Re: stretching/freezing/strength

[Guest guest]

Oh, Maggie....Just reading your msg makes me feel so not alone. I just wish

someone would please tell me how to explain all this to my spouse who still

believes my legs would cooperate if I'd exercise! Maybe so, but how can I

exercise if my legs won't behave.

I'm also loosing strength rapidly. It seems worse since I started taking

baclofen and neurontin about 6/7 months ago. But the muscle spasms are 90%

gone and that helps a lot.

Thanks, Maggie for sharing.

Bette

>

>Reply-To: PLS-FRIENDS

>To: PLS-FRIENDS

>Subject: stretching/freezing/strength

>Date: Fri, 03 Aug 2001 12:30:18 -0000

>

>Ah, that " stretch " thing! yep, I've had that since the very

>beginning. And when I've tried to explain it, everyone just looks

>oddly at me......well, I should rephrase since almost " EVERYONE "

>looks oddly at me anyways! LOL

>But, I always just stretched in my weak leg. recently my " good " leg

>has begun to stretch too.

>the freezing also happens to me. Often the weak leg will freeze up

>going down steps and then I have come close to tumbling all the way

>down. Now I know this is the 'quicker' way to get down there, but

>it's a really bumpy ride!

>I also have the strength and am very limber, but can't go anywhere

>carrying anything and I can't pull myself up from the floor......and

>recently am having trouble pulling myself out of the couch or chair.

>I seem to be losing strength rapidly now. and my balance is getting

>worse all the time..........are there drugs to help the balance

>problem?

>maggie

>

>

>

>

>

>

> > Flora, Yes, I have the same problem. I can lift but can't carry

>anything.

> > I am strong and limber but have very little balance. I went to my

>Nero

> > about a month ago and he said I am much better sense I had the pump

> > implanted. I also had a CAT scan yesterday, they did find something

>but

> > well have to wait for the Dr.s report. What ever they found is in

>the

> > front left lobe and that is my weak side. Everything about this

>diseases

> > doesn't make a lot of sense. B. Oregon

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[Guest guest]

Maggie, Yes everyone looks oddly at me too ! I just thought I would tell

you that if you go up and down the stairs side ways holding on to the

railing you are more likely to fall up the stairs than down the stairs. I

have taken that bumpy ride down the stairs more times than I want to

remember. I freeze up quite often for no special reason. Take care and

stay lose. B. Oregon

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[Guest guest]

claudia wrote:

I just thought I would tell

> you that if you go up and down the stairs side ways holding on to

the

> railing you are more likely to fall up the stairs than down the

stairs.

>>

thanks claudia....I will try this. it's such a LONG way

down. )

maggie