Re: new member

[Guest guest]

--- wrote:

> Hi ,

>

> is affectionately known around here as the LID

> lady...or maybe I

> just made it up... Regardless, she can tell you

> everything you always

> wanted to know about the LID. She has amassed a

> valuable resource for the

> diet, including recipes, etc. PLease dont feel

> stupid for not knowing what

> the LID is. I never heard of LID before joining this

> group last Spring.

> and others here helped me through my hypo-LID

> experience.

>

> The mood swings are also common, as has said.

> Hang in there and ask

> away. The only question that is stupid is the one

> that isn't asked.

>

> in OH

> I ,thank you so much for being there it means

so much. You are a great person, I just wanted to tell

you a little about myself. I am 42 years old, I have

been married for 24 years and have two wonderful son's

one is 22 and the other is 15 and they have been

absolutely great through this ordeal. It helps so much

when you have someone by your side, being on this site

also helps a lot. I see you live in Ohio, I am live in

Tennessee. I also have a wonderful daughter-in-law

that just finished nursing school, and she tries to

help me any way she can. I read about everyone on this

site all the time, and I have read so much about the

cancer coming back in other places. My doctor assured

me that I was fine and that I wouldn't have anything

to worry about,but I think you always have that chance

of the cancer coming back somewhere else. What do you

think? Thank You so much for talking to me, I will

be talking to you later.

>

>

> =====

> Mail to: grammyDx2@...

> 1965 TT P/F thyca w/lymph mets,

> Hypoparathyroidism

> 1982 RAI for neck & chest mets

> 09/10/01 Cean scan PTL~!

>

> __________________________________________________

>

[Guest guest]

--- emmyjayus wrote:

> Hi, ,

> Welcome! You will find so much help in this group. I

> am confused

> about the timing of your RAI. Did you have an

> ablative dose in the

> Fall? Why are you having another RAI treatment so

> soon?

>

> You will find that it is important to keep records

> of your

> treatment. Dates and number of millicuries of each

> RAI, TSH levels

> and any thyroglobulin (tg) levels.

>

> You can ask your MD's office staff to give you

> copies of lab reports,

> radiology reports and even the final summaries from

> your surgeries.

> Keep them in a notebook so they are handy. (Easy

> for me to say, I

> did not start collecting this info until 10 years

> after Vern's first

> thyca diagnosis.)

>

> Take a deep breath, know that you are among friends,

> and ask any and

> every question that occurs to you. Good luck,

> Jane

> Hi Jane, I was so glad you wrote, but I don't have a

clue of why I have to go back for a RAI so soon. The

first one that I had the Radiologist told me it was

the highest amount he could give me and send me home.

I wasn't allowed to be around anyone, and the good

stuff eating out of paper plates, plastic forks,

plastic glasses and so fourth. They also told me the

next dose wouldn't be as strong. I had my surgery the

second week in August 2001 and my RAI two weeks later,

and then the doctor told me I had to have another

treatment Feb. 26. Is that unusual, I don't have any

idea? Is it normal for your jaw bones, my teeth, my

head, hurts all the time. I also have headaches all

the time and can't sleep at all. Please write me back

and let me know if this is normal. Thank You so much,

from Tn.

>

__________________________________________________

[Guest guest]

--- virginia ferrell wrote:

>

> --- emmyjayus wrote:

> > Hi, ,

> > Welcome! You will find so much help in this group.

> I

> > am confused

> > about the timing of your RAI. Did you have an

> > ablative dose in the

> > Fall? Why are you having another RAI treatment so

> > soon?

> >

> > You will find that it is important to keep records

> > of your

> > treatment. Dates and number of millicuries of

> each

> > RAI, TSH levels

> > and any thyroglobulin (tg) levels.

> >

> > You can ask your MD's office staff to give you

> > copies of lab reports,

> > radiology reports and even the final summaries

> from

> > your surgeries.

