Whining

[Guest guest]

I'm just typing to whine a bit. I quit taking my MTX in early June and had to

wait until this week to see my Rheumy to start Arava. He did an ultrasound of

my hand and yep, it shows inflammation and deteriation. Hopefully the Arava

will help me. The MTX caused some possible toxicity problems to my lungs. My

lungs also show signs of being affected by the RA and Sjogrens. GRRRRRR! I've

been on Prednisone since June and will wean from 10mg/daily to 5 mg/daily. My

body decided it didn't want to wean down though. I woke up at 4am with a

HORRIBLE flare in my right shoulder. So, percocet was my drug of choice.

Wished it would have helped more. It's getting late and I'm dreading going to

bed because of the pain, which has subsided some but is still there.

So, there is my whining for the night. I wish you all the best and thank you

for listening (reading).

Tammy

_________________________________________________________________

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[Guest guest]

Tammy,

I pray you had a good nights sleep. Whine away Honey. We all need

some whine at times. I am so sorry that the MTX that was suppose to

help you has caused more medical problems. Arava did help with my

inflammation. Don't forget to check your BP often.

Hugs,

Shirley

>

>

> I'm just typing to whine a bit. I quit taking my MTX in early

June and had to wait until this week to see my Rheumy to start

Arava. He did an ultrasound of my hand and yep, it shows

inflammation and deteriation. Hopefully the Arava will help me.

The MTX caused some possible toxicity problems to my lungs. My

lungs also show signs of being affected by the RA and Sjogrens.

GRRRRRR! I've been on Prednisone since June and will wean from

10mg/daily to 5 mg/daily. My body decided it didn't want to wean

down though. I woke up at 4am with a HORRIBLE flare in my right

shoulder. So, percocet was my drug of choice. Wished it would have

helped more. It's getting late and I'm dreading going to bed

because of the pain, which has subsided some but is still there.

>

> So, there is my whining for the night. I wish you all the best

and thank you for listening (reading).

>

> Tammy

> _________________________________________________________________

> Get thousands of games on your PC, your mobile phone, and the web

with Windows®.

> http://clk.atdmt.com/MRT/go/108588800/direct/01/

>

>

[Guest guest]

So sorry you're hurting. I hope you can get some rest. The side effects of these

meds are frustrating. I hope the Arava works and works quickly.

Elaine

[Guest guest]

Have you tried a heating pad or microwavable heat pad?  That sometimes helps me

a lot when it is localized pain.  lb

From: Tammy Fredricks <tammyfredricks@...>

Subject: [ ] Whining

Date: Sunday, August 24, 2008, 10:29 PM

I'm just typing to whine a bit. I quit taking my MTX in early June and had to

wait until this week to see my Rheumy to start Arava. He did an ultrasound of my

hand and yep, it shows inflammation and deteriation. Hopefully the Arava will

help me. The MTX caused some possible toxicity problems to my lungs. My lungs

also show signs of being affected by the RA and Sjogrens. GRRRRRR! I've been on

Prednisone since June and will wean from 10mg/daily to 5 mg/daily. My body

decided it didn't want to wean down though. I woke up at 4am with a HORRIBLE

flare in my right shoulder. So, percocet was my drug of choice. Wished it would

have helped more. It's getting late and I'm dreading going to bed because of the

pain, which has subsided some but is still there.

So, there is my whining for the night. I wish you all the best and thank you for

listening (reading).

Tammy

____________ _________ _________ _________ _________ _________ _

Get thousands of games on your PC, your mobile phone, and the web with Windows®.

http://clk.atdmt. com/MRT/go/ 108588800/ direct/01/

[Guest guest]

Hi .

 

I was sorry to read that you are in so much pain and suffering.  Have you

called your Rheumy yet?  My Rheumy has me increase my Pred. when I had those

bad flares, as nothing touches the pain, no matter how much you take.  She

gives me high doses, then decreases slowly until my pain is gone.  It is no fun

to suffer like this with RA.

 

It really stinks with no ins. and no money.  Makes it very hard to try and stay

above water.  I am so sorry for your situation.  I pray you feel better soon,

and that there are better days ahead for you.

