Guest guest Posted May 13, 2005 Report Share Posted May 13, 2005 It went pretty good. The red mark is still there but theysaid that it was a heat rash and told me to put hydro cordizone creme on it. They also fixed it on the right side where it was foling his right ear. Cassie Mom of AJ Metro Atlanta > > Hello, thank you guys for all the help. I left the band off last > night > > and his head is still a little red this morning. We are going to CT > at > > 1:30 today to see if there are any adjustments he needs. I will post > > later when I find out what they say. > > > > Cassie > > Mom of AJ > > Metro Atlanta Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 13, 2005 Report Share Posted May 13, 2005 Cassie, The cortisone usually works really well. I am glad they were able to adjust the ear area for you. Thanks for letting us know how it went. Is he back in the band or do you have to wait a night? CAROLG > > > Hello, thank you guys for all the help. I left the band off last > > night > > > and his head is still a little red this morning. We are going to CT > > at > > > 1:30 today to see if there are any adjustments he needs. I will > post > > > later when I find out what they say. > > > > > > Cassie > > > Mom of AJ > > > Metro Atlanta Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 13, 2005 Report Share Posted May 13, 2005 Cassie, The cortisone usually works really well. I am glad they were able to adjust the ear area for you. Thanks for letting us know how it went. Is he back in the band or do you have to wait a night? CAROLG > > > Hello, thank you guys for all the help. I left the band off last > > night > > > and his head is still a little red this morning. We are going to CT > > at > > > 1:30 today to see if there are any adjustments he needs. I will > post > > > later when I find out what they say. > > > > > > Cassie > > > Mom of AJ > > > Metro Atlanta Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 13, 2005 Report Share Posted May 13, 2005 Cassie, Glad you have an answer. Not suprised about the heat rash. Dress him in less -like no socks. Almost to the point that you feel neglectful The bands are very insulating. You also may want to try a fan in his room (but not blowing directly on him). mom to na DOC Grad Tort Resolved South Carolina www.thefilyaws.comcassie <salamandercass@...> wrote: It went pretty good. The red mark is still there but theysaid that it was a heat rash and told me to put hydro cordizone creme on it. They also fixed it on the right side where it was foling his right ear.Cassie Mom of AJ Metro Atlanta> > Hello, thank you guys for all the help. I left the band off last > night > > and his head is still a little red this morning. We are going to CT > at > > 1:30 today to see if there are any adjustments he needs. I will post > > later when I find out what they say. > > > > Cassie> > Mom of AJ> > Metro AtlantaFor more plagio info Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 3, 2008 Report Share Posted November 3, 2008 Thank you to all who responded to my questions. I will call the doctor and get a referal to a rheumatologist. I am a busy mom of a special needs 8 year old named Heidi, so I know all about keeping records. I have piles and piles of records for her. I know better, but I take much beter care of her than I do myself. Thanks for the reminder to get a file together for myself. Hopefully if I do have RA I can get it under control so I can continue to take care of her. I keep imagining me in a wheelchair trying to get her into hers. I know it is early on, but that is what scares me the most. I guess I better get to the doctor and find out if it is RA before my mind takes over. Again thanks for the support, Lori Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 3, 2008 Report Share Posted November 3, 2008 hi lori, yes do try to c a rheummy. u need to take care of yourself, not only for ur on sake but heidi as well. good luck & god bless,melyndagamez ________________________________ From: loriandheidi <loriandheidi@...> Sent: Monday, November 3, 2008 11:53:21 AM Subject: [ ] Thanks for the help Thank you to all who responded to my questions. I will call the doctor and get a referal to a rheumatologist. I am a busy mom of a special needs 8 year old named Heidi, so I know all about keeping records. I have piles and piles of records for her. I know better, but I take much beter care of her than I do myself. Thanks for the reminder to get a file together for myself. Hopefully if I do have RA I can get it under control so I can continue to take care of her. I keep imagining me in a wheelchair trying to get her into hers. I know it is early on, but that is what scares me the most. I guess I better get to the doctor and find out if it is RA before my mind takes over. Again thanks for the support, Lori ------------------------------------ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 4, 2008 Report Share Posted November 4, 2008 I also have had sever RA for many year (25 yrs. I think). The wheelchair was my biggest fear too. My