Re: i have test result[s]!

[Guest guest]

Sue, we're all very happy for you.

I'd like to remind you though.. that it takes 6 weeks or more after thyroid surgery to get an idea of what type of production your gland will provide... and then, depending on what that level is and the amount of med that you are given to supplement that shortage it can take years to find that you are developing symptoms of hypothyroid.... if you are one of the VERY small percentage of folks that are able to get adequate production from the remaining gland... I bow to you....

But if it turns out that you are like the majority of us... and need to be adequately monitored and medicated... I hope that your docs pull through for you, before you end up like so many of us have.

My doc didn't bother to test me when I was in thyroid storm, sent me home.. by the time I was nearly dead and finally diagnosed I had to have RAI or die. After the RAI I was told that I was the one that failed to come in on time and that I might still die. Over the next ten years I went from a truck driver/body builder. To someone that needed crutches to walk 10 feet to the bathroom and had to sit on a chair to wash dishes... another three years and I couldn't hold my arms up long enough to wash my hair. That was more than half a dozen docs that did that to me. Not testing correctly, underdosing, ignoring symptoms and ignoring me. It was not just one doc.... it was because I didn't know better. It was because I would go home sicker and sicker every year from my annual labs and continue on the same dose. It was because each and every doc said that my labs were normal, that I was just fine.

At one point any physical activity had me in a chair for days. I actually would not eat or drink so that I wouldn't have to get up to walk to the bathroom. That is how much pain I was in.

I tried to sue the doc that did this to me. The first one. The one that saw me in thyroid storm but decided that I was "too fat to be sick" and entered that in my chart. And told me to go home. I was told by my state that I couldn't. If they want to sue me for trying to help people not go through what I did... great.. It will get into the media just exactly what they are doing to HUNDREDS OF THOUSANDS of us!!!!

If you have a good one. FANTASTIC! We'll send him all the business that we can handle.

Topper ()

On Sun, 05 Sep 2004 03:36:07 -0000 "Sue" writes:

Hey I just said that is what the MEDICAL profession says... but there seems to be a lot of animosity here for doctors. All I know is my surgeon did a great job, my scar is amazingly healed for such a short time, and I feel GREAT!! Oh and my TSH is 2.58 which is right where both my fantastic surgeon AND GP say it should be. :)I just think people will be lucky around here if they don't get their butts sued off for convincing people over the Internet not to do what their doctors tell them. :)Sue

[Guest guest]

Sue, we're all very happy for you.

I'd like to remind you though.. that it takes 6 weeks or more after thyroid surgery to get an idea of what type of production your gland will provide... and then, depending on what that level is and the amount of med that you are given to supplement that shortage it can take years to find that you are developing symptoms of hypothyroid.... if you are one of the VERY small percentage of folks that are able to get adequate production from the remaining gland... I bow to you....

But if it turns out that you are like the majority of us... and need to be adequately monitored and medicated... I hope that your docs pull through for you, before you end up like so many of us have.

My doc didn't bother to test me when I was in thyroid storm, sent me home.. by the time I was nearly dead and finally diagnosed I had to have RAI or die. After the RAI I was told that I was the one that failed to come in on time and that I might still die. Over the next ten years I went from a truck driver/body builder. To someone that needed crutches to walk 10 feet to the bathroom and had to sit on a chair to wash dishes... another three years and I couldn't hold my arms up long enough to wash my hair. That was more than half a dozen docs that did that to me. Not testing correctly, underdosing, ignoring symptoms and ignoring me. It was not just one doc.... it was because I didn't know better. It was because I would go home sicker and sicker every year from my annual labs and continue on the same dose. It was because each and every doc said that my labs were normal, that I was just fine.

At one point any physical activity had me in a chair for days. I actually would not eat or drink so that I wouldn't have to get up to walk to the bathroom. That is how much pain I was in.

I tried to sue the doc that did this to me. The first one. The one that saw me in thyroid storm but decided that I was "too fat to be sick" and entered that in my chart. And told me to go home. I was told by my state that I couldn't. If they want to sue me for trying to help people not go through what I did... great.. It will get into the media just exactly what they are doing to HUNDREDS OF THOUSANDS of us!!!!

If you have a good one. FANTASTIC! We'll send him all the business that we can handle.

