Guest guest Posted October 24, 2001 Report Share Posted October 24, 2001 Hi All, I would like to report on my doctor's visit yesterday regarding the changes in my EMG. The news was not great but could have been much worse. Thanks to 's article that she shared with us entitled "Does Primary Lateral Sclerosis Exist?" regarding the research study done on 20 PLS patients, it made my doctor's explanation to me much clearer. I thank for that information as I was able to understand the findings much better. My doctor told me that the changes in my EMG involved 10 different muscles, 8 of which were showing signs of ALS. The ALS signs were however classified as mild or benign. He said that some doctors would have changed my diagnosis to ALS considering these changes. He, however, does not agree with that thinking. He still considers my diagnosis to be PLS. He did say though that my PLS was progressing and did invovle lower motor neuron signs of a mild or benign nature, hence, his decision to continue with my PLS diagnosis. I will be seen in an ALS clinic (even though I don't actually have ALS) in 3 months so I can participate in a more comprehensive evaluation. At the ALS Clinic, I will be seen by my neurologist, a speech pathologist, a nutritionist, and a PT and OT person. He feels that this more comprehensive treatment will benefit me in the long run. I left his office feeling okay with his explanation and I thank for sharing the PLS article with us because it sure did make a difference to me to know that I was not alone in these findings. I wanted to share this information with all of you so you could understand that if you exhibit ALS symptoms it does not mean you have the traditional quick and deadly form of the disease. I am happy to know that I am still on the "slow track" and I intend to live my life as fully as possible. I will keep doing what I can and rest when I need to. My doctor did tell me I should continue to take vitamins C, E, Beta Carotene and he added COQ10. He said anything to keep the immune system strong would be helpful. I hope this helps those of you who are afraid of PLS turning to ALS. I think a lot of us do have ALS to some extent, only the slow type, THANK GOD!!! Take care and God bless you all. Sue Niquette Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 24, 2001 Report Share Posted October 24, 2001 Sue, Sounds like you have a really good neuro. I'm happy the PLS article was a help. Thank goodness we get to keep you as a member in our PLS group. We don't like it when PLSers jump ship! :-) All kidding aside, I'm really relieved to hear your news. It is something we do all worry about. Thanks for sharing with us. --- Gerry Niquette wrote: > Hi All, > > I would like to report on my doctor's visit > yesterday regarding the changes in my EMG. The news > was not great but could have been much worse. > Thanks to 's article that she shared with us > entitled " Does Primary Lateral Sclerosis Exist? " > regarding the research study done on 20 PLS > patients, it made my doctor's explanation to me much > clearer. I thank for that information as I > was able to understand the findings much better. My > doctor told me that the changes in my EMG involved > 10 different muscles, 8 of which were showing signs > of ALS. The ALS signs were however classified as > mild or benign. He said that some doctors would > have changed my diagnosis to ALS considering these > changes. He, however, does not agree with that > thinking. He still considers my diagnosis to be > PLS. He did say though that my PLS was progressing > and did invovle lower motor neuron signs of a mild > or benign nature, hence, his decision to continue > with my PLS diagnosis. I will be seen in an ALS > clinic (even though I don't actually have ALS) in 3 > months so I can participate in a more comprehensive > evaluation. At the ALS Clinic, I will be seen by my > neurologist, a speech pathologist, a nutritionist, > and a PT and OT person. He feels that this more > comprehensive treatment will benefit me in the long > run. I left his office feeling okay with his > explanation and I thank for sharing the PLS > article with us because it sure did make a > difference to me to know that I was not alone in > these findings. I wanted to share this information > with all of you so you could understand that if you > exhibit ALS symptoms it does not mean you have the > traditional quick and deadly form of the disease. I > am happy to know that I am still on the " slow track " > and I intend to live my life as fully as possible. > I will keep doing what I can and rest when I need > to. My doctor did tell me I should continue to take > vitamins C, E, Beta Carotene and he added COQ10. He > said anything to keep the immune system strong would > be helpful. I hope this helps those of you who are > afraid of PLS turning to ALS. I think a lot of us > do have ALS to some extent, only the slow type, > THANK GOD!!! Take care and God bless you all. > > Sue Niquette > > ===== Thomson, Solana Beach, CA www.geocities.com/mdmfoo/pls.html __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 25, 2001 Report Share Posted October 25, 2001 Sue, I think we're all relieved that your diagnosis remains PLS. I know that I am. I think that has really helped to reduce anxiety levels by publishing info about the " Does PLS Exist? " article. Now we all know that minor EMG problems are still consistent with PLS--they do not mean ALS. Any chance that you'll be at the meeting on 12/1 in Chelmsford, MA? Wishing you and Gerry well. Mark > Hi All, > > I would like to report on my doctor's visit yesterday regarding the changes in my EMG. The news was not great but could have been much worse. Thanks to 's article that she shared with us entitled " Does Primary Lateral Sclerosis Exist? " regarding the research study done on 20 PLS patients, it made my doctor's explanation to me much clearer. I thank for that