Re: i have test result[s]!

[Guest guest]

Omigosh... forget it... I'm outa here!!!!!

> > Hi

> >

> > I don't have the test results back; just got it done Saturday.

But I

> > am not educated enough to know what " normal " is anyway. To

be

> > honest I am a bit hesitant to post them when I do find out, as

no

> > matter what they are, I figure there will be people who jump in

and

> > tell me they are bad, even if my doctor tells me I am okay and I

> > feel great. It would be all to easy for me to become

paranoid

> > about all this stuff.

> >

> > Sue

[Guest guest]

I tried that. They weren't too interested. Alot of the docs I meet

tend to feel that " a little knowledge can be dangerous, " especially

knowledge gleaned from the web.

blithe

>

> My docs aren't on top of everything... I'm certainly finding that

out. But even the ones I've seen recently know that the TSH

guidelines have been revised!! It's amazing to me that the local labs

haven't revised their normal values to reflect that. But, at least

the docs knew to regard the results differently. Could you find the

info on the endocrinology website that talks about the official

revision, and show it to them?

>

>

[Guest guest]

I tried that. They weren't too interested. Alot of the docs I meet

tend to feel that " a little knowledge can be dangerous, " especially

knowledge gleaned from the web.

blithe

>

> My docs aren't on top of everything... I'm certainly finding that

out. But even the ones I've seen recently know that the TSH

guidelines have been revised!! It's amazing to me that the local labs

haven't revised their normal values to reflect that. But, at least

the docs knew to regard the results differently. Could you find the

info on the endocrinology website that talks about the official

revision, and show it to them?

>

>

[Guest guest]

I tried that. They weren't too interested. Alot of the docs I meet

tend to feel that " a little knowledge can be dangerous, " especially

knowledge gleaned from the web.

blithe

>

> My docs aren't on top of everything... I'm certainly finding that

out. But even the ones I've seen recently know that the TSH

guidelines have been revised!! It's amazing to me that the local labs

haven't revised their normal values to reflect that. But, at least

the docs knew to regard the results differently. Could you find the

info on the endocrinology website that talks about the official

revision, and show it to them?

>

>

[Guest guest]

It does make you wonder, doesn't it?

This morning I saw my oncologist whom I see once a year for checkups.

I had an advanced form of cancer as a kid, so there are some tests I

need to do once a year to make sure all's well. I asked him whether

the radiation I received to my chest (as part of treatment) could be

related to a wonky thyroid later in life. He said definitely, and that

I was a " classic " case, exhibiting late-onset effects of extensive

radiation to the chest: PCOS + wonky thyroid (the diabetes could be

hereditary or a result of the PCOS).

Just an fyi, if anyone here has had radiation in the past, that could

be the cause of your current thyroid trouble.

blithe

Blithe.. I had chronic headaches, neck aches and shoulder pain.. I

mean every hour, of every day, of every week, of every month, of every

year.... Not any more. I seldom even get head aches any more.

Why? Cause my thyroid levels are up?

The plantar faciitis in my right foot... dear doc said that it was a

physical injury that I'd have for life... I was on crutches cause I

could walk on it... now it's gone.

Why? Cause my thyroid levels are up?

The list goes on....

Makes you wonder.....

Topper ()

[Guest guest]

It does make you wonder, doesn't it?

This morning I saw my oncologist whom I see once a year for checkups.

I had an advanced form of cancer as a kid, so there are some tests I

need to do once a year to make sure all's well. I asked him whether

the radiation I received to my chest (as part of treatment) could be

related to a wonky thyroid later in life. He said definitely, and that

I was a " classic " case, exhibiting late-onset effects of extensive

radiation to the chest: PCOS + wonky thyroid (the diabetes could be

hereditary or a result of the PCOS).

Just an fyi, if anyone here has had radiation in the past, that could

be the cause of your current thyroid trouble.

blithe

Blithe.. I had chronic headaches, neck aches and shoulder pain.. I

mean every hour, of every day, of every week, of every month, of every

year.... Not any more. I seldom even get head aches any more.

Why? Cause my thyroid levels are up?

The plantar faciitis in my right foot... dear doc said that it was a

physical injury that I'd have for life... I was on crutches cause I

could walk on it... now it's gone.

Why? Cause my thyroid levels are up?

The list goes on....

Makes you wonder.....

Topper ()

[Guest guest]

It does make you wonder, doesn't it?