Topper ()

On Sun, 05 Sep 2004 03:36:07 -0000 "Sue" writes:

Hey I just said that is what the MEDICAL profession says... but there seems to be a lot of animosity here for doctors. All I know is my surgeon did a great job, my scar is amazingly healed for such a short time, and I feel GREAT!! Oh and my TSH is 2.58 which is right where both my fantastic surgeon AND GP say it should be. :)I just think people will be lucky around here if they don't get their butts sued off for convincing people over the Internet not to do what their doctors tell them. :)Sue

[Guest guest]

Have you read "Thyroid, Guardian of Health" by Dr. Young? That is one book that explains the problems with TSH. Sounds like you have a good doc. Please keep us posted on your progress. BTW I am ever so glad you had surgery for the thyroid rather than RAI.

Blessings,

Debbie K.

-----Original Message-----From: Sue Sent: Sunday, September 05, 2004 9:24 AM... I would just like to see a medical reference somewhere saying TSH doesn't matter; I haven't found one.

[Guest guest]

Have you read "Thyroid, Guardian of Health" by Dr. Young? That is one book that explains the problems with TSH. Sounds like you have a good doc. Please keep us posted on your progress. BTW I am ever so glad you had surgery for the thyroid rather than RAI.

Blessings,

Debbie K.

-----Original Message-----From: Sue Sent: Sunday, September 05, 2004 9:24 AM... I would just like to see a medical reference somewhere saying TSH doesn't matter; I haven't found one.

[Guest guest]

Yeh, so even if he's one of the old " hard liners " on TSH, it doesn't make

sense. Of course, from everything I've learned, a TSH above 2 indicates

hypo, even though many of the labs are still living in the Dark Ages.

Re: i have test result!

>

> Hi... just jumping in here.. but 1.93 is within normal range. In

> reviewing quite a few medical websites the info coincides with what

> my doctor told me...

>

> low TSH - less than or equal to 0.1 mIU/L,

> borderline low - >0.1 but <0.5 mIU/L,

> normal - 0.5 to 5.5 mIU/L,

> high - >5.5 mIU/L.

>

>

> Sue

[Guest guest]

Yeh, so even if he's one of the old " hard liners " on TSH, it doesn't make

sense. Of course, from everything I've learned, a TSH above 2 indicates

hypo, even though many of the labs are still living in the Dark Ages.

Re: i have test result!

>

> Hi... just jumping in here.. but 1.93 is within normal range. In

> reviewing quite a few medical websites the info coincides with what

> my doctor told me...

>

> low TSH - less than or equal to 0.1 mIU/L,

> borderline low - >0.1 but <0.5 mIU/L,

> normal - 0.5 to 5.5 mIU/L,

> high - >5.5 mIU/L.

>

>

> Sue

[Guest guest]

Starting a couple of yrs ago, everywhere I looked, theres info and doctors

saying that TSH doesn't matter. I won't say that it NEVER matters, it just

doesn't matter once someone has started taking thyroid meds, OR if there

could possibly be a problem with a weak, misguided pituitary. And most

doctors don't test a person's pituitary because with most, it's out of their

knowledge, and they just don't know it. I'm sure that there are many many

thyroid patients being under/not treated who are secondarily hypothyroid,

and noone knows it. Not that many doctor know to/are willing to run a

Thyroid Releasing Hormone test. This is a big determinant of this.

Re: i have test result!

> Hi Debbie

>

> Hey I didn't mean to be offensive either... I would just like to see

> a medical reference somewhere saying TSH doesn't matter; I haven't

> found one.

>

> And I am well aware that a lot of people have " nightmare stories "

> about their doctors; and not all live in areas where they can go

> find other good ones if not happy with the current one.

>

> Actually my doctor IS taking Free T3 and Free T4 tests on me; she

> said they are very simple to do and that I will feel a lot better if

> she does it, even though I feel great after the surgery. She plans

> to keep testing me every 6 months or so; more often if I have

> problems.

>

> Sorry if I sounded as if I was accusing YOU specifically of advising

> people to ignore their doctors; I didn't mean to do so. Just seems

> to be a " common occurrence " <G>

>

> Sue

[Guest guest]

They can sue me, if they want to, I WANT it all to go to press. This, I know how to do because I've done it before, only with a little bit of local city politics, but it did get a tiny something changed, which I won't go in to here.

Re: Re: i have test result!

Sue, we're all very happy for you.

I'd like to remind you though.. that it takes 6 weeks or more after thyroid surgery to get an idea of what type of production your gland will provide... and then, depending on what that level is and the amount of med that you are given to supplement that shortage it can take years to find that you are developing symptoms of hypothyroid.... if you are one of the VERY small percentage of folks that are able to get adequate production from the remaining gland... I bow to you....

But if it turns out that you are like the majority of us... and need to be adequately monitored and medicated... I hope that your docs pull through for you, before you end up like so many of us have.