> > Keep them in a notebook so they are handy. (Easy

> > for me to say, I

> > did not start collecting this info until 10 years

> > after Vern's first

> > thyca diagnosis.)

> >

> > Take a deep breath, know that you are among

> friends,

> > and ask any and

> > every question that occurs to you. Good luck,

> > Jane

> > Hi Jane, I was so glad you wrote, but I don't have

> a

> clue of why I have to go back for a RAI so soon. The

> first one that I had the Radiologist told me it was

> the highest amount he could give me and send me

> home.

> I wasn't allowed to be around anyone, and the good

> stuff eating out of paper plates, plastic forks,

> plastic glasses and so fourth. They also told me the

> next dose wouldn't be as strong. I had my surgery

> the

> second week in August 2001 and my RAI two weeks

> later,

> and then the doctor told me I had to have another

> treatment Feb. 26. Is that unusual, I don't have any

> idea? Is it normal for your jaw bones, my teeth, my

> head, hurts all the time. I also have headaches all

> the time and can't sleep at all. Please write me

> back

> and let me know if this is normal. Thank You so

> much,

> from Tn.

> >

>

>

> __________________________________________________

>

[Guest guest]

> Hi everyone !

>

> In usual groups, a new member is a happy moment... not sure about

> this one... lol

Not sure you officially are a member?! Groucho Marx (or Freud) said

that he would never join a club that would have him. I guess you

deserve a tentative welcome (with the hope that you get thrown out as

unqualified)!

>

> I haven't been diagnosed with thyroid cancer yet, but I have a big

> thyroid nodule... hard with soft core and from what I've read,

there

> are some chances the mass may be malignant. I had a scan and it's

> not a cyst... (spelling... sorry about that. My mother tongue is

> French *smile*). So I thought I'd join a group now so that I can

> find questions to answer I might have down the road, if indeed it

is

> cancerous.

>

> It's been found about 3 months ago but because I was getting

married

> and moving to a new country, I had to wait to see an endo. I'm

Ø seeing her in a few weeks. I expect a biopsy and maybe a

scan. I'm

What I had was an Ultrasound scan, followed by a fine needle

aspiration (FNA) followed by a total thyroidectomy (TT). The FNA is

no big deal – comparable to a bad nurse taking blood.

What a nuisance – to sit there waiting! I feel for you.

> not really worried about the biopsy although it's probably

Ø uncomfortable... just about the result *smile* I still don't

have

Scary - cancer & kids! Many people have had kids right before and

after diagnosis, and many people on the list have been diagnosed

while pregnant. Many have kids after. Thyca is most common among

young woman in 20s-30s, who have the best outcome – so don't worry at

all about that.

> children and I don't even know if that's a concern I should have or

> not. So many questions... so many ifs and buts !!

>

> I look forward to reading the group's posts. I'm glad to see that

it

> is quite active and that members are honest about what they are

going

> through. It helps newbies like me alot, I'm sure. I like to know

> what I'm getting myself. Not the adventurous kind !

>

> By the way, my name is and I'm 28. I got married less

than

> 2 months ago and moved to California from Eastern Canada. Quite

the

> change !

Must be nice – you swung it to get out of Canada before winter! Good

luck,

/

>

> Bye for now,

> (actually, friends call me Tessie)

[Guest guest]

Salut, Tessie!

Congratulations on your new marriage!

Welcome to the group, even though it's a group none of us really wanted to join

:-)

You have come to the perfect place for support and information, and you are very

smart to educate yourself before you know whether or not your mass is malignant.

Whatever is the final result,

however, you should know that it need not change your plans for having a family.

There have been several members who either were diagnosed during pregnancy, or

who went on to become pregnant and

have normal, healthy babies after their thyroid treatment.

Continue to read the letters here, and feel free to ask any questions you may

have.

