Where do I start?

[Guest guest]

Hi. You can contact Devin at www.houstonni.com. He can give you lots of

valuable information regarding enzymes.

Good luck,

Rhonda in CA

[Guest guest]

Hello people seem to find this summary very helpful - 23 pages suggest you print

it out and read with a highlighter.

Regards

Terri NZ

Peptizyde and HN-Zyme Prime 4-6 1/2-Month Interim Update Summary

from the Enzymes and Autism Board

L. DeFelice kjorn@... November, 2001

The 4-6 1/2-month update was done in the same way as the 4-month summary report.

Results from both will be combined into one document called the 7-month Summary

Report and be posted on the message board in the Files section

by December 1. This is a summary of the additional 2 1/2 months of information

as well as new findings and updates. Any questions or comments can be directed

to the author.

Significant improvements continued to be seen in a wide range of areas

including: eye contact, language, humor, foods tolerated, foods accepted, sleep,

weight gain or loss, digestion, stools/bowels, overall appearance,

transitioning, socialization, awareness, problem solving, stimming short-term

memory, flexibility in routine, range of interests, sound and light tolerance,

sensory integration, spontaneous affection, and energy level among others. In

general, all the notes and trends of the previous report held very consistently

unless otherwise noted here. Link to 4-month report:

/files/Peptizyde%20Zyme%20Prime%20\

Summary%20Report.doc

This 4-6 1/2-month report summarizes the learning and experiences of the board

members who posted voluntarily. The information presented concerns and is

relevant only to the products Peptizyde and HN-Zyme Prime (Zyme Prime) by

Houston Nutraceuticals. It may or may not apply to other enzyme products in

general. This summary is to be used as a guide to help parents make better

decisions in the treatment of their families.

New Results/Data

----------------------

109 new responses or cases are presented here. The results were compiled as

before. The term " respondent " is used to indicate each individual who used these

enzymes.

Approximate Age of Respondents

0-1 yr none

2-3 yr 18%

4-6 yr 29%

7-10 yr 25%

11-18 yr 5%

18 + none (parents caring for adult children)

adults 5% (independently taking enzymes themselves)

Diagnosis

Most respondents characterized their children or themselves as High Functioning

Autism, PDD, or Asperger’s. A few (less than 10) were described as Moderate and

only 1 person posted as Low Functioning.

Diet Type

Some people were 100% on a restrictive diet and then went to less than 100% with

enzymes once they saw how well they worked. Others started both at the same

time, and others were able to add in many foods to their restrictive diet, but

not all foods. So for them, Peptizyde and Zyme Prime were determined to be very

successful although they still eliminated some foods. Looking at only the GFCF

diet and not other restrictive diets, the approximate breakdown currently is as

follows with the percentage from the previous 4 months given in brackets:

about 15% [was 30%] on diet 100% GFCF + Peptizyde/Zyme Prime

(includes those who have not or do not want to challenge the GFCF diet at this

time)

about 70% [was 55%] on diet, not 100%, partially GFCF + Peptizyde/Zyme Prime

(includes those using enzymes for planned gluten/casein foods infractions but

make

an effort to be GFCF at least part of the time)

about 15% [was 15%] not on GFCF diet + Peptizyde/Zyme Prime

(includes those who were never on the GFCF diet, as well as those that have left

the diet, and/or make no attempt at following the GFCF diet)

These results seem to indicate that more people left a strict 100% restrictive

diet and went to a partially restrictive diet + enzymes in the past 2 months

than previously reported. This may be the case for some because the longer

people were using enzymes, the more likely they were to re-introduce previously

restricted food (of any type: casein, gluten, soy, fruits, eggs, oils, etc.).

Another possibility comes from some people noting they are more likely to now

admit or categorize themselves as not being 100% on-diet than before because the

enzyme board neither encourages nor discourages any food choices. So, some

individuals may not have truly switched categories from the previous survey

based on actual changes in their diet, but felt freer to publicly state a

category that reflected their actual situation. Most people looking to

supplement the GFCF diet with enzymes, do state their commitment to the diet in

general, and are looking primarily for additional benefits from enzymes and ways

to make the diet more manageable. Only a few people have since left the GFCF

diet altogether. The majority of those currently not on the GFCF diet at all are

those who never implemented it for an assortment of reasons.

Of the respondents on the GFCF diet reporting in the last 2 months, the majority

had been on the diet more than 6 months, and 35% had been on the GFCF diet more

than 1 year. Only a few had been following the GFCF diet for less than 6 months.

This is probably due to those being on the diet longer were now interested in

the possibility of seeing further improvements with enzymes as well as having

more time to look into other interventions. Most all people on the GFCF diet for

over 6 months saw additional improvements by adding Peptizyde and Zyme Prime.

Another possibility why so few people are noted as being on the GFCF diet less

than 6 months is that some people report wanting to try enzymes before

attempting the GFCF diet, hoping for better or at least equal benefits without

having the expense, stress and difficulty of the diet.

Results

The overwhelming majority of people continued to see noticeably positive

improvements with Peptizyde and HN-Zyme Prime within the first 3 weeks of use,

usually within the first week. See www.houstonni.com for information on these

products. The results of 109 new respondents since the previous report and using

these products for at least 3 weeks:

100% 109 new responses

92% 100 positive/successful

3% 3 inconclusive

5% 6 negative or no results at all (2 people)

Of the negative results:

2 people saw no change at all either positive or negative, and counted

themselves as negative

1 person had an allergic reaction (upper body hives to papain/bromelain)

2 people had continued excessive negative hyperness

1 person saw no positive and diarrhea for one month

Of the inconclusive results:

2 people had mixed positives and negatives and wanted to continue to work on it

1 person was seeing negative results, but wanted to continue to give it more

time and work on it.

Of the positive results:

1. Many (around 35%) described the level of improvement as very great or

immense, using such terms as: immense improvement, amazing, incredible,

overwhelming, unbelievable, awesome, etc.

2. Many (around 35%) described the level of improvement as very good or good,

using such terms as: noticeable, significant, very good, much more, great,

surprising, unexpected, etc.

3. Some (around 20%) described the level of improvement as good to okay, using

such terms as: steady improvement, slow but constant, somewhat, progressively,

some, etc.

4. Few (around 5%) described the level of improvement as positive overall

without any huge immediate gains, using such terms as: somewhat, incremental,

little bit, sort of, I think there is, and also included those who saw

improvements in physical symptoms but not in behavior, or in behavior but not in

physical symptoms (or at least to the level and range they were hoping for).

This indicates that most people see positive results, and when they do see

positive results it is in a significant and noticeable way.

Effect of Age

1. Of the adult respondents, 1 was inconclusive and the rest were positive. This

was self-judged.

2. Of the 5 respondents in the 11-18 yr. age category:

2 were making slow-progressive improvement,

2 were making moderate-good improvement,

1 was making good-very good improvements.

3. Of the respondents in the 7-10 yr. age category (25% of total), 1 showed no

response on either the GFCF diet or enzymes (10 yrs). The remaining children

were 7, 8 or 9 years old and showed no difference in results when compared to

younger children in every category. This indicates that children can show just

as significant improvement and respond as immediately to Peptizyde and Zyme

Prime enzymes over the age of 7 until at least around the age of 10 years as

younger children. Even after the age of 10, some notable benefits can be seen in

some people. More respondents are needed in the higher age group and over time

before further comments can be made on how increasing age at or after puberty

affects response and effectiveness of enzymes.

It is often noted that children under the age of 6 show much more improvement on

the GFCF diet than those over this age. One reason could be that older children

have developed far more food intolerances over time than younger children, and

that eliminating just gluten and casein are not enough to achieve the higher

levels of improvement. A parent implementing the GFCF diet would focus on

removing only those two items, and then after time want more improvement, or

start to see regression. So they begin selecting additional foods to eliminate.