My doc didn't bother to test me when I was in thyroid storm, sent me home.. by the time I was nearly dead and finally diagnosed I had to have RAI or die. After the RAI I was told that I was the one that failed to come in on time and that I might still die. Over the next ten years I went from a truck driver/body builder. To someone that needed crutches to walk 10 feet to the bathroom and had to sit on a chair to wash dishes... another three years and I couldn't hold my arms up long enough to wash my hair. That was more than half a dozen docs that did that to me. Not testing correctly, underdosing, ignoring symptoms and ignoring me. It was not just one doc.... it was because I didn't know better. It was because I would go home sicker and sicker every year from my annual labs and continue on the same dose. It was because each and every doc said that my labs were normal, that I was just fine.

At one point any physical activity had me in a chair for days. I actually would not eat or drink so that I wouldn't have to get up to walk to the bathroom. That is how much pain I was in.

I tried to sue the doc that did this to me. The first one. The one that saw me in thyroid storm but decided that I was "too fat to be sick" and entered that in my chart. And told me to go home. I was told by my state that I couldn't. If they want to sue me for trying to help people not go through what I did... great.. It will get into the media just exactly what they are doing to HUNDREDS OF THOUSANDS of us!!!!

If you have a good one. FANTASTIC! We'll send him all the business that we can handle.

Topper ()

[Guest guest]

Yeh, so even if he's one of the old "hard liners" on TSH, it doesn't makesense. Of course, from everything I've learned, a TSH above 2 indicateshypo,

I've had 2 endos tell me that in 2001, the American Association of Endocrinology revised their TSH levels. The new levels (which for some reason many labs still have not adjusted) are .3-3. Anything above 3 is definitely hypo. But... your doc has to be smarter than the lab ranges.

[Guest guest]

Thanks... but all I asked for was SOME reference to SOME

professional medical information to back up the comments that TSH

levels do not matter whatsoever. I have not been able to find any.

Sue

> Sue, we're all very happy for you.

>

> I'd like to remind you though.. that it takes 6 weeks or more after

> thyroid surgery to get an idea of what type of production your

gland will

> provide... and then, depending on what that level is and the

amount of

> med that you are given to supplement that shortage it can take

years to

> find that you are developing symptoms of hypothyroid.... if you

are one

> of the VERY small percentage of folks that are able to get adequate

> production from the remaining gland... I bow to you....

>

> But if it turns out that you are like the majority of us... and

need to

> be adequately monitored and medicated... I hope that your docs pull

> through for you, before you end up like so many of us have.

>

> My doc didn't bother to test me when I was in thyroid storm, sent

me

> home.. by the time I was nearly dead and finally diagnosed I had

to have

> RAI or die. After the RAI I was told that I was the one that

failed to

> come in on time and that I might still die. Over the next ten

years I

> went from a truck driver/body builder. To someone that needed

crutches to

> walk 10 feet to the bathroom and had to sit on a chair to wash

dishes...

> another three years and I couldn't hold my arms up long enough to

wash my

> hair. That was more than half a dozen docs that did that to me. Not

> testing correctly, underdosing, ignoring symptoms and ignoring me.

It was

> not just one doc.... it was because I didn't know better. It was

because

> I would go home sicker and sicker every year from my annual labs

and

> continue on the same dose. It was because each and every doc said

that my

> labs were normal, that I was just fine.

>

> At one point any physical activity had me in a chair for days. I

actually

> would not eat or drink so that I wouldn't have to get up to walk

to the

> bathroom. That is how much pain I was in.

>

> I tried to sue the doc that did this to me. The first one. The one

that

> saw me in thyroid storm but decided that I was " too fat to be

sick " and

> entered that in my chart. And told me to go home. I was told by my

state

> that I couldn't. If they want to sue me for trying to help people

not go

> through what I did... great.. It will get into the media just

exactly

> what they are doing to HUNDREDS OF THOUSANDS of us!!!!

>

> If you have a good one. FANTASTIC! We'll send him all the business

that

> we can handle.

>

> Topper ()

>

> On Sun, 05 Sep 2004 03:36:07 -0000 " Sue " <dance4joy7@h...> writes:

> Hey I just said that is what the MEDICAL profession says... but

> there seems to be a lot of animosity here for doctors. All I know

is

> my surgeon did a great job, my scar is amazingly healed for such a

> short time, and I feel GREAT!! Oh and my TSH is 2.58 which is

> right where both my fantastic surgeon AND GP say it should be.

>

> I just think people will be lucky around here if they don't get

> their butts sued off for convincing people over the Internet not

to

> do what their doctors tell them.

