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De Ette,

I found out at our neuro appt today that has gained nearly 2 pounds

since he was last weighed when discharged from hospital nearly 4 weeks ago.

I was told that the way the calories were set meant their weight usually

stayed stable, until you altered their intake.

This is a bit of a worry, as we are about to increase calories by 50 per

day, by way of his 'midnight snack'. His ketones are way too high come

bedtime, and way too low by about 3 am, possibly giving rise to his night

seizures. Our dietician is away this week, and the neuro today said he

wasn't worried by the weight gain.

I am, however, his face is starting to look quite 'podgy', and I also know

his protein should be relative to his weight. The only explanation I can

think of is that he was virtually bedridden for nearly 3 weeks when in

status from the chickenpox, for one week his calorie intake was down, but in

the last two weeks it was back to the full amount courtesy of the NG tube we

ended up agreeing to to keep him in ketosis. He only really became mobile

again from the beginning of Jan.

I am now thinking I may take 25 calories away from lunch, and 25 away from

dinner to use for his midnight snack instead.

If it is not the status/non mobility episode that has caused this weight

gain, I am a bit mystified myself as to how a child can gain weight when set

a restricted calorie amount.

I was about to do a post regarding this when I saw yours. Know I have't

helped you, but will also be interested to see how many others gain weight

like this,

Hill, in NZ

weight gain

> Well, it's hard to believe it, but has been fully

> on the diet for a year now. I have to say that it's

> been difficult, but it's also been a God-send to have

> her off meds and virtually seizure-free, but for those

> darned night seizures that come and go.

>

> One thing that troubles me is that she's gained nearly

> 10 pounds this year. I know you're not supposed to

> grow much (or at least proportionally) on this diet --

> but people are always commenting, " well, the diet

> certainly has beefed her up. " She's still small for

> her age, but she's never had a year with weight gain

> like this. The dietician isn't worried, but I think

> it's an issue. She literally has dimples of fat --

> which she has never had before.

>

> I've taken it upon myself to lower calories by 50 and

> to lower the ratio to 3.4 (from 3.6) so it least

> doesn't appear to be cutting into her food so much.

> This was a tough decision -- you may remember that we

> discussed this awhile back because she was so hungry.

> Some recommended raising calories (as did my

> dietician), some recommended lowering calories. I

> ended up keeping them steady until now.

>

> At any rate, I just wanted to get your reaction and

> thoughts on what I think is a really big weight gain.

> Is it?--D

>

> __________________________________________________

>

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DeEtte,

I know how you feel. Hannah's anniversary date was the 7th

of January!! She also had a big weight gain. She gained 12 lbs. and

grew 3 " . She is tall and slender. I too thought that the kids were

supposed to just maintain, but she has to grow and so I decided not

to worry about it. Every time we take her out to Cleveland they

comment on how good she looks. Hannah started at a 3.0 ratio and 1435

calories daily and I have left it there. She is very active and in

Kindergarten this year. I wouldn't fret to much over it. At one point

I had her dietician increase her cream and reduce her fats but them

she had trouble with constipation. It always seem to be so much work

trying to stay on top of things with this diet! It can't hurt to

reduce her calories, if you think that would help, but I also think

you have to adjust her protiens and fats. Gail

> Well, it's hard to believe it, but has been fully

> on the diet for a year now. I have to say that it's

> been difficult, but it's also been a God-send to have

> her off meds and virtually seizure-free, but for those

> darned night seizures that come and go.

>

> One thing that troubles me is that she's gained nearly

> 10 pounds this year. I know you're not supposed to

> grow much (or at least proportionally) on this diet --

> but people are always commenting, " well, the diet

> certainly has beefed her up. " She's still small for

> her age, but she's never had a year with weight gain

> like this. The dietician isn't worried, but I think

> it's an issue. She literally has dimples of fat --

> which she has never had before.