-

PS - your English is excellent, but here are some web sites that also have

thyroid information in French:

- The Thyroid Foundation of Canada (Very Basic)

..... http://home.ican.net/~thyroid/Guides/HG12.html

- Thyroid International Journal from Merck (thyroid topics in general)

..... http://www.thyrolink.com/

stephaniefraser93727 wrote:

> Hi everyone !

>

> In usual groups, a new member is a happy moment... not sure about

> this one... lol

>

> I haven't been diagnosed with thyroid cancer yet, but I have a big

> thyroid nodule... hard with soft core and from what I've read, there

> are some chances the mass may be malignant. I had a scan and it's

> not a cyst... (spelling... sorry about that. My mother tongue is

> French *smile*). So I thought I'd join a group now so that I can

> find questions to answer I might have down the road, if indeed it is

> cancerous.

>

> It's been found about 3 months ago but because I was getting married

> and moving to a new country, I had to wait to see an endo. I'm

> seeing her in a few weeks. I expect a biopsy and maybe a scan. I'm

> not really worried about the biopsy although it's probably

> uncomfortable... just about the result *smile* I still don't have

> children and I don't even know if that's a concern I should have or

> not. So many questions... so many ifs and buts !!

>

> I look forward to reading the group's posts. I'm glad to see that it

> is quite active and that members are honest about what they are going

> through. It helps newbies like me alot, I'm sure. I like to know

> what I'm getting myself. Not the adventurous kind !

>

> By the way, my name is and I'm 28. I got married less than

> 2 months ago and moved to California from Eastern Canada. Quite the

> change !

>

> Bye for now,

> (actually, friends call me Tessie)

>

[Guest guest]

Welcome Tessie;

you've come to a great place for information.. I also had joined

before I was sure if I had thyca, just to ask questions when we

started poking around with the lump on my thyroid...

You will probably have an FNA. fine needle aspiration, which is a

needle biopsy on the lump, its not horrible but its not exactly fun..

my doc made me wait over a weekend, because i was going to a ball

game and he didn't want me getting excited and jumping around right

afterwards.... (like the Red Sox ever play that well...)

It will give possibly some information about the contents of the lump

but isn't always conclusive. Sometimes a thyroid uptake scan is done

to get a sense of how the lump uptakes radioactive iodine.. depending

on these tests and others your endo may run, you might or might not

have surgery - which is the much more conclusive test for thyroid

cancer...

Congrats on your marriage and move, and welcome

barb

TT 8/99 RAI 4/00 Clean Scan 12/00

endo appt 1/28/02 when we set up the next scan

more adventures in LID to come!

> Hi everyone !

>

> In usual groups, a new member is a happy moment... not sure about

> this one... lol

>

> I haven't been diagnosed with thyroid cancer yet, but I have a big

> thyroid nodule... hard with soft core and from what I've read,

there

> are some chances the mass may be malignant. I had a scan and it's

> not a cyst... (spelling... sorry about that. My mother tongue is

> French *smile*). So I thought I'd join a group now so that I can

> find questions to answer I might have down the road, if indeed it

is

> cancerous.

>

> It's been found about 3 months ago but because I was getting

married

> and moving to a new country, I had to wait to see an endo. I'm

> seeing her in a few weeks. I expect a biopsy and maybe a scan.

I'm

> not really worried about the biopsy although it's probably

> uncomfortable... just about the result *smile* I still don't have

> children and I don't even know if that's a concern I should have or

> not. So many questions... so many ifs and buts !!

>

> I look forward to reading the group's posts. I'm glad to see that

it

> is quite active and that members are honest about what they are

going

> through. It helps newbies like me alot, I'm sure. I like to know

> what I'm getting myself. Not the adventurous kind !

>

> By the way, my name is and I'm 28. I got married less

than

> 2 months ago and moved to California from Eastern Canada. Quite

the

> change !

>

> Bye for now,

> (actually, friends call me Tessie)

[Guest guest]

Bonjour Tessie~!