>

> Sue

[Guest guest]

Thanks... but all I asked for was SOME reference to SOME

professional medical information to back up the comments that TSH

levels do not matter whatsoever. I have not been able to find any.

Sue

> Sue, we're all very happy for you.

>

> I'd like to remind you though.. that it takes 6 weeks or more after

> thyroid surgery to get an idea of what type of production your

gland will

> provide... and then, depending on what that level is and the

amount of

> med that you are given to supplement that shortage it can take

years to

> find that you are developing symptoms of hypothyroid.... if you

are one

> of the VERY small percentage of folks that are able to get adequate

> production from the remaining gland... I bow to you....

>

> But if it turns out that you are like the majority of us... and

need to

> be adequately monitored and medicated... I hope that your docs pull

> through for you, before you end up like so many of us have.

>

> My doc didn't bother to test me when I was in thyroid storm, sent

me

> home.. by the time I was nearly dead and finally diagnosed I had

to have

> RAI or die. After the RAI I was told that I was the one that

failed to

> come in on time and that I might still die. Over the next ten

years I

> went from a truck driver/body builder. To someone that needed

crutches to

> walk 10 feet to the bathroom and had to sit on a chair to wash

dishes...

> another three years and I couldn't hold my arms up long enough to

wash my

> hair. That was more than half a dozen docs that did that to me. Not

> testing correctly, underdosing, ignoring symptoms and ignoring me.

It was

> not just one doc.... it was because I didn't know better. It was

because

> I would go home sicker and sicker every year from my annual labs

and

> continue on the same dose. It was because each and every doc said

that my

> labs were normal, that I was just fine.

>

> At one point any physical activity had me in a chair for days. I

actually

> would not eat or drink so that I wouldn't have to get up to walk

to the

> bathroom. That is how much pain I was in.

>

> I tried to sue the doc that did this to me. The first one. The one

that

> saw me in thyroid storm but decided that I was " too fat to be

sick " and

> entered that in my chart. And told me to go home. I was told by my

state

> that I couldn't. If they want to sue me for trying to help people

not go

> through what I did... great.. It will get into the media just

exactly

> what they are doing to HUNDREDS OF THOUSANDS of us!!!!

>

> If you have a good one. FANTASTIC! We'll send him all the business

that

> we can handle.

>

> Topper ()

>

> On Sun, 05 Sep 2004 03:36:07 -0000 " Sue " <dance4joy7@h...> writes:

> Hey I just said that is what the MEDICAL profession says... but

> there seems to be a lot of animosity here for doctors. All I know

is

> my surgeon did a great job, my scar is amazingly healed for such a

> short time, and I feel GREAT!! Oh and my TSH is 2.58 which is

> right where both my fantastic surgeon AND GP say it should be.

>

> I just think people will be lucky around here if they don't get

> their butts sued off for convincing people over the Internet not

to

> do what their doctors tell them.

>

> Sue

[Guest guest]

Thanks... but all I asked for was SOME reference to SOME

professional medical information to back up the comments that TSH

levels do not matter whatsoever. I have not been able to find any.

Sue

> Sue, we're all very happy for you.

>

> I'd like to remind you though.. that it takes 6 weeks or more after

> thyroid surgery to get an idea of what type of production your

gland will

> provide... and then, depending on what that level is and the

amount of

> med that you are given to supplement that shortage it can take

years to

> find that you are developing symptoms of hypothyroid.... if you

are one

> of the VERY small percentage of folks that are able to get adequate

> production from the remaining gland... I bow to you....

>

> But if it turns out that you are like the majority of us... and

need to

> be adequately monitored and medicated... I hope that your docs pull

> through for you, before you end up like so many of us have.

>

> My doc didn't bother to test me when I was in thyroid storm, sent

me

> home.. by the time I was nearly dead and finally diagnosed I had

to have

> RAI or die. After the RAI I was told that I was the one that

failed to

> come in on time and that I might still die. Over the next ten

years I

> went from a truck driver/body builder. To someone that needed

crutches to

> walk 10 feet to the bathroom and had to sit on a chair to wash

dishes...

> another three years and I couldn't hold my arms up long enough to

wash my

> hair. That was more than half a dozen docs that did that to me. Not

> testing correctly, underdosing, ignoring symptoms and ignoring me.

It was

> not just one doc.... it was because I didn't know better. It was

because

> I would go home sicker and sicker every year from my annual labs

and

> continue on the same dose. It was because each and every doc said

that my

> labs were normal, that I was just fine.

