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Re: ANYONE with fibro - email me!

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My dr gave me a new drug for my fibro - I am seeing a rhuematologist in

about 3 weeks - but my psych is a pain specialist and gave me " NEURONTIN "

300 mg X2 at bedtime

I took it the first time last night and couldn't walk this morning - I was

so messed up! I stayed home from work and when i woke up again it was 4:30

this afternnon!!!!!!!!!!! I called his office and his nurse said to take

just one tonight. THe dosage was to take 2 every night and in 1 week take

an additional one in the mornign!

Anyone ever heard of this med or used it?

My fibro has done nothing but worsen since the surgery - I was in remission

prior to that - I am usually better in fall and winter anyway - surgery was

New Years eve 2001.

Once I get up and move for a few yards - I am ok - even if I can't bend over

well... Getting up KILLS me - this it the worse it's been since I was

diagnosed in 1995. It seems to all be in my hips and feet now - mostly my

hips... Anyone else have this problem? Feel like I am going nuts - I have

lost 110 pounds in 5 months - I should be healthier - and i am - but I feel

worseLOL - makes no sense to me! I still work out 3 times a week. any

advice?

Michele

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Hi ,

I've been taking Neurontin for a few years now for the pain in my nerve endings

and legs and this has helped tremendously.

Bev L

Re: ANYONE with fibro - email me!

My dr gave me a new drug for my fibro - I am seeing a rhuematologist in

about 3 weeks - but my psych is a pain specialist and gave me " NEURONTIN "

300 mg X2 at bedtime

I took it the first time last night and couldn't walk this morning - I was

so messed up! I stayed home from work and when i woke up again it was 4:30

this afternnon!!!!!!!!!!! I called his office and his nurse said to take

just one tonight. THe dosage was to take 2 every night and in 1 week take

an additional one in the mornign!

Anyone ever heard of this med or used it?

My fibro has done nothing but worsen since the surgery - I was in remission

prior to that - I am usually better in fall and winter anyway - surgery was

New Years eve 2001.

Once I get up and move for a few yards - I am ok - even if I can't bend over

well... Getting up KILLS me - this it the worse it's been since I was

diagnosed in 1995. It seems to all be in my hips and feet now - mostly my

hips... Anyone else have this problem? Feel like I am going nuts - I have

lost 110 pounds in 5 months - I should be healthier - and i am - but I feel

worseLOL - makes no sense to me! I still work out 3 times a week. any

advice?

Michele

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Oh Michele - I feel for you, I really really do. Unfortunately losing weight

does not cure the fibro. I don't have any experience with that medication. I

believe it may be for rhematoid arthritis, but not sure. I will pray that you

get over this soon. Are you able to exercise at all? I know how hard it is to

do when you are in pain. Take care. Don't go nuts, email me privately if you

wish.

Jeanne in WI

Age 38

Open RNY 05/21/2002

314/ 298 /150-175

5' 8 "

djgraves@...

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Hey I also take neurontin but my neurologist gave a dose of 1 cap 3 x a

day . I also went into a bad flare when I had surgery but as soon as I was back

on Neurontin ,zanaflex and senquin (sp) I was much better I suspect that you

were kinda overdosed the combination of my drugs is to get me to sleep 10-12

hours a day but I never get over 10 max if that .Feel free to e-mail me sweetie

I sure hope you feel better soon and right now the last four days I have been in

a bit of a flare but nothing like it would have been without neurontin! One

more thing after I take these meds I am out within thirty minutes

TN

Re: ANYONE with fibro - email me!

My dr gave me a new drug for my fibro - I am seeing a rhuematologist in

about 3 weeks - but my psych is a pain specialist and gave me " NEURONTIN "

300 mg X2 at bedtime

I took it the first time last night and couldn't walk this morning - I was

so messed up! I stayed home from work and when i woke up again it was 4:30

this afternnon!!!!!!!!!!! I called his office and his nurse said to take

just one tonight. THe dosage was to take 2 every night and in 1 week take

an additional one in the mornign!

Anyone ever heard of this med or used it?

My fibro has done nothing but worsen since the surgery - I was in remission

prior to that - I am usually better in fall and winter anyway - surgery was

New Years eve 2001.

Once I get up and move for a few yards - I am ok - even if I can't bend over

well... Getting up KILLS me - this it the worse it's been since I was

diagnosed in 1995. It seems to all be in my hips and feet now - mostly my

hips... Anyone else have this problem? Feel like I am going nuts - I have

lost 110 pounds in 5 months - I should be healthier - and i am - but I feel

worseLOL - makes no sense to me! I still work out 3 times a week. any

advice?