This morning I saw my oncologist whom I see once a year for checkups.

I had an advanced form of cancer as a kid, so there are some tests I

need to do once a year to make sure all's well. I asked him whether

the radiation I received to my chest (as part of treatment) could be

related to a wonky thyroid later in life. He said definitely, and that

I was a " classic " case, exhibiting late-onset effects of extensive

radiation to the chest: PCOS + wonky thyroid (the diabetes could be

hereditary or a result of the PCOS).

Just an fyi, if anyone here has had radiation in the past, that could

be the cause of your current thyroid trouble.

blithe

Blithe.. I had chronic headaches, neck aches and shoulder pain.. I

mean every hour, of every day, of every week, of every month, of every

year.... Not any more. I seldom even get head aches any more.

Why? Cause my thyroid levels are up?

The plantar faciitis in my right foot... dear doc said that it was a

physical injury that I'd have for life... I was on crutches cause I

could walk on it... now it's gone.

Why? Cause my thyroid levels are up?

The list goes on....

Makes you wonder.....

Topper ()

[Guest guest]

Sorry... correction. I had radiation to both the chest *and* abdomen,

hence the PCOS + wonky thyroid...

blithe

> Blithe.. I had chronic headaches, neck aches and shoulder pain.. I

> mean every hour, of every day, of every week, of every month, of every

> year.... Not any more. I seldom even get head aches any more.

>

> Why? Cause my thyroid levels are up?

>

> The plantar faciitis in my right foot... dear doc said that it was a

> physical injury that I'd have for life... I was on crutches cause I

> could walk on it... now it's gone.

>

> Why? Cause my thyroid levels are up?

>

> The list goes on....

>

> Makes you wonder.....

>

> Topper ()

[Guest guest]

Everything I've been reading over the past few yrs says, no, that is

probably not normal for a great many people. Many different sources. It

depends on who you believe, in relationship to all the other evidence about

Free T3, Free T4, antibodies, and other interferences from many things.

There are too many people on these thyroid boards who prove it with their

own individual testing, the way they feel, and what has happened to them on

acct of undertreatment that was always according to their TSH, not their

thyroid hormones. The main question is do you feel good at this level,

then I would say that it's right for you. If not, no, I wouldn't consider

it the right level for you. Are you feeling very well?

Re: i have test result!

> >

> >

> > >

> > > Hi... just jumping in here.. but 1.93 is within normal range. In

> > > reviewing quite a few medical websites the info coincides with

> what

> > > my doctor told me...

> > >

> > > low TSH - less than or equal to 0.1 mIU/L,

> > > borderline low - >0.1 but <0.5 mIU/L,

> > > normal - 0.5 to 5.5 mIU/L,

> > > high - >5.5 mIU/L.

> > >

> > >

> > > Sue

[Guest guest]

Everything I've been reading over the past few yrs says, no, that is

probably not normal for a great many people. Many different sources. It

depends on who you believe, in relationship to all the other evidence about

Free T3, Free T4, antibodies, and other interferences from many things.

There are too many people on these thyroid boards who prove it with their

own individual testing, the way they feel, and what has happened to them on

acct of undertreatment that was always according to their TSH, not their

thyroid hormones. The main question is do you feel good at this level,

then I would say that it's right for you. If not, no, I wouldn't consider

it the right level for you. Are you feeling very well?

Re: i have test result!

> >

> >

> > >

> > > Hi... just jumping in here.. but 1.93 is within normal range. In

> > > reviewing quite a few medical websites the info coincides with

> what

> > > my doctor told me...

> > >

> > > low TSH - less than or equal to 0.1 mIU/L,

> > > borderline low - >0.1 but <0.5 mIU/L,

> > > normal - 0.5 to 5.5 mIU/L,

> > > high - >5.5 mIU/L.

> > >

> > >

> > > Sue

[Guest guest]

No, I didn't miss the point. I am no longer afraid of the consequences of

the Medical Mainstream world. Doctors are not God, and none are infallible.

This IS a free country, though it is getting worse all the time, when it

comes to freedom of speech. When I feel strongly on an issue, I won't stop

talking about it, but only when I've been shown clear cut evidence of it,

time and time again.

Re: i have test result!

> LOL okay I know when to back off. <G> You are missing the point, but

> oh well........... <GGG>

>

> Sue

>

> - In The_Thyroid_Support_Group , " "

> <marin@q...> wrote:

> > They can sue me, if they want to, I WANT it all to go to press.