Welcome~! I know a wee bit of conversational French, but I slaughter the

spelling. You've come to a great place for information, as I'm sure you

are seeing already.

Knowledge is power and finding out before is a wonderful idea.

Your English is fine and don't worry about spelling. I make mistakes all

the time.

Best wishes to you in your new marriage. I am one who had a pregnancy

after thyca/hypoparathyroidism and it went well. My daughter is a healthy

30 year old and has given me two beautiful grandchildren. She was

concieved ~~ 5 1/2 years after my thyca surgery.

If it turns out that you do have thyca, it is quite an adventure, but is

manageable with good doctors and follow-up care. And you are living close

to where the next thyca conference will be in the fall of this year.

Again welcome and ask any questions that come to mind.

in Ohio

=====

Mail to: grammyDx2@...

1965 TT P/F thyca w/lymph mets,

Hypoparathyroidism

1982 RAI for neck & chest mets

09/10/01 Cean scan PTL~!

__________________________________________________

[Guest guest]

In a message dated 1/21/02 4:47:16 PM Central Standard Time,

claireoc112@... writes:

<< Start

all over again for five years! Well this year will be my last and

I'm determined it won't be back. I figure I'll probably have a scan

every 5 years or so, just to make sure and I don't think you can ever

have this thing and completely put it behind you. Welcome to the

group and I'm sure you will learn and gather strength from everyone

here.

Regards

in Australia >>

Thank you, ,

It's nice to meet you. Good luck with your scan. You're absolutely right

about not ever being able to put it totally behind us. It can come back at

any time, even 30 years down the road.

Marvel

What wisdom can you find that is greater than kindness?

Jacques Rousseau, philosopher and author (1712-1778)

" Everything that lives has value as a living thing, as one of the

manifestations of the mystery that is life. " Albert Schweitzer

[Guest guest]

Hi Marvel, sounds like what happened to me but mine was papillary

carcinoma in 1992. I had complete removal, I131 ablation and scans

each year, although I missed my 4th year. My last scan showed a

secondary and whammo, back into hospital for more ablation. Start

all over again for five years! Well this year will be my last and

I'm determined it won't be back. I figure I'll probably have a scan

every 5 years or so, just to make sure and I don't think you can ever

have this thing and completely put it behind you. Welcome to the

group and I'm sure you will learn and gather strength from everyone

here.

Regards

in Australia

> Hi, I just found this group yesterday, and I'm really glad I did.

I've been

> wishing I had somebody to talk to who understands what I've been

through and

> am going through.

>

> I was dxd with follicular and medullary thyca in 1994. I had total

> thyroidectomy and I131 ablation. Scans had been negative

afterwards. We

> missed the 5th-year scan, so did it on the 6th-year anniversary and

there was

> a recurrence, one spot, so had the I131 ablation again. It's been a

year

> since that happened. That recurrence threw me back to square 1 and

scans for

> another 5 years. I'm currently off thyroid in prep for the scan in

Feb.

>

> Marvel

> Thyroid cancer survivor

[Guest guest]

, sent me a bunch of information she has compiled which I found

extremely helpful. Perhaps she can send it to you too.

I am on low carb LID right now and am staying as far away from processed

foods as I can. I stopped soda several years ago, so it has not been a

factor. I must admit this is a lot more cooking that I am interested in

doing; but my husband is helping by using the grill as an oven.

The cytomel is helping you feel better, that is the whole point of it. As

you come down and then stop the cytomel, you may experience more physical

symptoms. I am sleeping more, not driving, have no steam. But, happily, my

head is still on tight.

You know, you can put three doctors in a room to discuss LID and get four

opinions! :-)

Helen

TT 2/02

Upcoming RAI

Bloodwork today

[Guest guest]

> Hi All, my name is . I'm 20 years old, from Santa Fe, NM. I

just had

> my thyroid removed back in mid-March. I'm on Cytomel right now, and

going to

> have my RAI in early June. I have a few questions about TSH levels

and the

> LID diet.