>

> At one point any physical activity had me in a chair for days. I

actually

> would not eat or drink so that I wouldn't have to get up to walk

to the

> bathroom. That is how much pain I was in.

>

> I tried to sue the doc that did this to me. The first one. The one

that

> saw me in thyroid storm but decided that I was " too fat to be

sick " and

> entered that in my chart. And told me to go home. I was told by my

state

> that I couldn't. If they want to sue me for trying to help people

not go

> through what I did... great.. It will get into the media just

exactly

> what they are doing to HUNDREDS OF THOUSANDS of us!!!!

>

> If you have a good one. FANTASTIC! We'll send him all the business

that

> we can handle.

>

> Topper ()

>

> On Sun, 05 Sep 2004 03:36:07 -0000 " Sue " <dance4joy7@h...> writes:

> Hey I just said that is what the MEDICAL profession says... but

> there seems to be a lot of animosity here for doctors. All I know

is

> my surgeon did a great job, my scar is amazingly healed for such a

> short time, and I feel GREAT!! Oh and my TSH is 2.58 which is

> right where both my fantastic surgeon AND GP say it should be.

>

> I just think people will be lucky around here if they don't get

> their butts sued off for convincing people over the Internet not

to

> do what their doctors tell them.

>

> Sue

[Guest guest]

Thanks, Debbie! No I have not read the book. I am glad to know you

have medical backing for your comments... I appreciate your posting

the reference. Have to admit I don't want to put $$$ into books at

this point when there is no indication personally that I need

medical care other than what I am getting... I'm an Internet

junkie.

I am not sure what RAI is. <G> (Radiation???) If so in my case it

was not needed since I was fortunate that it was not cancer.

I appreciate your concern. My doctor took Free T3 and Free T4 tests -

- no results yet.

I wish you the best too, Debbie... take care!!

Sue

> Have you read " Thyroid, Guardian of Health " by Dr. Young? That is

one

> book that explains the problems with TSH. Sounds like you have a

good

> doc. Please keep us posted on your progress. BTW I am ever so

glad you

> had surgery for the thyroid rather than RAI.

> Blessings,

> Debbie K.

>

> -----Original Message-----

> From: Sue [mailto:dance4joy7@h...]

> Sent: Sunday, September 05, 2004 9:24 AM

>

> ... I would just like to see

> a medical reference somewhere saying TSH doesn't matter; I haven't

> found one.

[Guest guest]

Thanks, Debbie! No I have not read the book. I am glad to know you

have medical backing for your comments... I appreciate your posting

the reference. Have to admit I don't want to put $$$ into books at

this point when there is no indication personally that I need

medical care other than what I am getting... I'm an Internet

junkie.

I am not sure what RAI is. <G> (Radiation???) If so in my case it

was not needed since I was fortunate that it was not cancer.

I appreciate your concern. My doctor took Free T3 and Free T4 tests -

- no results yet.

I wish you the best too, Debbie... take care!!

Sue

> Have you read " Thyroid, Guardian of Health " by Dr. Young? That is

one

> book that explains the problems with TSH. Sounds like you have a

good

> doc. Please keep us posted on your progress. BTW I am ever so

glad you

> had surgery for the thyroid rather than RAI.

> Blessings,

> Debbie K.

>

> -----Original Message-----

> From: Sue [mailto:dance4joy7@h...]

> Sent: Sunday, September 05, 2004 9:24 AM

>

> ... I would just like to see

> a medical reference somewhere saying TSH doesn't matter; I haven't

> found one.

[Guest guest]

Thanks, Debbie! No I have not read the book. I am glad to know you

have medical backing for your comments... I appreciate your posting

the reference. Have to admit I don't want to put $$$ into books at

this point when there is no indication personally that I need

medical care other than what I am getting... I'm an Internet

junkie.

I am not sure what RAI is. <G> (Radiation???) If so in my case it

was not needed since I was fortunate that it was not cancer.

I appreciate your concern. My doctor took Free T3 and Free T4 tests -

- no results yet.

I wish you the best too, Debbie... take care!!

Sue

> Have you read " Thyroid, Guardian of Health " by Dr. Young? That is

one

> book that explains the problems with TSH. Sounds like you have a

good

> doc. Please keep us posted on your progress. BTW I am ever so

glad you

> had surgery for the thyroid rather than RAI.

> Blessings,

> Debbie K.

>

> -----Original Message-----

> From: Sue [mailto:dance4joy7@h...]

> Sent: Sunday, September 05, 2004 9:24 AM

>

> ... I would just like to see

> a medical reference somewhere saying TSH doesn't matter; I haven't

> found one.

