Guest guest Posted October 26, 2001 Report Share Posted October 26, 2001 Patti Being non-weight bearing, the diet and seizure drugs all contribute to bone density problems. Don't know anything about the Prilosec effect on calcium absorption, but I would recommend a referral to a good pediatric nephrologist, they deal with the bone density issues. Patti wrote: OK, now I'm really even more frustrated...... the discussion about Tums and the fact that the calcium can't be absorbed in an antacid base has got me wondering. Katera has just been put on a trial of Prilosec to see if her irritability and obvious discomfort is due to reflux (she can't communicate well enough to tell us). The docs decided that doing a trial of the drug for a month would be better than putting her through the diagnostic procedures. Well, now my other concern is that, after a recent x-ray due to an ankle injury, we've been told that Katera has "diminished bone density". It is unlikely to be because of the diet since she's only been on it one year and not ever at a very high ratio.....more likely to be due to her lack of mobility and weight bearing (compared to other kids her age). The pediatrician is still looking into where we stand with this but, in the meantime, I'm upset to think that maybe the Prilosec (it's a capsule with time-release beads.... so it continues to work all day) could interfere with her calcium absorbtion. We've had her on a good supplement the entire time she's been keto but I really don't want to compromise the bone situation. Does anyone know? I mean, I know it is an antacid of sorts. <sigh> Guess I'd better put in another call to the doc and dietician. Patti Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 29, 2001 Report Share Posted October 29, 2001 Patti, Rohan's back X-rays (after a backache for over a month) has shown a loss of bone density. He's been on v.low ratios on the diet too and for about 1 yr and 8 months. He doesn't do much physical activity now, but that can't be the reason with him. It has to be to do with the previous AEds and the KGD. We are waiting to see a metabolic dr. now. So far they haven't done the Dexa scan that others mentioned or any other tests. The system here in the UK is sooo slow at times! Saro Patti wrote: OK, now I'm really even more frustrated...... the discussion about Tums and the fact that the calcium can't be absorbed in an antacid base has got me wondering. Katera has just been put on a trial of Prilosec to see if her irritability and obvious discomfort is due to reflux (she can't communicate well enough to tell us). The docs decided that doing a trial of the drug for a month would be better than putting her through the diagnostic procedures. Well, now my other concern is that, after a recent x-ray due to an ankle injury, we've been told that Katera has "diminished bone density". It is unlikely to be because of the diet since she's only been on it one year and not ever at a very high ratio.....more likely to be due to her lack of mobility and weight bearing (compared to other kids her age). The pediatrician is still looking into where we stand with this but, in the meantime, I'm upset to think that maybe the Prilosec (it's a capsule with time-release beads.... so it continues to work all day) could interfere with her calcium absorbtion. We've had her on a good supplement the entire time she's been keto but I really don't want to compromise the bone situation. Does anyone know? I mean, I know it is an antacid of sorts. <sigh> Guess I'd better put in another call to the doc and dietician. Patti "The Ketogenic Diet....a realistic treatment option, NOT just a last resort!" List is for parent to parent support only. It is important to get medical advice from a professional keto team! Subscribe: ketogenic-subscribe Unsubscribe: ketogenic-unsubscribe Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 29, 2001 Report Share Posted October 29, 2001 sanaljay wrote: > Patti, > Rohan's back X-rays (after a backache for over a month) > has shown a loss of bone density. He's been on v.low ratios > on the diet too and for about 1 yr and 8 months. He doesn't > do much physical activity now, but that can't be the reason > with him. It has to be to do with the previous AEds and the > KGD. We are waiting to see a metabolic dr. now. So far > they haven't done the Dexa scan that others mentioned or any > other tests. The system here in the UK is sooo slow at times! > Saro Saro Read this and felt sorry he has the problem, relieved you found the answer and a little suprised that is what it was, even though I suggested it Scary isn't it? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 30, 2001 Report Share Posted October 30, 2001 , Thanks for your post and the previous ones. It is certainly scary. Infact I'm wondering whether it's the only problem. The sooner we get some more tests done, the better it'll be. Saro "m.coole" wrote: sanaljay wrote: > Patti, > Rohan's back X-rays (after a backache for over a month) > has shown a loss of bone density. He's been on v.low ratios > on the diet too and for about 1 yr and 8 months. He doesn't > do much physical activity now, but that can't be the reason > with him. It has to be to do with the previous AEds and the > KGD. We are waiting to see a metabolic dr. now. So far > they haven't done the Dexa scan that others mentioned or any > other tests. The system here in the UK is sooo slow at times! > Saro Saro Read this and felt sorry he has the problem, relieved you found the answer and a little suprised that is what it was, even though I suggested it Scary isn't it? "The Ketogenic Diet....a realistic treatment option, NOT just a last resort!" List is for parent to parent support only. It is important to get medical advice from a professional keto team! Subscribe: ketogenic-subscribe Unsubscribe: ketogenic-unsubscribe Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 31, 2001 Report Share Posted October 31, 2001 Hi Saro long time no talk. Just thought I would butt in here a bit. We have been having a very hard time lately with Mike. He has developed a couple of new seizure types and a whole myriad of other problems. We are still med free but really struggling however that is another story for another time. I just wanted to let you know that Mike started having severe bone pain in the mid summer. Usually in his legs but back also. We have been referred to an endocrinologist who is investigating Mike for hypoparathyroidism and for Vit D resistant ricketts. She thinks these may be the