>

> First, about TSH, I had a blood test Monday, and my TSH came back

at 20. The

> doctor acted like I should be feeling terrible, but it's not that

bad... and

> she talked as if this is about the level my TSH needs to be at for

RAI? Is

> that true? Is this as bad as it's going to get? I've been

functioning

> normally lately... though I do find it harder to concentrate, and I

am

> mildly sleepy.

---- your TSH has to get to 30 or 50 for RAI.. but I find I really

don't feel all that bad at 30.. .some folks feel horrible, others of

us are kind of sleepy and dopey.. (and sometimes i'm more of the

seven dwarfs when hypo adding grumpy to sleepy and dopey) but some

folks feel very horrible.. the one thing about this process YMMV -

your mileage may vary...

>

> And as far as an LID diet... how do colas weigh on this diet? I

know they do

> have sodium... but I'm not sure if that's what I need to be looking

at as an

> indication of iodine content? Also... salad dressing? Do I need to

stick

> with something that is more oil based? Or can I have ranch and

such? Last

> but not least, bread. I've seen a lot of people talk of making

their own,

> but my doctor told me not to worry about the iodine in store bought

bread,

> that it wasn't a big deal?

------its Iodine not salt that is the issue, colas the issue is where

do they get their color from, red dye 3 is a no-no, as is molasses....

salad dressing - no dairy , no soy so that cuts out a lot of oils..

and ranch has dairy... bread , salt is part of making bread and if

you don't know if its iodized salt or plain, you can't trust the

bread, and some bread has iodate dough conditioners in it, so thats

why many of us make our own.. dairy, eggs, seafood have great

concentrations of iodine, and of course iodized salt.. plain salt

that isn't sea salt is fine....

good luck, check out the recipies on the thyca website

barb

tt 8/99 RAI 4/00 CLean Scan 12/00 on the LID for my 5/3 scan

>

> Any input is appreciated

>

>

[Guest guest]

-------

Hi ,

My name is Tracey and I am new to this group. I live in Melbourne Australia,

have a young family and have recently (last week) been diagnosed with Thyroid

cancer - follicular. I had 1/2 my thyroid removed about 10 days ago along with

a fairly sizable tumor, in which they found cancer.

Don't know yet what the next step of action will be as my Doc has a meeting

about it Monday and I see him Tuesday. Dread having the other side of my

thyroid removed, but if it has to be, it has to be.

Any support/advice about what I may be about to face would be really appreciate.

Thanks & regards,

Tracey

-------

Hi Tracey,

I remember when I was first diagnosed, my doctor told me that there was a 20%

chance I didn't have cancer and I would only need a partial thyroidectomy. I

kept hoping that I would be able to keep part of my thyroid. As it turns out, I

had cancer and the whole thing had to go.

Now, I can't remember why I was so worried that I would need to remove the whole

thyroid after I knew that I was going to have a partial thyroidectomy, as a

minimum. It certainly helped to read everyone's stories here and hear how normal

life can be after a total thyroidectomy even though we all have to take a pill

everyday. And life is pretty normal now. I work as hard as I always did and I

play as hard as I always did.

Just focus on making it through the surgery and any radioactive iodine

treatment. Before you know it, your life will be pretty much back to normal. Let

us know if you have any worries or questions and will try to answer them.

Betty

mailto:bettyy@...

[Guest guest]

,

Welcome to our group. I live in southern New Mexico, I live between

Mayhill and Cloudcroft.

To allow the RAI the fullest and most beneficial effects is to make your

body starved of iodine. It drink soda's which contain iodine is to cheat

yourself the full benefits of your RAI.