Using Peptizyde and Zyme Prime enzymes breaks down all foods at the same time

and thus greater improvements are seen immediately. The gut healing benefits are

also introduced at the same time. Also, when using enzymes, more nutrients are

made available to the body promoting improved nutrition and overall health

without having to add more supplements. Another contributing factor could be

that parents have more absolute control over the diet and environment of younger

children, whereas older children are more independent and have more

opportunities for exposure to foods that are supposed to be eliminated. Reports

from parents of elementary school age children who have tried both the enzymes

and the GFCF diet find their children are far more willing to comply with taking

enzymes plus foods they enjoy than adhere to a strict restrictive diet.

General Comments

----------------------------

1. The multitude of positive improvements and observations continued to be

posted regularly after the first 4 months. The time and scope of adverse

side-effects and reactions decreased noticeably because people were more

informed and had a better idea of how to introduce enzymes, what to look for,

and how to interpret reactions. People could get " up and running " more quickly

and effectively. Please review the 4-month summary for details on these

improvements.

2. No regressions were noted from anyone seeing improvement by the first 3 weeks

attributable to enzymes, even into the 6th month eating gluten/casein liberally

with enzymes.

3. The main side effect is hyperness. Now that more is known, the parents were

more likely to determine this as either out-of-control, destructive, negative

hyperness, OR happy, more aware, positive hyperness. There are several methods

now for assisting with the negative hyperness which are proving to be quite

helpful (see below).

4. Parents continue to post on enzymes to be far more convenient, cost-effective

and flexible than any type of restrictive diet. The relief of not having this

constant stress and improved quality of life for the entire family was

mentioned.

5. The longer on enzymes, the less expensive the program becomes due to

reduction in special food costs, supplements, and doctor visits for most

respondents.

6. People staying on the enzymes longer continue to see improvements as they go

over time. The longer on enzymes, the more foods people tend to re-introduce,

including casein and gluten, and the more positive results are seen.

7. There were 5 additional cases of a person not seeing results, or

insignificant results, on the GFCF diet and then seeing improvements on

Peptizyde and Zyme Prime (maybe better than 50/50 at the moment). This is

thought to be due to either the enzymes breaking down other unknown problematic

foods, assisting in healing a leaky gut, or adding to overall health.

8. Several more parents posted that they thought their yeast and bacteria

treatments were more effective when using enzymes.

9. Several parents commented that their children were not getting as sick as

they used to before they used Peptizyde and Zyme Prime.

10. More parents expressed how much easier it was with school age kids with

enzymes over a restrictive diet. The biggest concern and hurdle was finding a

suitable way to give enzymes at school. Some schools were far more cooperative

than others. Link to file on enzymes at school:

/files/Enzymes%20at%20School

Other Findings

---------------------

Frequency of Enzyme Use

Most parents who have used Peptizyde and Zyme Prime occasionally or used just

one product and then used both products on a regular basis with all foods are

seeing significant improvement when they use enzymes ALL the time with ALL

foods. People continued to see the Happy Child Effect with the use of both

products regularly. The child becomes noticeably more pleasant, easy going,

cooperative, and helpful. They report a synergistic effect over just giving the

enzymes some of the time or occasionally, or just using one product. Even when

very good improvement is seen when giving one product or using enzymes

occasionally, far more improvement is seen when all food types are addressed

with enzymes all the time. This could be due to the other healing properties and

benefits of digestive enzymes besides just the immediate need of breaking down

particular foods. Possibilities include: 1) gut healing and colon cleansing with

enzymes, 2) immune system support, 3) blood cleansing and DPP IV in the blood

system (purifying), 4) enhanced mental capacity, 5) enhanced sleep, 6) weight

regulation (underweight people tend to gain and overweight people tend to lose),

and 7) balance gut flora. Links on how enzymes assist in other ways:

1. http://members.home.net/health2000/antyoxi.html

2. http://turnpike.net/~health/infinity2/proteolytic_enzymes.html

3. http://www.gethealthyagain.com/enzymes.html

Probiotics

It is now recommended that, in general, enzymes and probiotics be given at

separate times - enzymes at the beginning of the meal and probiotics at the end

of the meal. Or give the probiotics at a separate time than the enzymes (at

least an hour apart). A few parents have commented that they saw improvement

with this. Some product manufacturers have also recommended this. Some enzyme

formulations and some probiotic formulations may interact more than others.

There are two possible interactions. 1. The enzymes may break up or " digest " the

probiotics, and 2. The enzymes may prevent the probiotics from achieving the

best attachment in the gut (and thereby inhibit optimum colonization). If you

have any concerns with a particular enzyme and/or probiotic problem, please ask

the particular manufacturer about possible interactions.

Other Supplements and Vitamins

Some parents found that even following a restrictive diet and using enzymes

regularly, their child showed reactive symptoms such as red ears, dark circles

under eyes, and hyperactivity. This was found to be related to either certain

foods, or increasingly to certain supplements. Even if certain supplements were

beneficial in the beginning, they may begin to be problematic after the

introduction of enzymes when more nutrients are obtained from food. Removing or

reducing the supplements often remedied the problem.

Celiac and Enzymes

In the 4-month report, there were a few cases of suspected celiac and it was

thought the enzymes may not help. Since then, a few more cases have appeared

with some individuals who either knew they were celiac or strongly suspected it.

It was found, in general, they reacted worse when taking gluten + Peptizyde than

when consuming small amounts of gluten with no enzymes. Celiac is an autoimmune

disease/condition with a genetic basis. There are certain sequences of peptides

which cause a reaction in the small intestine of individuals with celiac

disease. The peptides can be as small as 12 amino acids long (that's pretty

small). These peptides are different than the peptides that get absorbed into

the bloodstream and cause the opiate problem which are called gliadiomorphs.

When the peptides get to the small intestine, the celiac's body registers these

peptides as The Enemy. A non-celiac's body would just see the peptide as from

gluten and let it pass. Once the celiac’s body detects The Enemy, certain

antigens are produced which increase T-cell production in the small intestine

villi. This causes the villi to breakdown. There are three common theories being

discussed as the cause for celiac and the specific amino acid sequences have not

been identified. It is an autoimmune reaction with a genetic basis.

Trying to get the enzymes to break down the proteins sufficiently so these

peptides would not be produced was experimental. There is a certain structure in

the gliadin that the small intestine sees as toxic in celiac individuals. The

enzymes are not breaking this down in a way so that it does not cause a reaction

in celiacs. So, in fact, taking a protease such as Peptizyde may be just making

more of these little peptides (or whatever) available to the small intestine,

and perhaps increasing the number of chances to provoke a reaction. There was

some research on the www.celiac.com site which proposed this same thing with the

use of barley enzymes although it also said this was

just a working theory and there was no evidence to back it up. No two celiacs

are alike in their dietary tolerances for gluten - some are very sensitive, some

can tolerate a little at a time, some can't take oats or spelt or kamut, some

can. So if a person suspects celiac, takes Peptizyde and gluten and doesn't do

well, that person should avoid gluten under all circumstances.

This is a different situation from the peptide/opiate problem which is caused by

large, insufficiently broken down molecules and leaky gut. Those peptides have a

certain structure that attaches to specific receptors in the brain. Celiac

reactions are triggered by different tiny peptides which attach to receptors in

the small intestine. Only celiacs will have intestines that react in this way.

Leaky Gut

Based on research at several sites, it was found that the average time for a

leaky gut to heal is about 3-6 months, and going up to 12-18 months for severe

cases. The gut is in a constant dynamic state and starts healing immediately.

Some people have been using enzymes long enough now for significant gut healing

to occur. Besides removing insufficiently broken down food that can irritate the

gut, enzymes clean out waste, toxins and assist gut flora balance. There have

been some reports of people not needing nearly as many enzymes or being able to

tolerate infractions occasionally without enzymes with no adverse reaction, thus

suggesting that there is healing. In addition, parents using enzymes at least

semi-regularly have reported some cases of unplanned infractions that happened

without enzymes and any reactions were considerably reduced in intensity and

duration. Another interesting find is that oats facilitate gut healing. Thus,

those consuming oats + enzymes may have faster gut healing than those that

don’t.

