Guest guest Posted January 11, 2002 Report Share Posted January 11, 2002 Seema, There are alot of similarities in our stories, including the dysbiosis I also had 2 bacteria elevated and no lacto a little yeast, no e. coli. They also gave me a sensitivity report and it showed that all were treatable with caprylic acid. I haven't noticed alot of change as of yet but I am hoping this will get rid of the rectal burning, my estrogen is also low so I am trying the estrace and going for the second visit to the endo doc thurs. I have recently started to have what feels like a sun burn across my bottom right about where my clothes touch me. I tried taking lacto and had a huge flare so I quit affraid of yet another imbalance. What exactly does the grapeseed do?? and that estrogen is alright it is just a weaker form and will take longer probley. Daphne Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 11, 2002 Report Share Posted January 11, 2002 Hey Seema- Wow, lots going on. I'm so glad the grapeseed extract had such good results for you. As far as the lactobacillus/steroid dilemma, I don't know what I'd do I guess I don't know enough about lactobacillus. One thing to help with your decision is this- which of the treatments is reversible? That is, if you do the lactobacillus supplements, when would you be able to tell if they weren't working? Could taking too much lactobacillus hurt you, and if so, how? Could it be fixed? And the same questions about the steroid- if it doesn't work, coudl you do something else? I dance too- I stopped dancing full time this year when I got a full time job- and that's when I started having vaginal problems. I was absolutely fine until I had a big body/lifestyle change, going from being extremely active to sitting at a desk and dealing with office stress. Taking dance classes regularly has actually helped me to heal, whether by relieving stress, or using the pelvic muscles again, getting blood flowing, whatever- probably everything together. I'm sure having such horrible body feelings makes you want to just crash into bed, but I don't think you should give up dancing. Even if all you can handle is some stretching, port de bras, whatever, I know it will help you connect with your body and feel a lot better. Hang in there! Misty Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 11, 2002 Report Share Posted January 11, 2002 Seema, Yes I started on the bc pill got a uti took an antibiotic and started having burning after sex, got the whole yeast treatment ,discharge same as you basically. Then I got pregnant and had to leave the medicines alone and finally got a little better. I took lacto orally for about 2 weeks had a big flare and I quit. I have been using estrace for a month and am reluctant to say it is working rather say I have had quite a few good days this month and no burning after sex,the day to day burning is up and down still and the rectal burning is good right now although it may return. I am takling the caprylic acid everyday for the disbyosis. I know alot about the allergy testing I went all the way to California for the hormone testing some is transdermal some is under the tongue. they give you a shot or a dose and wait for a reaction, basically the same as the food allergy tests. they use drops to desensitize you to what ever you are allergic to. No an allergy isn't the same as a deficiency although one can trigger the other I guess?? I had no reactions except slightly to cortisol. I am seeing an endocrinologist, he is testing my cortisol levels as well as reading my past estrogen results trying to find out what isn't functioning properly. although cortisol can cause immune system problems usually caused by constant stress. who has that ???not a 34 year old women with 3 children going through a divorce falling in love with my prince charming and ending up pregnant before my divorce is final, having a baby,raising a step son ,getting remarried buying a house AND trying to deal with constant pain?????????? LOL anyways I will let you know what I find out thursday. I'll have to get some grapeseed what the hell??? do you have constant vulvar pain?? mine seems to be very up and down all over the board can be red and irritated or look normal and sting. the discharge is still weird I don't have pain on contact more like if you touch or put soap or something on a scrape. keep in touch, Daphne Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 11, 2002 Report Share Posted January 11, 2002 Daphne, Wow - it does sound really similar to me!! Did yours start after an antibiotic as well? Sorry - I don't mean to be excited, but I have not met anyone yet who has had a similar case to me. I don't know if grapeseed will help you since you don't have food allergies. I think it serves many functions - for me, it acted like an antihistamine and controlled the allergic reaction. It also has mild antifungal properties. It's basically a powerful antioxidant. My neighbor also uses it as her daughter is an MD and she feels that everyone should take 1 a day. Are you taking oral lactobacillus or inserting it vaginally? When you say endo doc, is that endocrinologist or endometriosis? As far as the rectal burning for me, I think it may have decreased a bit - it's hard to tell since most of my pain is now coming from the hemorrhoid I have which became so enlarged after they performed a lower GI test on me (painful!!!). I hope you get better soon! Do you know about hormone allergies - how do they test that - I don't really understand the difference between a hormone