Guest guest Posted January 18, 2001 Report Share Posted January 18, 2001 This is how we cope: day by day. While there obviously is no manual for coping with NF2 or any other disease, there are strategies one can employ to make things easier. Focusing on what is, rather than what may be. Realising you can't control some aspects of NF2; what is going to happen, will happen. Talking about what is troubling you (as you are doing here). The trick is to move from simply coping with NF2 to becoming a Survivor. At first, I felt relieved, because I found I didn't have brain cancer. The when I learned about NF2, I was completely overwhelmed. I was very sad that I was going to lose my hearing and most likely end up in a wheel chair. I cried for a long time, and nobody understood why I was crying. Nobody could relate to what I was going through. Surgery happened quickly afterward, and I seriously wanted to die on the table. This led to a bunch of freaky things happening to me when I ended up alive and well. I've gone through a lot of emotional trauma in my past, and for a time in my life I had lots of suicidal ideation. (This was before NF2 emerged) I eventually went to see a PsychoTheRapist (I love that word ;-) and the therapy sessions really helped me sort through my issues and give me the tools I needed to solve my problems. It was at that point in my life I stopped coping and started surviving. I think at the early stages of diagnosis, feelings of self-pity are not only common, but beneficial. In time, though, a person needs to move on to other things. There are a lot of different feelings out there to experience, and dwelling on NF2 and the negative feelings it can produce eventually becomes oldhat. Then you simply deal with things as it comes up. Remember Life is dynamic, and " this, too shall pass. " With that all said, let me ask you, is there anything I can do for you? I live in Canada, so please don't ask me to come baby-sit the kids ;-) >I am finding it fairly hard to deal with at the moment and would like >some ideas about living with NF2, and coping generally, it is all >very new to me and my family and I guess it will get easier. >How did you find it? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 18, 2001 Report Share Posted January 18, 2001 This is how we cope: day by day. While there obviously is no manual for coping with NF2 or any other disease, there are strategies one can employ to make things easier. Focusing on what is, rather than what may be. Realising you can't control some aspects of NF2; what is going to happen, will happen. Talking about what is troubling you (as you are doing here). The trick is to move from simply coping with NF2 to becoming a Survivor. At first, I felt relieved, because I found I didn't have brain cancer. The when I learned about NF2, I was completely overwhelmed. I was very sad that I was going to lose my hearing and most likely end up in a wheel chair. I cried for a long time, and nobody understood why I was crying. Nobody could relate to what I was going through. Surgery happened quickly afterward, and I seriously wanted to die on the table. This led to a bunch of freaky things happening to me when I ended up alive and well. I've gone through a lot of emotional trauma in my past, and for a time in my life I had lots of suicidal ideation. (This was before NF2 emerged) I eventually went to see a PsychoTheRapist (I love that word ;-) and the therapy sessions really helped me sort through my issues and give me the tools I needed to solve my problems. It was at that point in my life I stopped coping and started surviving. I think at the early stages of diagnosis, feelings of self-pity are not only common, but beneficial. In time, though, a person needs to move on to other things. There are a lot of different feelings out there to experience, and dwelling on NF2 and the negative feelings it can produce eventually becomes oldhat. Then you simply deal with things as it comes up. Remember Life is dynamic, and " this, too shall pass. " With that all said, let me ask you, is there anything I can do for you? I live in Canada, so please don't ask me to come baby-sit the kids ;-) >I am finding it fairly hard to deal with at the moment and would like >some ideas about living with NF2, and coping generally, it is all >very new to me and my family and I guess it will get easier. >How did you find it? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 18, 2001 Report Share Posted January 18, 2001 This is how we cope: day by day. While there obviously is no manual for coping with NF2 or any other disease, there are strategies one can employ to make things easier. Focusing on what is, rather than what may be. Realising you can't control some aspects of NF2; what is going to happen, will happen. Talking about what is troubling you (as you are doing here). The trick is to move from simply coping with NF2 to becoming a Survivor. At first, I felt relieved, because I found I didn't have brain cancer. The when I learned about NF2, I was completely overwhelmed. I was very sad that I was going to lose my hearing and most likely end up in a wheel chair. I cried for a long time, and nobody understood why I was crying. Nobody could relate to what I was going through. Surgery happened quickly afterward, and I seriously wanted to die on the table. This led to a bunch of freaky things happening to me when I ended up alive and well. I've gone through a lot of emotional trauma in my past, and for a time in my life I had lots of suicidal ideation. (This was before NF2 emerged) I eventually went to see a PsychoTheRapist (I love that word ;-) and the therapy sessions really helped me sort through my issues and give me the tools I needed to solve my problems. It was at that point in my life I stopped coping and started surviving. I think at the early stages of diagnosis, feelings of self-pity are not only common, but beneficial. In time, though, a person needs to move on to other things. There are a lot of different feelings out there to experience, and dwelling on NF2 and the negative feelings it can produce eventually becomes oldhat. Then you simply deal with things as it comes up. Remember Life is dynamic, and " this, too shall pass. " With that all said, let me ask you, is there anything I can do for you? I live in Canada, so please don't ask me to come baby-sit the kids ;-) >I am finding it fairly hard to deal with at the moment and would like >some ideas about living with NF2, and coping generally, it is all >very new to me and my family and I guess it will get easier. >How did you find it? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 19, 2001 Report Share Posted January 19, 2001 , Me again. I just read your pearls of wisdom on surviving. Wow. If I hadn't met you, I would think you much older. Certainly your wisdom and life skills are such. I've never heard an explanation so succinct and to the point. First time in all my reading that I have seen Psychotherapist written that way. You are a kick. Vicki Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 19, 2001 Report Share Posted January 19, 2001 , Me again. I just read your pearls of wisdom on surviving. Wow. If I hadn't met you, I would think you much older. Certainly your wisdom and life skills are such. I've never heard an explanation so succinct and to the point. First time in all my reading that I have seen Psychotherapist written that way. You are a kick. Vicki Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 19, 2001 Report Share Posted January 19, 2001 , Me again. I just read your pearls of wisdom on surviving. Wow. If I hadn't met you, I would think you much older. Certainly your wisdom and life skills are such. I've never heard an explanation so succinct and to the point. First time in all my reading that I have seen Psychotherapist written that way. You are a kick. Vicki Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 19, 2001 Report Share Posted January 19, 2001 I really enjoyed reading that; you are a good role model. Marie Re: Help [Tim] >This is how we cope: day by day. > >While there obviously is no manual for coping with NF2 or any other disease, >there are strategies one can employ to make things easier. Focusing on what >is, rather than what may be. Realising you can't control some aspects of >NF2; what is going to happen, will happen. Talking about what is troubling >you (as you are doing here). The trick is to move from simply coping with >NF2 to becoming a Survivor. > >At first, I felt relieved, because I found I didn't have brain cancer. The >when I learned about NF2, I was completely overwhelmed. I was very sad that >I was going to lose my hearing and most likely end up in a wheel chair. I >cried for a long time, and nobody understood why I was crying. Nobody could >relate to what I was going through. Surgery happened quickly afterward, and >I seriously wanted to die on the table. This led to a bunch of freaky >things happening to me when I ended up alive and well. > >I've gone through a lot of emotional trauma in my past, and for a time in my >life I had lots of suicidal ideation. (This was before NF2 emerged) I >eventually went to see a PsychoTheRapist (I love that word ;-) and the >therapy sessions really helped me sort through my issues and give me the >tools I needed to solve my problems. It was at that point in my life I >stopped coping and started surviving. > >I think at the early stages of diagnosis, feelings of self-pity are not only >common, but beneficial. In time, though, a person needs to move on to other >things. There are a lot of different feelings out there to experience, and >dwelling on NF2 and the negative feelings it can produce eventually becomes >oldhat. Then you simply deal with things as it comes up. Remember Life is >dynamic, and " this, too shall pass. " > >With that all said, let me ask you, is there anything I can do for you? I >live in Canada, so please don't ask me to come baby-sit the kids ;-) > > > >>I am finding it fairly hard to deal with at the moment and would like >>some ideas about living with NF2, and coping generally, it is all >>very new to me and my family and I guess it will get easier. >>How did you find it? > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 19, 2001 Report Share Posted January 19, 2001 I really enjoyed reading that; you are a good role model. Marie Re: Help [Tim] >This is how we cope: day by day. > >While there obviously is no manual for coping with NF2 or any other disease, >there are strategies one can employ to make things easier. Focusing on what >is, rather than what may be. Realising you can't control some aspects of >NF2; what is going to happen, will happen. Talking about what is troubling >you (as you are doing here). The trick is to move from simply coping with >NF2 to becoming a Survivor. > >At first, I felt relieved, because I found I didn't have brain cancer. The >when I learned about NF2, I was completely overwhelmed. I was very sad that >I was going to lose my hearing and most likely end up in a wheel chair. I >cried for a long time, and nobody understood why I was crying. Nobody could >relate to what I was going through. Surgery happened quickly afterward, and >I seriously wanted to die on the table. This led to a bunch of freaky >things happening to me when I ended up alive and well. > >I've gone through a lot of emotional trauma in my past, and for a time in my >life I had lots of suicidal ideation. (This was before NF2 emerged) I >eventually went to see a PsychoTheRapist (I love that word ;-) and the >therapy sessions really helped me sort through my issues and give me the >tools I needed to solve my problems. It was at that point in my life I >stopped coping and started surviving. > >I think at the early stages of diagnosis, feelings of self-pity are not only >common, but beneficial. In time, though, a person needs to move on to other >things. There are a lot of different feelings out there to experience, and >dwelling on NF2 and the negative feelings it can produce eventually becomes >oldhat. Then you simply deal with things as it comes up. Remember Life is >dynamic, and " this, too shall pass. " > >With that all said, let me ask you, is there anything I can do for you? I >live in Canada, so please don't ask me to come baby-sit the kids ;-) > > > >>I am finding it fairly hard to deal with at the moment and would like >>some ideas about living with NF2, and coping generally, it is all >>very new to me and my family and I guess it will get easier. >>How did you find it? > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 19, 2001 Report Share Posted January 19, 2001 > I really enjoyed reading that; you are a good role model. > Marie =) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 19, 2001 Report Share Posted January 19, 2001 > I really enjoyed reading that; you are a good role model. > Marie =) Quote Link to comment Share on other sites More sharing options...
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