[Guest guest]

Hi

I am not disputing you... just curious as to where you learned that,

since everything I am reading (and my two doctors) all indicate my

2.58 is normal.

Sue

> Yeh, so even if he's one of the old " hard liners " on TSH, it

doesn't make

> sense. Of course, from everything I've learned, a TSH above 2

indicates

> hypo, even though many of the labs are still living in the Dark

Ages.

>

>

>

> Re: i have test result!

>

>

> >

> > Hi... just jumping in here.. but 1.93 is within normal range. In

> > reviewing quite a few medical websites the info coincides with

what

> > my doctor told me...

> >

> > low TSH - less than or equal to 0.1 mIU/L,

> > borderline low - >0.1 but <0.5 mIU/L,

> > normal - 0.5 to 5.5 mIU/L,

> > high - >5.5 mIU/L.

> >

> >

> > Sue

[Guest guest]

Hi

I am not disputing you... just curious as to where you learned that,

since everything I am reading (and my two doctors) all indicate my

2.58 is normal.

Sue

> Yeh, so even if he's one of the old " hard liners " on TSH, it

doesn't make

> sense. Of course, from everything I've learned, a TSH above 2

indicates

> hypo, even though many of the labs are still living in the Dark

Ages.

>

>

>

> Re: i have test result!

>

>

> >

> > Hi... just jumping in here.. but 1.93 is within normal range. In

> > reviewing quite a few medical websites the info coincides with

what

> > my doctor told me...

> >

> > low TSH - less than or equal to 0.1 mIU/L,

> > borderline low - >0.1 but <0.5 mIU/L,

> > normal - 0.5 to 5.5 mIU/L,

> > high - >5.5 mIU/L.

> >

> >

> > Sue

[Guest guest]

Hi

I am not disputing you... just curious as to where you learned that,

since everything I am reading (and my two doctors) all indicate my

2.58 is normal.

Sue

> Yeh, so even if he's one of the old " hard liners " on TSH, it

doesn't make

> sense. Of course, from everything I've learned, a TSH above 2

indicates

> hypo, even though many of the labs are still living in the Dark

Ages.

>

>

>

> Re: i have test result!

>

>

> >

> > Hi... just jumping in here.. but 1.93 is within normal range. In

> > reviewing quite a few medical websites the info coincides with

what

> > my doctor told me...

> >

> > low TSH - less than or equal to 0.1 mIU/L,

> > borderline low - >0.1 but <0.5 mIU/L,

> > normal - 0.5 to 5.5 mIU/L,

> > high - >5.5 mIU/L.

> >

> >

> > Sue

[Guest guest]

Well you certainly have a lot more experience at this than I do...

this time two months ago I didn't even know I HAD a thyroid

problem. So I am learning as I go along. Thanks for the info.

Sue

> Starting a couple of yrs ago, everywhere I looked, theres info and

doctors

> saying that TSH doesn't matter. I won't say that it NEVER

matters, it just

> doesn't matter once someone has started taking thyroid meds, OR if

there

> could possibly be a problem with a weak, misguided pituitary. And

most

> doctors don't test a person's pituitary because with most, it's

out of their

> knowledge, and they just don't know it. I'm sure that there are

many many

> thyroid patients being under/not treated who are secondarily

hypothyroid,

> and noone knows it. Not that many doctor know to/are willing to

run a

> Thyroid Releasing Hormone test. This is a big determinant of this.

>

>

>

> Re: i have test result!

>

>

> > Hi Debbie

> >

> > Hey I didn't mean to be offensive either... I would just like to

see

> > a medical reference somewhere saying TSH doesn't matter; I

haven't

> > found one.

> >

> > And I am well aware that a lot of people have " nightmare stories "

> > about their doctors; and not all live in areas where they can go

> > find other good ones if not happy with the current one.

> >

> > Actually my doctor IS taking Free T3 and Free T4 tests on me; she

> > said they are very simple to do and that I will feel a lot

better if

> > she does it, even though I feel great after the surgery. She

plans

> > to keep testing me every 6 months or so; more often if I have

> > problems.

> >

> > Sorry if I sounded as if I was accusing YOU specifically of

advising

> > people to ignore their doctors; I didn't mean to do so. Just

seems

> > to be a " common occurrence " <G>

> >

> > Sue

[Guest guest]

Well you certainly have a lot more experience at this than I do...

this time two months ago I didn't even know I HAD a thyroid

problem. So I am learning as I go along. Thanks for the info.

