Guest guest Posted August 9, 2004 Report Share Posted August 9, 2004 Hi Ivonne Good to hear from you and about your little boy . It sounds like you are really on top of the situation with 's plagio. I was a lot slower off the mark than you- I didn't got to the doctors until my daughter was 6 months. But she's in a helmet now and doing very well. I'm sure some of the other group members will chime in with help on repositioning, we have some real experts here! Have you got a photo of , we would love to see him? By the way, your English is excellent. My husband is Bulgarian, and like you he is very self-conscious about writing in English, and like you, he is very good at it really! Keep us updated Hannah (mum to Lucia, London, UK) Plagio, passive helmet, 4/7/04 > Hello: > > My name is Ivonne and I have a 5 months old baby () with > plagiocephaly in 2nd degree. > I apologize in advance for the bunch of huge grammar mistakes that you will > notice along with my writing, as you will notice very soon English is not my > first language :-) > > Well, it happened that I started noticing an awkward shape in my baby's head > and took him to the specialist 2 moths ago. When he was 3 months. > Fortunately the doctor told us that we went with plenty of time. But now we > are fighting with the insurance company because they say that it is a > cosmetic treatment. > > How ever we will give them the fight and hopefully as latest in two more > months will be wearing his helmet. > > In the mean time I will start doing the " Aggressive Repositioning > Strategies " that I just received from you guys by an e-mail. > I hope it helps in the mean time we win the battle with the insurance. > > I'm glad you guys are out there in the other side of this e-mail to help us > to deal with this :-) > > It is very nice to meet you all. > > Ivonne Malone > Dallas,TX > > > ********************************************************************* ******* > This message contains information which may be confidential and privileged. > Unless you are the intended recipient (or authorized to receive this message > for the intended recipient), you may not use, copy, disseminate or disclose > to anyone the message or any information contained in the message. If you > have received the message in error, please advise the sender by reply > e-mail, and delete the message. > Thank you very much. > ********************************************************************* ******* Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 9, 2004 Report Share Posted August 9, 2004 Hi Ivonne, Welcome to the group! You're being very proactive about your son's plagio and that is only a good thing!! I don't know if this will help you or not, but it's worth taking a look at. http://www.cappskids.org/PlagioInsuranceHelp.htm Scroll down to the caption: How Do I Write An Appeal? Please keep us posted on ! Don't worry about your grammar, we're here to support you and that's it. > Hello: > > My name is Ivonne and I have a 5 months old baby () with > plagiocephaly in 2nd degree. > I apologize in advance for the bunch of huge grammar mistakes that you will > notice along with my writing, as you will notice very soon English is not my > first language :-) > > Well, it happened that I started noticing an awkward shape in my baby's head > and took him to the specialist 2 moths ago. When he was 3 months. > Fortunately the doctor told us that we went with plenty of time. But now we > are fighting with the insurance company because they say that it is a > cosmetic treatment. > > How ever we will give them the fight and hopefully as latest in two more > months will be wearing his helmet. > > In the mean time I will start doing the " Aggressive Repositioning > Strategies " that I just received from you guys by an e-mail. > I hope it helps in the mean time we win the battle with the insurance. > > I'm glad you guys are out there in the other side of this e-mail to help us > to deal with this :-) > > It is very nice to meet you all. > > Ivonne Malone > Dallas,TX > > > ********************************************************************** ****** > This message contains information which may be confidential and privileged. > Unless you are the intended recipient (or authorized to receive this message > for the intended recipient), you may not use, copy, disseminate or disclose > to anyone the message or any information contained in the message. If you > have received the message in error, please advise the sender by reply > e-mail, and delete the message. > Thank you very much. > ********************************************************************** ****** Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 9, 2004 Report Share Posted August 9, 2004 Thank you Hannah, and all of you for the warmth welcomeJ This is my (picture attached). I’m his fan #1 He is soo cute to me.J ivonne malone AA International account executive ivonne.malone@... t:m p 972 830 2739 f 972 830 1533 tm.com Re: Hello. Hi Ivonne Good to hear from you and about your little boy . It sounds like you are really on top of the situation with 's plagio. I was a lot slower off the mark than you- I didn't got to the doctors until my daughter was 6 months. But she's in a helmet now and doing very well. I'm sure some of the