> This, I know how to do because I've done it before, only with a

> little bit of local city politics, but it did get a tiny something

> changed, which I won't go in to here.

> >

> >

[Guest guest]

No, I didn't miss the point. I am no longer afraid of the consequences of

the Medical Mainstream world. Doctors are not God, and none are infallible.

This IS a free country, though it is getting worse all the time, when it

comes to freedom of speech. When I feel strongly on an issue, I won't stop

talking about it, but only when I've been shown clear cut evidence of it,

time and time again.

Re: i have test result!

> LOL okay I know when to back off. <G> You are missing the point, but

> oh well........... <GGG>

>

> Sue

>

> - In The_Thyroid_Support_Group , " "

> <marin@q...> wrote:

> > They can sue me, if they want to, I WANT it all to go to press.

> This, I know how to do because I've done it before, only with a

> little bit of local city politics, but it did get a tiny something

> changed, which I won't go in to here.

> >

> >

[Guest guest]

What I have learned, from different sources, is that normal and

healthy thyroids usually have TSH levels between 1 and 2 (usually

closer to 1). But since we're not all the same, what is a normal

level for one person won't be normal for another.

> > > Yeh, so even if he's one of the old " hard liners " on TSH, it

> > doesn't make

> > > sense. Of course, from everything I've learned, a TSH above 2

> > indicates

> > > hypo, even though many of the labs are still living in the Dark

> > Ages.

> > >

> > >

> > >

> > > Re: i have test result!

> > >

> > >

> > > >

> > > > Hi... just jumping in here.. but 1.93 is within normal range. In

> > > > reviewing quite a few medical websites the info coincides with

> > what

> > > > my doctor told me...

> > > >

> > > > low TSH - less than or equal to 0.1 mIU/L,

> > > > borderline low - >0.1 but <0.5 mIU/L,

> > > > normal - 0.5 to 5.5 mIU/L,

> > > > high - >5.5 mIU/L.

> > > >

> > > >

> > > > Sue

[Guest guest]

What I have learned, from different sources, is that normal and

healthy thyroids usually have TSH levels between 1 and 2 (usually

closer to 1). But since we're not all the same, what is a normal

level for one person won't be normal for another.

> > > Yeh, so even if he's one of the old " hard liners " on TSH, it

> > doesn't make

> > > sense. Of course, from everything I've learned, a TSH above 2

> > indicates

> > > hypo, even though many of the labs are still living in the Dark

> > Ages.

> > >

> > >

> > >

> > > Re: i have test result!

> > >

> > >

> > > >

> > > > Hi... just jumping in here.. but 1.93 is within normal range. In

> > > > reviewing quite a few medical websites the info coincides with

> > what

> > > > my doctor told me...

> > > >

> > > > low TSH - less than or equal to 0.1 mIU/L,

> > > > borderline low - >0.1 but <0.5 mIU/L,

> > > > normal - 0.5 to 5.5 mIU/L,

> > > > high - >5.5 mIU/L.

> > > >

> > > >

> > > > Sue

[Guest guest]

Oh yes, there is definitely a site, and some of us had/have copies of their

new guidelines. It is the American Association of Clinical Engocrinologists

(AACE). I'm thinking that that website is www.aace.org or is it

www.aace.com ? You can bring it up on a search engine by typing in their

full organizational name.

Re: i have test result!

> Hi

>

> That is interesting... I looked for a website on them; found lots of

> references but no actual site.

>

> Sue

>

>

> > I've had 2 endos tell me that in 2001, the American Association

> of Endocrinology revised their TSH levels. The new levels (which

> for some reason many labs still have not adjusted) are .3-3.

> Anything above 3 is definitely hypo. But... your doc has to be

> smarter than the lab ranges.

> >

> >

[Guest guest]

Oh yes, there is definitely a site, and some of us had/have copies of their

new guidelines. It is the American Association of Clinical Engocrinologists

(AACE). I'm thinking that that website is www.aace.org or is it

www.aace.com ? You can bring it up on a search engine by typing in their

full organizational name.

Re: i have test result!

> Hi

>

> That is interesting... I looked for a website on them; found lots of

> references but no actual site.

>

> Sue

>

>

> > I've had 2 endos tell me that in 2001, the American Association

> of Endocrinology revised their TSH levels. The new levels (which

> for some reason many labs still have not adjusted) are .3-3.

> Anything above 3 is definitely hypo. But... your doc has to be

> smarter than the lab ranges.

