RE: Lupron w/laparoscopy vs abdominal myomectomy

April 30, 2002

What evidence does your doctor have of a " high risk of infection " ?

It seems to me that plenty of people get infections as a result of

surgery. Have you gotten an opinion from an IR or another gyn?

> Hi

>

> I'm new to the list but have been on the Embo list because I

thought

> a UAE would be best. But the Doc say no to the UAE due to the

> position of the fibroid and the high risk of infection.

>

> The fibroid is 5cm (chicken egg size) and located at the top of

the

> uterus with 20%in the wall and the remaining 80% sticking out into

> the cavity. It has caused all the problems imagable.

>

> My two options are going on lupron for several months then try a

> laparoscopy. The doc said the due to the position of the fibroid

it

> would be on the high end of his ability level and there may be a

> chance that they could not get it all. Second option is an

abdominal

> myomectomy.

>

> I would like to hear from anywho has had either one and what their

> experince was. I'm having a difficult time of knowing what the

> right choice for me is.

>

> Thank you.

> Rita

April 30, 2002

What evidence does your doctor have of a " high risk of infection " ?

It seems to me that plenty of people get infections as a result of

surgery. Have you gotten an opinion from an IR or another gyn?

> Hi

>

> I'm new to the list but have been on the Embo list because I

thought

> a UAE would be best. But the Doc say no to the UAE due to the

> position of the fibroid and the high risk of infection.

>

> The fibroid is 5cm (chicken egg size) and located at the top of

the

> uterus with 20%in the wall and the remaining 80% sticking out into

> the cavity. It has caused all the problems imagable.

>

> My two options are going on lupron for several months then try a

> laparoscopy. The doc said the due to the position of the fibroid

it

> would be on the high end of his ability level and there may be a

> chance that they could not get it all. Second option is an

abdominal

> myomectomy.

>

> I would like to hear from anywho has had either one and what their

> experince was. I'm having a difficult time of knowing what the

> right choice for me is.

>

> Thank you.

> Rita

April 30, 2002

What evidence does your doctor have of a " high risk of infection " ?

It seems to me that plenty of people get infections as a result of

surgery. Have you gotten an opinion from an IR or another gyn?

> Hi

>

> I'm new to the list but have been on the Embo list because I

thought

> a UAE would be best. But the Doc say no to the UAE due to the

> position of the fibroid and the high risk of infection.

>

> The fibroid is 5cm (chicken egg size) and located at the top of

the

> uterus with 20%in the wall and the remaining 80% sticking out into

> the cavity. It has caused all the problems imagable.

>

> My two options are going on lupron for several months then try a

> laparoscopy. The doc said the due to the position of the fibroid

it

> would be on the high end of his ability level and there may be a

> chance that they could not get it all. Second option is an

abdominal

> myomectomy.

>

> I would like to hear from anywho has had either one and what their

> experince was. I'm having a difficult time of knowing what the

> right choice for me is.

>

> Thank you.

> Rita

April 30, 2002

Sounds like your doctor's concern is that after a UAE the fibroid

might detatch and end up being too big to expel. Being necrotic

tissue, it would then be very susceptible to infection. This is a

valid concern given the size and location of your fibroid. A few

women have had this happen to them and it can be life-threatening.

It also sounds like your doctor is being very upfront about his

skills and what to expect.

I had an abdominal myomectomy just over a year ago and have been

overall pleased with the result. I also had the option of doing a

course of Lupron in order to try for laparoscopy but ended up opting

against that. I decided I would rather deal with abdominal surgery,

(since I had already had C-Sections I knew how that went) rather than

deal with the possible side-effects of the Lupron.

Good luck whichever way you decide.

DeAnn

> The fibroid is 5cm (chicken egg size) and located at the top of the

> uterus with 20%in the wall and the remaining 80% sticking out into

> the cavity. It has caused all the problems imagable.

>

> My two options are going on lupron for several months then try a

> laparoscopy. Second option is an abdominal myomectomy.