other group members will chime in with help on repositioning, we have some real experts here! Have you got a photo of , we would love to see him? By the way, your English is excellent. My husband is Bulgarian, and like you he is very self-conscious about writing in English, and like you, he is very good at it really! Keep us updated Hannah (mum to Lucia, London, UK) Plagio, passive helmet, 4/7/04 > Hello: > > My name is Ivonne and I have a 5 months old baby () with > plagiocephaly in 2nd degree. > I apologize in advance for the bunch of huge grammar mistakes that you will > notice along with my writing, as you will notice very soon English is not my > first language :-) > > Well, it happened that I started noticing an awkward shape in my baby's head > and took him to the specialist 2 moths ago. When he was 3 months. > Fortunately the doctor told us that we went with plenty of time. But now we > are fighting with the insurance company because they say that it is a > cosmetic treatment. > > How ever we will give them the fight and hopefully as latest in two more > months will be wearing his helmet. > > In the mean time I will start doing the " Aggressive Repositioning > Strategies " that I just received from you guys by an e-mail. > I hope it helps in the mean time we win the battle with the insurance. > > I'm glad you guys are out there in the other side of this e-mail to help us > to deal with this :-) > > It is very nice to meet you all. > > Ivonne Malone > Dallas,TX > > > ********************************************************************* ******* > This message contains information which may be confidential and privileged. > Unless you are the intended recipient (or authorized to receive this message > for the intended recipient), you may not use, copy, disseminate or disclose > to anyone the message or any information contained in the message. If you > have received the message in error, please advise the sender by reply > e-mail, and delete the message. > Thank you very much. > ********************************************************************* ******* For more plagio info Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 9, 2004 Report Share Posted August 9, 2004 Thanks . This information is very helpful for me. I’m printing everything you guys are sending to me and I will build my case and get it ready to appeal as soon as my insurance deny my request. The doctor told me that my insurance company is one of the hardest one to fight with. They are very stubborn, but I’m even more than them when we are talking about my kids J ivonne malone AA International account executive ivonne.malone@... t:m p 972 830 2739 f 972 830 1533 tm.com Re: Hello. Hi Ivonne, Welcome to the group! You're being very proactive about your son's plagio and that is only a good thing!! I don't know if this will help you or not, but it's worth taking a look at. http://www.cappskids.org/PlagioInsuranceHelp.htm Scroll down to the caption: How Do I Write An Appeal? Please keep us posted on ! Don't worry about your grammar, we're here to support you and that's it. > Hello: > > My name is Ivonne and I have a 5 months old baby () with > plagiocephaly in 2nd degree. > I apologize in advance for the bunch of huge grammar mistakes that you will > notice along with my writing, as you will notice very soon English is not my > first language :-) > > Well, it happened that I started noticing an awkward shape in my baby's head > and took him to the specialist 2 moths ago. When he was 3 months. > Fortunately the doctor told us that we went with plenty of time. But now we > are fighting with the insurance company because they say that it is a > cosmetic treatment. > > How ever we will give them the fight and hopefully as latest in two more > months will be wearing his helmet. > > In the mean time I will start doing the " Aggressive Repositioning > Strategies " that I just received from you guys by an e-mail. > I hope it helps in the mean time we win the battle with the insurance. > > I'm glad you guys are out there in the other side of this e-mail to help us > to deal with this :-) > > It is very nice to meet you all. > > Ivonne Malone > Dallas,TX > > > ********************************************************************** ****** > This message contains information which may be confidential and privileged. > Unless you are the intended recipient (or authorized to receive this message > for the intended recipient), you may not use, copy, disseminate or disclose > to anyone the message or any information contained in the message. If you > have received the message in error, please advise the sender by reply > e-mail, and delete the message. > Thank you very much. > ********************************************************************** ****** For more plagio info Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 9, 2004 Report Share Posted August 9, 2004 United Health Care. And for I’m seeing here in the letter that they put as an example in the site that you sent me, this company have had a lot of appeals for this matter. ivonne malone AA International account executive ivonne.malone@... t:m p 972 830 2739 f 972 830 1533 tm.com Re: Hello. You're welcome Ivonne. Who is your insurance provider? > > Hello: > > > > My name is Ivonne