The diet is a bummer but you are allowed uniodized salt so life is still

good and you can eat green chili's. lol

I was diagnosed May 10, 2000 at stage three. I am 48, I have had multiple

surgeries (5) and 2 RAI's since that time. I am back in college and having

a great time so things will get better as if I can handle it I will help you

handle it. lol Together eating chili's we can win this struggle. lol

Another tip that I have learned from this list is the fact your thyroid

hormone replacement is very heat sensitive and should be treated like a

Hershey's candy bar. With our climate be sure to not keep your pills in your

car in your purse as the heat could effect your pills.

Another tip, always get a copy of all the paper work such as lab reports and

etc each time you have a test taken. I have had to coordinate much of my

care and with the paper work I was much more organized. I keep a medical

notebook and a log of all my medical expenses and records for tax purposes

as I have no insurance. Without insurance all medical charges are

negotiable.

I hope this helps you.

Your thyca sis

Gloria

Ranch

Gloria &

New Member

> Hi All, my name is . I'm 20 years old, from Santa Fe, NM. I just had

> my thyroid removed back in mid-March. I'm on Cytomel right now, and going

to

> have my RAI in early June. I have a few questions about TSH levels and

the

> LID diet.

>

> First, about TSH, I had a blood test Monday, and my TSH came back at 20.

The

> doctor acted like I should be feeling terrible, but it's not that bad...

and

> she talked as if this is about the level my TSH needs to be at for RAI? Is

> that true? Is this as bad as it's going to get? I've been functioning

> normally lately... though I do find it harder to concentrate, and I am

> mildly sleepy.

>

> And as far as an LID diet... how do colas weigh on this diet? I know they

do

> have sodium... but I'm not sure if that's what I need to be looking at as

an

> indication of iodine content? Also... salad dressing? Do I need to stick

> with something that is more oil based? Or can I have ranch and such? Last

> but not least, bread. I've seen a lot of people talk of making their own,

> but my doctor told me not to worry about the iodine in store bought bread,

> that it wasn't a big deal?

>

> Any input is appreciated

>

>

>

>

>

> For more information regarding thyroid cancer visit www.thyca.org. If you

do not wish to belong to this group, you may UNSUBSCRIBE by sending a blank

email to thyca-unsubscribe

>

>

>

[Guest guest]

Hi Carl!

Welcome to the group! Congratulations on your loss so far.

Amy

[Guest guest]

Welcome to our group, Carl. You sound like a good guy. Congrats on the weight

loss so far. You are doing great. Look forward to getting to know you.

Jeanne in WI

Age 38

Open RNY 05/21/2002

314/ 301.5 /150-175

5' 8 "

djgraves@...

[Guest guest]

Welcome Carl, I'm glad you joined this group. Boy, 96 lbs. is great

weight loss! My name is Nan and I am almost 4 weeks post op and I

have lost 30 lbs. I live in Dayton, Ohio. Post as often as you

like.

Nan in Ohio

5/13/02

Open Rny

264/230

> Carl <acdavis@c...> wrote: Hello to all,

> My name is Arthur Carl . I just joined this group

this morning. I live in Windham Ohio. I'm married, wifes name is

Connie, we have two children, Adam-17 getting ready to go to army on

Aug.6. I will miss him.. -12, getting ready to repeat 7th

grade.

> I had gastric bypass surgery on Feb.13,2002, I

weighed in lastnight at support group meeting, so far I've lost 96

lbs.. Will post more later when my back gets to feeling better.

>

> God Bless,

> Carl

>

>

>

[Guest guest]

welcome to the group Please stay around and you will learn so much and we are

glad to have you

TN

New Member

Hello to all,

My name is Arthur Carl . I just joined this group this

morning. I live in Windham Ohio. I'm married, wifes name is Connie, we have two

children, Adam-17 getting ready to go to army on Aug.6. I will miss him..

-12, getting ready to repeat 7th grade.

I had gastric bypass surgery on Feb.13,2002, I weighed in

lastnight at support group meeting, so far I've lost 96 lbs.. Will post more

later when my back gets to feeling better.