>

April 30, 2002

Sounds like your doctor's concern is that after a UAE the fibroid

might detatch and end up being too big to expel. Being necrotic

tissue, it would then be very susceptible to infection. This is a

valid concern given the size and location of your fibroid. A few

women have had this happen to them and it can be life-threatening.

It also sounds like your doctor is being very upfront about his

skills and what to expect.

I had an abdominal myomectomy just over a year ago and have been

overall pleased with the result. I also had the option of doing a

course of Lupron in order to try for laparoscopy but ended up opting

against that. I decided I would rather deal with abdominal surgery,

(since I had already had C-Sections I knew how that went) rather than

deal with the possible side-effects of the Lupron.

Good luck whichever way you decide.

DeAnn

> The fibroid is 5cm (chicken egg size) and located at the top of the

> uterus with 20%in the wall and the remaining 80% sticking out into

> the cavity. It has caused all the problems imagable.

>

> My two options are going on lupron for several months then try a

> laparoscopy. Second option is an abdominal myomectomy.

>

April 30, 2002

I too am concerned about the necrotic tissue which will be in the

uterus post UAE. What becomes of it? I spoke with one Dr. and he

said sometime they need to open you up and remove it once it becomes

necrotic. Also what are the side effests of a series of Lupron shots?

Thanks.....

deannthomson wrote:

>Sounds like your doctor's concern is that after a UAE the fibroid

>might detatch and end up being too big to expel. Being necrotic

>tissue, it would then be very susceptible to infection. This is a

>valid concern given the size and location of your fibroid. A few

>women have had this happen to them and it can be life-threatening.

>It also sounds like your doctor is being very upfront about his

>skills and what to expect.

>I had an abdominal myomectomy just over a year ago and have been

>overall pleased with the result. I also had the option of doing a

>course of Lupron in order to try for laparoscopy but ended up opting

>against that. I decided I would rather deal with abdominal surgery,

>(since I had already had C-Sections I knew how that went) rather than

>deal with the possible side-effects of the Lupron.

>Good luck whichever way you decide.

>DeAnn

>

>>The fibroid is 5cm (chicken egg size) and located at the top of the

>>uterus with 20%in the wall and the remaining 80% sticking out into

>>the cavity. It has caused all the problems imagable.

>>

>>My two options are going on lupron for several months then try a

>>laparoscopy. Second option is an abdominal myomectomy.

>>

>

April 30, 2002

I too am concerned about the necrotic tissue which will be in the

uterus post UAE. What becomes of it? I spoke with one Dr. and he

said sometime they need to open you up and remove it once it becomes

necrotic. Also what are the side effests of a series of Lupron shots?

Thanks.....

deannthomson wrote:

>Sounds like your doctor's concern is that after a UAE the fibroid

>might detatch and end up being too big to expel. Being necrotic

>tissue, it would then be very susceptible to infection. This is a

>valid concern given the size and location of your fibroid. A few

>women have had this happen to them and it can be life-threatening.

>It also sounds like your doctor is being very upfront about his

>skills and what to expect.

>I had an abdominal myomectomy just over a year ago and have been

>overall pleased with the result. I also had the option of doing a

>course of Lupron in order to try for laparoscopy but ended up opting

>against that. I decided I would rather deal with abdominal surgery,

>(since I had already had C-Sections I knew how that went) rather than

>deal with the possible side-effects of the Lupron.

>Good luck whichever way you decide.

>DeAnn

>

>>The fibroid is 5cm (chicken egg size) and located at the top of the

>>uterus with 20%in the wall and the remaining 80% sticking out into

>>the cavity. It has caused all the problems imagable.

>>

>>My two options are going on lupron for several months then try a

>>laparoscopy. Second option is an abdominal myomectomy.

