Remicade

[Guest guest]

Hi ,

    I am 30 (almost 31), have had RA since 9/99 and have been on Remicade for

8.5 years. I have not developed an immunity to it. Like most meds, I have had my

dosage adjusted. I started at 200 mg every 8 weeks and now I'm on 500 mg every 6

weeks. The max dosage is 1,000 mg every 4 weeks so there is plenty of wiggle

room for adjustment.

 

Take care,

Steph in VA

~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~

The 2008 Charlottesville Arthritis Walk was Sat. May 3 at UVA's Stadium

The Walk raises both awareness of the prevalence of arthritis and money for

research & programs for people with arthritis!  The Cville walk raised over

$25,000!

 

" Never underestimate the power of a small, dedicated group of people to change

the world -- indeed, it's the only thing that ever has. " (Margaret Mead)

AmeriCorps Alums -- Still Getting Things Done

[Guest guest]

Thanks ,

I am starting at 300mg for three loading doses. Not sure what the regular dose

will be.

Oh man I hope they find some better treatments. Just gald to hear that it can

work longer

for some people

--- In , DeNicola- <stephdenicola@...>

wrote:

>

> Hi ,

>     I am 30 (almost 31), have had RA since 9/99 and have been on Remicade for

8.5

years. I have not developed an immunity to it. Like most meds, I have had my

dosage

adjusted. I started at 200 mg every 8 weeks and now I'm on 500 mg every 6 weeks.

The

max dosage is 1,000 mg every 4 weeks so there is plenty of wiggle room for

adjustment.

>  

> Take care,

> Steph in VA

>

>

>

>

>

> ~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~

> The 2008 Charlottesville Arthritis Walk was Sat. May 3 at UVA's Stadium

> The Walk raises both awareness of the prevalence of arthritis and money for

research &

programs for people with arthritis!  The Cville walk raised over $25,000!

>  

> " Never underestimate the power of a small, dedicated group of people to change

the

world -- indeed, it's the only thing that ever has. " (Margaret Mead)

> AmeriCorps Alums -- Still Getting Things Done

>

>

>

>

>

[Guest guest]

I'm supposed to get my 2nd Remicade infusion tomorrow. I've had a runny nose

this week, so will tell the nurse about it and see what she says.

I also take my Mtx tomorrow. It still makes me feel icky for a couple of

days. I wonder about injections, but haven't brought it up yet.

So far the Remicade has improved my intestinal problems, but my main problem

from RA right now is fatigue and it hasn't helped that so much.

Now that I'm down to 5 mg of Prednisone, my heart is not beating as fast as

it was, so I'm gradually getting better.

dd

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[Guest guest]

I never had any side effects with remicade. Did you have any problems

with your two prior infusions? I would talk to your rheumy...maybe

you need a higher dose. IDK...feel better.

Nico9le

>

> I had my third Remicade infusion yesterday. The good news is that

the person

> who took me back to the room let me go into a smaller room so I

didn't have

> to listen to the music the nurse likes and I hate.

>

> A few hours after the infusion, my knees became stiff and feel

swollen. I

> can't think of anything I've done that would have hurt my knees. My

shoulder

> seems worse than usual also, but that does come and go normally.

>

> It could be a coincidence, but I wondered if it had happened to

anyone else.

> I felt fine after the other two infusions.

>

> dd

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