allergy and imbalance and if the treatments are different? Seema > Seema, > There are alot of similarities in our stories, including the dysbiosis I > also had 2 bacteria elevated and no lacto a little yeast, no e. coli. They > also gave me a sensitivity report and it showed that all were treatable with > caprylic acid. I haven't noticed alot of change as of yet but I am hoping > this will get rid of the rectal burning, my estrogen is also low so I am > trying the estrace and going for the second visit to the endo doc thurs. I > have recently started to have what feels like a sun burn across my bottom > right about where my clothes touch me. I tried taking lacto and had a huge > flare so I quit affraid of yet another imbalance. > What exactly does the grapeseed do?? and that estrogen is alright it is > just a weaker form and will take longer probley. > Daphne Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 11, 2002 Report Share Posted January 11, 2002 Do you mean grapeFRUIT seed extract? Grapeseed extract is an anti-oxidant whereas grapefruit seed extract is both an anti-fungal and a mild anti-bacterial. My own vv began about 20 years ago with repeated anti-biotic use (or abuse). But my situation is complicated by a diagnosis of interstitial cystitis and fibromyalgia. I also have an inabliity to process and excrete excess oxalates. in MI > Daphne, > Wow - it does sound really similar to me!! Did yours start after an > antibiotic as well? Sorry - I don't mean to be excited, but I have > not met anyone yet who has had a similar case to me. I don't know if > grapeseed will help you since you don't have food allergies. I think > it serves many functions - for me, it acted like an antihistamine and > controlled the allergic reaction. It also has mild antifungal > properties. It's basically a powerful antioxidant. My neighbor > also uses it as her daughter is an MD and she feels that everyone > should take 1 a day. Are you taking oral lactobacillus or inserting > it vaginally? When you say endo doc, is that endocrinologist or > endometriosis? As far as the rectal burning for me, I think it may > have decreased a bit - it's hard to tell since most of my pain is now > coming from the hemorrhoid I have which became so enlarged after they > performed a lower GI test on me (painful!!!). I hope you get better > soon! Do you know about hormone allergies - how do they test that - I > don't really understand the difference between a hormone allergy and > imbalance and if the treatments are different? > > Seema > > > > Seema, > > There are alot of similarities in our stories, including the > dysbiosis I > > also had 2 bacteria elevated and no lacto a little yeast, no e. > coli. They > > also gave me a sensitivity report and it showed that all were > treatable with > > caprylic acid. I haven't noticed alot of change as of yet but I am > hoping > > this will get rid of the rectal burning, my estrogen is also low so > I am > > trying the estrace and going for the second visit to the endo doc > thurs. I > > have recently started to have what feels like a sun burn across my > bottom > > right about where my clothes touch me. I tried taking lacto and had > a huge > > flare so I quit affraid of yet another imbalance. > > What exactly does the grapeseed do?? and that estrogen is alright > it is > > just a weaker form and will take longer probley. > > Daphne > > > > *****END OF MESSAGE***** > ------------------------------------------------- > To post message: VulvarDisorders > To Subscribe: VulvarDisorders-subscribe > Unsubscribe: VulvarDisorders-unsubscribe > List owner: VulvarDisorders-owner > > ***** Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 12, 2002 Report Share Posted January 12, 2002 > Hi everyone, > I wanted to give a full update on me as I am seeking your advice. > Just to give some background, in November of 2000 - I had a UTI. > After taking the antibiotics, I developed some vaginal soreness which > the doctor thought was a yeast infection. After taking the Monistat, > things got much worse!! 3 weeks later, I developed a discharge. A > month later, I started to have rectal pain as well as burning in the > toes and hands. Then, a few months after that, abdominal soreness. > I've been seeing Dr. for almost a year - the discharge has been > reduced after taking the Anusol steroids, although I'm now wondering > if that's just a cover-up and not a cure. I'm going to start tapering > down now to 1/2 suppository every night. 4 months ago, I started > getting burning sensations all over my body. I went to an internist > who did a CAT scan, an EMG, blood tests. All normal, so she diagnosed > me with fibromyalgia. After doing a little research, I thought I'd try > grapeseed extract. Have you been checked for Diabetes? Many of the symptoms you have are suggestive of diabetes. What about perimenopause?? Low or estrogen imbalance can cause that burning feeling all over as it dries out your skin (also makes the vulva burn and anal skin burn) as well as no lacto, UTI's, vaginal pH too high letting bacteria set in etc. http://www.oxford.net/~tishy/33signs.html This has some of the symptoms listed. I would avoid steroids (just my opinion) as you can always do that for last resort. Steroids will induce all kinds of problems---- diabetes, high blood pressure, yeast, chronic infections. I realize it is injected under the skin only so you are less likely to have that but I would try another approach if possible first then use steroids as last resort before surgery. Lynn Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 12, 2002 Report Share Posted January 12, 2002 Why not go with the naturopath first and give that a try. Since the trouble started after taking antibiotics the naturopath might be on the right track. I know Dr has a good reputation but naturopaths are trained to restore the body in a more natural way. After a reasonable amount of time, you can always go to Dr. . Just my thought. Kathy --- seema_sura wrote: > Hi everyone, > I wanted to give a full update on me as I am > seeking your advice. > Just to give some background, in November of 2000 - > I had a UTI. > After taking the antibiotics, I developed some > vaginal soreness which > the doctor thought was a yeast infection. After > taking the Monistat, > things got much worse!! 