Particularly Problematic Foods

1. Peanuts, seeds (such as pumpkin, sunflower, and poppy) and other nuts

continue to be problematic for several people even with enzymes.

2. High Phenolic foods – The addition of Zyme Prime, magnesium, and Epsom salts

helps with high phenolic foods, but most people who are very sensitive to

phenols still need to limit their intake, even with enzymes. Some people find

that they can consume some high phenolic foods but not others.

3. For those wondering that if they see improvement with enzymes, should they

even bother with attempting a restrictive diet: Several people have found that

the enzymes do not help a particular individual with all foods. When using the

enzymes, know that you may still have to look for certain foods that an

individual may react to. Besides peanuts, gluten for celiacs, and phenol load,

there have been a couple reported cases of problems with some types of oils,

food dyes, or other chemicals. Corn oil can contain sulfite residues, so this

may need to be eliminated as well as other sulfites. Some people have a true

allergy to casein/gluten (not a protein intolerance or peptide problem) and are

not able to re-introduce these even with enzymes. The possible need to eliminate

other foods while using enzymes needs to be evaluated on a case-by-case and

food-by-food basis as always.

ATEC Scores

Six parents did the ATEC for their kids at different times and for different

lengths of times. The only correlation is that the ATEC scores usually dropped

by about half overall and continued to decline gradually with more time on

enzymes. This is consistent with many people’s reports of major improvements in

the first month or two and then consistent further improvement over time. More

scores would be necessary to draw definitive relationships. Some people feel

that the ATEC is most helpful in determining if a therapy is helping, and since

the improvements when using Peptizyde/Zyme Prime are so obvious and seen

immediately there isn’t a question of whether they are helping or not.

Two parents had done the ATEC for their children when starting the GFCF diet and

after some months on the diet (time unspecified) and saw the scores decline.

After starting enzymes, the scores declined even further, at least by half. At

the same time, some of the eliminated foods were also being re-introduced. This

corresponds also with parents finding further improvement with Peptizyde/Zyme

Prime even if they are following the GFCF diet, and continued improvement as

they re-introduce foods. This could be due to better nutrition from a wider

variety of food as well as improvement in overall health provided by enzymes.

Enzymes and Restrictive Diets

The majority of respondents are currently 100% GFCF + enzymes or partially GFCF

+ enzymes. Most respondents (more than 75%) eliminate certain foods to varying

degrees whether they eliminate gluten/casein foods or not (that is, ignoring

gluten and casein, they make a conscious effort to eliminate some other food or

food additive). A few more people posted that they had been 100% GFCF for a year

or more and saw improvement on the diet, slowly re-introduced gluten/casein

foods and found their children much better – happier, healthier, better behavior

- off the diet + enzymes than on the restrictive diet. People remaining mostly

GFCF also saw significant improvement with Peptizyde and Zyme Prime and saw no

problems re-introducing foods. People remaining mostly GFCF say they are very

relieved to have some " insurance " for gluten/casein contamination and planned

infractions and this has greatly improved their quality of life. Some people say

they feel freer to say they are not 100% and can now look for a more realistic,

workable solution.

The data below was included at the DAN conference and was done by Autism

Research Institute (ARI). The figures were compiled from the Parent Ratings of

Behavioral Effects of Drugs, Nutrients, and Diets from the Autism Research

Institute.

Diet %Worse %No Effect % Better No. Cases Better/Worse Ratio

--------------------------------------------------------------------------------\

---------------------------------

Candida Diet 2 46 52 398 23:1

Feingold Diet 2 48 50 527 22:1

Rotation Diet 2 52 46 565 20:1

Removed Chocolate 1 53 46 1156 38:1

Removed Dairy 1 54 45 3989 33:1

Removed Eggs 1 64 35 605 52:1

Removed Sugar 2 52 46 3000 27:1

Removed Wheat 1 58 41 2022 32:1

The data shows removing wheat or dairy as having about the same positive

response rate as the other foods and diets listed. Comparing the values for

those seeing No Effect to the figures of those seeing Better results, all the

numbers seem to indicate that there is roughly an equal probability of seeing no

results versus seeing improvement with any particular diet or food elimination

(with the exception of eggs with a ratio of 2:1). The data is, of course, very

limited. It does not indicate how long the foods were removed or if the

foods/diet listed was the only dietary intervention done at that time (example:

dairy removed but not wheat, Candida diet but not done in rotation, wheat

removed but not gluten). Still, it seems to point in the direction of allergic

reactions or an overall gut/digestive problem rather than just a casein and

gluten problem.

This data supports very well what is seen on the enzymes board after 6 ½ -months

of tracking trends: Even when people on a restrictive diet (GFCF or otherwise)

start enzymes, they see significant improvement. This supports the idea that

there are many problematic foods, not just casein and gluten. In the table

above, most all food eliminations and restrictive diets gave equal results. This

further indicates a fundamental gut problem, such as leaky gut, metal inhibited

digestion, bad gut flora inhibited digestion, or something else, rather than a

strict casein/gluten problem.

Reports by many parents also confirm this. It becomes apparent for many parents

that after you successfully remove the casein/gluten 100%, your child " becomes "

reactive to corn...and then soy...and then phenols...and then eggs...and then...

The person becomes reactive to whatever they are eating the most of essentially.

Although this is not the case for all, it is for many. Also supporting this is

that when enzymes are taken across the board for ALL foods at ALL times, there

is a significant synergistic effect which is greater than when taking enzymes

either part-time, or for only certain food groups - termed the Happy Child

Effect.

Re-introducing Gluten/Casein or Other Foods

The current recommendation for this is to give small, known quantities of the

food to be re-introduced and carefully observe changes over several days up to

about 2 weeks because some reactions are cumulative or may show up after the

first day. If there is any reason to suspect celiac disease (such as a family

history, or test result) it is recommended to not attempt to reintroduce gluten

because there are no enzymes currently known to assist this, and may even cause

a worse reaction. Other than this, most every person who has wanted to

re-introduce gluten/casein has been able to do so without problem with Peptizyde

and Zyme Prime.

Reacting to Enzymes Ingredients: Rice bran, Papain, Bromelain, Kiwi

Several people knew that tolerating rice or rice bran was a problem before

starting enzymes, but have found they can use Peptizyde or Zyme Prime which

contain rice bran in the formulation. Three people had an initial adverse

reaction and suspected it was due to the rice bran. They then went on to try

other enzymes products which did not contain rice bran, and still had the same

negative reactions. So, this was determined to be due to either adjustments to

enzymes, other foods or chemicals, or withdrawal, but was not due to the rice

bran. One person returned to Peptizyde and continues to use it successfully (no

reports back from the other two). Three other individuals knew they or their

child had an intolerance to rice bran but experienced no difficulties in using

the Houston enzymes and reported very good improvements. This indicates that

those with a known intolerance to rice or rice bran can use Peptizyde and Zyme

Prime successfully. Most probably because the enzymes contained in the product

are sufficient to breakdown the rice or rice bran contained in the formulation.

Three people so far have had problems with papain (papaya) and/or bromelain

(pineapple). Two knew this before trying enzymes. All three were unable to

adjust or tolerate the Houston enzymes or any other product containing these

ingredients. Papain and bromelian are cross-listed for reactivity along with

kiwi, some seeds and pollens. So if you have problems with one of these, also be

cautious with any product containing any of these other ingredients. Papain was

also listed as cross-reactive to latex.

http://www.labspec.co.za/l_fruit2.htm#Papaya

There have been no reports from either these 109 cases or the 151 previous cases

in the 4-month summary where someone " became " reactive or intolerant of the

enzyme formulation itself over time.

Stomachache

This was a concern in the beginning, but now most people seeing stomachaches

follow the suggestion to stop the proteases, or greatly decrease the amount

used, for 4-5 days and then start again. Almost all people doing this are able

to continue enzymes without any further problem. Proteases in particular may be

irritating the gut a little. The proteases will be cleaning out wounds or

inflammation and this will leave exposed " good " tissue, which is sensitive. A

few days rest give these injured sections of the gut time to heal again and not

be so sensitive.