and I have a 5 months old baby () with > > plagiocephaly in 2nd degree. > > I apologize in advance for the bunch of huge grammar mistakes that > you will > > notice along with my writing, as you will notice very soon English > is not my > > first language :-) > > > > Well, it happened that I started noticing an awkward shape in my > baby's head > > and took him to the specialist 2 moths ago. When he was 3 months. > > Fortunately the doctor told us that we went with plenty of time. > But now we > > are fighting with the insurance company because they say that it is > a > > cosmetic treatment. > > > > How ever we will give them the fight and hopefully as latest in two > more > > months will be wearing his helmet. > > > > In the mean time I will start doing the " Aggressive Repositioning > > Strategies " that I just received from you guys by an e-mail. > > I hope it helps in the mean time we win the battle with the > insurance. > > > > I'm glad you guys are out there in the other side of this e-mail to > help us > > to deal with this :-) > > > > It is very nice to meet you all. > > > > Ivonne Malone > > Dallas,TX > > > > > > > ********************************************************************** > ****** > > This message contains information which may be confidential and > privileged. > > Unless you are the intended recipient (or authorized to receive > this message > > for the intended recipient), you may not use, copy, disseminate or > disclose > > to anyone the message or any information contained in the message. > If you > > have received the message in error, please advise the sender by > reply > > e-mail, and delete the message. > > Thank you very much. > > > ********************************************************************** > ****** > > > > For more plagio info Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 9, 2004 Report Share Posted August 9, 2004 Ivonne, Welcome to the group. Where are you going in Dallas? We have quite a few members from that area. A lot of them got to Crnaial Technologies (CT) for the DOC Band. In the insurance section we have a lot of information about how to fight the "cosmetic" denial. Here is a link ... Plagiocephaly/files/Insurance%20Help/ If you need any help with the appeal let me know (monicash@...) I would be happy to help. You are definitely not alone in your battle agaist plgio or insurance. mom to na DOC Grad 2/20/04 South Carolina "Malone, Ivonne" <ivonne.malone@...> wrote: Hello:My name is Ivonne and I have a 5 months old baby () withplagiocephaly in 2nd degree.I apologize in advance for the bunch of huge grammar mistakes that you willnotice along with my writing, as you will notice very soon English is not myfirst language :-)Well, it happened that I started noticing an awkward shape in my baby's headand took him to the specialist 2 moths ago. When he was 3 months.Fortunately the doctor told us that we went with plenty of time. But now weare fighting with the insurance company because they say that it is acosmetic treatment.How ever we will give them the fight and hopefully as latest in two moremonths will be wearing his helmet. In the mean time I will start doing the "Aggressive RepositioningStrategies" that I just received from you guys by an e-mail.I hope it helps in the mean time we win the battle with the insurance.I'm glad you guys are out there in the other side of this e-mail to help usto deal with this :-)It is very nice to meet you all.Ivonne MaloneDallas,TX****************************************************************************This message contains information which may be confidential and privileged.Unless you are the intended recipient (or authorized to receive this messagefor the intended recipient), you may not use, copy, disseminate or discloseto anyone the message or any information contained in the message. If youhave received the message in error, please advise the sender by replye-mail, and delete the message. Thank you very much. ****************************************************************************For more plagio info Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 9, 2004 Report Share Posted August 9, 2004 He is adorable!! "Malone, Ivonne" <ivonne.malone@...> wrote: Thank you Hannah, and all of you for the warmth welcomeJ This is my (picture attached). I’m his fan #1 He is soo cute to me.J ivonne malone AA International account executive ivonne.malone@... t:m p 972 830 2739 f 972 830 1533 tm.com -----Original Message-----From: hannah_farrimond [mailto:hannah_farrimond@...]Sent: Monday, August 09, 2004 3:38 PMPlagiocephaly Subject: Re: Hello. Hi IvonneGood to hear from you and about your little boy . It sounds like you are really on top of the situation with 's plagio. I was a lot slower off the mark than you- I didn't got to the doctors until my daughter was 6 months. But she's in a helmet now and doing very well. I'm sure some of the other group members will chime in with help on repositioning, we have some real experts here! Have you got a photo of , we would love to see him?By the way, your English is excellent. My husband is Bulgarian, and like you he is very self-conscious about writing in English, and like you, he is very good at it really!Keep us updatedHannah (mum to Lucia, London, UK)Plagio, passive helmet, 4/7/04> Hello:> > My name is Ivonne and I have a 5 months old baby () with> plagiocephaly in 2nd degree.