Guest guest Posted January 2, 2002 Report Share Posted January 2, 2002 , You probably have the spinal headache that is caused when a small amount of the spinal fluid is leaking from the area the tubing is inserted. It will stop leaking on it's own, but it can take a long time. My doctor insisted I have the patch to fix the leak prior to letting me leave the hospital. You might want to ask about the patch. I couldn't hold any food down until after the patch. The draw blood from your arm and inject it into the thecal area. The blood then clots and plugs the leak. Pretty tricky, huh! The recovery from the surgery is not an easy one (in my opinion) but it is much easier to get through without that horrid headache! Hope you have great results from the pump. I'm happy your trial was a success. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 2, 2002 Report Share Posted January 2, 2002 Sounds like a spinal headache- several of us had a blood patch that cured everything quickly. Lavon At 09:24 PM 01/01/2002 -0700, you wrote: and Friends, Test dose of Baclofen was like a honeymoon. Surgery for pump was 12/28. I came home yesterday, not because I felt better, but because I was sick of being in the hospital. I am very weak and have little appetite. Sleep all the time. I have a headache when I'm up. Have any of you experienced any of this? in Phoenix Chat with friends online, try MSN Messenger: Click Here Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 2, 2002 Report Share Posted January 2, 2002 Hi! , I had my pump put in last Dec. and my experience wasn't good. It took a lot out of me and rest is the very best you can do for yourself. It takes a lot longer to recoup than it did before PLS. The head aches could be spinal head aches and you should call your Dr. to see about a spinal patch. They work right away because I had one after my daughter was born. I had to have surgery for my pump in February and I had spinal head aches both times but the Dr.s refused to do a spinal patch so I just had to stay down and wait it out. PLEASE call your DR. it only take a few minutes to have the patch done and you shouldn't have to suffer with the head aches. My baclofen test was like a vacation also. I haven't been able to get to that point with the pump yet but I am so grateful for pump because I know I wouldn't be walking at all (I use the word walking loosely) with out it. It also helps with the pain, every time I have my pump increased I take less pain meds. . You take care and rest it does get better it just takes time. The people on this web site kept me going. Their encouragement and prayers keep me going still. God Bless, B. Oregon ________________________________________________________________ GET INTERNET ACCESS FROM JUNO! Juno offers FREE or PREMIUM Internet access for less! Join Juno today! For your FREE software, visit: http://dl.www.juno.com/get/web/. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 2, 2002 Report Share Posted January 2, 2002 , You will hear from many people who have experienced the same problem. will be able to fill you in if she gets a chance and Roy s will have some comments, too. I have not had an experience with the pump, but have had two experiences with spinal fluid and headaches. They really hurt and kept me on my back or lower than 30 degrees elevation of head. Hope you feel better soon and can begin to enjoy this wonderful new year. Mike Gray Logansport IN "K. Wisehart" wrote: and Friends, Test dose of Baclofen was like a honeymoon. Surgery for pump was 12/28. I came home yesterday, not because I felt better, but because I was sick of being in the hospital. I am very weak and have little appetite. Sleep all the time. I have a headache when I'm up. Have any of you experienced any of this? in Phoenix Chat with friends online, try MSN Messenger: Click Here Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 3, 2002 Report Share Posted January 3, 2002 I agree with most comments re: the blood patch. When I was undergoing the various tests to "rule out" other diseases, I had a lumbar puncture aka a spinal tap. The doctor had me lay down for about 4 hours after the procedure and sent me home. After a short while, the spinal headache began and I tried to soldier through it for 2 days. Once the pain got too great, I had the blood patch done and I was feeling better within minutes (literally) . I wanted to hug every person involved in arranging the patch.....registration clerk, lab tech, nurse, the doc. Oh what a relief it was! To all who are "suffering" through the headache......don't fool yourself or try to be a "tough guy".....get the blood patch and minimize your agony and that of your caregiver. (DE) Re: Home from Hospital Sounds like a spinal headache- several of us had a blood patch that cured everything quickly. LavonAt 09:24 PM 01/01/2002 -0700, you wrote: and Friends, Test dose of Baclofen was like a honeymoon. Surgery for pump was 12/28. I came home yesterday, not because I felt better, but because I was sick of being in the hospital. I am very weak and have little appetite. Sleep all the time. I have a headache when I'm up. Have any of you experienced any of this? in Phoenix Chat with friends online, try MSN Messenger: Click Here Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 14, 2003 Report Share Posted October 14, 2003 I am new to the group, my mom had a mastectomy 2 weeks ago.What type of surgery did you have? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 15, 2003 Report Share Posted October 15, 2003 I had a mastectomy on May 1st and had no cancer in the nodes. I did not need radiation but am on Tamoxifen for the next five years. My cancer was ductal carcinoma in situ and was found all over my left breast. I also had problems after my mastectomy. I came down with an infection and fluid in my reconstructed breast. I was re-hospitalized and I got a lot of great support and TLC from my doctors and nurses. It really helped. It also really helped to rest totally after I got home an let people take care of me. My positive thought for you and your mom. You are terrific. Kimbell My mom wasn't offered chemo, is that a usual passage after mastectomy? She was told she would be put on tamoxifen only. For the last 2 years during her annual mammogram a cyst had been found but they did needle biopsy and because the fluid was clear they never checked it out any further. It was 9 months ago she had one and after a repeat they said it was all good .So she went back in Aug and went through the routine of 2 mammograms and then they ordered a ultrasound , and repeated it . The doc suggested a lumpectomy to get rid of the cyst because it was causing her pain. On Sept 4th 2003 we got the news that the cyst was cancer. It was a very small mass with no cancer in the margins. She was offered radiation or mastectomy but was told radiation on your left side by your heart could cause heart problems later on. Mom opted for a mastectomy. It was done on Sept 29, a radical mastectomy. The results was that she was cancer free, none in the breast tissue and none in her lymph nodes. The drainage tubes were taken out 5 days after surgery . the following Thursday she had to have fluid drained from the site , a lot had accumulated but the doc said that was normal. Well 4 days later, which was yesterday she was in such pain and I had to rush her to the ER. they drained mass amounts of fluid from the mastectomy site and packed it.She had the chills also so they kept her.Also her oxygen level in her blood is low.She is there now, in the hospital and she is being taken care of well. She is 69 years old. I cant begin to tell you all how grateful I am for you guys. I so needed someone to talk to and have someone listen to me .i have been her caregiver and I am about wiped out from it but I must go on, because she is my mom Debbie Quote Link to comment Share on other sites More sharing options...
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