Guest guest Posted March 9, 2002 Report Share Posted March 9, 2002 Randi wrote: " because my fibroids have attached themselves to both of my ovaries and there's a fear that they may attach themselves to other organs. Apparently they are so extensive on/in/over my uterus that UAE is not a possible solution. " Randi, have you actually had a consultation with an interventional radiologist? Have you had MRI and or laporoscopy to get a clearer picture of your condition? UAE may indeed not be suitable; for instance some of your fibroids may have other blood supply besides uterine and ovarian arteries. And there could be problems if you do have adhesions to other organs. But I wouldn't take a gynaecologist's word for it; some have a very narrow view of what UAE is suitable for. Having a very large number of fibroids doesn't preclude UAE, but the size and position of your fibroids might may the procedure less advisable. Many of us (including me) know lots of women who express satisfaction with the results of their hysterectomies, but it's best to explore all options. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 5, 2002 Report Share Posted April 5, 2002 Hi I had a hysterectomy on 2-28-02 I am doing great. No pain, no regrets. I had 11 growths and had been bleeding since August. I had to go up 3 sizes and looked 6 months preg. I think it is one of the best things I could have done. I now can were my normal clothes and feel like getting out of bed. No more pads, wearing black, and having to stay near a bathroom. Carol Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 5, 2002 Report Share Posted April 5, 2002 Hi I had a hysterectomy on 2-28-02 I am doing great. No pain, no regrets. I had 11 growths and had been bleeding since August. I had to go up 3 sizes and looked 6 months preg. I think it is one of the best things I could have done. I now can were my normal clothes and feel like getting out of bed. No more pads, wearing black, and having to stay near a bathroom. Carol Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 5, 2002 Report Share Posted April 5, 2002 Debbie, Please check with the HERS Foundation (Hysterectomy Educational Resources & services). They have a website you can access: http://ccon.com/hers/hysterectomy.htm I am quoting some of the facts from their website about hysterectomy but you should access their site because you can find out a wealth of information form them. They state that " hysterectomy's damage is lifelong. Among its most common consequences, in addition to operative injuries are: Heart disease osteoporosis bone, joint and muscle pain and immobility loss of sexual desire, arousal, sensation painful intercourse, vaginal damage displacement of bladder, bowel, and other pelvic organs urinary tract infections, frequency, incontinence chronic constipation and digestive disorders altered body odor loss of short-term memory blunting of emotions, personality changes, despondency, irritability, anger reclusiveness and suicidal thinking " They also mention that " The uterus and ovaries function throughout the life in women who have not been hysterctomized or castrated. " They state that, " 98% of women HERS has referred to board certified gynecologists after being told they needed hysterectomies, discovered that, in fact, they did not need hysterectomies. " Do yourself a favor check out the website. They will also (for a fee) give you names of doctors that they can refer you to who are considered to be highly skilled. Get a second opinion from one of these doctors. After you have done your homework, make a decision that you think is right for you. Whatever you decide may have lifelong implications for your health and happiness. Good luck! Irene Hysterectomy Hi, I'm new to these boards, and have read posts from the last 4 days. My regular doctor referred me to the GYN because heavy bleeding is making me anemic, which causes additional problems with my congestive heart failure (anemia makes the heart pump harder).I'm 46 (almost 47) and have fibroids and a thickened lining of the uterus. I'm going back to my GYN tomorrow to discuss the options to resolve my problems. I have been bleeding almost continually since November, maybe 20 days total since then with no bleeding at all. In the past 2 months, the bleeding has gotten heavier, with more clots and gushing. Going to work everyday is an effort, I'm so tired all the time. I've missed family parties because I never know when I'm going to have a heavy episode and don't want to spend the party in someone else's bathroom. In fact, other than trips to the drug store to buy more tampons and pads, I'm not going anywhere but home and work. I have 3 grown children and no plans to have more. The GYN said that she thought a hysterectomy would be the best solution for me, and I think I agree. My quality of life right now is horrible. I can't imagine it being any worse. Loss of sexual desire after surgery can't be any worse than not having any now because I'm in pain and bleeding all the time. I read one post about regrets having a hysterectomy. Does anyone have anything positive to say about it? Thanks, Debbie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 5, 2002 Report Share Posted April 5, 2002 You can find some positive information at www.hystersisters.com from several women. Best wishes to you. Michele Hysterectomy << File: ATT00008.html >> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 5, 2002 Report Share Posted April 5, 2002 You can find some positive information at www.hystersisters.com from several women. Best wishes to you. Michele Hysterectomy << File: ATT00008.html >> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 7, 2002 Report Share Posted April 7, 2002 In a message dated 4/7/02 7:01:38 AM US Mountain Standard Time, Simplementje@... writes: > My sister who is 26 and married with two young children has been told to get > a complete hysterectomy due to a fibroid problem which causes lots of pain, > swelling, and bleeding. The physician wishes to remove her ovaries as well. > Is this a good idea? > > Every woman has a different idea of what is a 'good idea' for her. I hope your sister can do some research first, or perhaps you can if she doesn't have access to the web. Personally, I think Dr. Christianne Northrup's book " Women's Bodies, Women's Wisdom " and Dr. M. Lark's book " Fibroid Tumors and Endometriosis: A Self-Help Book " are good books. Try doing google.com searches for fibroid to get information on: surgical alternatives to hysterectomy; alternative treatments like acupuncture to help the symptoms. and other things. Good luck to your sister. Cheryl Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 7, 2002 Report