Michele

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i have fibro, gina has fibro and I believe many of us do. I take neurontin

and it has helped so much. I take 3-300 mg per day and 1-600 mg at bedtime.

It is an anti-seizure medication but works wonders with fibro. Good Luck.

Joyce

Joyce Blavat

" People do not make a change until the pain of remaining the same is

greater than the pain of change. "

" And those who danced were thought insane by those who refused to hear the

music... "

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Actually the neurontin is a seizure drug that happens to work for Fibro

Re: ANYONE with fibro - email me!

Oh Michele - I feel for you, I really really do. Unfortunately losing weight

does not cure the fibro. I don't have any experience with that medication. I

believe it may be for rhematoid arthritis, but not sure. I will pray that you

get over this soon. Are you able to exercise at all? I know how hard it is to

do when you are in pain. Take care. Don't go nuts, email me privately if you

wish.

Jeanne in WI

Age 38

Open RNY 05/21/2002

314/ 298 /150-175

5' 8 "

djgraves@...

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what is fibro. i have my done 71/2 years ago i was 525lbs i am down to 195lb

i getting ready to have the boobs done my iron was 22 they couldn't do t my

iron needs to be 36-40 i taken vit d b-12 calcium yak

michele love to hear from anyone

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Whay kind of iron?

What kind of calcium?

What kind of B12?

Thanks,

http://www.vitalady.com

For info on PayPal, click this link:

https://secure.paypal.com/affil/pal=vitalady%40bigfoot.com

Re: ANYONE with fibro - email me!

what is fibro. i have my done 71/2 years ago i was 525lbs i am down to 195lb

i getting ready to have the boobs done my iron was 22 they couldn't do t my

iron needs to be 36-40 i taken vit d b-12 calcium yak

michele love to hear from anyone

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fibro is short for fibromyalgia - a chronic pain and fatigue type syndrome, also

abbreviated as FMS. There are a lot of us here who suffer with this.

Jeanne in WI

Age 38

Open RNY 05/21/2002

314/ 298 /150-175

5' 8 "

djgraves@...

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iron spring vally (ferroussulfate325mg)65 mg

vitamin 50000iu capsule

brooks calcium 500mg 3x's a day

brooks natural vitamin b 12 1000mcg

blood count up to 29 getting there

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  • 3 weeks later...
Guest guest

I have been on Plaquenil (Hydroxychloroquine) for approx. 3 years.

It has been very helpful. In fact, I was doing so well, I tried to

take myself off and was quickly reminded why I needed it. I got to

where I was having problems in the mornings walking again. You need

to be seeing a Rheumatologist who is familar with the medication and

can monitor you. (They have to check your eyes every 6 mo. / the

drug insert says it can stain your retnas, however my eye doctor says

he has never seen a case in over 10 years). I had none of the other

side-effects that were warned either......

> fibro is short for fibromyalgia - a chronic pain and fatigue type

syndrome, also abbreviated as FMS. There are a lot of us here who

suffer with this.

>

> Jeanne in WI

> Age 38

> Open RNY 05/21/2002

> 314/ 298 /150-175

> 5' 8 "

> djgraves@c...

>

>

>

>

>

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I've taken Plaquenl for 6 yrs & had no ill effects from it, eiher.And I do get

my eyes checked

Re: ANYONE with fibro - email me!

I have been on Plaquenil (Hydroxychloroquine) for approx. 3 years.

It has been very helpful. In fact, I was doing so well, I tried to

take myself off and was quickly reminded why I needed it. I got to

where I was having problems in the mornings walking again. You need

to be seeing a Rheumatologist who is familar with the medication and

can monitor you. (They have to check your eyes every 6 mo. / the

drug insert says it can stain your retnas, however my eye doctor says

he has never seen a case in over 10 years). I had none of the other

side-effects that were warned either......

> fibro is short for fibromyalgia - a chronic pain and fatigue type

syndrome, also abbreviated as FMS. There are a lot of us here who

suffer with this.

>

> Jeanne in WI

> Age 38

> Open RNY 05/21/2002

> 314/ 298 /150-175

> 5' 8 "

> djgraves@c...

>

>

>

>

>

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here.fibro 7 years on vioxx, effexor and wellbutrin.