> >

> >

[Guest guest]

Oh yes, there is definitely a site, and some of us had/have copies of their

new guidelines. It is the American Association of Clinical Engocrinologists

(AACE). I'm thinking that that website is www.aace.org or is it

www.aace.com ? You can bring it up on a search engine by typing in their

full organizational name.

Re: i have test result!

> Hi

>

> That is interesting... I looked for a website on them; found lots of

> references but no actual site.

>

> Sue

>

>

> > I've had 2 endos tell me that in 2001, the American Association

> of Endocrinology revised their TSH levels. The new levels (which

> for some reason many labs still have not adjusted) are .3-3.

> Anything above 3 is definitely hypo. But... your doc has to be

> smarter than the lab ranges.

> >

> >

[Guest guest]

Well, Sue, that is one of the purposes of these types of sites, but it's a

free country, you certainly don't have to post your lab values at all. In

fact, when I come to that post, if you do post it, I will skip over it, if

that is the one of the things in question. As for it all " taking over my

life " , finding out what it was then treating it, so that I could feel like

something other than a walking zombie, certainly does qualify for it taking

over one's life, as needed for the time. I hope that you never feel that

driven to live, as that is what all of this is about for many of us. Many

have almost died because we DIDN'T investigate and push for the changes soon

enough. We're here to put our heads together and gain knowledge in that

way, and, in the process we help each other. I really DON'T like being

online all the time, but if I can change something from happening to one

other person, it makes my day. ly, when I come in from work in the

mornings, five days a week, I'm sometimes falling asleep at the puter, but

it's been worth it, as well as for myself. We also call ourselves Thyroid

Patient Advocates, especially when we have such fierce convictions about all

of this. Sometimes it's been the " paranoid " who accomplished a lot of

societal changes in attitude t'wd many issues. Antagonism is one of the

symptoms of thyroid disease. Oh yes, I even went through a long period of

time, with heart breaking symptoms of Bipolar Disorder, which I now know to

attribute to a pretty long hyperthyroid state, and I may have been a very

atagonistic person during that time. Then again, others may view me that

way now, for all I know.

Re: i have test result!

> >

> >

> > > Hi

> > >

> > > I am not disputing you... just curious as to where you learned

> that,

> > > since everything I am reading (and my two doctors) all indicate

> my

> > > 2.58 is normal.

> > >

> > > Sue

[Guest guest]

Well, Sue, that is one of the purposes of these types of sites, but it's a

free country, you certainly don't have to post your lab values at all. In

fact, when I come to that post, if you do post it, I will skip over it, if

that is the one of the things in question. As for it all " taking over my

life " , finding out what it was then treating it, so that I could feel like

something other than a walking zombie, certainly does qualify for it taking

over one's life, as needed for the time. I hope that you never feel that

driven to live, as that is what all of this is about for many of us. Many

have almost died because we DIDN'T investigate and push for the changes soon

enough. We're here to put our heads together and gain knowledge in that

way, and, in the process we help each other. I really DON'T like being

online all the time, but if I can change something from happening to one

other person, it makes my day. ly, when I come in from work in the

mornings, five days a week, I'm sometimes falling asleep at the puter, but

it's been worth it, as well as for myself. We also call ourselves Thyroid

Patient Advocates, especially when we have such fierce convictions about all

of this. Sometimes it's been the " paranoid " who accomplished a lot of

societal changes in attitude t'wd many issues. Antagonism is one of the

symptoms of thyroid disease. Oh yes, I even went through a long period of

time, with heart breaking symptoms of Bipolar Disorder, which I now know to

attribute to a pretty long hyperthyroid state, and I may have been a very

atagonistic person during that time. Then again, others may view me that

way now, for all I know.

Re: i have test result!

> >

> >

> > > Hi

> > >

> > > I am not disputing you... just curious as to where you learned

> that,

> > > since everything I am reading (and my two doctors) all indicate

> my

> > > 2.58 is normal.

> > >

> > > Sue

[Guest guest]

You can go in on the site and get one copy of it. They won't allow you to make more than one copy, at least as of when I got mine.

Re: Re: i have test result!

The final vote may not be in, but I've got a "normal" TSH of 3.95 andI feel like crap.

My docs aren't on top of everything... I'm certainly finding that out. But even the ones I've seen recently know that the TSH guidelines have been revised!! It's amazing to me that the local labs haven't revised their normal values to reflect that. But, at least the docs knew to regard the results differently. Could you find the info on the endocrinology website that talks about the official revision, and show it to them?