>>

>

April 30, 2002

I'm currently on Lupron Depot the 3 month shot. I took

the shot on 3/7/02. My doctor suggested it since I was

severely anemic and I'm to have a partial Hystorectomy

this summer. My fibroid has my uterus at 20+weeks, and

its the size of cantalope I was diagnosed back in feb

2001 at that time it was only about the size of yours,

they said a plum. I can tell that I haven't stop

bleeding since I took the shot and its bad bleeding to

the point where I've had to leave resturants and can't

go to work. One day I went through 20 tampons and 18

pads in 8 hours. I called my doctor and now he has me

on 3 progestrone pills a day and the bleeding is still

happening he says that my fibroid is over powering the

Lupron, and now he wants to put me on 2 bc pills a

day. I refuse I feel thats what caused the fibroid to

grow so big in eight months.BC pills are loaded

w/estrogen...

You may have better luck w/lupron since your fibroid

is smaller also don't do the 3 month at one time do it

monthly...Its no fun to bleed everyday and then have

the hot flashes and night sweats, plus it causes

depression..

Good luck!!!

--- deannthomson wrote:

> Sounds like your doctor's concern is that after a

> UAE the fibroid

> might detatch and end up being too big to expel.

> Being necrotic

> tissue, it would then be very susceptible to

> infection. This is a

> valid concern given the size and location of your

> fibroid. A few

> women have had this happen to them and it can be

> life-threatening.

> It also sounds like your doctor is being very

> upfront about his

> skills and what to expect.

> I had an abdominal myomectomy just over a year ago

> and have been

> overall pleased with the result. I also had the

> option of doing a

> course of Lupron in order to try for laparoscopy but

> ended up opting

> against that. I decided I would rather deal with

> abdominal surgery,

> (since I had already had C-Sections I knew how that

> went) rather than

> deal with the possible side-effects of the Lupron.

> Good luck whichever way you decide.

> DeAnn

>

> > The fibroid is 5cm (chicken egg size) and located

> at the top of the

> > uterus with 20%in the wall and the remaining 80%

> sticking out into

> > the cavity. It has caused all the problems

> imagable.

> >

> > My two options are going on lupron for several

> months then try a

> > laparoscopy. Second option is an abdominal

> myomectomy.

> >

>

__________________________________________________

April 30, 2002

I'm currently on Lupron Depot the 3 month shot. I took

the shot on 3/7/02. My doctor suggested it since I was

severely anemic and I'm to have a partial Hystorectomy

this summer. My fibroid has my uterus at 20+weeks, and

its the size of cantalope I was diagnosed back in feb

2001 at that time it was only about the size of yours,

they said a plum. I can tell that I haven't stop

bleeding since I took the shot and its bad bleeding to

the point where I've had to leave resturants and can't

go to work. One day I went through 20 tampons and 18

pads in 8 hours. I called my doctor and now he has me

on 3 progestrone pills a day and the bleeding is still

happening he says that my fibroid is over powering the

Lupron, and now he wants to put me on 2 bc pills a

day. I refuse I feel thats what caused the fibroid to

grow so big in eight months.BC pills are loaded

w/estrogen...

You may have better luck w/lupron since your fibroid

is smaller also don't do the 3 month at one time do it

monthly...Its no fun to bleed everyday and then have

the hot flashes and night sweats, plus it causes

depression..

Good luck!!!

--- deannthomson wrote:

> Sounds like your doctor's concern is that after a

> UAE the fibroid

> might detatch and end up being too big to expel.

> Being necrotic

> tissue, it would then be very susceptible to

> infection. This is a

> valid concern given the size and location of your

> fibroid. A few

> women have had this happen to them and it can be

> life-threatening.

> It also sounds like your doctor is being very

> upfront about his

> skills and what to expect.

> I had an abdominal myomectomy just over a year ago

> and have been

> overall pleased with the result. I also had the

> option of doing a

> course of Lupron in order to try for laparoscopy but

> ended up opting

> against that. I decided I would rather deal with

> abdominal surgery,

> (since I had already had C-Sections I knew how that

> went) rather than

> deal with the possible side-effects of the Lupron.

> Good luck whichever way you decide.

> DeAnn

>

> > The fibroid is 5cm (chicken egg size) and located

> at the top of the

> > uterus with 20%in the wall and the remaining 80%

> sticking out into

> > the cavity. It has caused all the problems

> imagable.