Cleaning Teeth

It may be advisable to brush the child’s teeth after consuming a

gluten/casein/soy food that may leave traces in their mouth or teeth. This

hasn’t been directly shown to cause a problem or affect results, but one parent

made the observation that some gluten/cake was still in her child’s molars a

good while after eating. It is a good practice to implement…especially in the

beginning to ensure the person does not swallow the gluten at a much later time.

Possible Reasons for Improvement in Results

-----------------------------------------------------------------

A better percentage of successful results seen in this group of respondents over

the first 4 months may be due to:

1. The new formulation of Peptizyde without l-glutamine

2. People having a better idea of what to expect, and willing to give it the

three weeks noted as the adjustment period

3. Getting help and support from the enzyme board

4. Suggestions for hyperness including magnesium, sulfur and/or Epsom salts

5. The timing issue with the capsules (allowing sufficient time for them to

dissolve before consuming food)

1. New Peptizyde formulation

The first formulation of Peptizyde contained L-glutamine. There were many

reports of excessive hyperness and the l-glutamine was suspected to be

contributing to this. Peptizyde was reformulated without the L-glutamine. People

using both versions reported as follows:

4 people went from negative to positive results

9 parents reported a significant decrease in their child’s hyperness and said

they went from good results to very, very good results, or from good results

with excess hyperness to good results and no excess hyperness.

3 people noted no difference between the two formulations.

No one said the formulation with l-glutamine was better than the one without.

Most people said that the newer formulation without l-glutamine was much better

than the older one - less hyperness, and this probably accounts in part for the

increase in positive results in this summary. L-glutamine has excitatory

properties - meaning that it stimulates some central nervous system pathways -

and this may have caused the excess hyperness. Also, at the recent DAN

conference, one of the presenters noted that although l-glutamine is known for

assisting the gut to heal and is often recommended for gut improvement, there

can be an initial negative response by those with very injured guts. The advice

given was to discontinue the l-glutamine and allow the gut to heal more before

reintroducing the l-glutamine.

2. Better Informed and Allowing 3 Weeks

One of the purposes and goals of the enzyme message board group is to develop

guidelines and monitor trends of enzyme use/therapy and support parents in their

efforts to try this intervention. With time, guidelines were formed which helped

parents know what to expect and how to handle certain reactions or side effects.

After the first 4 months, it became apparent that a 3 week adjustment period

should be allowed for the body to adjust to enzymes, any possible withdrawal

effects to run its course, and the individual to adjust to such things as

increased awareness and less pain. Also, the enzyme board became known as a

resource where parents could go to find support and assistance. This has turned

out to increase the probability of getting successful results (see below). In

the beginning a parent may have stopped enzymes with the first day or two of

hyperness or loose stools, but now that a person can understand this is common,

they are more apt to wait the three weeks before making a decision on

effectiveness. This has contributed to an increase in success rate. Most parents

seeing any of these side effects posted that they were resolved within the 2-3

week adjustment period, and that these issues where usually mild and quite

manageable. Most of the time, there are positive behaviors occurring at the same

time as these side effects.

3. Getting Help and Support from the Enzyme Board

Although the enzymes and autism board was started as a place of education,

information and support for parents interested in using enzymes, there was an

interest in whether this factored into the success of enzyme use or not. It

seems that those posting or lurking may have better overall positive results

than those who do not. There was also a concern that the success rate for

Peptizyde and Zyme Prime may be inflated over reality because of:

1. People posting were a self-selecting group.

2. People seeing negative results may just not want to post their adverse

observations (even though this is continuously encouraged).

3. Far more people are members of the enzyme board than post (although this is

very standard for message boards). However, most people who subscribe do remain

for extended periods of time even if they do not post. This indicates they are

getting some information of value from being a member of the board.

4. Not everyone who uses Peptizyde and Zyme Prime belong to the enzyme board so

the results posted on the board differed than those of individuals who did not

post.

5. However, in general, most people are far more likely to voice or post

complaints, problems and gripes than post on positives. Looking at just the

posts, far, far more involved trouble-shooting and assistance to resolve a

problem or concern than actually have content of a positive nature. Considering

this, the fact there are so many positive results posted tends to verify that

positive results are most likely.

So in an effort to gather additional information, and to test if people who

don’t post are actually seeing more negative results, about 38 individual emails

were sent out to members who had either posted saying they were interested in

enzymes or posted they had started Peptizyde and Zyme Prime but not posted any

follow-up on their progress or observations. 22 messages were returned, about

58%. This is considered very good because most polls and marketing research

bring in about a 3-5% return. It is noted that probably more people would

respond to a direct personal email from another parent on something they had an

interest in. These numbers reflect the response from emails sent over the entire

6 ½ months because responses came in over time.

Of these 22 responses (100%),

4 were negative (18%)

4 were inconclusive (18%)

14 were positive (64%)

So, this indicates that people not posting results or seeking suggestions tended

to see less positive results than those who did. Non-positive comments included

such things as the parent hadn’t really kept up with the enzymes; decided not to

try them; saw some problems such as hyperness and loose stools and interpreted

this as a negative reaction; etc. The positive replies were very similar to

those posted and also included things such as the person doesn’t usually post

much (not their style); was meaning to but didn’t get around to it; everything

going well and only posts when there is a problem; child doing well, has all the

information and so doesn’t frequent board anymore.

To see if the suggestions from the board would be helpful, replies were sent to

those saying they had some problems and asked for suggestions (if someone said

they weren’t successful and/or didn’t ask for help, none was offered). 11 emails

were sent offering the following information which is frequently given on the

board, 7 to those who were seeing success already but asked for further

assistance and 5 to those who indicated negative or inconclusive results so far:

1. for loose stools in the beginning – this is common and should pass in a week

2. for stomachaches – stop proteases for 4-5 days and then resume. Most people

have no trouble after that

3. hyperness – very common; try the non-l-glutamine Peptizyde, give Epsom salts,

and/or add magnesium to the diet

4 replies were received from those already seeing positive results and 4 replies

were received from those who previously saw negative or inconclusive results all

saying the suggestions were found to be very helpful and the person now saw much

more positive results. This indicates that those seeking assistance from other

people through a forum such as the enzymes and autism board are more likely to

see better results and successfully trouble-shoot concerns and problems. In

addition, over 65 " threads " were followed where a person posted a problem or

concern and was given suggestions for resolving the problem, and these proved to

be helpful in improving the situation. Very few concerns were left unanswered or

unresolved.

4. Suggestions for Hyperness

As noted in the 4-month summary, there are several reasons that hyperness may

occur with the start of enzymes. Depending on the individual, hyperness may be a

positive improvement. At other times, this is a negative reaction. This is

currently the most common concern. When it is considered a negative reaction,

the following suggestions have been found to be very helpful, and a document on

each of these is located in the Files section on the enzyme board.

1. Magnesium helps with calming. Many people are deficient in magnesium and a

major symptom of magnesium deficiency is hyperness. It is not certain if this is

a pre-existing condition and the enzymes remedy some functions with a magnesium

deficiency being unmasked. But adding magnesium is very helpful, no known toxic

levels, and inexpensive to do. Whole grains are a primary source of dietary

magnesium. Enzymes + grains may provide more magnesium to the body, and thus

relieve hyperness, more than eliminating these foods. Link to file on using

magnesium:

/files/Related%20Topics/Magesium%2\

0

2. Sulfur. Many people are also deficient in sulfur which may be a pre-existing

condition. Dr. Waring’s work shows that many AS people are naturally deficient

in the sulfur that is needed to process phenolic foods and other chemicals.

Hyperness is a common symptom of this need for sulfur. Supplementing with MSM

has helped some individuals. Link to file on PST/phenol issue:

/files/Related%20Topics/PST

3. Epsom Salts. Because of the reasons given in 1 & 2, Epsom salts are very

helpful for hyperness for many people, but not all people. It supplies both

magnesium and sulfur. Many parents noting hyperness on enzymes are able to

remedy the situation successfully by giving Epsom salts. The file on the enzyme

board outlines several different ways to do this. Link to file on using Epsom

salts:

/files/Related%20Topics/Epsom%20sa\

lts

4. When Zyme Prime is added in addition to Peptizyde, the level of unacceptable

hyperness decreases. This may be because more of the magnesium, molybdenum

and sulfur from foods are made available to the system, or it is assisting by

some other mechanism.