 

I hate to complain but there are many times when we just have to.  Hard to keep

all that inside of us.  Please feel better soon.  I know just how bad pain can

be, and what it does to us.  Everyone here does too.  We are here for you

always.

 

Hugs,

 

Barbara

From: <nancymillerellis@...>

Subject: [ ] Whining

Date: Tuesday, December 7, 2010, 6:58 AM

 

Here it is 3:45 AM and I still can't get to sleep because of the pain in my hips

and my wrists and my knees and . . . (It's been raining the last 2 days). I have

taken a double dose of Hydromorphone, a double dose of my xanax, naproxen,

antihistimes (because I too have that cough) and rubbed MSM on my joints I can

reach - even tried it on my hips but doubt it will help there - too deep. And,

my daughter's best friend (who has been living with us) is having her C-section

tomorrow so I have to be up and at the hospital in a few hours (or up to take

care of my 5 year old grandson while my daughter goes to the hospital because he

was complaining about an earache and sore throat tonight so he may not be able

to go to kindergarten.To make matters worse, because I still don't have

insurance (or even any income at this point) there's no point in going to my

rheumy to compalin about the hips because I can't afford an x-ray,let alone an

MRI.

Anyway, thanks for listening - I just needed to vent to people who understand.

My family really tries to be understanding amd supportive, but they really don't

understand my " staying up all night and then sleeping all day " - like I'm

choosing to do that. And I know they get tired of listening to me complain (I

get tired of listening to myself sometimes).

So, off to bed and the heating pad and a book (which I may not be able to hold

very long) to try to get to sleep so I can forget about the pain and maybe not

fall asleep while babysitting my grandson. That can be dangerous, I did that

during one of my previous flares about a year ago when he decided to take his

frequent " styling " of my hair a step further and took a scissors and cut off a

huge piece of my hair. Needless to say, I was at the beauty shop as soon as I

could get there, and then when I told the beautician I wanted a " drastic " change

from my usual shoulder length hair since he had cut a bunch off anyway, she cut

it soooooo short that my daughter proceeded to call me " dad " for the next couple

months. Looking back, it was pretty funny. I guess that makes this a good time

to go to bed - laughing at how funny children and life can be. That's what we

have to do to keep us going one day at a time.

God bless all of you in this group who listen and understand, even to those of

us who read all the time and only write occasionally. Thanks.

Ellis

[Guest guest]

Ms -

 

I find that on really bad days when I can't sleep, that a hot bath is my best

friend. Seems to help the hips and really all of my joints. Then I wrap up in

blankets and drift off ( most of the time anyway ). If that doesn't work- there

is always Lunesta. Can't hurt to try at any rate.

 

That isn't called whining, that is called " sharing with friends " by the way.

 

Gentle hugs-- in SC

 

Here it is 3:45 AM and I still can't get to sleep because of the pain in my hips

and my wrists and my knees and . . . (It's been raining the last 2 days). I have

taken a double dose of Hydromorphone, a double dose of my xanax, naproxen,

antihistimes (because I too have that cough) and rubbed

[Guest guest]

Hope you are feeling better today . I sure can relate. You are a trooper

for sure.

>

> Here it is 3:45 AM and I still can't get to sleep because of the pain in my

hips and my wrists and my knees and . . . (It's been raining the last 2 days).

I have taken a double dose of Hydromorphone, a double dose of my xanax,

naproxen, antihistimes (because I too have that cough) and rubbed MSM on my

joints I can reach - even tried it on my hips but doubt it will help there - too

deep. And, my daughter's best friend (who has been living with us) is having

her C-section tomorrow so I have to be up and at the hospital in a few hours

(or up to take care of my 5 year old grandson while my daughter goes to the

hospital because he was complaining about an earache and sore throat tonight so

he may not be able to go to kindergarten.To make matters worse, because I still

don't have insurance (or even any income at this point) there's no point in

going to my rheumy to compalin about the hips because I can't afford an

x-ray,let alone an MRI.

>

> Anyway, thanks for listening - I just needed to vent to people who understand.

My family really tries to be understanding amd supportive, but they really don't

understand my " staying up all night and then sleeping all day " - like I'm

choosing to do that. And I know they get tired of listening to me complain (I

get tired of listening to myself sometimes).