[Guest guest]

You can go in on the site and get one copy of it. They won't allow you to make more than one copy, at least as of when I got mine.

Re: Re: i have test result!

The final vote may not be in, but I've got a "normal" TSH of 3.95 andI feel like crap.

My docs aren't on top of everything... I'm certainly finding that out. But even the ones I've seen recently know that the TSH guidelines have been revised!! It's amazing to me that the local labs haven't revised their normal values to reflect that. But, at least the docs knew to regard the results differently. Could you find the info on the endocrinology website that talks about the official revision, and show it to them?

[Guest guest]

You can go in on the site and get one copy of it. They won't allow you to make more than one copy, at least as of when I got mine.

Re: Re: i have test result!

The final vote may not be in, but I've got a "normal" TSH of 3.95 andI feel like crap.

My docs aren't on top of everything... I'm certainly finding that out. But even the ones I've seen recently know that the TSH guidelines have been revised!! It's amazing to me that the local labs haven't revised their normal values to reflect that. But, at least the docs knew to regard the results differently. Could you find the info on the endocrinology website that talks about the official revision, and show it to them?

[Guest guest]

I had a tonssilectomy when I was 18, and I have read another post saying

that they used to radiate that area when they operated on it. I don't know

whether I had this or not, and the doctor who did that surgery lives 500

miles away and is probably dead now anyway. I didn't start feeling actually

bad til I was around 32 or 33. I wasn't diagnosed til I was 42, so you can

see how much time it had to do all kinds of damage.

Re: i have test result!

> It does make you wonder, doesn't it?

>

> This morning I saw my oncologist whom I see once a year for checkups.

> I had an advanced form of cancer as a kid, so there are some tests I

> need to do once a year to make sure all's well. I asked him whether

> the radiation I received to my chest (as part of treatment) could be

> related to a wonky thyroid later in life. He said definitely, and that

> I was a " classic " case, exhibiting late-onset effects of extensive

> radiation to the chest: PCOS + wonky thyroid (the diabetes could be

> hereditary or a result of the PCOS).

>

> Just an fyi, if anyone here has had radiation in the past, that could

> be the cause of your current thyroid trouble.

>

> blithe

[Guest guest]

I had a tonssilectomy when I was 18, and I have read another post saying

that they used to radiate that area when they operated on it. I don't know

whether I had this or not, and the doctor who did that surgery lives 500

miles away and is probably dead now anyway. I didn't start feeling actually

bad til I was around 32 or 33. I wasn't diagnosed til I was 42, so you can

see how much time it had to do all kinds of damage.

Re: i have test result!

> It does make you wonder, doesn't it?

>

> This morning I saw my oncologist whom I see once a year for checkups.

> I had an advanced form of cancer as a kid, so there are some tests I

> need to do once a year to make sure all's well. I asked him whether

> the radiation I received to my chest (as part of treatment) could be

> related to a wonky thyroid later in life. He said definitely, and that

> I was a " classic " case, exhibiting late-onset effects of extensive

> radiation to the chest: PCOS + wonky thyroid (the diabetes could be

> hereditary or a result of the PCOS).

>

> Just an fyi, if anyone here has had radiation in the past, that could

> be the cause of your current thyroid trouble.

>

> blithe

[Guest guest]

I had a tonssilectomy when I was 18, and I have read another post saying

that they used to radiate that area when they operated on it. I don't know

whether I had this or not, and the doctor who did that surgery lives 500

miles away and is probably dead now anyway. I didn't start feeling actually

bad til I was around 32 or 33. I wasn't diagnosed til I was 42, so you can

see how much time it had to do all kinds of damage.

Re: i have test result!

> It does make you wonder, doesn't it?

>

> This morning I saw my oncologist whom I see once a year for checkups.

> I had an advanced form of cancer as a kid, so there are some tests I

> need to do once a year to make sure all's well. I asked him whether

> the radiation I received to my chest (as part of treatment) could be

> related to a wonky thyroid later in life. He said definitely, and that

> I was a " classic " case, exhibiting late-onset effects of extensive

> radiation to the chest: PCOS + wonky thyroid (the diabetes could be

> hereditary or a result of the PCOS).

>

> Just an fyi, if anyone here has had radiation in the past, that could

> be the cause of your current thyroid trouble.

>

> blithe