5. Decrease or discontinue supplements. More parents are finding that as they

continue on Peptizyde and Zyme Prime enzymes over time, their children need

fewer other supplements. Most notably is that the high levels of the B vitamins

which many AS children take may not be necessary or needed in quite as high

amounts (presumably because they are getting more nutrients from food). When

enzymes are started and hyperness continues, sometimes the parent reduces or

removes the B vitamins, or other supplements, and the hyperness subsides. Some

of the oils such as flax seed oil, fish oil, and borage seed oil have been noted

to cause hyperness or aggression as well. In addition, people on the enzymes are

finding that they may need a lower dose of enzymes for the same level of health

or food after some time of regular use than they did in the beginning (so even

the amount of enzymes needed decreases). This may be due to gut healing or other

factors. Some people who chelate find that after a particular round, their child

needs less enzymes and can eat more foods than before chelation.

5. Timing Issue

By the second summary, it was well established that there are two key factors in

using enzymes:

1. The type of enzyme used must be the right one for the type of food consumed

(protease for proteins, amylase for starches, etc).

2. Enzymes must be in solution in contact in the stomach at the same time as the

food. So you need to allow about 20-30 minutes for a veggie capsule to dissolve

in the gut if you swallow the veggie cap. Gel capsules dissolve more rapidly and

so they can be swallowed at the beginning of the meal. Or mix the enzymes with

food or drink and take at the beginning of the meal. Finding that the veggie

capsules needed more time to dissolve decreased the number of adverse reactions

and negative reports considerably.

Possible Reasons for Seeing No Results:

----------------------------------------------------------

Several cases have been reported which give possible explanations to this

outcome.

Case 1: The parent was down to giving her three children under seven foods that

did not provoke a negative reaction (not an exaggeration). She started enzymes

and found that her children could now eat many foods with enzymes that they

could not eat previously. However, they still reacted to some foods even with

enzymes. Then she began chelation. After each round, she found that her children

could now tolerate more and more foods that they could not previously eat even

with enzymes. After each round, she found that her children tolerated more foods

with enzymes, and she was even able to reduce the quantity of enzymes used and

still achieve the same results. However, certain food items still remain

problematic, even with enzymes.

Case 2: The parent began regular use of Peptizyde and Zyme Prime. She saw

amazing improvement very similar to the excellent improvement reported by

others. After a couple months, she began chelating and added ALA while

continuing with the current enzyme schedule. With the addition of ALA, her son

regressed greatly, even to a point below where he was when she began enzymes.

She determined that the process of chelation had created a yeast overgrowth

problem, which is common with chelation. She stopped chelation and worked to

address the yeast situation, all the while continuing with enzymes. When the gut

overgrowth was successfully treated, her son once again regained all of his

previous progress.

Case 3: A parent had her son on Peptizyde and Zyme Prime for several months at a

therapeutic dose (7-9 capsules/day). It was determined he had a bacteria

overgrowth. The consistent use of enzymes plus an aggressive dose of Culturelle

probiotics was used and this kept the bacteria problem " manageable. " However,

after 4 months of this, the bacteria overgrowth problem was not resolved.

Whenever the attempt was made to reduce the enzymes or probiotics to a more

regular maintenance dose, the problem was evident. Finally, the bacteria were

treated with an antibiotic. After that, a more normal dose of enzymes and

probiotics was used successfully and all adverse effects of the bacteria problem

did not return.

Case 4-6: Three parents noted that their children showed low or moderate

improvement when starting enzymes. They considered this successful and later

began chelation. As chelation progressed the children improved more and more.

Although these are just a few cases, the parents were very observant and

carefully monitored the progression of their children with each therapy. These

cases suggest that giving a reasonable amount of enzymes (two capsules of each

product with a normal sized child’s meal = 4 capsules in all), even when

significant improvement is seen initially with enzymes, is not sufficient to

overcome other problems such as metal toxicities or severe gut flora overgrowth.

When these issues are removed or remedied, any improvements due to the enzymes

become apparent. It is not known at this time if giving much higher doses of

enzymes at each meal will override these effects. However, at more than 4

capsules/meal, this may become impractical due to cost and time. Higher doses

may help in the short run, but in the end, the metals toxicity or gut bug

problem will need to be remedied for a permanent solution. So, when enzymes are

given and no results are observed, the enzymes may be working but the effects

are suppressed by other biomedical issues. A person in such a situation may want

to look at metal removal or gut bug overgrowth. Continuing enzymes while

pursuing these other avenues has advantages as well. The gut will be in better

condition and the body better supported while other healing interventions are

being implemented. Further information and experience is needed in this area.

Changes and updates from previous results

(the 151 cases from the 4-month report not included in the new numbers)

-----------------------------------------------------------

Of those previously reporting negative results:

4 parents who previously stopped Peptizyde due to problematic reactions have

tried Peptizyde again and now report very positive results. It is uncertain why

this is but may be due to some people reacting poorly to proteases initially

(stomachaches, aggression) and needing to stop for 4-5 days and then resume

enzymes. The new formulation may also be a factor along with better guidelines

and other therapies or interventions (such as chelation).

Of those previously reporting inconclusive results:

Most of the inconclusive reports from before remain inconclusive due to not

following through with enzymes regularly, or starting other therapies and not

being able to discern what is attributable to just the enzymes.

Of those previously reporting positive results:

1. None of the respondents has seen a decrease in improvement in any area over

time due to the enzymes. This includes some people on Peptizyde and Zyme Prime

for 6 months and not on a GFCF diet previously as well as been on the GFCF diet

and discontinued it, as well as people still GFCF but re-introducing foods. At

times, a person would see some regression but upon further investigation and

time, it would be found due to something else (other stresses or factors such as

family changes, unrelated illness, other supplements, weather, etc.).

2. A few times a parent would see regression and it was determined to be caused

by a particular food that the person could not tolerate even with enzymes. In

particular, peanuts, pumpkin seed, sunflower seeds and other related foods.

Another problematic area was the total load of phenolic foods and chemical

additives.

3. The question was posed that if you have been taking these enzyme more than 2

months, would you say that most of the improvements were gained within the 2

month period and then leveled off, or would you say you continued to see

noticeable improvement over time. About 11 people responded and all said they

continued to see steady improvements over time.

Conclusions

I would again like to thank all the parents who contributed their posts, time

and effort into evaluating the use of Peptizyde and Zyme Prime as part of their

child’s or their own therapy and treatment. I would particularly like to thank

Kelley who is co-moderator of the board. Without her

efforts, this wouldn’t have been possible. Additional thanks go to Dr. Devin

Houston for the development of these products and technical advice to the

members of the board.

With the addition of 109 more cases, substantial improvements continued to be

seen whether individuals are on or not on any type of restrictive diet. Some

parents say their children are much better on these enzymes + a regular diet

than they were when on a restrictive diet. Most parents have found Peptizyde and

Zyme Prime are very effective in widening their child’s menu. Most children are

able to tolerate a wider variety of foods physically, as well as willingly

improve their appetite and range of choices. MANY families have been able to

return to previous " problematic " foods such as corn, eggs, soy, phenols, etc.

besides gluten and casein, should anyone want to re-introduce them.

You are certainly invited to visit the board and see if you

find anything useful. An option to receive a monthly email newsletter with

further update is available by selecting Special Announcements Only as your

membership option (membership is free and immediate). Hopefully, with more time

and experience, we will have even better guidelines for using enzymes. This will

help with research and development, and in producing even more refined products

for better treatment alternatives.