3 weeks later, I developed > a discharge. A > month later, I started to have rectal pain as well > as burning in the > toes and hands. Then, a few months after that, > abdominal soreness. > I've been seeing Dr. for almost a year - the > discharge has been > reduced after taking the Anusol steroids, although > I'm now wondering > if that's just a cover-up and not a cure. I'm going > to start tapering > down now to 1/2 suppository every night. 4 months > ago, I started > getting burning sensations all over my body. I went > to an internist > who did a CAT scan, an EMG, blood tests. All > normal, so she diagnosed > me with fibromyalgia. After doing a little research, > I thought I'd try > grapeseed extract. The burning sensations in my > body all stopped > after heavy use of the grapeseed extract. I went to > another doctor > who did a stool culture test, urine test, and a food > allergy test. > The stool culture came back with elevated amounts of > 2 bacteria plus > mildly elevated amounts of a fungus and no > lactobacillus growth. The > food allergy test came back with allergy to wheat, > milk, garlic, > almonds, rye, and beef. The doctor said I developed > these allergies > due to the lack of lactobacillus and feels these > allergies will go > away after the lacto has been restored and that I > don't have > fibromyalgia. Then, I had both an upper GI and a > lower GI done to > rule out anything like colitis - those came back > normal. I can't say > I'm feeling that much better now after over a month > of lactobacillus > supplementation and food allergy treatment. I think > the food allergy > caused the burning but I controlled that with the > grapeseed, so it > didn't really bother me. The stomach pain has been > reduced only > slightly, not significantly for sure! A couple of > days I've had > well-formed stool. Not that many days though - I > was never > constipated or anything like that and I have one > bowel movement a day > - it's just that I feel the stool is too soft (sorry > for being so > gross!). > So I talked to Dr. and he feels maybe the > steroid injection > will help. But I also talked to a naturopath who > feels like these > problems are all resulting from an imbalance of > lactobacillus. I > asked her if I can insert lacto capsule and she told > me to do this 3 > times a week. She said the hemorrhoid that I have > was probably also > caused by the lack of lacto - she said you don't > necessarily have to > be constipated to get a hemorrhoid - sometimes if > you have overgrowth > of other bacteria, it can cause infection/rectal > inflammation causing > hemorrhoids to develop. She does not believe > steroids are the answer, > but more of a suppressor of symptoms. I know that > it is my decision, > but I would appreciate your input into this. I > don't know whether to > continue with , as he is so well-recognized or > go with the > naturopath. I'm so tired of dealing with this in my > life - I feel > like I've lost everything. The most important thing > in my life is > dancing, and this is the first year in over 16 years > that I have not > been able to dance and am missing it greatly. I > miss being intimate > with my boyfriend and horribly afraid I won't be > able to have children > and live my life again. Does anyone know whether > they feel maybe I > should go to the naturopath. I know the naturopath > does not like > Estrace cream, but she likes estriol better. She > also told me my pap > came back and it said normal, but low estrogen. I > did not have that > before all this started. Thank you and I don't know > if this makes > sense. > > Seema > > __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 12, 2002 Report Share Posted January 12, 2002 Seema, You mentioned you had blood work, and other tests done, so I assume you were checked for diabetes or MS. Both of these could cause the burning in the hands and feet. Diabetes also makes one more prone to yeast infections. I think that the doctor that told you that your problems and food allergies are aggravated by your lack of lactobacillus is on the right tact. I know that whenever I have been able to get my lacto levels back up to normal I have always felt much better all over in general. I have also noticed that my body tolerates more foods when this is the case. It makes sense to me, but then I am not the doctor. Bunny Need Advice Hi everyone, I wanted to give a full update on me as I am seeking your advice. Just to give some background, in November of 2000 - I had a UTI. After taking the antibiotics, I developed some vaginal soreness which the doctor thought was a yeast infection. After taking the Monistat, things got much worse!! 