Re: Appointment Tuesday with rhematologist

[Guest guest]

and Group;

First let me say I am reading everyone's post. I am so sorry for

the pain many of you are going through. Also those that are new,

WELCOME TO OUR HUMBLE GROUP. All new people will love it here. Its

informative and in a language you can understand if your not

knowledgable in medical terminology. I am knowledgeable in medical

terminology and I have a difficult time understanding the doctor.

, You got me lmbo when you said that.

OMG!! AND THEN ETC... everyone got to read it themselves to get it.

Its right below my post. Sorry to laugh . I know this is

serious. But that was to funny. I feel bad you have to go through

all this sweety.

I want to comment on what everyone says, its hard for me not to

comment. I try to comment real quick. I have a habit righting a long

post. When I do that, I never get to read them all in one day. I

like it when everyone post how thier meds work and their side

effects. This way I can be prepared with mine. Thanks everyone.

gentle hugs

Clora

>

> Hi everyone,

>

> Just letting you know the outcome of my appoinment on Tuesday.

After

> waiting 2hrs plus for Rheuamtologist, my husband had to help me

into

> his office !!!

> He commented straight off that I looked like I was in a bad

way !!!

> I told him I have had the worst six weeks and now my liver has

gone

> crazy from mtx. He couldn't believe I had such a high reading

> nearly 1000. So now he has taking me off mtx and sulfasazine and

> asprin, saying they are not helping me!!!!

>

> Next he is going to try arava but said that can make liver go

funny

> if I am sensitive to meds!!! So has to wait until my liver goes

back

> to normal !!!

>

> OMG!!! AND THEN I TRY NEW MED TO MAKE MY LIVER GO HAYWIRER

AGAIN !!!

>

> I must say I am a bit feed up with it all. Now I have to go to

> hospital on Monday to get cortizone treatment intrevenoulsy as

well

> as he has put up my predisolone.

>

> Oh How can one lose weight when my predisolone goes up and down

> along with my weight !!! I have just lost 14pounds and now I know

I

> will put it back on again !!! I am trying so hard to get the

> pressue of my joints from access weight!!!

>

> WHAT HOPE DO I HAVE? AT THE SAME TIME I DON'T WANT TO BE IN ALL

THIS

> PAIN AND IMMOBILE!!!!

>

> Also I have been saying for ages do I need to take a supplement

for

> bones and they said no. Now they have told me my vitamin D level

is

> very low and I need to take two 1000mg a day of ostelin, vitamin

D!!!

>

> Sorry to whinge, but I know you will understand.

>

> .

>

[Guest guest]

, I'm sorry that you're having such a hard time. Has your

doctor mentioned trying a biologic? Enbrel has worked wonders with me.

Sue

On Wednesday, August 27, 2008, at 09:44 AM, michellefollet wrote:

>

> Just letting you know the outcome of my appoinment on Tuesday. After

> waiting 2hrs plus for Rheuamtologist, my husband had to help me into

> his office !!!

[Guest guest]

,

I am late on reading your post, sorry you had such a horrible day.

After going to the doctor, it usually takes me 2-3 days to get over

it. These meds are so hard on us. I hope your doctor can find a med

that's right for you. Just take a nice relaxing bubble bath. Find

some nice comfty pj's, book, and stretch out in bed. Take care, Tawny