Re: No hypo WBS? Stimulated Test? Thyrogin Injections? What are these?

[Guest guest]

Based on the genzyme site - Thyrogen is to be used for scanning in

patients with an undetectable TG (thyroglobuline) level when

supressed. Usually folks have a Thyrogen scan after 1 or 2 clean

scans the traditional hypo way... Thyrogen missed 16% of the

remnants of thyroid tissue and 24% of the metatastic disease found by

traditional methods in the clinical trials - Its typically used as

one of many tools, once there has been a clean scan. The use for

ablation is really quite new - and not yet FDA approved according to

thyroid manager.org -- the genzyme site indicates it has an orphan

drug designation for ablation and is doing trials

i think there was someone (maybe a few folks) who did have ablation

using thyrogen - if yes, pipe up...

http://www.thyroidmanager.org/Chapter18/18-ablat.htm has a great

chart of the process of testing and ablation and scanning

the LID doesn't need a doctor's orders to follow - its on

www.thyca.org, it doesn't hurt, doesn't require a prescription, and

its something you can do for yourself to help increase the accuracy

of a scan and improve the results of ablation

barb

TT 8/99 RAI 4/00 Clean Scan 12/00

> Hi all and I hope someone can answer this one. I had a TT and was

> diagnosed with Papillary cancer on 7 Jan 02. I was then started

> on .05 mg of synthorid which was later raised to .1 mg. I have had

> no ablation or anything to this point. I just today saw my ENDO

for

> the first time and he said that we would do the scan in the next

> couple of weeks and the ablation right after. Here is the deal:

He

> said that instead of taking me off the synthroid and making me go

> hypo that we would do a stimulated test. I will go in on Monday

and

> get a shot of thyrogin, repeat this on Tuesday, be given a scan

dose

> of R131 on Wednesday after lab work was drawn, scan on Thursday,

> repeat on Friday and then be given the ablation dose on Friday with

a

> 3 day hospital stay to follow.

>

> Has anyone else done this? Is it acurate from what everyone knows.

I

> asked about LID and he said there would be none...wow my head is

> spinning and I am not even hypo. PLEASE HELP if you can.

>

> Larry

> papillary cancer 7 Jan 02

> pappy3403@a...