> >

> > My two options are going on lupron for several

> months then try a

> > laparoscopy. Second option is an abdominal

> myomectomy.

> >

>

__________________________________________________

April 30, 2002

Rita,

Welcome to the group. Just my opinion, but if

" The doc said the due to the position of the fibroid

it

would be on the high end of his ability level "

then I would be concerned enough about his surgical

abilities to get a second or even third opinion.

Sue

--- k9cn4u wrote:

> Hi

>

> I'm new to the list but have been on the Embo list

> because I thought

> a UAE would be best. But the Doc say no to the UAE

> due to the

> position of the fibroid and the high risk of

> infection.

>

> The fibroid is 5cm (chicken egg size) and located at

> the top of the

> uterus with 20%in the wall and the remaining 80%

> sticking out into

> the cavity. It has caused all the problems imagable.

>

> My two options are going on lupron for several

> months then try a

> laparoscopy. The doc said the due to the position

> of the fibroid it

> would be on the high end of his ability level and

> there may be a

> chance that they could not get it all. Second option

> is an abdominal

> myomectomy.

>

> I would like to hear from anywho has had either one

> and what their

> experince was. I'm having a difficult time of

> knowing what the

> right choice for me is.

>

> Thank you.

> Rita

>

__________________________________________________

April 30, 2002

Rita,

Welcome to the group. Just my opinion, but if

" The doc said the due to the position of the fibroid

it

would be on the high end of his ability level "

then I would be concerned enough about his surgical

abilities to get a second or even third opinion.

Sue

--- k9cn4u wrote:

> Hi

>

> I'm new to the list but have been on the Embo list

> because I thought

> a UAE would be best. But the Doc say no to the UAE

> due to the

> position of the fibroid and the high risk of

> infection.

>

> The fibroid is 5cm (chicken egg size) and located at

> the top of the

> uterus with 20%in the wall and the remaining 80%

> sticking out into

> the cavity. It has caused all the problems imagable.

>

> My two options are going on lupron for several

> months then try a

> laparoscopy. The doc said the due to the position

> of the fibroid it

> would be on the high end of his ability level and

> there may be a

> chance that they could not get it all. Second option

> is an abdominal

> myomectomy.

>

> I would like to hear from anywho has had either one

> and what their

> experince was. I'm having a difficult time of

> knowing what the

> right choice for me is.

>

> Thank you.

> Rita

>

__________________________________________________

May 1, 2002

Hi Rita,

I had an abdominal myo last October and it allowed the doctor to

remove not only the two fibroids that we knew about (one in the cavity,

one submucosal, both a bit smaller than yours but with lots of

bleeding), but also some " grit " , possibly very tiny fibroids that didn't

show on ultrasound.

There have been some recent posts on laprascopic myo, especially as

it relates to future fertility, so you might want to check back in the

archives for those. There have also been a lot of posts dealing with

various members' experiences with Lupron. Investigate everything

before you decide.

Good luck,

Original Message:

-----------------

From: k9cn4u ritam@...

Date: Tue, 30 Apr 2002 20:14:15 -0000

To: uterinefibroids

Subject: Lupron w/laparoscopy vs abdominal

myomectomy

<tt>

Hi

I'm new to the list but have been on the Embo list because I thought

a UAE would be best. But the Doc say no to the UAE due to the

position of the fibroid and the high risk of infection.

The fibroid is 5cm (chicken egg size) and located at the top of the

uterus with 20%in the wall and the remaining 80% sticking out into

the cavity. It has caused all the problems imagable.

My two options are going on lupron for several months then try a

laparoscopy. The doc said the due to the position of the fibroid it

would be on the high end of his ability level and there may be a

chance that they could not get it all. Second option is an abdominal

myomectomy.

I would like to hear from anywho has had either one and what their

experince was. I'm having a difficult time of knowing what the

right choice for me is.

Thank you.

