. Without the support of this group, I would be totally lost. I have my family, but they just don't understand me anymore. Sometimes, I feel so alien, and I feel so sad. But with my RA family, they know how to help me. You just know, I'm always here if you need someone to talk to, take care, Tawny Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 27, 2008 Report Share Posted August 27, 2008 Hi Bob! Welcome to the group! I am late in welcoming you as I have been away from my computer for a few days and have over 600 supportive emails to sort through now:) This is an amazing group of supportive, caring, beautiful individuals. The amount of support and knowledge I gain here is incredible! You have definitely come to the right place!! From: fullwave2 <kg2bc@...> Subject: [ ] First Impressions from the " New Guy " Date: Wednesday, August 27, 2008, 12:24 PM In my 59 years I've had some experience with support groups. Probably more than I'd like to admit. Some, I had been an active contributor and many, just a lurker. I have to say though that this group is pretty special. I have not experienced such a vast group of non- judgmental, well informed and compassionate people as there are assembled here. You have found the right formula of intelligent sharing and compassion tempered with the sometimes needed gentle nudge. This along with the sheer volume of data that is available here makes this forum stand out above the rest. Thank you for this and thank you for being there for each other. You should all be proud and appreciative of what you have here. I know I am. I suspect I'll hang around for a while. Bob Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 27, 2008 Report Share Posted August 27, 2008 Well, yes, I second that.... such a warm supportive group. the smiles come, it is so wonderful....I remember my 'off topic posting' can a group have a 'personality' and I do believe the answer is 'yes''. I didn't quite explain where I came from with that query, but it did come from working as part of a wonderful team, in my professional life, some would come and some would go , but the newcomers so surely added their unique but different input, often their refreshing youth....I just loved to be part of it and this group seems to carry the same sustaining feel. Wow! UK, retired doc, friend of ra sufferer ,no computer From: stanpfister@... <stanpfister@...> Subject: Re: [ ] First Impressions from the " New Guy " Date: Wednesday, 27 August, 2008, 7:22 PM Hi... I always wanted to be a member of an elite group, but the truth be told, a few months ago if someone told me about this group I never would have picked it. Now I feel like there isn't a better group anywhere and somehow I just got lucky for a change! Stan ------------ -- Original message ------------ -- From: " fullwave2 " <kg2bchotmail (DOT) com> In my 59 years I've had some experience with support groups. Probably more than I'd like to admit. Some, I had been an active contributor and many, just a lurker. I have to say though that this group is pretty special. I have not experienced such a vast group of non- judgmental, well informed and compassionate people as there are assembled here. You have found the right formula of intelligent sharing and compassion tempered with the sometimes needed gentle nudge. This along with the sheer volume of data that is available here makes this forum stand out above the rest. Thank you for this and thank you for being there for each other. You should all be proud and appreciative of what you have here. I know I am. I suspect I'll hang around for a while. Bob Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 27, 2008 Report Share Posted August 27, 2008 Group, Have I told you lately that I love you? It is great to be counted among your numbers. Shirley > > From: stanpfister@... <stanpfister@...> > Subject: Re: [ ] First Impressions from the " New Guy " > > Date: Wednesday, 27 August, 2008, 7:22 PM > > > > > > > Hi... > > I always wanted to be a member of an elite group, but the truth be told, a few months ago if someone told me about this group I never would have picked it. Now I feel like there isn't a better group anywhere and somehow I just got lucky for a change! > > Stan > > ------------ -- Original message ------------ -- > From: " fullwave2 " <kg2bchotmail (DOT) com> > In my 59 years I've had some experience with support groups. Probably > more than I'd like to admit. Some, I had been an active contributor > and many, just a lurker. I have to say though that this group is > pretty special. I have not experienced such a vast group of non- > judgmental, well informed and compassionate people as there are > assembled here. You have found the right formula of intelligent > sharing and compassion tempered with the sometimes needed gentle > nudge. This along with the sheer volume of data that is available here > makes this forum stand out above the rest. Thank you for this and > thank you for being there for each other. You should all be proud and > appreciative of what you have here. I know I am. I suspect I'll hang > around for a while. > Bob > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 28, 2008 Report Share Posted August 28, 2008 Bod and Group; Thanks Bob, THis is my first and only support group. I lucked out lol. I don't know what other groups were like. I didn't even care for support groups for myself, but I was desperate. I didnt know how to deal with RA and some one said try this group. Woo hoo I am so glad I did. They have been so nice to me. I learned a lot in my short time here. I think about 3 months or so. I can deal with RA just a might better thanks to our humble little group here. I have a better understanding about RA also now. Welcome to our group. I have 105 post to read. I missed just one day lol. I will read every post. I feel a connection to every one in our group. Glad you can join us. I am sorry for your RA but it's nice to know we have a good bunch here that cares. Gentle hugs Clora Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 28, 2008 Report Share Posted August 28, 2008 and group; OMG 600 post. If your like me you will want to post a lot haaaaaa. I feel so close to everyone here. hugs Clora > Hi Bob! > Welcome to the group! I am late in welcoming you as I have been away from my computer for a few days and have over 600 supportive emails to sort through now:) This is an amazing group of supportive, caring, beautiful individuals. The amount of support and knowledge I gain here is incredible! You have definitely come to the right place!! > > > > From: fullwave2 <kg2bc@...> > Subject: [ ] First Impressions from the " New Guy " > > Date: Wednesday, August 27, 2008, 12:24 PM > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 28, 2008 Report Share Posted August 28, 2008 > > Bob and Group; > Glad you can join us. I am sorry for your RA but it's nice to know we have a good bunch here that cares. > > Gentle hugs > Clora > Thanks Clora and everyone else who responded here. I'm afraid my bubble is bursting a bit this morning. After having some days of relief being on the 5 day run with 60MG of Prednisone, things have been coming back to reality. I told my wife I felt it was a bit like the movie Awakening with DiNiro and Robin where the people in a catatonic state get some treatment that brings them out of it but knowing all alone it was only going to be temporary. While the pain and stiffness hasn't returned to the levels prior to the Prednisone, my hips this morning were screaming " Remember us? " My shoulders have also decided to sing in harmony and of course the constant visual reminder of what I read someone referring to as " sausage finger? " . The nodule on my right index finger has developed a personality all it's own. LOL! The 200MG of Celebrex isn't helping much. Mentally ticking off the days until the first appt. with the Rheumy. Still just putting one painful foot in front of the other. To think, last fall I was walking 40-50 miles a month. Damn... I guess my " normal " has changed. Thanks again. Bob " Life is a series of challanges and adjustments. " Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 28, 2008 Report Share Posted August 28, 2008 Hang in there, guy. Praying better days ahead for all of us. Maybe when fall comes and the heat isn't quite so brutal your pain will ease up a bit. We're pulling for you! Jane in Dallas > > > > Bob and Group; > > Glad you can join us. I am sorry for your RA but it's nice to know we > have a good bunch here that cares. > > > > Gentle hugs > > Clora > > > > Thanks Clora and everyone else who responded here. I'm afraid my > bubble is bursting a bit this morning. After having some days of > relief being on the 5 day run with 60MG of Prednisone, things have been > coming back to reality. I told my wife I felt it was a bit like the > movie Awakening with DiNiro and Robin where the people > in a catatonic state get some treatment that brings them out of it but > knowing all alone it was only going to be temporary. While the pain > and stiffness hasn't returned to the levels prior to the Prednisone, my > hips this morning were screaming " Remember us? " My shoulders have also > decided to sing in harmony and of course the constant visual reminder > of what I read someone referring to as " sausage finger? " . The nodule > on my right index finger has developed a personality all it's own. LOL! > The 200MG of Celebrex isn't helping much. Mentally ticking off the > days until the first appt. with the Rheumy. > Still just putting one painful foot in front of the other. To think, > last fall I was walking 40-50 miles a month. Damn... I guess > my " normal " has changed. Thanks again. > Bob > > " Life is a series of challanges and adjustments. " > Quote Link to comment Share on other sites More sharing options...
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