information as I was able to understand the findings much better. My doctor told me that the changes in my EMG involved 10 different muscles, 8 of which were showing signs of ALS. The ALS signs were however classified as mild or benign. He said that some doctors would have changed my diagnosis to ALS considering these changes. He, however, does not agree with that thinking. He still considers my diagnosis to be PLS. He did say though that my PLS was progressing and did invovle lower motor neuron signs of a mild or benign nature, hence, his decision to continue with my PLS diagnosis. I will be seen in an ALS clinic (even though I don't actually have ALS) in 3 months so I can participate in a more comprehensive evaluation. At the ALS Clinic, I will be seen by my neurologist, a speech pathologist, a nutritionist, and a PT and OT person. He feels that this more comprehensive treatment will benefit me in the long run. I left his office feeling okay with his explanation and I thank for sharing the PLS article with us because it sure did make a difference to me to know that I was not alone in these findings. I wanted to share this information with all of you so you could understand that if you exhibit ALS symptoms it does not mean you have the traditional quick and deadly form of the disease. I am happy to know that I am still on the " slow track " and I intend to live my life as fully as possible. I will keep doing what I can and rest when I need to. My doctor did tell me I should continue to take vitamins C, E, Beta Carotene and he added COQ10. He said anything to keep the immune system strong would be helpful. I hope this helps those of you who are afraid of PLS turning to ALS. I think a lot of us do have ALS to some extent, only the slow type, THANK GOD!!! Take care and God bless you all. > > Sue Niquette Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 25, 2001 Report Share Posted October 25, 2001 Hi Sue: Thank God, that you do not have ALS. I don't pretend to understand all the medical terms that come up on this PLS Line, but I do know we have so much to be thankful for. Even though we know that this disease is going to get progressively worse in time, we have to put our faith in God, and you (like me) keep plugging along (like we did at your cabin) and continue to live the best life we can under the circumstances. Attitude is so important to our well being, no matter what our physical condition may be. So my dear friend, be well and may God bless you always. DID YOU GET " IT " YET? Rita Luv & Hugs! ************************************* Some people succeed in spite of their handicap. Others succeed because of them. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 25, 2001 Report Share Posted October 25, 2001 Mark, Thanks for your kind words regarding my EMG. I was VERY relieved also. Unfortunately, Gerry and I will not be able to attend the meeting in Chelmsford on 12/1. Maybe next time. I'm getting anxious to meet up with my old PLS buddies again and perhaps to even meet some new ones. Say hi to and the boys. Take care, Sue Re: EMG Results > Sue, > > I think we're all relieved that your diagnosis remains PLS. I know > that I am. > > I think that has really helped to reduce anxiety levels by > publishing info about the " Does PLS Exist? " article. Now we all know > that minor EMG problems are still consistent with PLS--they do not > mean ALS. > > Any chance that you'll be at the meeting on 12/1 in Chelmsford, MA? > > Wishing you and Gerry well. > > Mark > > > > Hi All, > > > > I would like to report on my doctor's visit yesterday regarding the > changes in my EMG. The news was not great but could have been much > worse. Thanks to 's article that she shared with us entitled > " Does Primary Lateral Sclerosis Exist? " regarding the research study > done on 20 PLS patients, it made my doctor's explanation to me much > clearer. I thank for that information as I was able to > understand the findings much better. My doctor told me that the > changes in my EMG involved 10 different muscles, 8 of which were > showing signs of ALS. The ALS signs were however classified as mild > or benign. He said that some doctors would have changed my diagnosis > to ALS considering these changes. He, however, does not agree with > that thinking. He still considers my diagnosis to be PLS. He did say > though that my PLS was progressing and did invovle lower motor neuron > signs of a mild or benign nature, hence, his decision to continue with > my PLS diagnosis. I will be seen in an ALS clinic (even though I > don't actually have ALS) in 3 months so I can participate in a more > comprehensive evaluation. At the ALS Clinic, I will be seen by my > neurologist, a speech pathologist, a nutritionist, and a PT and OT > person. He feels that this more comprehensive treatment will benefit > me in the long run. I left his office feeling okay with his > explanation and I thank for sharing the PLS article with us > because it sure did make a difference to me to know that I was not > alone in these findings. I wanted to share this information with all > of you so you could understand that if you exhibit ALS symptoms it > does not mean you have the traditional quick and deadly form of the > disease. I am happy to know that I am still on the " slow track " and I > intend to live my life as fully as possible. I will keep doing what I > can and rest when I need to. My doctor did tell me I should continue > to take vitamins C, E, Beta Carotene and he added COQ10. He said > anything to keep the immune system strong would be helpful. I hope > this helps those of you who are afraid of PLS turning to ALS. I think > a lot of us do have ALS to some extent, only the slow type, THANK > GOD!!! Take care and God bless you all. > > > > Sue Niquette > > > > > > Quote Link to comment Share on other sites More sharing options...
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