3 weeks later, I developed a discharge. A month later, I started to have rectal pain as well as burning in the toes and hands. Then, a few months after that, abdominal soreness. I've been seeing Dr. for almost a year - the discharge has been reduced after taking the Anusol steroids, although I'm now wondering if that's just a cover-up and not a cure. I'm going to start tapering down now to 1/2 suppository every night. 4 months ago, I started getting burning sensations all over my body. I went to an internist who did a CAT scan, an EMG, blood tests. All normal, so she diagnosed me with fibromyalgia. After doing a little research, I thought I'd try grapeseed extract. The burning sensations in my body all stopped after heavy use of the grapeseed extract. I went to another doctor who did a stool culture test, urine test, and a food allergy test. The stool culture came back with elevated amounts of 2 bacteria plus mildly elevated amounts of a fungus and no lactobacillus growth. The food allergy test came back with allergy to wheat, milk, garlic, almonds, rye, and beef. The doctor said I developed these allergies due to the lack of lactobacillus and feels these allergies will go away after the lacto has been restored and that I don't have fibromyalgia. Then, I had both an upper GI and a lower GI done to rule out anything like colitis - those came back normal. I can't say I'm feeling that much better now after over a month of lactobacillus supplementation and food allergy treatment. I think the food allergy caused the burning but I controlled that with the grapeseed, so it didn't really bother me. The stomach pain has been reduced only slightly, not significantly for sure! A couple of days I've had well-formed stool. Not that many days though - I was never constipated or anything like that and I have one bowel movement a day - it's just that I feel the stool is too soft (sorry for being so gross!). So I talked to Dr. and he feels maybe the steroid injection will help. But I also talked to a naturopath who feels like these problems are all resulting from an imbalance of lactobacillus. I asked her if I can insert lacto capsule and she told me to do this 3 times a week. She said the hemorrhoid that I have was probably also caused by the lack of lacto - she said you don't necessarily have to be constipated to get a hemorrhoid - sometimes if you have overgrowth of other bacteria, it can cause infection/rectal inflammation causing hemorrhoids to develop. She does not believe steroids are the answer, but more of a suppressor of symptoms. I know that it is my decision, but I would appreciate your input into this. I don't know whether to continue with , as he is so well-recognized or go with the naturopath. I'm so tired of dealing with this in my life - I feel like I've lost everything. The most important thing in my life is dancing, and this is the first year in over 16 years that I have not been able to dance and am missing it greatly. I miss being intimate with my boyfriend and horribly afraid I won't be able to have children and live my life again. Does anyone know whether they feel maybe I should go to the naturopath. I know the naturopath does not like Estrace cream, but she likes estriol better. She also told me my pap came back and it said normal, but low estrogen. I did not have that before all this started. Thank you and I don't know if this makes sense. Seema*****END OF MESSAGE*****-------------------------------------------------To post message: VulvarDisorders To Subscribe: VulvarDisorders-subscribe Unsubscribe: VulvarDisorders-unsubscribe List owner: VulvarDisorders-owner ***** Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 14, 2002 Report Share Posted January 14, 2002 Hi Lynn, Thanks for your response. Ya, I've been checked for diabetes and they did hormonal tests - only free testosterone is high. Estradiol is 41 (normal is 30 - 400) so I guess it is low end of normal. I think I have been through almost every test that is out there!!! I even had my B12 checked, thyroid, folate levels, autoimmune diseases, the works. I will go see the naturopath on Thursday. I am so anxious to get rid of this stupid disease!! Seema > > Have you been checked for Diabetes? Many of the symptoms you have > are suggestive of diabetes. What about perimenopause?? Low or > estrogen imbalance can cause that burning feeling all over as it > dries out your skin (also makes the vulva burn and anal skin burn) as > well as no lacto, UTI's, vaginal pH too high letting bacteria set in > etc. > http://www.oxford.net/~tishy/33signs.html > This has some of the symptoms listed. > > I would avoid steroids (just my opinion) as you can always do that > for last resort. Steroids will induce all kinds of problems---- > diabetes, high blood pressure, yeast, chronic infections. I realize > it is injected under the skin only so you are less likely to have > that but I would try another approach if possible first then use > steroids as last resort before surgery. > > Lynn Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 14, 2002 Report Share Posted January 14, 2002 Hi , Thanks for your advice. By the way, after you were able to get your lacto levels normal, were you able to eat what you wanted to again or did you have to slowly reintroduce your food? That gives me some hope because there is no way in hell I could do this diet forever. 