Sue

> Starting a couple of yrs ago, everywhere I looked, theres info and

doctors

> saying that TSH doesn't matter. I won't say that it NEVER

matters, it just

> doesn't matter once someone has started taking thyroid meds, OR if

there

> could possibly be a problem with a weak, misguided pituitary. And

most

> doctors don't test a person's pituitary because with most, it's

out of their

> knowledge, and they just don't know it. I'm sure that there are

many many

> thyroid patients being under/not treated who are secondarily

hypothyroid,

> and noone knows it. Not that many doctor know to/are willing to

run a

> Thyroid Releasing Hormone test. This is a big determinant of this.

>

>

>

> Re: i have test result!

>

>

> > Hi Debbie

> >

> > Hey I didn't mean to be offensive either... I would just like to

see

> > a medical reference somewhere saying TSH doesn't matter; I

haven't

> > found one.

> >

> > And I am well aware that a lot of people have " nightmare stories "

> > about their doctors; and not all live in areas where they can go

> > find other good ones if not happy with the current one.

> >

> > Actually my doctor IS taking Free T3 and Free T4 tests on me; she

> > said they are very simple to do and that I will feel a lot

better if

> > she does it, even though I feel great after the surgery. She

plans

> > to keep testing me every 6 months or so; more often if I have

> > problems.

> >

> > Sorry if I sounded as if I was accusing YOU specifically of

advising

> > people to ignore their doctors; I didn't mean to do so. Just

seems

> > to be a " common occurrence " <G>

> >

> > Sue

[Guest guest]

Well you certainly have a lot more experience at this than I do...

this time two months ago I didn't even know I HAD a thyroid

problem. So I am learning as I go along. Thanks for the info.

Sue

> Starting a couple of yrs ago, everywhere I looked, theres info and

doctors

> saying that TSH doesn't matter. I won't say that it NEVER

matters, it just

> doesn't matter once someone has started taking thyroid meds, OR if

there

> could possibly be a problem with a weak, misguided pituitary. And

most

> doctors don't test a person's pituitary because with most, it's

out of their

> knowledge, and they just don't know it. I'm sure that there are

many many

> thyroid patients being under/not treated who are secondarily

hypothyroid,

> and noone knows it. Not that many doctor know to/are willing to

run a

> Thyroid Releasing Hormone test. This is a big determinant of this.

>

>

>

> Re: i have test result!

>

>

> > Hi Debbie

> >

> > Hey I didn't mean to be offensive either... I would just like to

see

> > a medical reference somewhere saying TSH doesn't matter; I

haven't

> > found one.

> >

> > And I am well aware that a lot of people have " nightmare stories "

> > about their doctors; and not all live in areas where they can go

> > find other good ones if not happy with the current one.

> >

> > Actually my doctor IS taking Free T3 and Free T4 tests on me; she

> > said they are very simple to do and that I will feel a lot

better if

> > she does it, even though I feel great after the surgery. She

plans

> > to keep testing me every 6 months or so; more often if I have

> > problems.

> >

> > Sorry if I sounded as if I was accusing YOU specifically of

advising

> > people to ignore their doctors; I didn't mean to do so. Just

seems

> > to be a " common occurrence " <G>

> >

> > Sue

[Guest guest]

LOL okay I know when to back off. <G> You are missing the point, but

oh well........... <GGG>

Sue

- In The_Thyroid_Support_Group , " "

<marin@q...> wrote:

> They can sue me, if they want to, I WANT it all to go to press.

This, I know how to do because I've done it before, only with a

little bit of local city politics, but it did get a tiny something

changed, which I won't go in to here.

>

>

>

> Re: Re: i have test result

!

>

>

> Sue, we're all very happy for you.

>

> I'd like to remind you though.. that it takes 6 weeks or more

after thyroid surgery to get an idea of what type of production your

gland will provide... and then, depending on what that level is and

the amount of med that you are given to supplement that shortage it

can take years to find that you are developing symptoms of

hypothyroid.... if you are one of the VERY small percentage of

folks that are able to get adequate production from the remaining

gland... I bow to you....

>

> But if it turns out that you are like the majority of us... and

need to be adequately monitored and medicated... I hope that your

docs pull through for you, before you end up like so many of us have.

>

> My doc didn't bother to test me when I was in thyroid storm,

sent me home.. by the time I was nearly dead and finally diagnosed I

had to have RAI or die. After the RAI I was told that I was the one

that failed to come in on time and that I might still die. Over the

next ten years I went from a truck driver/body builder. To someone

that needed crutches to walk 10 feet to the bathroom and had to sit

on a chair to wash dishes... another three years and I couldn't hold

my arms up long enough to wash my hair. That was more than half a

dozen docs that did that to me. Not testing correctly, underdosing,

ignoring symptoms and ignoring me. It was not just one doc.... it

was because I didn't know better. It was because I would go home

sicker and sicker every year from my annual labs and continue on the

same dose. It was because each and every doc said that my labs were

normal, that I was just fine.