God Bless,

Carl

[Guest guest]

Carl- the first thing I suggest is that you let your wife know we are about

94% women; that being when she see's correspondence to you she does not thing

you have become an instant Romeo. #2- On a personal note- ' IT'S SO NICE TO

HAVE A MAN AROUND OUR HOUSE' AND #3- I welcome you with arms open wide to hop

on our train as we all embark at different stations but all with the same

journey and final stop in mind. Many will be getting on and off several

times; its only natural. Some will have a one way ticket from beginning to

end; some will lose their way and need to get directions. Thats why the rest

of us are here to help. is the chief engineer, followed by

vitalady who has most of the instructions for finding your path again and the

rest of us come to help via our own experience. Welcome, welcome, welcome.

My name is Joyce. Was 525. Am now 252. Lost 12 sizes as of yesterday.

Hugs

Joyce

Joyce Blavat

" People do not make a change until the pain of remaining the same is

greater than the pain of change. "

" And those who danced were thought insane by those who refused to hear the

music... "

[Guest guest]

Welcome Arline!

My 2 favorite things I brought to the hospital was chapstick and my

own robe!

I found chapstick on a rope in a sporting good store. It ended up being

helpful to tie it to the bedrails~always within reach whether I was up and

around or in bed : )

Elaine in Maine

[Guest guest]

Arline - What you are feeling is totally normal. It will all work out fine.

Where are you from? Do you have an angel? I will be out of town on the 18th,

so it can't be me, but someone might step up to the plate, so tell us a bit more

about yourself. I have a couple of lists that I will send you privately.

Jeanne in WI

Age 38

Open RNY 05/21/2002

314/ 281.5 /150-175

5' 8 "

djgraves@...

[Guest guest]

In a message dated 1/3/2003 7:46:10 PM Central Standard Time, gzet@...

writes:

> Now on Amiodarone and warfarin. I've been without

> detectable episodes for over two weeks--

> a great relief. I have two side-effects which

> bother me: morning headaches at the back of my skull,

> and some loss of fine motor coordination in my hands.

> My doc says these are " uncommon " .The more serious

> possible longterm side-effects worry me also.Of course!

> Would like to hear from others.

>

> Geri

>

>

I have been on amiodarone since April, 2002 with no problems except

sensitivity to sun light. It makes my skin sting and caused a sun alergic

reaction to my index finger and thumb which used to get constant exposure

while bike riding. I fixed that with gloves that cover the thumb and most of

the index finger. SPF 45 sunblock was fairly effective but my wife tells me

that SPF 60 is available which I will try this summer.

Many people in this group have had bad reactions to this drug and a Cleveland

Clinic cardiologist said 10 years was the max time he would keep a person on

amiodarone because of the side effects. I am 67 and am hoping for newer drugs

to come along.

Good luck

Guy

[Guest guest]

Welcome to our site. What part of Aus are you in. We have a few members out

there.

This is the most traumatic time wondering if its going to come back or wondering

what caused it. I can empathise with you.

The cardiologist has to ensure that nothing has caused this and make a

diagnosis, sometime in the very rare occasions it make be an episode only.

The tests he should do on you are.

Angogram , to make sure you pipes are disease free,

Stress teat to ensure you have no angina.

An Echo cardiogram to make sure your valves are working ok.

BP etc

It may be an idea to have a 24 hour houlter tape to see what is going on with

your heart electrically.

After that he should be able to make a diagnosis.

good luck

C

> Hello to everyone,

> I had my first episode of AF last week 1/15/03.I found it very

> unnerving.It started at 4pm after an ice-cold drink,and didn't revert

> until 0700 the next morning.Needless to say I spent the night being

> monitored in CCU.I was given 2 IV doses of amiodarone,but it seems

> that I probably would have reverted without it anyway.I am now on

> 150mg of aspirin until I see the Cardiologist in 4 weeks.My problem

> is that I'm now anxiously awaiting what may be the inevitable,my next

> episode of AF.

