Re: Bad side effects from the diet?

[Guest guest]

Hello. I can't recall seeing many answers to your

post, so thought I'd add a few cents. . . from my

perspective, there are a few negatives: 1) acidosis

-- my daughter got very upset and edgy. She's quite

acidic by nature and the diet makes her more acidic.

That creates a balancing act -- seizure control and

general ability to cope with life! She would just get

very huffy and puffy, panicky and unconsolable. A

short term solution was club soda -- she'd calm down

within 5 minutes. Long term was a slightly lower

ratio. 2) lethargy -- doesn't have quite the

energy, but then the meds really zapped her, too. She

can make it through a school day and after-school

therapies, etc., but by 7:30 to 8 p.m., she's pretty

zonked. 3) " being normal " -- it's hard for a kid to

eat different foods and to not be able to eat normal

" kid " food. The Moms/Dads here can share some great

ideas. 4) risk for osteoporosis -- it's critical to

supplement with calcium/magnesium/zinc/vitamin D as

well as to use good quality vitamins (better than the

Bugs Bunny the docs usually prescribe). 5) too many

chemicals -- lots of people think that you have to use

Nutra Sweet, highly processed meats, etc. You can do

this diet without them!

Well, it's late and that's all my tired brain can come

up with for now. Best of luck with your decision.-D

--- The Hoffmans wrote:

> Hi! I have had the numerous good things everyone has

> to say about the diet. And even though we are doing

> the VNS soon, we are confident that the Keto diet

> will be our next course of treatment and that we

> will probably start it within the next 3-4 months.

> In hearing all of the good sides of the diet, I am

> wondering what negative side effects it CAN have, if

> any. Not so I can decide not to do it, but so I can

> be prepared for what can/might occur. I am not

> looking for a comparison to meds.. as in " meds do

> this bad thing, keto doesn't " . I definitely know and

> see the advantages... am just wondering what the

> negatives are/may be (re: weight, other meds, taste

> therapy for those kids who do not eat orally,

> behaviorally, when they are sick, effects on the

> body, immune system, whatever!), regardless of how

> the positive outweighs them. Thanks... I really want

> to know the problems you guys find with the diet,

> but don't want you to think I am putting it down.

>

>

> Mom to CJ - 4 years old (Massive bilateral stroke,

> severe spastic quad CP, seizures (five different

> types - uncontrolled), GE reflux, scoliosis, CVI,

> mild heart ahhrythmia, allergies, severe mental

> retardation, g-tube, etc.) and Faith Marie, 1 year.

>

=====

DeEtte -- Mom to (, 6, keto-kid since 1/01, med-free, seizures greatly

reduced) and (, 4), sdale, AZ

" I know God would never give me more than I can handle. . .I just wish he didn't

trust me so much. " -- Mother Theresa

__________________________________________________

[Guest guest]

De...

Great list! Thought I'd add slight increase in risk for kidney

stones. Oh... and some kid's cholestrol gets elevated, but they've

never shown any long term effects from this. Most people can lower

the high levels by monitoring the types of fats they use...staying

away from sat. fats and processed meats. Can anyone think of any

other possible concerns for the diet??? Nan