RE: Appointment Tuesday with rheumatologist

[Guest guest]

So sorry, . It is so hard when medications can make other problems

worse.

My doctor has refused to treat me more aggressively since I have a history

of liver problems. My gastroenterologist has written him and told him he

can proceed, but he still feels it's a bad idea. So I'm in the middle!

I am now in the process of going off Prednisone and the inflammation and

pain are returning. At 60 mg of Prednisone, I felt like superwoman. Now

I'm down to 5 mg every 3 days and I'm going to cut that to 2.5 mg this

weekend. I know what to expect and I'm not looking forward to it.

And yesterday, I took my second Boniva - the once-a-month pill for

osteoporosis. My last bone density showed osteoporosis in my

hip..Prednisone contributed to that!

Where do we go? Where do we turn? I wish I knew.

Dorothy

_____

From: [mailto: ] On

Behalf Of michellefollet

Sent: Wednesday, August 27, 2008 9:44 AM

Subject: [ ] Appointment Tuesday with rhematologist

Hi everyone,

Just letting you know the outcome of my appoinment on Tuesday. After

waiting 2hrs plus for Rheuamtologist, my husband had to help me into

his office !!!

He commented straight off that I looked like I was in a bad way !!!

I told him I have had the worst six weeks and now my liver has gone

crazy from mtx. He couldn't believe I had such a high reading

nearly 1000. So now he has taking me off mtx and sulfasazine and

asprin, saying they are not helping me!!!!

Next he is going to try arava but said that can make liver go funny

if I am sensitive to meds!!! So has to wait until my liver goes back

to normal !!!

OMG!!! AND THEN I TRY NEW MED TO MAKE MY LIVER GO HAYWIRER AGAIN !!!

I must say I am a bit feed up with it all. Now I have to go to

hospital on Monday to get cortizone treatment intrevenoulsy as well

as he has put up my predisolone.

Oh How can one lose weight when my predisolone goes up and down

along with my weight !!! I have just lost 14pounds and now I know I

will put it back on again !!! I am trying so hard to get the

pressue of my joints from access weight!!!

WHAT HOPE DO I HAVE? AT THE SAME TIME I DON'T WANT TO BE IN ALL THIS

PAIN AND IMMOBILE!!!!

Also I have been saying for ages do I need to take a supplement for

bones and they said no. Now they have told me my vitamin D level is

very low and I need to take two 1000mg a day of ostelin, vitamin D!!!

Sorry to whinge, but I know you will understand.

.