> I'm interested in knowing how soon after their first time did other

> listers have subsequent attacks?

> Greetings from Oz,

> Liz

>

>

>

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[Guest guest]

Hello new member!

As you can see, there are many who have Atrial Fibrillation. Some say six

million plus world wide. I congradulate you for seeking help and finding us.

A word of caution.

You will be exposed to a lot of information, opinions and conclusions. Pace

yourself.

Ask lot's of questions. There are additional resources on the WEB.

For day to day support, stay with us. There isn't a better place to be.

Members of our page are from all over the world and are there for YOU! WE

CARE ABOUT YOU!

Ellen, our founder and others,have put together an excellent library

associated with this page.

I'm hoping someone will now explain the lingo and other things you should be

aware of and prepare for. Such as " TRIGGERS, EP, DRUG THERAPHY, DIET, PVA,

MAZE and all the rest.

Your not alone, we are many!!!

Welcome

Rich O

[Guest guest]

Liz

Welcome to the world of AF. I have been in and out for a period of 10 years.

Two pieces of advise to a rookie like you. One, AF will not kill you so don't

panic and give yourself a chance to convert on your own. (most doctors say

12-16 hours before ER treatment of a blood thiner) Two, it's a long road so

plan ahead by shopping for a good EP and then get some approiate tests done to

more define you problem. Anxiety can be the worst problem and it contributes to

the AF. There are a lot of us out there so don't feel alone. Good luck,

Golfkeas new member

Hello to everyone,

I had my first episode of AF last week 1/15/03.I found it very

unnerving.It started at 4pm after an ice-cold drink,and didn't revert

until 0700 the next morning.Needless to say I spent the night being

monitored in CCU.I was given 2 IV doses of amiodarone,but it seems

that I probably would have reverted without it anyway.I am now on

150mg of aspirin until I see the Cardiologist in 4 weeks.My problem

is that I'm now anxiously awaiting what may be the inevitable,my next

episode of AF.

I'm interested in knowing how soon after their first time did other

listers have subsequent attacks?

Greetings from Oz,

Liz

[Guest guest]

Your second episode depends on so many factors it is hard to say. You might

not have another for years. I know several people who this has happened to

and they still have not had another episode. It could happen tomorrow. First

get yourself checked out for possible causes but in the meantime try to

avoid the most general triggers, alcohol, caffeine, stress (easy one huh?),

eat right and get proper rest, also try taking proper vitamins which you

will see in the posts in here.

Try to relax. Personally, the second episode for me came 4 months after my

first. The first was caused by exhaustion, caffeine, and excessive alcohol

consumption from partying for several days. A/K/A " Holiday heart " You would

think I had learned my lessons by age 48.

I'm now 51. And despite cleaning up my act I have had many more episodes

over the past 3 years. I do have to take meds but I am not as panicky about

an episode anymore. I have always converted back on my own, fortunately. My

longest episode was 30 hours just recently over the Holidays.

It is easy to say relax---that is not easy to do. I still have trouble with

the fact that during an episode I am short of breath and cannot function

normally at all and get lightheaded etc etc. But the many doctors I have

seen just try to re-assure me it is not life-threatening but they want to

try to protect me from stroke so we guard against that and pray for a cure.

Hope I helped even a little,

Bob

new member

Hello to everyone,

I had my first episode of AF last week 1/15/03.I found it very

unnerving.It started at 4pm after an ice-cold drink,and didn't revert

until 0700 the next morning.Needless to say I spent the night being

monitored in CCU.I was given 2 IV doses of amiodarone,but it seems

that I probably would have reverted without it anyway.I am now on

150mg of aspirin until I see the Cardiologist in 4 weeks.My problem

is that I'm now anxiously awaiting what may be the inevitable,my next

episode of AF.

I'm interested in knowing how soon after their first time did other

listers have subsequent attacks?

Greetings from Oz,

Liz