> I apologize in advance for the bunch of huge grammar mistakes that you will> notice along with my writing, as you will notice very soon English is not my> first language :-)> > Well, it happened that I started noticing an awkward shape in my baby's head> and took him to the specialist 2 moths ago. When he was 3 months.> Fortunately the doctor told us that we went with plenty of time. But now we> are fighting with the insurance company because they say that it is a> cosmetic treatment.> > How ever we will give them the fight and hopefully as latest in two more> months will be wearing his helmet. > > In the mean time I will start doing the "Aggressive Repositioning> Strategies" that I just received from you guys by an e-mail.> I hope it helps in the mean time we win the battle with the insurance.> > I'm glad you guys are out there in the other side of this e-mail to help us> to deal with this :-)> > It is very nice to meet you all.> > Ivonne Malone> Dallas,TX> > > ****************************************************************************> This message contains information which may be confidential and privileged.> Unless you are the intended recipient (or authorized to receive this message> for the intended recipient), you may not use, copy, disseminate or disclose> to anyone the message or any information contained in the message. If you> have received the message in error, please advise the sender by reply> e-mail, and delete the message. > Thank you very much. > ****************************************************************************For more plagio info Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 10, 2004 Report Share Posted August 10, 2004 Hi : Yes, I will go to CT but I haven’t gone yet. I just went to the specialist in the Children Hospital and they just sent the paperwork to the insurance. They told me though that be prepare myself to fight an appeal because it will come. After that, I will start going to CT to get the helmet, is not like that? I’m not sure, I’m kind of new in this L I would love to heard from s’ moms here in the group. Regards, J Ivonne ’s mom Fighting with United Health Care Dallas, TX Re: Hello. Ivonne, Welcome to the group. Where are you going in Dallas? We have quite a few members from that area. A lot of them got to Crnaial Technologies (CT) for the DOC Band. In the insurance section we have a lot of information about how to fight the " cosmetic " denial. Here is a link ... Plagiocephaly/files/Insurance%20Help/ If you need any help with the appeal let me know (monicash@...) I would be happy to help. You are definitely not alone in your battle agaist plgio or insurance. mom to na DOC Grad 2/20/04 South Carolina " Malone, Ivonne " <ivonne.malone@...> wrote: Hello: My name is Ivonne and I have a 5 months old baby () with plagiocephaly in 2nd degree. I apologize in advance for the bunch of huge grammar mistakes that you will notice along with my writing, as you will notice very soon English is not my first language :-) Well, it happened that I started noticing an awkward shape in my baby's head and took him to the specialist 2 moths ago. When he was 3 months. Fortunately the doctor told us that we went with plenty of time. But now we are fighting with the insurance company because they say that it is a cosmetic treatment. How ever we will give them the fight and hopefully as latest in two more months will be wearing his helmet. In the mean time I will start doing the " Aggressive Repositioning Strategies " that I just received from you guys by an e-mail.< BR>I hope it helps in the mean time we win the battle with the insurance. I'm glad you guys are out there in the other side of this e-mail to help us to deal with this :-) It is very nice to meet you all. Ivonne Malone Dallas,TX **************************************************************************** This message contains information which may be confidential and privileged. Unless you are the intended recipient (or authorized to receive this message for the intended recipient), you may not use, copy, disseminate or disclose to anyone the message or any information contained in the message. If you have received the message in error, please advise the sender by reply e-mail, and delete the message. Thank you very much. **************************************************************************** For more plagio info Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 13, 2007 Report Share Posted March 13, 2007 Welcome! My ins. also covered hanger - so we went with them and were happy with them. Experience of the ortho is KEY! Do your homework no matter who you you choose! :-) Jen and LuliLeft Tort - Right Plagio - Hanger Band Grad - CATallulah Jayne -AOL now offers free email to everyone. Find out more about what's free from AOL at AOL.com. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 13, 2007 Report Share Posted March 13, 2007 Hi, it is true CT has the best overall reputation. However many have had a good experience with Hanger - it mostly depends on the ortho. Maybe you can post which hanger location and see if others have experience there. I'm not sure about the insurance appeal. We had a starband that was covered 100% and had great results for my daughter's brachy. CT is 400 miles away so wasn't really an option for us. Our starband ortho had tons of experience. Good luck with the decision. -christine mom to sydney/ 14 mo/ starband grad 10-06 > > I am new to the group, and Dd is Aleah and she is 8 months. She i s a > brachy baby and has had a consult with CT and will be getting one with > Hanger tomorrow. My insurance covers Hanger, and I am in the process > of appealing to get CT covered. Has anyone else had this issue? Did > you win against your insurance? What did you do>? Any help helps!lol > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 14, 2007 Report Share Posted March 14, 2007 I am in the proces of appealing to get the DOC band covered. I went ahead with treatment before knowing one way or another as my son was 7 1/2 months when he started the band. My husband and I knew that regardless we wanted our son banded and we were willing to pay the cost. If finances with the band are an issue, CT does have payment plans that may help. It is definitely worth appealing though. I don't know if because your insurance covers Hanger how acceptance of another band goes. As far as I know, my insurance (UHC) doesn't cover anything. I may be wrong though. I just went with who our pediatrician recommended and didn't really know what else was out there. CT is awesome and their office is so bright and happy! Good luck. lisa 8 1/2 month old son, DOC bandAmber <rlsadc@...> wrote: I am new to the group, and Dd is Aleah and she is 8 months. She i s a brachy baby and has had a consult with CT and will be getting one with Hanger tomorrow. My insurance covers Hanger, and I am in the process of appealing to get CT covered. Has anyone else had this issue? Did you win against your insurance? What did you do>? Any help helps!lol Never miss an email again! Toolbar alerts you the instant new Mail arrives. Check it out. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 12, 2007 Report Share Posted May 12, 2007 Hey Jim. You will be someone that we will want to hear from. I'm always looking for adults that have succeeded in life. It give me hope. I have met a few adult aspi's on a list-serve for aspi's and their service dogs. mom to Preston with Ice, service dog ( ) Hello. I just joined today. I am 35 and have Aspergers. I wish more was knownabout it when I was younger as I was diagnosed with it only 2 years agoand am just now starting to deal with it a little more seriously. Iwas also diagnosed with ADD when I was a kid and still deal with thattoo.I will prolly just lurk mostly, but just wanted to say hello.Jim Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 12, 2007 Report Share Posted May 12, 2007 Welcome, Jim!!So,,,,,if you don't mind,,,,,,,,what was childhood like? What have "coping/adjusting" methods been or have there been any? What kind of things were/are you into? Did you have understanding folks when you were younger or were you just looked at as different? (I hope you don't mind me asking so bluntly). How have relationships been? Friends? Romantic ones? My son is 11 and is very aware of his AS and reads everything on it. He really wonders about others and what they're like and if they are ok..........if you know what I mean? Thanks so much if you decide to reply. RobinJim Wissick <jwissick@...> wrote: I just joined today. I am 35 and have Aspergers. I wish more was knownabout it when I was younger as I was diagnosed with it only 2 years agoand am just now starting to deal with it a little more seriously. Iwas also diagnosed with ADD when I was a kid and still deal with thattoo.I will prolly just lurk mostly, but just wanted to say hello.Jim Luggage? GPS? Comic books? Check out fitting gifts for grads at Search. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 14, 2007 Report Share Posted May 14, 2007 Robin and all, > So,,,,,if you don't mind,,,,,,,,what was childhood like? I have a hard time with reflecting on the past so bear with me. TO be honest, it was unpleasant. I always new I was different and had huge problems with relationships. The earliest sign something was wrong was about 3 years old. My folks were supportive and worked very hard to discover the problem and help me deal with it. I did not make it easy for them as I thought I was normal as anyone could be, just an outcast. Most everyone thought I had ADD. (Maybe I do. I take Dexedrine [and other things too] and it helps me function. )I had huge outbursts when I was in my teens. We had a few disreputable therapists around then. They had no clue what was wrong and ended up talking my folx into sending me into a special school out of state (Utah and we live in California). The school had no idea what to make of me but I learned allot of things having to live with other NTs 24/7. Not sure if I would recommend that to anyone. I was not a good student to say the least. I hated school. I was bored mostly and did not relate with the other kids well at all. (I always related better with adults... or perhaps they could tolerate me ) HS was hell for sure. Jobs were short as I would be fired or quit with in a few months. > What have " coping/adjusting " methods been or have there been any? Hmm. Maybe I have not coped