Share Posted April 7, 2002 I do not think that any woman should have a hysterectomy due to fibroids. There are a number of treatment options available, and they should all be explored before making any decision. If, after extensive research and information gathering, a hysterectomy is what a woman wants, at least she has made an informed decision. Carol __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 7, 2002 Report Share Posted April 7, 2002 I do not think that any woman should have a hysterectomy due to fibroids. There are a number of treatment options available, and they should all be explored before making any decision. If, after extensive research and information gathering, a hysterectomy is what a woman wants, at least she has made an informed decision. Carol __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 7, 2002 Report Share Posted April 7, 2002 I do not think that any woman should have a hysterectomy due to fibroids. There are a number of treatment options available, and they should all be explored before making any decision. If, after extensive research and information gathering, a hysterectomy is what a woman wants, at least she has made an informed decision. Carol __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 7, 2002 Report Share Posted April 7, 2002 Carol, Why do you say this - " No woman " ? I might agree- maybe- although I am so touched with compassion for the women who report so much bleeding and anemia that a hysterectomy seems like the only answer. However, in all due respect, I ask you the question 'why', because I am trying to research and to figure out the role of stress in the growth of fibroids. Right now I sit here with a clenched tight gut and bloating which the gync. said was due to the fibroids. So you might be aware of the non-surgical alternatives. perhaps the fibroids are only a contributing factor in my case. But a nutritionist has said that cortisol, unopposed estrogen, magnesium and thyroid deficiencies may contribute; poor digestion, not enough friendly bacteria in my gut, , stress and other things may be causing this. I haven't been able to figure things out. I wrote a note to this list a few days ago. Just repeating what I said,(if I did - I can't remember ) - I am 56, smallish build but not skinny, 5'4 " and 119, vegetarian for 32 years, vegan for last 5-6, active socially committed life so I usually face stress. Still menstruating, I take no hormones, eat soy for protein so I get about 40 gm phytoestrogens a day. Now my largest fibroid is 7.8 round among a few others and cysts and I am functioning about 50% capacity. I am very bloated and tired. I can't wear most of my pants for work. I was told to get a hysterectomy and get my ovaries out, but of course I don't want to do that. I do not have a bleeding problem, thankfully - just normal flow. I welcome any comments from anyone. Re: Hysterectomy | I do not think that any woman should have a hysterectomy due to | fibroids. There are a number of treatment options available, and they | should all be explored before making any decision. If, after extensive | research and information gathering, a hysterectomy is what a woman | wants, at least she has made an informed decision. | Carol | | __________________________________________________ | Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 7, 2002 Report Share Posted April 7, 2002 Hi to all of you, I read that many of you are taking soy products. I learned that soy contains estrogen, which contributes to the growth of fibroids, but could help during menopause ... I had an UFE and am approaching/beginning menopause - I would like to put soy on my " menu " but am afraid of using it ... Any useful suggestions? thanks luciana Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 7, 2002 Report Share Posted April 7, 2002 Hi to all of you, I read that many of you are taking soy products. I learned that soy contains estrogen, which contributes to the growth of fibroids, but could help during menopause ... I had an UFE and am approaching/beginning menopause - I would like to put soy on my " menu " but am afraid of using it ... Any useful suggestions? thanks luciana Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 30, 2002 Report Share Posted April 30, 2002 Hi, my name is Vita and i'm writing this note hoping that i can get some help on understanding of this surgery. My mother was diagnosed with fibroid tumors 3 years ago. And, she finally had the surgery 3 wks. ago and everything has gone wrong. My sisters and myself had to take her back to the hospital and she's had another surgery to take 4 ft. of her intestines out, she had a stroke, she has been on a respirator for 2 wks., and now they are talking about having surgery again. Me and my family are lost on what to do or who we can turn to. The doctors just tell us they don't know what's wrong with my mother. Someone, please give me some direction on information on what we can do. Thank You, Vita Michigan Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 1, 2002 Report Share Posted May 1, 2002 I'm in Michigan as well, what hospital is your mother in? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 1, 2002 Report Share Posted May 1, 2002 I'm in Michigan as well, what hospital is your mother in? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 1, 2002 Report Share Posted May 1, 2002 > I'm in Michigan as well, what hospital is your mother in? > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 1, 2002 Report Share Posted May 1, 2002 > I'm in Michigan as well, what hospital is your mother in? > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 2, 2002 Report Share Posted May 2, 2002 If you don't get answers from the Doctors or Nurses, call the main number to the hospital () and ask for the patient advocate office. If you don't get any answers there, contact Risk Management. I hope your mother is doing better. If you get absolutely no satisfaction, ask for your mother to be transferred to a different hospital, somewhere like Beaumont or U of M. Good Luck and will keep you in my prayers. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 2, 2002 Report Share Posted May 2, 2002 If you don't get answers from the Doctors or Nurses, call the main number to the hospital () and ask for the patient advocate office. If you don't get any answers there, contact Risk Management. I hope your mother is doing better. If you get absolutely no satisfaction, ask for your mother to be transferred to a different hospital, somewhere like Beaumont or U of M. Good Luck and will keep you in my prayers. Quote Link to comment Share on other sites More sharing options...
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