results of Mike being on the diet and the using cream ( double cream) which had no vit d added. Here most cream and milk is fortified with Vit D so the body can absorb the calcium . I always though that so long as you gave sufficient Cal/mag that the body should be able to get the Ca but it seems Vit D is needed. Our cream had none so for a long time Mike got some Vit D in his multi but probably not enough. I know you use d cream so you may want to look at Rohan's other sources of Vit D to see if they are adequate. Sorry to here Rohan is still having back problems. I think about you guys alot. Rohan and Mike still seem to have alot in common. Talk soon Faye sanaljay wrote: Patti, Rohan's back X-rays (after a backache for over a month) has shown a loss of bone density. He's been on v.low ratios on the diet too and for about 1 yr and 8 months. He doesn't do much physical activity now, but that can't be the reason with him. It has to be to do with the previous AEds and the KGD. We are waiting to see a metabolic dr. now. So far they haven't done the Dexa scan that others mentioned or any other tests. The system here in the UK is sooo slow at times! Saro Patti wrote: OK, now I'm really even more frustrated...... the discussion about Tums and the fact that the calcium can't be absorbed in an antacid base has got me wondering. Katera has just been put on a trial of Prilosec to see if her irritability and obvious discomfort is due to reflux (she can't communicate well enough to tell us). The docs decided that doing a trial of the drug for a month would be better than putting her through the diagnostic procedures. Well, now my other concern is that, after a recent x-ray due to an ankle injury, we've been told that Katera has "diminished bone density". It is unlikely to be because of the diet since she's only been on it one year and not ever at a very high ratio.....more likely to be due to her lack of mobility and weight bearing (compared to other kids her age). The pediatrician is still looking into where we stand with this but, in the meantime, I'm upset to think that maybe the Prilosec (it's a capsule with time-release beads.... so it continues to work all day) could interfere with her calcium absorbtion. We've had her on a good supplement the entire time she's been keto but I really don't want to compromise the bone situation. Does anyone know? I mean, I know it is an antacid of sorts. <sigh> Guess I'd better put in another call to the doc and dietician. Patti "The Ketogenic Diet....a realistic treatment option, NOT just a last resort!" List is for parent to parent support only. It is important to get medical advice from a professional keto team! Subscribe: ketogenic-subscribe Unsubscribe: ketogenic-unsubscribe Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 3, 2001 Report Share Posted November 3, 2001 Faye Sorry to hear Mike is having such problems. Did they do a bone densoromitry? kevin cooper wrote: Hi Saro long time no talk. Just thought I would butt in here a bit. We have been having a very hard time lately with Mike. He has developed a couple of new seizure types and a whole myriad of other problems. We are still med free but really struggling however that is another story for another time. I just wanted to let you know that Mike started having severe bone pain in the mid summer. Usually in his legs but back also. We have been referred to an endocrinologist who is investigating Mike for hypoparathyroidism and for Vit D resistant ricketts. She thinks these may be the results of Mike being on the diet and the using cream ( double cream) which had no vit d added. Here most cream and milk is fortified with Vit D so the body can absorb the calcium . I always though that so long as you gave sufficient Cal/mag that the body should be able to get the Ca but it seems Vit D is needed. Our cream had none so for a long time Mike got some Vit D in his multi but probably not enough. I know you use d cream so you may want to look at Rohan's other sources of Vit D to see if they are adequate. Sorry to here Rohan is still having back problems. I think about you guys alot. Rohan and Mike still seem to have alot in common. Talk soon Faye sanaljay wrote: Patti, Rohan's back X-rays (after a backache for over a month) has shown a loss of bone density. He's been on v.low ratios on the diet too and for about 1 yr and 8 months. He doesn't do much physical activity now, but that can't be the reason with him. It has to be to do with the previous AEds and the KGD. We are waiting to see a metabolic dr. now. So far they haven't done the Dexa scan that others mentioned or any other tests. The system here in the UK is sooo slow at times! Saro Patti wrote: OK, now I'm really even more frustrated...... the discussion about Tums and the fact that the calcium can't be absorbed in an antacid base has got me wondering. Katera has just been put on a trial of Prilosec to see if her irritability and obvious discomfort is due to reflux (she can't communicate well enough to tell us). The docs decided that doing a trial of the drug for a month would be better than putting her through the diagnostic procedures. Well, now my other concern is that, after a recent x-ray due to an ankle injury, we've been told that Katera has "diminished bone density". It is unlikely to be because of the diet since she's only been on it one year and not ever at a very high ratio.....more likely to be due to her lack of mobility and weight bearing (compared to other kids her age). The pediatrician is still looking into where we stand with this but, in the meantime, I'm upset to think that maybe the Prilosec (it's a capsule with time-release beads.... so it continues to work all day) could interfere with her calcium absorbtion. We've had her on a good supplement the entire time she's been keto but I really don't want to compromise the bone situation. Does anyone know? I mean, I know it is an antacid of sorts. <sigh> Guess I'd better put in another call to the doc and dietician. Patti "The Ketogenic Diet....a realistic treatment option, NOT just a last resort!" List is for parent to parent support only. It is important to get medical advice from a professional keto team! Subscribe: ketogenic-subscribe Unsubscribe: ketogenic-unsubscribe Quote Link to comment Share on other sites More sharing options...
Recommended Posts
Join the conversation
You are posting as a guest. If you have an account, sign in now to post with your account.
Note: Your post will require moderator approval before it will be visible.