very well. I have friends, but I suspect some of them are AS too. We are all quite a bit alike as far as intel, interests, politics, etc. One thing that helped is my mother found a person for me to work with practicing active listening. Forcing me to look into a persons eyes and not the mouth helped allot, but I still have to remind myself to do it. Practice conversations help. Mastering language helps. Since I can't express my emotions with body language, I can express them fairly well with language (well. better than I used to). > What kind of things were/are you into? Umm some of the typical AS things. Cosmology (No not makeup damn it, the creation / fate of the universe! ). Astronomy, politics, logic. Computers for sure (just have a natural affinity with them. Wish I understood NT like I know computers.) HAM radio is also fun. Not the communication part, but the public service part as well as the technology behind it. As far as sports, the only one I participate in is shooting... (It's good for working out the aggression sometimes and marksmanship really forces you to relax and find a zen like state. Just like any other marital art. In fact I am a firearms safety instructor and love to teach once or twice a month. I find the same relaxation with archery when the mood hits me. ) These days most of my time is taken up by school. I am back in college getting my lower division stuff out of the way > Did you have understanding folks when you were younger or were you just looked at as different? (I hope you don't mind me asking so bluntly). I knew I was different. How I was different I had no clue. AS was unknown in the US back then as I understand it. > How have relationships been? Friends? Romantic ones? Better and better as I get older. I sure as hell can open mouth and insert foot like a pro now and then. I have a close circle of friends... Most are prolly AS as I said before. Teach together. We vacation together now and then. Romance is an enigma. It never has been easy to say the least. I have mostly given up on that for the last 7 or so years. But I want to change that. Not sure where to begin right now, so I will write on that some other time. > My son is 11 and is very aware of his AS and reads everything on it. He really wonders about others and what they're like and if they are OK..........if you know what I mean? I think it all gets allot easier the more you work the problem. Kids can be cruel as hell at 11 and they love to pick on anything not normal. It gets better. It will never be normal, but who's to say what normal is? AS gives you some 'lovely' disadvantages but it also gives you some nice advantages. Exploit them for all they are worth. Yeah, there are things we are not good at and should no pursue as a profession... but there are TONS of things out there AS 'enhanced' (screw being afflicted with or sufferer of) people can excel at. Just wait till he unleashes himself on the world in his chosen direction... It may take a while, but just wait. Jim Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 15, 2007 Report Share Posted May 15, 2007 Tim, You have done a great job explaining all of this to us. I have a Q. What does NT stand for? (non traditional?) You mention living with a lot of NT kids. I would have thought you would have liked living with other kids that were like you. Preston is so miserable (14) that I'm always looking for ways that he could meet others that think more like him. (have not been successful) I see you are saying that 'things' get better as you mature. This is what we are being told....I just wonder if we are going to make it to the 'mature' stage in his life. LOL! Thank you so much, Tim for being so open. I know you will be a huge help to the moms on this list. Have you ever heard of service dogs for adult aspies? My son got his SD this last July and she has been a life saver for him. His anxiety was so strong he could hardly spend more than 10 min. in a store, etc. Now that Preston has his SD and she goes everywhere with him (even school) he is doing sooooo much better. I also know of a man with AS who uses a service dog. Let me know privately if you are interested & I'll give you the information. in Georgiamom to Preston with Ice SD www.dogster.com/?411262 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 15, 2007 Report Share Posted May 15, 2007 NT stands for neurotypical.Our children are As and we are neurotypical.I think that is it anyways! or Steve <4ganas@...> wrote: Tim, You have done a great job explaining all of this to us. I have a Q. What does NT stand for? (non traditional?) You mention living with a lot of NT kids. I would have thought you would have liked living with other kids that were like you. Preston is so miserable (14) that I'm always looking for ways that he could meet others that think more like him. (have not been successful) I see you are saying that 'things' get better as you mature. This is what we are being told....I just wonder if we are going to make it to the 'mature' stage in his life. LOL! Thank you so much, Tim for being so open. I know you will be a huge help to the moms on this list. Have you ever heard of service dogs for adult aspies? My son got his SD this last July and she has been a life saver for him. His anxiety was so strong he could hardly spend more than 10 min. in a store, etc. Now that Preston has his SD and she goes everywhere with him (even school) he is doing sooooo much better. I also know of a man with AS who uses a service dog. Let me know privately if you are interested & I'll give you the information. in Georgiamom to Preston with Ice SD www.dogster.com/?411262 Estelle x x x is the world's favourite email. Don't settle for less, sign up for your free account today. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 15, 2007 Report Share Posted May 15, 2007 Hi Jim! Glad to have an Aspie aboard. I think it will help us a lot if you can put your imput in where you can to give us an idea of how our kids our may be thinking or what would or would not have helped, had it been you in the situations we deal with. Thanks for being here!Jim Wissick <jwissick@...> wrote: I just joined today. I am 35 and have Aspergers. I wish more was knownabout it when I was younger as I was diagnosed with it only 2 years agoand am just now starting to deal with it a little more seriously. Iwas also diagnosed with ADD when I was a kid and still deal with thattoo.I will prolly just lurk mostly, but just wanted to say hello.Jim Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 15, 2007 Report Share Posted May 15, 2007 Well I will do what I can. Hope I can help. Jim > > Hi Jim! Glad to have an Aspie aboard. I think it will help us a lot if you can put your imput in where you can to give us an idea of how our kids our may be thinking or what would or would not have helped, had it been you in the situations we deal with. Thanks for being here! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 15, 2007 Report Share Posted May 15, 2007 Thank you. It seems I'm still learning something new every day. {smile} Re: ( ) Re: Hello. NT stands for neurotypical.Our children are As and we are neurotypical.I think that is it anyways! or Steve <4ganascomcast (DOT) net> wrote: Tim, You have done a great job explaining all of this to us. I have a Q. What does NT stand for? (non traditional?) You mention living with a lot of NT kids. I would have thought you would have liked living with other kids that were like you. Preston is so miserable (14) that I'm always looking for ways that he could meet others that think more like him. (have not been successful) I see you are saying that 'things' get better as you mature. This is what we are being told....I just wonder if we are going to make it to the 'mature' stage in his life. LOL! Thank you so much, Tim for being so open. I know you will be a huge help to the moms on this list. Have you ever heard of service dogs for adult aspies? My son got his SD this last July and she has been a life saver for him. His anxiety was so strong he could hardly spend more than 10 min. in a store, etc. Now that Preston has his SD and she goes everywhere with him (even school) he is doing sooooo much better. I also know of a man with AS who uses a service dog. Let me know privately if you are interested & I'll give you the information. in Georgiamom to Preston with Ice SD www.dogster.com/?411262 Estelle x x x is the world's favourite email. Don't settle for less, sign up for your free account today. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 15, 2007 Report Share Posted May 15, 2007 While that is nice, people are so different and nobody would know what my own kids were thinking. RoxannaAutism Happens Re: ( ) Hello. Hi Jim! Glad to have an Aspie aboard. I think it will help us a lot if you can put your imput in where you can to give us an idea of how our kids our may be thinking or what would or would not have helped, had it been you in the situations we deal with. Thanks for being here!Jim Wissick <jwissicksbcglobal (DOT) net> wrote: I just joined today. I am 35 and have Aspergers. I wish more was knownabout it when I was younger as I was diagnosed with it only 2 years agoand am just now starting to deal with it a little more seriously. Iwas also diagnosed with ADD when I was a kid and still deal with thattoo.I will prolly just lurk mostly, but just wanted to say hello.Jim Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 16, 2007 Report Share Posted May 16, 2007 -Hello Jim, Reading your later posts was very informative. I have a 14 year old as son who is going through some emotional stuff from school and from a couple of teachers that just don't get him. He has problems with friendships and it is nice to know that you have youyour circle of friends, I hope he has that someday. welcome to the board. Dee -- In , " Jim Wissick " <jwissick@...> wrote: > > > I just joined today. I am 35 and have Aspergers. I wish more was known > about it when I was younger as I was diagnosed with it only 2 years ago > and am just now starting to deal with it a little more seriously. I > was also diagnosed with ADD when I was a kid and still deal with that > too. > > I will prolly just lurk mostly, but just wanted to say hello. > > Jim > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 16, 2007 Report Share Posted May 16, 2007 That's why I wrote "how our kids MAY be thinking"Roxanna <madideas@...