About the author

DeFelice and her two wonderful boys, 7 and 9, deal with sensory

integration disorder and have recently recovered from PDD. They have used

Peptizyde and Zyme Prime regularly since April 2001. This recovery was a direct

result of using these enzymes in conjunction with other therapies. They have

tried several other enzyme products, the GFCF diet, the Feingold diet, numerous

supplements, some therapies and meds. has been a co-moderator of the

board since its establishment, is the current list-owner, has a

Masters in Science, and works with computers, education and biotech. Permission

is granted to reproduce and distribute this document as needed, as long as parts

are not taken and used out of context, and the original contact information is

included.

[ ] Where do I start?

Have often thought that digestive enzymes might be the go for my

daughter but have no idea where to start. There are so many different

ones to choose from. Can someone help me with info on how they

started and why they chose what they did?

[Guest guest]

>>>> I was wondering if there was some sort of profile online to

figure out *which* enzymes a person should start with.

Here is a link to an a 'test' by enzymedica which is supposed to

help you find out which enzymes you are more deficient in. I didn't

find it very helpful, but you may sees some trends.

http://www.enzymedica.com/pdf/Enzyme_Test_8_29_01.PDF

I think a general broadspectrum product is always a safe bet, such

as the Zyme Prime by Houston, or the Digest by Enzymedica (health

food stores or online). Klaire makes one called Vital Zyme Forte too

I used just fine.

.

[Guest guest]

Okay, I am finally getting down to writing you about what this site is

all about.. I have read most of the book Nourising Traditions. I am

absolutely overwhelmed. I have found some sources for raw dairy all

about an hours drive from me. I still haven't gotten a day when I can

go get some.

I know I can't change everything all at once. I have been completely

dairy free for 3 1/2 years because of my joint pain. But I am ready

to try some RAW milk and see if I can tolerate that. Going dairy free

helped my joints a lot..and it is a little scary to go back to that.

What would you all suggest for me to start with. And I do have to say

that my husband and 19 year old daughter will not be willing to give

up sugar and white flour. So a lot of this will be me only. I won't

push it on them..but hope I can improve their diets at least some.

Missy

[Guest guest]

My advice: Start with good fats and proteins.

--Get a whole grass-fed chicken. Make broth from the bones, back and

neck, save the fat to fry potatoes in. Be sure to eat the organs.

--Get some good coconut oil (I use Mountain Rose Herbs myself, cheap

and good quality). Use it to fry fish and make popcorn, try eating it

in little spoonfuls if you can.

--Consider taking a high quality cod liver oil.

Those are three simple things that will make an immediate difference,

and that are easy to incorporate into your current life. The next

three:

--Learn to ferment vegetables. Start with kimchi and/or sauerkraut,

very easy, very rewarding ferments.

Kimchi recipe: http://www.thenewhomemaker.com/kimchideprovence

--Find a source of raw dairy, if you can tolerate dairy. Very often the

only source you can find easily in areas where raw milk is illegal is

raw milk cheese. If you can get raw milk, learn to culture it into

yogurt or kefir. Kefir is dead simple, much easier than yogurt. If you

can't get raw milk, don't worry. If you still intend to drink

pasteurized milk, do your damndest to find a true organic,

non-homogenized source.

--Learn to soak your grains and legumes. It just takes some planning

ahead.

Good luck! I'm sure others will have other suggestions for you.

Lynn S.

------

Mama, homeschooler, writer, activist, spinner & knitter

http://www.siprelle.com

NOTICE: The National Security Agency may have read this email without

warning, warrant, or notice.

[Guest guest]

> The bone broth sounds like a

> good thing for me with my joints.

Speaking as someone with fibro, I can say it makes a huge difference.

It's all a matter of keeping on top of it and getting into a

routine--things I'm bad at, just so you know.

> Fish broth sounds very

> nasty..someone please reassure me!

It can be extremely delicious! Japanese dashi-kombu, bonito and seaweed

broth, is one of my favorite soups in the world.

Lynn S.

------

Mama, homeschooler, writer, activist, spinner & knitter

http://www.siprelle.com

NOTICE: The National Security Agency may have read this email without

warning, warrant, or notice.

[Guest guest]

On 10/18/06, sewmissy2 wrote:

> I know I can't change everything all at once. I have been completely

> dairy free for 3 1/2 years because of my joint pain. But I am ready

> to try some RAW milk and see if I can tolerate that. Going dairy free

> helped my joints a lot..and it is a little scary to go back to that.

>

Dairy isn't for all of us - even raw dairy. There are several people

around who got worse after starting to eat this way because of the

dairy (once they removed the dairy, they felt much better). So, feel

free to try the raw if you'd like, but it's not a health food for all

of us. :-)

- gluten and dairy free

--

http://www.PraiseMoves.com

The Christian Alternative to Yoga

[Guest guest]

Thanks Lynn,

I have found this farm near us to get pasture raised meats:

http://www.bechardfarm.com/

They also have raw milk, but a child that I got on the phone said

they don't have any extra right now. I have another source too but

I haven't gotten them to tell me when I can come. Anyway I am

working on the meat as well as the milk.

That is a great idea to start with a simple chicken. I have made

broth from chickens and turkey bones many times, so this is

something I know I can do.

I get my coconut oil from

http://www.tropicaltraditions.com/virgin_coconut_oil.htm

I need to start using more of it. And I need to try popcorn made

from my coconut oil..this is another thing I will do.

The veggie fermenting looks like a lot of fun. Here is what I did

today, I bought a tub of Dannon plain yogurt. Is that good for

getting yogurt culture? I thought I might at least be able to make

some whey and cream cheese from it..tell me if this is not a good

idea! Then I will try to make some sauerkraut and kim chi. I love

both of these and am excited to try making them.

We already have nonhomogenized local hormone free but pasturized

milk in stores here. It is bottled in glass, returnable bottles.

This is what I buy for my husband and daughter. I want to try the

raw though and it is not illegal here in Missouri..just can't be

sold in stores. I will have to go to the farm to get it.

I am starting to get the picture. I just need to start with

something..and then keep on adding things to make our food more

nutritious.

Oh Cod Liver oil..that is a new one for me. I take Omega 3-6-9 and

iodine..but is cod liver oil better?

Missy

--- In , Lynn Siprelle <lynn@...>

wrote:

>

> My advice: Start with good fats and proteins.

>

> --Get a whole grass-fed chicken. Make broth from the bones, back

and

> neck, save the fat to fry potatoes in. Be sure to eat the organs.

>

> --Get some good coconut oil (I use Mountain Rose Herbs myself,

cheap

> and good quality). Use it to fry fish and make popcorn, try eating

it

> in little spoonfuls if you can.

>

> --Consider taking a high quality cod liver oil.

>

> Those are three simple things that will make an immediate

difference,

> and that are easy to incorporate into your current life. The next

> three:

>

> --Learn to ferment vegetables. Start with kimchi and/or

sauerkraut,

> very easy, very rewarding ferments.

> Kimchi recipe: http://www.thenewhomemaker.com/kimchideprovence

>

> --Find a source of raw dairy, if you can tolerate dairy. Very

often the

> only source you can find easily in areas where raw milk is illegal

is

> raw milk cheese. If you can get raw milk, learn to culture it into

> yogurt or kefir. Kefir is dead simple, much easier than yogurt. If

you

> can't get raw milk, don't worry. If you still intend to drink

> pasteurized milk, do your damndest to find a true organic,

> non-homogenized source.

>

> --Learn to soak your grains and legumes. It just takes some

planning

> ahead.

>

> Good luck! I'm sure others will have other suggestions for you.

>

> Lynn S.

> ------

> Mama, homeschooler, writer, activist, spinner & knitter

> http://www.siprelle.com

>

> NOTICE: The National Security Agency may have read this email

without

> warning, warrant, or notice.

>

[Guest guest]

It helps me so much to hear you say this! I have great hopes for

this.. I am bad at getting into a routine too. Well, it is new

routines that throw me, my old ones seem to get me into a rut LOL

The Fish Broth..Japanese dashi-kombu, bonito and seaweed

> broth are these in the book? And where do you get fish bones? I

live in Missouri..way far from the sea and we do have fish in the

store, but I don't know about bones.