In Columbus, Ohio

Mom to 7 beautiful children

RNY Open 6/26/02

Weight 435.6/426.1/180 Goal

Dr. Choben, Surgeon

God is on my side!

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count me in as one of those who have fibro. joyce i take neurontin.

Joyce Blavat

" People do not make a change until the pain of remaining the same is

greater than the pain of change. "

" And those who danced were thought insane by those who refused to hear the

music... "

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Guest guest

no Vioxx post op it is too harsh on the pouch

TN

Re: ANYONE with fibro - email me!

> here.fibro 7 years on vioxx, effexor and wellbutrin.

>

> In Columbus, Ohio

> Mom to 7 beautiful children

> RNY Open 6/26/02

> Weight 435.6/426.1/180 Goal

> Dr. Choben, Surgeon

> God is on my side!

>

>

>

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Hi ,

I take Wellbutrin and I had to change from the SR to the kind that are

crushable. The SR's will sit in your pouch too long and probably not

dissolve.

in California :)

Open RNY - 03/29/02

272.5/221 - as of 06/29/02

Re: ANYONE with fibro - email me!

no Vioxx post op it is too harsh on the pouch

TN

Re: ANYONE with fibro - email me!

> here.fibro 7 years on vioxx, effexor and wellbutrin.

>

> In Columbus, Ohio

> Mom to 7 beautiful children

> RNY Open 6/26/02

> Weight 435.6/426.1/180 Goal

> Dr. Choben, Surgeon

> God is on my side!

>

>

>

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In a message dated 7/1/2002 9:31:40 PM Eastern Daylight Time,

laura39rn@... writes:

> Vioxx is an anti inflammatory and you should not be taking it after WLS. bad

>

> for the pouch.

>

>

Well, aware but since this is the med that works for me my WLS doctor and med

doc felt that since I only take a small does 1 x daily that after my percacet

ends in 2 weeks I can resume taking this with pepcid and should do fine. My

Medical Doctor and my WLS surgeon are some very smart ladies and they

researched all of this information and with the help of other colleges they

felt that I would be fine on the Vioxx with the help of pepcid. Everyone is

different as are there pouches. I researched one year and talked with 100s

of people before making this decision and I know that I did all the right

things and I know most of all my docs will not steer me in the wrong

direction. I think we all have to remember these things when giving advice.

What may not work for you, may work for another.

In Columbus, Ohio

Mom to 7 beautiful children

RNY Open 6/26/02 BTC Groveport, OHIO

Weight 435.6/426.1/180 Goal

Dr. Choben, Surgeon

God is on my side!

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Guest guest

,

I do know a few people who are taking plaquenil for arthritis, lupus,

fibro, etc.. Plaquenil is safe on our pouches but requires eye exams every 6

months..

Take care

Hugs,

from GA

open RNY 12/12/00

Revision 04/18/01

Revision 02/07/02

St wt.... 392

Cw........205

Wt loss... -187

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A lot of DR's don't realize until the damage is done .talk to mom

Re: ANYONE with fibro - email me!

> i have been take vioxx for a month for my knees please help to i call

> dr.silisks about and the affect on my pouch

>

>

>

>

>

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As long as ghey are doing frequent checks for blood in stool, you should be OK.

a few weeks cost me 4 months on huge doses of Prilosec. Cost my freind

Christmas week in the hospital being transfused, no pain at all, just massive

gastric bleed.

Re: ANYONE with fibro - email me!

In a message dated 7/1/2002 9:31:40 PM Eastern Daylight Time,

laura39rn@... writes:

> Vioxx is an anti inflammatory and you should not be taking it after WLS. bad

>

> for the pouch.

>

>

Well, aware but since this is the med that works for me my WLS doctor and med

doc felt that since I only take a small does 1 x daily that after my percacet

ends in 2 weeks I can resume taking this with pepcid and should do fine. My

Medical Doctor and my WLS surgeon are some very smart ladies and they

researched all of this information and with the help of other colleges they

felt that I would be fine on the Vioxx with the help of pepcid. Everyone is

different as are there pouches. I researched one year and talked with 100s

of people before making this decision and I know that I did all the right

things and I know most of all my docs will not steer me in the wrong

direction. I think we all have to remember these things when giving advice.

What may not work for you, may work for another.

In Columbus, Ohio

Mom to 7 beautiful children

RNY Open 6/26/02 BTC Groveport, OHIO

Weight 435.6/426.1/180 Goal

Dr. Choben, Surgeon

God is on my side!

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