first rheumatologist really helped me. He said, " Look at my waiting room. It is very small. Not big enough for wheelchairs. There is no reason for you to think that you will end up in a wheelchair. " Well his office WAS very small. Of course, he is no longer my doctor as he retired. But I still think that he is the one that helped me to keep a very positive attitude regarding this disease. Since being diagnosed I have traveled to England, Scotland, Germany, Many trips to Canada, and too many places in the states to list. I hiked, climbed steps, and still walk the beach when I can. I have slowed down over the past couple of years (I'm 53 now - so I don't know how much is age and how much is RA). I wear braces for both of my BAD ankles (I did not want surgery to fuse them). I have my bad periods. I have a troublesome knee (gets drained at least 3 times a year). But I keep telling myself that it is up to me to decide what to do and what not to do. I remember something that J. Fox wrote in regards to having Parkinson's disease: I can give it all the room that it needs but I can't give it all the room it asks for I'll give it as much room as I absolutely have to give it and the I go on with my life. Hope that this five us all some positive thoughts. Have great day. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 4, 2008 Report Share Posted November 4, 2008 Skip and group; Hi skip, are you new, I don't remember seeing you before. Well, just in case Welcome to our humble group. Fear is just over whelming sometimes. Waiting for something is sometimes worse than the fear. You had a good RA doctor but he had to retire. I know how you feel. When I moved here I had to leave my wonderful doctors in Ohio. God bless and take care. gentle hugs Clora From: skip weimer <skiplw284@...> Subject: [ ] Re: Thanks for the help Date: Tuesday, November 4, 2008, 3:09 PM I also have had sever RA for many year (25 yrs. I think). The wheelchair was my biggest fear too. My first rheumatologist really helped me. He said, " Look at my waiting room. It is very small. Not big enough for wheelchairs. There is no reason for you to think that you will end up in a wheelchair. " Well his office WAS very small. Of course, he is no longer my doctor as he retired. But I still think that he is the one that helped me to keep a very positive attitude regarding this disease. Since being diagnosed I have traveled to England, Scotland, Germany, Many trips to Canada, and too many places in the states to list. I hiked, climbed steps, and still walk the beach when I can. I have slowed down over the past couple of years (I'm 53 now - so I don't know how much is age and how much is RA). I wear braces for both of my BAD ankles (I did not want surgery to fuse them). I have my bad periods. I have a troublesome knee (gets drained at least 3 times a year). But I keep telling myself that it is up to me to decide what to do and what not to do. I remember something that J. Fox wrote in regards to having Parkinson's disease: I can give it all the room that it needs but I can't give it all the room it asks for I'll give it as much room as I absolutely have to give it and the I go on with my life. Hope that this five us all some positive thoughts. Have great day. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 1, 2010 Report Share Posted January 1, 2010 Good luck to you and your family. Have a great 2010. Angie Thanks for the help I wanted to thank the people who responded to my 2 posts about my son's helmet problems. I'm going to be signing off the group now because we have decided to stop using the helmet. Thankfully Wake's asymmetry is down to 8 mm now (we started using the head cup at 4 months when we had 14 mm of asymmetry). I just wish that we had found out about the head cup earlier, as the only improvement we saw was with the head cup. Anyway, I just wanted to share our decision-- it has been a very difficult few weeks for us, but we feel at peace about the early "graduation". Happy New Year's, Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 1, 2010 Report Share Posted January 1, 2010 Very interesting. I had not heard of the " head cup, " either. (WAKE UP, PEDIATRICIANS!) From another site: > I went back to the NOPCO on Boston, and they tried the off-the- > shelf head cup they had. She was too big for it already, as this > version was designed for babies 0-12 weeks. But the person, Rusty, > who turns out to be the Director of NOPCO, was willing to make a > custom head up for Molly. An hour later, we had it, and it was > basically a firm foam square that was scooped out for Molly's head. > She was to sleep in it as much as possible. I was worried she > wouldn't tolerate it. They charged us $150 for it - a deal compared > to the helmet which was $2,000 http://www.squidoo.com/Head-Cup--fixing-Plagiocephaly-without-a-helmet -- Thad Launderville Montpelier, VT Clara age 21 months, in STARband 4 1/2 months Quote Link to comment Share on other sites More sharing options...
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