>

> So, off to bed and the heating pad and a book (which I may not be able to hold

very long) to try to get to sleep so I can forget about the pain and maybe not

fall asleep while babysitting my grandson. That can be dangerous, I did that

during one of my previous flares about a year ago when he decided to take his

frequent " styling " of my hair a step further and took a scissors and cut off a

huge piece of my hair. Needless to say, I was at the beauty shop as soon as I

could get there, and then when I told the beautician I wanted a " drastic " change

from my usual shoulder length hair since he had cut a bunch off anyway, she cut

it soooooo short that my daughter proceeded to call me " dad " for the next couple

months. Looking back, it was pretty funny. I guess that makes this a good time

to go to bed - laughing at how funny children and life can be. That's what we

have to do to keep us going one day at a time.

>

> God bless all of you in this group who listen and understand, even to those of

us who read all the time and only write occasionally. Thanks.

> Ellis

>

[Guest guest]

Thanks for all the help and advice on the flu and flu shots. Heres my next

question. Had the flu/cold for a week, called my MD and he put me on 7 days of

antibiotics, no relief and cough is just as bad. Wait a week and call him back.

Puts me on a zpac for 5 days. Finished those 3 days ago. I am still coughing,

off and on fever, and I feel like someone is standing on my chest. We are having

a cold spell her in sunny Florida and every time I breath in the cold air I

think I am going to die. Breathing makes my chest hurts even in the warm house.

Am I just impatient or is this normal becasue of the immunity issue. I work and

am trying to get my college degree so I can get a non physical job but it is

just getting so difficult. I have felt rotten for six weeks now. Of course that

over and above the usual. I am so damn tired and find myself out of breath just

walking. Anybody have any ideas. Is this normal. Am I just being dramatic. This

group is the best support.

Carol

[Guest guest]

Prednisone is the Angel with horns. It helps but it has many side effects.

In my case weight gain, neuropathy, costochondritis, some abnormal blood

counts, etc. I also heard about it causing diabetes but I'm not sure if it

causes it or it brings it on early if you are predispose to it.

Unfortunately, it is a very good treatment for inflammation. So we are

stuck in a catch 22. Vivian

[Guest guest]

Prednisone raises blood sugar even in non-diabetics. It can cause

diabetes. I'm not sure if those people are genetically predisposed to

it or not. That's an interesting question.

I was on the drug for a few months, and I already had diabetes. I

found that it knew when I ate carbs, LOL. I had to abstain from just

about all carbs to maintain normal blood sugars.

Sue

On Dec 9, 2010, at 12:15 PM, Vivian Cone wrote:

> Prednisone is the Angel with horns. It helps but it has many side

> effects.

> In my case weight gain, neuropathy, costochondritis, some abnormal

> blood

> counts, etc. I also heard about it causing diabetes but I'm not

> sure if it

> causes it or it brings it on early if you are predispose to it.

> Unfortunately, it is a very good treatment for inflammation. So we

> are

> stuck in a catch 22. Vivian

[Guest guest]

Angel with horns, I like that!

I am really concerned with what prednisone does to the adrenal glands too,

eventually they stop funcitions on their own.

its very hard to combat these drugs with alternative remedies and good

nutrition, etc. when they keep depleting your body.

Its hard to maintain your body alkaline and in good balance with all these

drugs.

This is what I strive for, good balance of the body systems.

OKD

[Guest guest]

>

> My name is Skyeigh, I'm 28 live in Houston, TX. I was recently officially

diagnosed with RA but have had it for ten yrs! I also have sacrilitis, chronic

fatigue, sponderlothrapy, fibromyalsia, and a few other things I lost count!

>

> I have been looking at this support group off and on and it always something I

can relate to and has gotten me through bad days. So God Bless ALL OF YOU! I

have started Humaira injections and am waiting for the hurting to stop! Not one

person in my life personally understands, my family can't handle it whatever

that means and my best friend things it can go away. Sorry but I'm about to pop!

My work is very supportive and I have good insurance and I can function much

more than I could 6 months ago and I am so grateful I truly truly am. I just

want one person in my life to do some research and try and comprehend why I

can't push a smile out 24/7.... Sorry thanks for letting me vent!

> Skyleigh Heinen

>