Missy

>

> Speaking as someone with fibro, I can say it makes a huge

difference.

> It's all a matter of keeping on top of it and getting into a

> routine--things I'm bad at, just so you know.

>

> > Fish broth sounds very

> > nasty..someone please reassure me!

>

> It can be extremely delicious! Japanese dashi-kombu, bonito and

seaweed

> broth, is one of my favorite soups in the world.

>

> Lynn S.

>

> ------

> Mama, homeschooler, writer, activist, spinner & knitter

> http://www.siprelle.com

>

> NOTICE: The National Security Agency may have read this email

without

> warning, warrant, or notice.

>

[Guest guest]

Thanks . I am thinking this will be my last attempt to do

dairy again. I am not absulutely sure that going no dairy was the

thing that made my joints feel better..so it may be that I won't

have a problem. But even if I have to continue to be dairy free, my

family will benefit from the raw.

I have a question for you: Do you use whey or butter? I say I am

dairy free, but I do use butter as it is the protein in milk that I

avoid.

Missy

> > I know I can't change everything all at once. I have been

completely

> > dairy free for 3 1/2 years because of my joint pain. But I am

ready

> > to try some RAW milk and see if I can tolerate that. Going

dairy free

> > helped my joints a lot..and it is a little scary to go back to

that.

> >

>

> Dairy isn't for all of us - even raw dairy. There are several

people

> around who got worse after starting to eat this way because of the

> dairy (once they removed the dairy, they felt much better). So,

feel

> free to try the raw if you'd like, but it's not a health food for

all

> of us. :-)

>

> - gluten and dairy free

>

> --

> http://www.PraiseMoves.com

> The Christian Alternative to Yoga

>

[Guest guest]

> The Fish Broth..Japanese dashi-kombu, bonito and seaweed

>> broth are these in the book? And where do you get fish bones? I

> live in Missouri..way far from the sea and we do have fish in the

> store, but I don't know about bones.

Dashi-kombu is actually made from dried flaked bonito. I can't remember

if it's in the book or not, I rather think not, but any Japanese

cookbook would have the recipe. It's a main ingredient in the cuisine.

I can't speak to where you'd get fish bones in Missouri; I'm in Oregon

and we have fish in abundance.

Lynn S.

------

Mama, homeschooler, writer, activist, spinner & knitter

http://www.siprelle.com

NOTICE: The National Security Agency may have read this email without

warning, warrant, or notice.

[Guest guest]

> Thanks . I am thinking this will be my last attempt to do

> dairy again. I am not absulutely sure that going no dairy was the

> thing that made my joints feel better..so it may be that I won't

> have a problem. But even if I have to continue to be dairy free, my

> family will benefit from the raw.

I still keep trying different forms of dairy from different farms

every so often. I just love the stuff!! LOL. So far, though, none

of it has worked for me. :-(

>

> I have a question for you: Do you use whey or butter? I say I am

> dairy free, but I do use butter as it is the protein in milk that I

> avoid.

> Missy

>

We do Purity Farms organic ghee (clarified butter, lactose and casein

free). If whey is filtered very carefully, it is supposed to be

casein free, I believe. I haven't bothered with it, though. We all

tested positive for IgA casein allergy. I know that some people out

there can still use butter, but I don't think I even tried it. Some

people can't even tolerate the amount that's in butter and I made my

decision based on that. :-)

(btw, do you use sonlight?)

[Guest guest]

On 10/20/06, Lynn Siprelle wrote:

> > The Fish Broth..Japanese dashi-kombu, bonito and seaweed

> >> broth are these in the book? And where do you get fish bones? I

> > live in Missouri..way far from the sea and we do have fish in the

> > store, but I don't know about bones.

>

> Dashi-kombu is actually made from dried flaked bonito. I can't remember

> if it's in the book or not, I rather think not, but any Japanese

> cookbook would have the recipe. It's a main ingredient in the cuisine.

> I can't speak to where you'd get fish bones in Missouri; I'm in Oregon

> and we have fish in abundance.

>

> Lynn S.

>

>

Bonito Broth, page 120. :-)

I've had trouble getting fish bones in upstate SC, but I haven't tried

terribly hard. We eat freeze dried anchovies (from the Asian grocery)

and toasted nori.

[Guest guest]

If you want to learn fermenting, Sandor Katz's book " Wild

Fermentation " is fantastic. It has sauerkraut and kimchi with several

variations. I liked the first one I tried I haven't messed with it,

tho! When you make the kimchi, if there is juice left over after you

pack it in the jars, save it for marinating meat. It makes it SO

GOOD!!!

For using store-bought yogurt as a starter, according to the

instructions that came with my yogurt maker, any kind is ok that

has " live and active cultures " but their strength diminishes over time

so look at the dates on the containers and find the freshest one. I

just used the Activa one because someone said that helped her kid's

behavior issues, so I'm thinking it must be a good one! It took twice

as long to " set " tho. By the way, if your kids don't eat plain

yogurt, you can stir in melted jam for fruit flavor, or maple syrup.

At least they'll be getting the good dairy!

--- In , " sewmissy2 " <id4umo@...>

wrote:

>> The veggie fermenting looks like a lot of fun. Here is what I did

> today, I bought a tub of Dannon plain yogurt. Is that good for

> getting yogurt culture? I thought I might at least be able to make

> some whey and cream cheese from it..tell me if this is not a good

> idea! Then I will try to make some sauerkraut and kim chi. I love

> both of these and am excited to try making them.

>

[Guest guest]

I have always been able to tolerate dairy, but I stopped using it

because I had read that dairy protein can inflame joints. My dad

and sister have rheumatiod arthritis and I have symptoms of it too,

especially in my hands and wrists. When I stopped the dairy, I also

started glucosamine chondroitin supplements. So I don't know

actually, which did the trick.

Dairy has always stuffed me up, immediately. I used to cough and

cough after having ice cream. So I don't know. The main thing is

that I don't want my hands to hurt more than they already do!

Anyway I don't think I am allergic to dairy, but I know that I am

sensitive to it. I am really hoping raw milk will be better

tolerated. Or at least that I could have it occasionally instead of

never.

I don't know what sonlight is. I use Almond Breeze almond milk by

Blue Diamond when I have cereal or oatmeal. But I don't often drink

it unless I pick up a carton of chocolate almond milk.

Missy

> >

>

> We do Purity Farms organic ghee (clarified butter, lactose and

casein

> free). If whey is filtered very carefully, it is supposed to be

> casein free, I believe. I haven't bothered with it, though. We

all

> tested positive for IgA casein allergy. I know that some people

out

> there can still use butter, but I don't think I even tried it.

Some

> people can't even tolerate the amount that's in butter and I made

my

> decision based on that. :-)

>

> (btw, do you use sonlight?)

>

>

[Guest guest]

We have and Asian grocery here. I have never been in there. I guess

that could be a good source for some interesting ingredients. Thanks

for the page, I will check it out.

Missy

> Bonito Broth, page 120. :-)

>

> I've had trouble getting fish bones in upstate SC, but I haven't

tried

> terribly hard. We eat freeze dried anchovies (from the Asian

grocery)

> and toasted nori.

>

>

>

[Guest guest]

I will look for that book. And the idea for marinating meat is so

interesting.

My kids are grown. I have a 19 year old living at home, but she

isn't around for meals much. So it is mostly my hubby and me and he

doesn't eat yogurt unless it is frozen and tastes like ice cream

So I will try to make cream cheese out of it and see how that does.

Missy

--- In , " haecklers " <haecklers@...>

wrote:

>

> If you want to learn fermenting, Sandor Katz's book " Wild

> Fermentation " is fantastic. It has sauerkraut and kimchi with

several

> variations. I liked the first one I tried I haven't messed with

it,

> tho! When you make the kimchi, if there is juice left over after

you

> pack it in the jars, save it for marinating meat. It makes it SO

> GOOD!!!