Rita

</tt>

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<tt>

May 2, 2002

my IR has said as long as the fibroid is not on a

stalk " penducated " such that it could fall of after

UAE, it is a candidate for UAE. I had my pre-UAE MRI

yesterday--I would suggest you investigate UAE before

deciding--Sharon

--- cecile572001 wrote:

> What evidence does your doctor have of a " high risk

> of infection " ?

> It seems to me that plenty of people get infections

> as a result of

> surgery. Have you gotten an opinion from an IR or

> another gyn?

>

> > Hi

> >

> > I'm new to the list but have been on the Embo list

> because I

> thought

> > a UAE would be best. But the Doc say no to the

> UAE due to the

> > position of the fibroid and the high risk of

> infection.

> >

> > The fibroid is 5cm (chicken egg size) and located

> at the top of

> the

> > uterus with 20%in the wall and the remaining 80%

> sticking out into

> > the cavity. It has caused all the problems

> imagable.

> >

> > My two options are going on lupron for several

> months then try a

> > laparoscopy. The doc said the due to the position

> of the fibroid

> it

> > would be on the high end of his ability level and

> there may be a

> > chance that they could not get it all. Second

> option is an

> abdominal

> > myomectomy.

> >

> > I would like to hear from anywho has had either

> one and what their

> > experince was. I'm having a difficult time of

> knowing what the

> > right choice for me is.

> >

> > Thank you.

> > Rita

>

May 2, 2002

my IR has said as long as the fibroid is not on a

stalk " penducated " such that it could fall of after

UAE, it is a candidate for UAE. I had my pre-UAE MRI

yesterday--I would suggest you investigate UAE before

deciding--Sharon

--- cecile572001 wrote:

> What evidence does your doctor have of a " high risk

> of infection " ?

> It seems to me that plenty of people get infections

> as a result of

> surgery. Have you gotten an opinion from an IR or

> another gyn?

>

> > Hi

> >

> > I'm new to the list but have been on the Embo list

> because I

> thought

> > a UAE would be best. But the Doc say no to the

> UAE due to the

> > position of the fibroid and the high risk of

> infection.

> >

> > The fibroid is 5cm (chicken egg size) and located

> at the top of

> the

> > uterus with 20%in the wall and the remaining 80%

> sticking out into

> > the cavity. It has caused all the problems

> imagable.

> >

> > My two options are going on lupron for several

> months then try a

> > laparoscopy. The doc said the due to the position

> of the fibroid

> it

> > would be on the high end of his ability level and

> there may be a

> > chance that they could not get it all. Second

> option is an

> abdominal

> > myomectomy.

> >

> > I would like to hear from anywho has had either

> one and what their

> > experince was. I'm having a difficult time of

> knowing what the

> > right choice for me is.

> >

> > Thank you.

> > Rita

>

May 2, 2002

> Hi Deann, Thanks for the reply..At what age did you have a myo?

> Also, can you share with me what the purported side effects of

> Lupron are? Are you not afraid of the fibroids growing back and

> then having to go through it again? This concerns me every time

> they have to cut in surgery.

>

I had just turned 39 when I had my myo, I'm 40 now. And actually, I

just had an MRI for a back problem this month and they saw several

tiny new fibroids in my endometrium. Bummer! Fortunately I have no

problems with them at this point, I dropped from 2 full 7-8 day

periods every month, with heavy bleeding and clotting to less than 3

days total, light bleeding, very few clots - and it's stayed that

way. Plus I dropped 2 " around my waist and that's still down. So

unless things get worse I'm just going to ignore them for now. I

suppose if it comes down to it, I'd probably do a repeat myomectomy.

I'm just hoping for better options before I get to that point.

The main side effects of Lupron are all the same as menopause, hot

flashes, night sweats, mood swings - everything you might expect from

a sudden drop in estrogen. But they usually limit Lupron to 3-6

month treatments because longer than that can decrease bone density.

So I felt that if it wasn't necessary, I would rather just not take

it. I'd been cut open enough times that once more didn't worry me as

long as they left me basically intact.

May 2, 2002