>

> At one point any physical activity had me in a chair for days. I

actually would not eat or drink so that I wouldn't have to get up to

walk to the bathroom. That is how much pain I was in.

>

> I tried to sue the doc that did this to me. The first one. The

one that saw me in thyroid storm but decided that I was " too fat to

be sick " and entered that in my chart. And told me to go home. I was

told by my state that I couldn't. If they want to sue me for trying

to help people not go through what I did... great.. It will get

into the media just exactly what they are doing to HUNDREDS OF

THOUSANDS of us!!!!

>

> If you have a good one. FANTASTIC! We'll send him all the

business that we can handle.

>

> Topper ()

[Guest guest]

LOL okay I know when to back off. <G> You are missing the point, but

oh well........... <GGG>

Sue

- In The_Thyroid_Support_Group , " "

<marin@q...> wrote:

> They can sue me, if they want to, I WANT it all to go to press.

This, I know how to do because I've done it before, only with a

little bit of local city politics, but it did get a tiny something

changed, which I won't go in to here.

>

>

>

> Re: Re: i have test result

!

>

>

> Sue, we're all very happy for you.

>

> I'd like to remind you though.. that it takes 6 weeks or more

after thyroid surgery to get an idea of what type of production your

gland will provide... and then, depending on what that level is and

the amount of med that you are given to supplement that shortage it

can take years to find that you are developing symptoms of

hypothyroid.... if you are one of the VERY small percentage of

folks that are able to get adequate production from the remaining

gland... I bow to you....

>

> But if it turns out that you are like the majority of us... and

need to be adequately monitored and medicated... I hope that your

docs pull through for you, before you end up like so many of us have.

>

> My doc didn't bother to test me when I was in thyroid storm,

sent me home.. by the time I was nearly dead and finally diagnosed I

had to have RAI or die. After the RAI I was told that I was the one

that failed to come in on time and that I might still die. Over the

next ten years I went from a truck driver/body builder. To someone

that needed crutches to walk 10 feet to the bathroom and had to sit

on a chair to wash dishes... another three years and I couldn't hold

my arms up long enough to wash my hair. That was more than half a

dozen docs that did that to me. Not testing correctly, underdosing,

ignoring symptoms and ignoring me. It was not just one doc.... it

was because I didn't know better. It was because I would go home

sicker and sicker every year from my annual labs and continue on the

same dose. It was because each and every doc said that my labs were

normal, that I was just fine.

>

> At one point any physical activity had me in a chair for days. I

actually would not eat or drink so that I wouldn't have to get up to

walk to the bathroom. That is how much pain I was in.

>

> I tried to sue the doc that did this to me. The first one. The

one that saw me in thyroid storm but decided that I was " too fat to

be sick " and entered that in my chart. And told me to go home. I was

told by my state that I couldn't. If they want to sue me for trying

to help people not go through what I did... great.. It will get

into the media just exactly what they are doing to HUNDREDS OF

THOUSANDS of us!!!!

>

> If you have a good one. FANTASTIC! We'll send him all the

business that we can handle.

>

> Topper ()

[Guest guest]

Hi

That is interesting... I looked for a website on them; found lots of

references but no actual site.

Sue

>

>

>

> Yeh, so even if he's one of the old " hard liners " on TSH, it

doesn't make

> sense. Of course, from everything I've learned, a TSH above 2

indicates

> hypo,

>

>

>

> I've had 2 endos tell me that in 2001, the American Association

of Endocrinology revised their TSH levels. The new levels (which

for some reason many labs still have not adjusted) are .3-3.

Anything above 3 is definitely hypo. But... your doc has to be

smarter than the lab ranges.

>

>

[Guest guest]

Hi

That is interesting... I looked for a website on them; found lots of

references but no actual site.

Sue

>

>

>

> Yeh, so even if he's one of the old " hard liners " on TSH, it

doesn't make

> sense. Of course, from everything I've learned, a TSH above 2

indicates

> hypo,

>

>

>

> I've had 2 endos tell me that in 2001, the American Association

of Endocrinology revised their TSH levels. The new levels (which

for some reason many labs still have not adjusted) are .3-3.

Anything above 3 is definitely hypo. But... your doc has to be

smarter than the lab ranges.

>

>