>

> For using store-bought yogurt as a starter, according to the

> instructions that came with my yogurt maker, any kind is ok that

> has " live and active cultures " but their strength diminishes over

time

> so look at the dates on the containers and find the freshest one.

I

> just used the Activa one because someone said that helped her

kid's

> behavior issues, so I'm thinking it must be a good one! It took

twice

> as long to " set " tho. By the way, if your kids don't eat plain

> yogurt, you can stir in melted jam for fruit flavor, or maple

syrup.

> At least they'll be getting the good dairy!

>

[Guest guest]

I would also like to suggest, if your store has it, the Greek yogurt

by fage. It has a WONDERFUL flavor; everyone I know who has tried it

is a convert. The greeks use a different culture; it's less acidic

than the american brands. You can just buy one little container, try

it, and if you like it, use it as a starter culture for your own.

-Tamara

--- In , " haecklers " <haecklers@...>

wrote:

> For using store-bought yogurt as a starter, according to the

> instructions that came with my yogurt maker, any kind is ok that

> has " live and active cultures " but their strength diminishes over time

> so look at the dates on the containers and find the freshest one. I

> just used the Activa one because someone said that helped her kid's

> behavior issues

[Guest guest]

I LOVE yogurt with a little raw honey myself. This is how the greeks

enjoy yogurt, and it's especially good with the greek style yogurt

(fage, from the store).

-Tamara

> My kids always eat it with jam, maple syrup or honey.

[Guest guest]

Hi :

Welcome to the group!

I am going to send you a lot of links to go through. If you need

more help or have more questions let us all know. It is a lot to

absorb at once, but hopefully it will help you understand apraxia and

how much therapy is needed to help your child. My first question to

new SLPs was always " are you familiar with apraxia? " If the SLP

understood what apraxia was, it helped me feel at ease when Landon

would have to switch therapist in the school district. We used

Kaufman cards from the time he was 2 years old. You could ask what

therapy will look like for your child. If the therapist can give you

homework to work on in between sessions.

http://www.tayloredmktg.com/dyspraxia/index.shtml

This was one of my favorite sites for learning about apraxia.

/message/64508

archived message for new members--very long, but has lots of info.

/message/18599

Lots of information about therapy for apraxia.

/links

folders by subject.

http://www.speechville.com/regional-resources.html

click on your state and you will find information pertaining to your

state.

Hope these help,

Tina

mom to Landon 5yo

>

> I have a 19m old boy who was just diagnosed with mild apraxia. He

was tested/evaluated

> and they determined his receptive language is equivalent to a 27

month old. His expressive

> language is at the level of an 11m old. He knows about 13-18

words, but they do sound

> garbled. I also have an almost 4 yr old, who started talking

early, and is now extremely

> verbal. It has been difficult to not compare the two. We have our

first speech therapy apt.

> tomorrow morning. I just feel so lost. I feel like I don't have a

good understanding of

> apraxia, and therefore, I am not sure what questions I should be

asking. Can someone

> please help me figure out the " right " questions to ask, and what to

look out for. We are

> expecting our 3rd boy in May. I want to have a good routine

implemented before he arrives.

> ANy insight would be greatly appreciated! Thanks, alicia

>

[Guest guest]

I'm in the same boat at you. I've just joined this group from the

" later talkers " group and have an older daughter (5.5yrs) who is very

verbal and a fantastic reader. I have a 30mth that I think may have

verbal apraxia but am working on getting an experienced SLP to verify

-- and I have another boy on the way, due end of April early May. I'm

also still learning the ropes and trying to educate myself. Feel free

to email me off list if you want to compare notes and share stories.

We might have a lot of the same concerns. And you know what they say,

" misery loves company " :-)

K

>

> I have a 19m old boy who was just diagnosed with mild apraxia. He

was tested/evaluated

> and they determined his receptive language is equivalent to a 27

month old. His expressive

> language is at the level of an 11m old. He knows about 13-18 words,

but they do sound

> garbled. I also have an almost 4 yr old, who started talking early,

and is now extremely

> verbal. It has been difficult to not compare the two. We have our

first speech therapy apt.

> tomorrow morning. I just feel so lost. I feel like I don't have a

good understanding of

> apraxia, and therefore, I am not sure what questions I should be

asking. Can someone

> please help me figure out the " right " questions to ask, and what to

look out for. We are

> expecting our 3rd boy in May. I want to have a good routine

implemented before he arrives.

> ANy insight would be greatly appreciated! Thanks, alicia

>

[Guest guest]

Hi my son was diagnosed with apraxia at 3 years old and receiving speech therapy

since

he was 18 months old.

The first question you need to ask the therapist is if they have worked with

kids that have

apraxia. The therapy is different than regular speech therapy per say.

Usually the problem our kids have is that there at times when they say a word

correctly

and the next time u hear the word it is missing the consonants either at the

beginning and

end. Also vowels are mixed up.

If your child has weakness in the mouth. My son wasn't able to blow bubbles

because of

strenght problems in the mouth. They need to make sure the tongue is working

properly

and is stronge too. If not there are many exercises that you can work at home

with your

child. If you need any help with exercises for strenghtening the mouth muscles

let me

know and I can let u know more about it. Also is your child talking at all.

Trying any

sounds like moo or making any car sounds. Does he drool alot? If I can help

answer any

more questions let me know. Oh! I almost forgot if it is apraxia they need more

intensive

therapy and make sure it is 1:1

The earlier they get the right therapy and help the better for them. Hope this

helps in

some way.

> >

> > I have a 19m old boy who was just diagnosed with mild apraxia. He

> was tested/evaluated

> > and they determined his receptive language is equivalent to a 27

> month old. His expressive

> > language is at the level of an 11m old. He knows about 13-18 words,

> but they do sound

> > garbled. I also have an almost 4 yr old, who started talking early,

> and is now extremely

> > verbal. It has been difficult to not compare the two. We have our

> first speech therapy apt.

> > tomorrow morning. I just feel so lost. I feel like I don't have a

> good understanding of

> > apraxia, and therefore, I am not sure what questions I should be

> asking. Can someone

> > please help me figure out the " right " questions to ask, and what to

> look out for. We are

> > expecting our 3rd boy in May. I want to have a good routine

> implemented before he arrives.

> > ANy insight would be greatly appreciated! Thanks, alicia

> >

>

[Guest guest]

I have a daughter too with the same Verbal Apraxia, and she cant blow bubbles

for a long time,  only once, also she take speech with group , all 4 kids, and I

noticed that she became more frustrated now, crying when she cant explain to you

what she wants.

 

Also I aked her SLP, dont put her in a group, she told no, she needs that, as

one of our her goals knowing, you, your, me, he, buth this is crazy, because at

the beginning when the school put these goals they set her one- one 2 times a

week.

 

this is very hard , Iam sorry, but i cant trust the school, i feel that her SLp

has a lot of kids, no room for individuel therapy, and we asked the school to

provide the service outside in any clinic , they refused.

 

From: nenaquenny <nenaquenny@...>

Subject: [ ] Re: Where do I start?

Date: Tuesday, February 17, 2009, 8:56 PM

Hi my son was diagnosed with apraxia at 3 years old and receiving speech therapy

since

he was 18 months old.

The first question you need to ask the therapist is if they have worked with

kids that have

apraxia. The therapy is different than regular speech therapy per say.

Usually the problem our kids have is that there at times when they say a word

correctly

and the next time u hear the word it is missing the consonants either at the

beginning and

end. Also vowels are mixed up.

If your child has weakness in the mouth. My son wasn't able to blow bubbles

because of

strenght problems in the mouth. They need to make sure the tongue is working

properly

and is stronge too. If not there are many exercises that you can work at home

with your

child. If you need any help with exercises for strenghtening the mouth muscles

let me

know and I can let u know more about it. Also is your child talking at all.

Trying any

sounds like moo or making any car sounds. Does he drool alot? If I can help

answer any

more questions let me know. Oh! I almost forgot if it is apraxia they need more

intensive

therapy and make sure it is 1:1

The earlier they get the right therapy and help the better for them. Hope this

helps in

some way.