35 days and I'm going crazy here! Ya, I was checked for both diabetes and MS (negative for those!). I am glad you are doing so much better - I was going to tell you since you had that problem with yeast, but since you're doing better, you won't need this advice. I heard that taking a few drops of oregano oil every day also helps prevent yeast infections. Lots of continued success for you! Seema > Seema, > > You mentioned you had blood work, and other tests done, so I assume you were checked for diabetes or MS. Both of these could cause the burning in the hands and feet. Diabetes also makes one more prone to yeast infections. > > I think that the doctor that told you that your problems and food allergies are aggravated by your lack of lactobacillus is on the right tact. I know that whenever I have been able to get my lacto levels back up to normal I have always felt much better all over in general. I have also noticed that my body tolerates more foods when this is the case. It makes sense to me, but then I am not the doctor. > > Bunny > > Need Advice > > Hi everyone, > I wanted to give a full update on me as I am seeking your advice. > Just to give some background, in November of 2000 - I had a UTI. > After taking the antibiotics, I developed some vaginal soreness which > the doctor thought was a yeast infection. After taking the Monistat, > things got much worse!! 3 weeks later, I developed a discharge. A > month later, I started to have rectal pain as well as burning in the > toes and hands. Then, a few months after that, abdominal soreness. > I've been seeing Dr. for almost a year - the discharge has been > reduced after taking the Anusol steroids, although I'm now wondering > if that's just a cover-up and not a cure. I'm going to start tapering > down now to 1/2 suppository every night. 4 months ago, I started > getting burning sensations all over my body. I went to an internist > who did a CAT scan, an EMG, blood tests. All normal, so she diagnosed > me with fibromyalgia. After doing a little research, I thought I'd try > grapeseed extract. The burning sensations in my body all stopped > after heavy use of the grapeseed extract. I went to another doctor > who did a stool culture test, urine test, and a food allergy test. > The stool culture came back with elevated amounts of 2 bacteria plus > mildly elevated amounts of a fungus and no lactobacillus growth. The > food allergy test came back with allergy to wheat, milk, garlic, > almonds, rye, and beef. The doctor said I developed these allergies > due to the lack of lactobacillus and feels these allergies will go > away after the lacto has been restored and that I don't have > fibromyalgia. Then, I had both an upper GI and a lower GI done to > rule out anything like colitis - those came back normal. I can't say > I'm feeling that much better now after over a month of lactobacillus > supplementation and food allergy treatment. I think the food allergy > caused the burning but I controlled that with the grapeseed, so it > didn't really bother me. The stomach pain has been reduced only > slightly, not significantly for sure! A couple of days I've had > well-formed stool. Not that many days though - I was never > constipated or anything like that and I have one bowel movement a day > - it's just that I feel the stool is too soft (sorry for being so > gross!). > So I talked to Dr. and he feels maybe the steroid injection > will help. But I also talked to a naturopath who feels like these > problems are all resulting from an imbalance of lactobacillus. I > asked her if I can insert lacto capsule and she told me to do this 3 > times a week. She said the hemorrhoid that I have was probably also > caused by the lack of lacto - she said you don't necessarily have to > be constipated to get a hemorrhoid - sometimes if you have overgrowth > of other bacteria, it can cause infection/rectal inflammation causing > hemorrhoids to develop. She does not believe steroids are the answer, > but more of a suppressor of symptoms. I know that it is my decision, > but I would appreciate your input into this. I don't know whether to > continue with , as he is so well-recognized or go with the > naturopath. I'm so tired of dealing with this in my life - I feel > like I've lost everything. The most important thing in my life is > dancing, and this is the first year in over 16 years that I have not > been able to dance and am missing it greatly. I miss being intimate > with my boyfriend and horribly afraid I won't be able to have children > and live my life again. Does anyone know whether they feel maybe I > should go to the naturopath. I know the naturopath does not like > Estrace cream, but she likes estriol better. She also told me my pap > came back and it said normal, but low estrogen. I did not have that > before all this started. Thank you and I don't know if this makes > sense. > > Seema > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 14, 2002 Report Share Posted January 14, 2002 Where does one get the grapeseed. Is it in pill form? > >Reply-To: VulvarDisorders >To: VulvarDisorders >Subject: Re: Need Advice >Date: Fri, 11 Jan 2002 20:33:05 -0000 > >Daphne, > Wow - it does sound really similar to me!! Did yours start after an >antibiotic as well? Sorry - I don't mean to be excited, but I have >not met anyone yet who has had a similar case to me. I don't know if >grapeseed will help you since you don't have food allergies. I think >it serves many functions - for me, it acted like an antihistamine and >controlled the allergic reaction. It also has mild antifungal >properties. It's basically a powerful antioxidant. My neighbor >also uses it as her daughter is an MD and she feels that everyone >should take 1 a day. Are you taking oral lactobacillus or inserting >it vaginally? When you say endo doc, is that endocrinologist or >endometriosis? As far as the rectal burning