>

> I've taken it upon myself to lower calories by 50 and

> to lower the ratio to 3.4 (from 3.6) so it least

> doesn't appear to be cutting into her food so much.

> This was a tough decision -- you may remember that we

> discussed this awhile back because she was so hungry.

> Some recommended raising calories (as did my

> dietician), some recommended lowering calories. I

> ended up keeping them steady until now.

>

> At any rate, I just wanted to get your reaction and

> thoughts on what I think is a really big weight gain.

> Is it?--D

>

> __________________________________________________

>

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DeEtte,

My son Tyler started the diet in May 2000 and one of

the goals was weight gain... he is a small child

anyway - as me and my husband were - but he was REALLY

underweight and they were even concerned about it.

(interesting our local ped/neuro didn't worry like I

did that it had been two years since his last weight

gain at that point!). So they put him on enough

calories given his body statistics that he was to gain

about 1/2 pound a week. After a year on the diet he

had gained 10 pounds as well, but as I said they

wanted to. He was 40 pounds at 8 years old when they

started (about 46 inches tall), and after a year he

was 48 inches and 50.5 pounds - right in the 50th

percentile I was told and where they wanted him to be.

In the past two weeks he's gotten hungry in between

snacks and meals again, so we've upped his calories

another 100 per day - divided between his three

snacks. With a little more height and probably a

growth spurt going on, the neuro nurse says he could

gain another 3 pounds to get back in the 50th

percentile.

So if she doesn't continue to gain weight, I would

say it's okay... but who knows, maybe it has something

to do with those night seizures that keep hanging

on.Everyone talks about Tyler's weight gain too, but

he really needed it.

Hope this helps!

Sheri

--- DeEtte Person wrote:

> Well, it's hard to believe it, but has been

> fully

> on the diet for a year now. I have to say that it's

> been difficult, but it's also been a God-send to

> have

> her off meds and virtually seizure-free, but for

> those

> darned night seizures that come and go.

>

> One thing that troubles me is that she's gained

> nearly

> 10 pounds this year. I know you're not supposed to

> grow much (or at least proportionally) on this diet

> --

> but people are always commenting, " well, the diet

> certainly has beefed her up. " She's still small for

> her age, but she's never had a year with weight gain

> like this. The dietician isn't worried, but I think

> it's an issue. She literally has dimples of fat --

> which she has never had before.

>

> I've taken it upon myself to lower calories by 50

> and

> to lower the ratio to 3.4 (from 3.6) so it least

> doesn't appear to be cutting into her food so much.

> This was a tough decision -- you may remember that

> we

> discussed this awhile back because she was so

> hungry.

> Some recommended raising calories (as did my

> dietician), some recommended lowering calories. I

> ended up keeping them steady until now.

>

> At any rate, I just wanted to get your reaction and

> thoughts on what I think is a really big weight

> gain.

> Is it?--D

>

> __________________________________________________

>

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On Wed, 23 Jan 2002 21:00:39 -0800 (PST) DeEtte Person writes:

One thing that troubles me is that she's gained nearly10 pounds this year. I know you're not supposed togrow much (or at least proportionally) on this diet --but people are always commenting, "well, the dietcertainly has beefed her up." She's still small forher age, but she's never had a year with weight gainlike this. The dietician isn't worried, but I thinkit's an issue. She literally has dimples of fat --which she has never had before.

D..

has been on the diet for almost 5 years now. When he started the

diet he was 5' 3" and 195 pounds...gained alot of weight from Depacrap!

we had some problems adjusting his calories and I added the digestive

enzymes....and long story short he lost weight to 170 pounds. With

adequate protein hes grown to 5'9"!!!! so he grew 6 inches and lost 25

pounds!! He looks great!!! I hate it when I read that these

kids are not supposta grow!!! I think its because most kids whos numbers

I go over have not been given adequate protein!!

has she grown in height?? How much protein is she getting??

Barb...s mom

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  • 6 years later...

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