> wrote: While that is nice, people are so different and nobody would know what my own kids were thinking. RoxannaAutism Happens Re: ( ) Hello. Hi Jim! Glad to have an Aspie aboard. I think it will help us a lot if you can put your imput in where you can to give us an idea of how our kids our may be thinking or what would or would not have helped, had it been you in the situations we deal with. Thanks for being here!Jim Wissick <jwissicksbcglobal (DOT) net> wrote: I just joined today. I am 35 and have Aspergers. I wish more was knownabout it when I was younger as I was diagnosed with it only 2 years agoand am just now starting to deal with it a little more seriously. Iwas also diagnosed with ADD when I was a kid and still deal with thattoo.I will prolly just lurk mostly, but just wanted to say hello.Jim Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 16, 2007 Report Share Posted May 16, 2007 Dear Jim, Hello! What area of the country are you in? I would love to make friends with an adult with A.S. Are you employed full-time? What do you do? Many of us in this group have young men (sons) we're trying to find jobs for, and we are having a hard time. I'm not sure my son is employable, as he has so many limitations (can't remember a string of commands, hyper-sensitive to sunlight, wind, bright lights and noises, and is anti-social -- can't look people in the eyes, etc.). He is 18. I'm considering trying to get my son on Social Security Disability or some sort of Government Supplemental Income, if possible. I can't think of any jobs that he could comfortably do -- and he really is TERRIFIED at the prospect of an interview. He can't even walk up to a sales counter and buy something by himself. He's just too shy (or anti-social or whatever you want to call it.) He has no friends and he seems to be perfectly happy without them. He says he wants to stay indoors at home alone (or with me) forever. When we do go out in public, he says things like " I wish I were invisible -- I hate it because people are looking at me. " (He's a handsome young man with striking dark wavy hair and features.) Anyway, do you have any ideas or experience to offer us? There are several families with 16, 18, and 20 year old's with A.S. who are not yet employed (and most don't have a driver's license). Thanks, Celeste Atlanta, Georgia Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 16, 2007 Report Share Posted May 16, 2007 I am sure I read it the right way the first time. The minute someone says, "Oh he's doing this because...." four other people will chime in that their kid does it for a different reason. RoxannaAutism Happens Re: ( ) Hello. Hi Jim! Glad to have an Aspie aboard. I think it will help us a lot if you can put your imput in where you can to give us an idea of how our kids our may be thinking or what would or would not have helped, had it been you in the situations we deal with. Thanks for being here!Jim Wissick <jwissicksbcglobal (DOT) net> wrote: I just joined today. I am 35 and have Aspergers. I wish more was knownabout it when I was younger as I was diagnosed with it only 2 years agoand am just now starting to deal with i! t a litt le more seriously. Iwas also diagnosed with ADD when I was a kid and still deal with thattoo.I will prolly just lurk mostly, but just wanted to say hello.Jim Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 16, 2007 Report Share Posted May 16, 2007 Celeste, > Hello! What area of the country are you in? I am in the South SF Bay area. > > Are you employed full-time? What do you do? I am a full time student with part time work at the moment... Two more years till I get my bachelors... have not decided if I will go further. I have worked full time jobs in the past, but now it is time for a degree. Several days a week I work as a driving instructor. A few times a month I teach firearms safety courses with some friends. (For those who may be wondering, the thought of picking up a weapon when I get angry does not even enter my head. In fact it is quite relaxing.) The teaching really helped me get over my terror of speaking in front of a group. When I was working full time it was as a software engineer for some local companies... No formal training, just stuff that I was able to do on my own. > Many of us in this group have young men (sons) we're trying to find > jobs for, and we are having a hard time. I'm not sure my son is > employable, as he has so many limitations (can't remember a string of > commands, hyper-sensitive to sunlight, wind, bright lights and noises, > and is anti-social -- can't look people in the eyes, etc.). He is 18. > I'm considering trying to get my son on Social Security Disability or > some sort of Government Supplemental Income, if possible. I can't > think of any jobs that he could comfortably do -- and he really is > TERRIFIED at the prospect of an interview. He can't even walk up to a > sales counter and buy something by himself. I can think of a few ideas but I doubt that it is anything you haven't thought of. What is he passionate about? What does he do all day? What does he retreat back into when he gets overloaded? How did school work? It would help get some ideas if I knew more about him. Reply in private if you like and I will do my best. Quote Link to comment Share on other sites More sharing options...
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