for me, I think it may >have decreased a bit - it's hard to tell since most of my pain is now >coming from the hemorrhoid I have which became so enlarged after they >performed a lower GI test on me (painful!!!). I hope you get better >soon! Do you know about hormone allergies - how do they test that - I >don't really understand the difference between a hormone allergy and >imbalance and if the treatments are different? > >Seema > > > > Seema, > > There are alot of similarities in our stories, including the >dysbiosis I > > also had 2 bacteria elevated and no lacto a little yeast, no e. >coli. They > > also gave me a sensitivity report and it showed that all were >treatable with > > caprylic acid. I haven't noticed alot of change as of yet but I am >hoping > > this will get rid of the rectal burning, my estrogen is also low so >I am > > trying the estrace and going for the second visit to the endo doc >thurs. I > > have recently started to have what feels like a sun burn across my >bottom > > right about where my clothes touch me. I tried taking lacto and had >a huge > > flare so I quit affraid of yet another imbalance. > > What exactly does the grapeseed do?? and that estrogen is alright >it is > > just a weaker form and will take longer probley. > > Daphne > _________________________________________________________________ MSN Photos is the easiest way to share and print your photos: http://photos.msn.com/support/worldwide.aspx Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 14, 2002 Report Share Posted January 14, 2002 Hi , Yes, grapeseed is in a pill form. You can get it anywhere - I saw it at Fry's and drugstores. It is more expensive at these places though. I got mine at CostCo - 20.00 for 250 pills. Seema > > > Seema, > > > There are alot of similarities in our stories, including the > >dysbiosis I > > > also had 2 bacteria elevated and no lacto a little yeast, no e. > >coli. They > > > also gave me a sensitivity report and it showed that all were > >treatable with > > > caprylic acid. I haven't noticed alot of change as of yet but I am > >hoping > > > this will get rid of the rectal burning, my estrogen is also low so > >I am > > > trying the estrace and going for the second visit to the endo doc > >thurs. I > > > have recently started to have what feels like a sun burn across my > >bottom > > > right about where my clothes touch me. I tried taking lacto and had > >a huge > > > flare so I quit affraid of yet another imbalance. > > > What exactly does the grapeseed do?? and that estrogen is alright > >it is > > > just a weaker form and will take longer probley. > > > Daphne > > > > > > > _________________________________________________________________ > MSN Photos is the easiest way to share and print your photos: > http://photos.msn.com/support/worldwide.aspx Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 15, 2002 Report Share Posted January 15, 2002 healthfood store, I actually got it from rite aid. Yep pill Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 18, 2002 Report Share Posted January 18, 2002 Hi, I think you should try the natropath, almost anything is worth trying. And, yes steriods are just a cover up, but it works for some. If you use it too long, it could make things worse. I don't know about the other stuff, but I hope you get better. Love and Prayers, Ruth > Hi everyone, > I wanted to give a full update on me as I am seeking your advice. > Just to give some background, in November of 2000 - I had a UTI. > After taking the antibiotics, I developed some vaginal soreness which > the doctor thought was a yeast infection. After taking the Monistat, > things got much worse!! 3 weeks later, I developed a discharge. A > month later, I started to have rectal pain as well as burning in the > toes and hands. Then, a few months after that, abdominal soreness. > I've been seeing Dr. for almost a year - the discharge has been > reduced after taking the Anusol steroids, although I'm now wondering > if that's just a cover-up and not a cure. I'm going to start tapering > down now to 1/2 suppository every night. 4 months ago, I started > getting burning sensations all over my body. I went to an internist > who did a CAT scan, an EMG, blood tests. All normal, so she diagnosed > me with fibromyalgia. After doing a little research, I thought I'd try > grapeseed extract. The burning sensations in my body all stopped > after heavy use of the grapeseed extract. I went to another doctor > who did a stool culture test, urine test, and a food allergy test. > The stool culture came back with elevated amounts of 2 bacteria plus > mildly elevated amounts of a fungus and no lactobacillus growth. The > food allergy test came back with allergy to wheat, milk, garlic, > almonds, rye, and beef. The doctor said I developed these allergies > due to the lack of lactobacillus and feels these allergies will go > away after the lacto has been restored and that I don't have > fibromyalgia. Then, I had both an upper GI and a lower GI done to > rule out anything like colitis - those came back normal. I can't say > I'm feeling that much better now after over a month of lactobacillus > supplementation and food allergy treatment. I think the food allergy > caused the burning but I controlled that with the grapeseed, so it > didn't really bother me. The stomach pain has been reduced only > slightly, not significantly for sure! A couple of days I've had > well-formed stool. Not that many days though - I was never > constipated or anything like that and I have one bowel movement a day > - it's just that I feel the stool is too soft (sorry for being so > gross!). > So I talked to Dr. and he feels maybe the steroid injection > will help. But I also talked to a naturopath who feels like these > problems are all resulting from an imbalance of lactobacillus. I > asked her if I can insert lacto capsule and she told me to do this 3 > times a week. She said the hemorrhoid that I have was probably also > caused by the lack of lacto - she said you don't necessarily have to > be constipated to get a hemorrhoid - sometimes if you have overgrowth > of other bacteria, it can cause infection/rectal inflammation causing > hemorrhoids to develop. She does not believe steroids are the answer, > but more of a suppressor of symptoms. I know that it is my decision, > but I would appreciate your input into this. I don't know whether to > continue with , as he is so well-recognized or go with the > naturopath. I'm so tired of dealing with this in my life - I feel > like I've lost everything. The most important thing in my life is > dancing, and this is the first year in over 16 years that I have not > been able to dance and am missing it greatly. I miss being intimate > with my boyfriend and horribly afraid I won't be able to have children > and live my life again. Does anyone know whether they feel maybe I > should go to the naturopath. I know the naturopath does not like > Estrace cream, but she likes estriol better. She also told me my pap > came back and it said normal, but low estrogen. I did not have that > before all this started. Thank you and I don't know if this makes > sense. > > Seema Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 2, 2008 Report Share Posted September 2, 2008 My mother has BPD and lives close to me (being the only sibling living in state). I imagine that the story of my childhood would be familiar to many people on this board. Her threats of suicide, fits of yelling and hitting for imagined transgressions, mood swings, telling me that I was no good etc. are all signs of her disease but I didn't know what to call it until recently. I have been visiting her two to three times a week handling problems and making sure that she and her fourth husband were OK. Early May, she was diagnosed with cancer (fibro sarcoma on the leg)that she had hidden from everyone...including her husband...by wearing long pants until it finally got as big as a grapefruit and burst. Things went from bad to worse immediately. I spent the next three months taking her to doctor's appointments, sitting at the hospital, taking care of her 85 year old husband, whatever I could do but three months of close association with her began to take their toll. Whatever I did, it was not enough. Visits to her with clothes, books, food were met with with criticism or she pretty much ignored me and read a book or watched TV. She had yelling and screaming fits berating me that I was not upset enough about her condition and didn't care that " my only mother " was dying. Her paranoia got worse and she was convinced that the nurses were out to get her and would mistreat her if she asked for anything. She had to get into this one nursing home and I made sure that she got a bed there. After a week, she hated it, the food was " slop " and all their nurses were out to get her, too. She told the the doctors that I was keeping her in the nursing home and wouldn't let her come home and kept asking me when I was going to allow her to leave even though she could not stand on her leg because the graft had not healed properly. My explanations that it was not my decision fell on deaf ears. She would not sign up for any programs that would help her ( and me, since I work) handle her recovery. Meals on wheels was " slop " , the state would pay for transportation (she will need daily radiation treatments for six weeks) but it was " public transportation " and not good enough for her. The final straw was a couple of weeks ago when I took another load of stuff over to the nursing home. She complained that the thread I had taken her was the wrong color and didn't say anything about the other stuff that I had brought. I looked at her and said, " You're Welcome " . She gave me a look that would kill and said, " You mean I am supposed to thank you? " . I said that it would be nice if she could say that occasionally. She got absolutely red faced and said, " Thanks for trying to be a good daughter, you have not succeeded. " I walked out of the room and haven't been back since. My sister is flying in tomorrow to take care of her when she gets out of the nursing home. I got a call from her yesterday saying that she had received a call from mom and that it had been horrible beyond belief. Mom told her that if I was picking her up at the airport, she would not let her in the door and then proceeded to yell at her for a full hour saying some of the nastiest things that my sister had ever heard from her. My sister, to keep the peace, told me not to pick her up at the airport. Mom is going to ride in the back seat of my aunt's car (because my aunt cannot find her way to the airport) with her leg up on the seat. I told my sister that mom has got to get some help but I am unclear how to proceed. Any advice would be welcome. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 2, 2008 Report Share Posted September 2, 2008 Wow, what a horrible situation for you to be in; I have total sympathy for your anguish. You are about three steps ahead of me in the " circle of life. " . My nada is not quite at that stage yet: needing assisted care, so I don't have any personal advice for you; I wish I did. I will read any posts that do have advice for this stage of dealing with our elderly, abusive, hateful, angry, un-please-able mothers and fathers, at the end stages of their life when they are so genuinely needy, and yet have thoroughly damaged and dis-enabled those of us who should be loving them and caring for them, to the point where all we want to do is dust our hands off and walk away. Currently, I am finding it absolutely fascinating that my nada, who has spent her whole life in a jealous rage against own older sister & denigrating this Auntie the Elder to Sister and me, is now behaving angelically towards this older sister now that both of us adult children are maintaining no contact with nada until nada acknowledges that she physically abused us often when we were kids, and acknowledges that she recently said a certain set of statements that caused Sister to " divorce " nada. It is amazing what the crafty BPD and/or Narcissist is capable of when their back is to the wall! This new and unexpected behavior makes me more leery of nada than ever. Nada is attempting to establish the idea that she is the betrayed one, the victim, the poor little frail, white-haired thing who is being badly mistreated by her adult children! Holy cow, if they gave out s for this kind of performance, our nada would win! I am never, ever going to allow myself to be alone with my mother ever again. She has to be totally, ballistically, off-the-charts pissed off at Sister and me for standing up to her. Nada must feel completely humiliated and embarrassed, and working up one hell of a revenge over this supposed betrayal. No way am I going to give her the opportunity to execute it! That would make me very, very stupid indeed. -Annie > > My mother has BPD and lives close to me (being the only sibling living > in state). I imagine that the story of my childhood would be familiar > to many people on this board. Her threats of suicide, fits of yelling > and hitting for imagined transgressions, mood swings, telling me that > I was no good etc. are all signs of her disease but I didn't know what > to call it until recently. > > I have been visiting her two to three times a week handling problems > and making sure that she and her fourth husband were OK. Early May, > she was diagnosed with cancer (fibro sarcoma on the leg)that she had > hidden from everyone...including her husband...by wearing long pants > until it finally got as big as a grapefruit and burst. Things went > from bad to worse immediately. I spent the next three months taking > her to doctor's appointments, sitting at the hospital, taking care of > her 85 year old husband, whatever I could do but three months of close > association with her began to take their toll. Whatever I did, it was > not enough. Visits to her with clothes, books, food were met with > with criticism or she pretty much ignored me and read a book or > watched TV. She had yelling and screaming fits berating me that I was > not upset enough about her condition and didn't care that " my only > mother " was dying. Her paranoia got worse and she was convinced that > the nurses were out to get her and would mistreat her if she asked for > anything. She had to get into this one nursing home and I made sure > that she got a bed there. After a week, she hated it, the food was > " slop " and all their nurses were out to get her, too. She told the the > doctors that I was keeping her in the nursing home and wouldn't let > her come home and kept asking me when I was going to allow her to > leave even though she could not stand on her leg because the graft had > not healed properly. My explanations that it was not my decision fell > on deaf ears. She would not sign up for any programs that would help > her ( and me, since I work) handle her recovery. Meals on wheels was > " slop " , the state would pay for transportation (she will need daily > radiation treatments for six weeks) but it was " public transportation " > and not good enough for her. The final straw was a couple of weeks ago > when I took another load of stuff over to the nursing home. She > complained that the thread I had taken her was the wrong color and > didn't say anything about the other stuff that I had brought. I looked > at her and said, " You're Welcome " . She gave me a look that would kill > and said, " You mean I am supposed to thank you? " . I said that it > would be nice if she could say that occasionally. She got absolutely > red faced and said, " Thanks for trying to be a good daughter, you have > not succeeded. " I walked out of the room and haven't been back since. > My sister is flying in tomorrow to take care of her when she gets out > of the nursing home. I got a call from her yesterday saying that she > had received a call from mom and that it had been horrible beyond > belief. Mom told her that if I was picking her up at the airport, she > would not let her in the door and then proceeded to yell at her for a > full hour saying some of the nastiest things that my sister had ever > heard from her. My sister, to keep the peace, told me not to pick her > up at the airport. Mom is going to ride in the back seat of my aunt's > car > (because my aunt cannot find her way to the airport) with her leg up > on the seat. I told my sister that mom has got to get some help but I > am unclear how to proceed. Any advice would be welcome. > Quote Link to comment Share on other sites More sharing options...
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