Re: Has anyone experienced this??/Jenn

[Guest guest]

Jenn,

Does he like soup? You can make soups with water and he'd

be getting extra fluid. There is a recipe in the files for

chicken soup.

Sorry if this is silly, but did you sweeten the tea? My

daughter only likes it if it is sweetened. You can also try

flavored fruit water by Glaceau.

, Ally's mom

--- heppner1@... wrote:

> We have been trying that but it is hard - he is so

> headstrong.

>

> Anyone have any ideas how to get him to drink more? He

> doesnt like

> jello much. I have tried celestial seasonings tea and he

> wont drink

> that either

>

> Jenn

>

> Bill Barber wrote:

>

> > but it sounds that he needs a higher

> > fluid intake

>

__________________________________________________

[Guest guest]

Mike loves soup - but he does tire of it so I usually only use it twice

a week - when I figure he needs a boost in liquids. I tried the tea

both ways - sweetened first - then unsweetened. I am going to try

it again.

Jenn

cindy atler wrote:

Jenn,

Does he like soup? You can make soups with water and he'd

be getting extra fluid. There is a recipe in the files for

chicken soup.

Sorry if this is silly, but did you sweeten the tea? My

daughter only likes it if it is sweetened. You can also try

flavored fruit water by Glaceau.

, Ally's mom

--- heppner1@... wrote:

> We have been trying that but it is hard - he is so

> headstrong.

>

> Anyone have any ideas how to get him to drink more? He

> doesnt like

> jello much. I have tried celestial seasonings tea and he

> wont drink

> that either

>

> Jenn

>

> Bill Barber wrote:

>

> > but it sounds that he needs a higher

> > fluid intake

>

__________________________________________________

[Guest guest]

We use kool-aid (black chery/lemon-lime or the magic twist cherry) and sweeten them with approved sweeteners-I have frozen this in tupperware pop-scile containers or rinsed out freeze-pop containers (the ones that come in a plastic tube). Savanna loves them as they look similar to the ones everyone has. We have even put her kool-aid in a plastic soda bottle so it's like the rest.

Kathy/WI

[Guest guest]

Will he chew on ice chips? Better than nothing. How about a popsicle, w/

melted jello, seltzer, cream and oil? Combine all and freeze in a popsicle

mold, looks like the real thing....

Barb Swoyer

Re: Has anyone experienced this??/Jenn

> Jenn,

> Does he like soup? You can make soups with water and he'd

> be getting extra fluid. There is a recipe in the files for

> chicken soup.

> Sorry if this is silly, but did you sweeten the tea? My

> daughter only likes it if it is sweetened. You can also try

> flavored fruit water by Glaceau.

>

> , Ally's mom

>

>

> --- heppner1@... wrote:

> > We have been trying that but it is hard - he is so

> > headstrong.

> >

> > Anyone have any ideas how to get him to drink more? He

> > doesnt like

> > jello much. I have tried celestial seasonings tea and he

> > wont drink

> > that either

> >

> > Jenn

> >

> > Bill Barber wrote:

> >

> > > but it sounds that he needs a higher

> > > fluid intake

> >

>

>

> __________________________________________________

>

[Guest guest]

Hot cocoa? Made w/ cream, water, unsweetened chocolate and sweetener?

Just another thought....

Barb Swoyer

Re: Has anyone experienced this??/Jenn

Mike loves soup - but he does tire of it so I usually only use it twice a week - when I figure he needs a boost in liquids. I tried the tea both ways - sweetened first - then unsweetened. I am going to try it again. Jenn cindy atler wrote: Jenn, Does he like soup? You can make soups with water and he'd be getting extra fluid. There is a recipe in the files for chicken soup. Sorry if this is silly, but did you sweeten the tea? My daughter only likes it if it is sweetened. You can also try flavored fruit water by Glaceau. , Ally's mom --- heppner1@... wrote: > We have been trying that but it is hard - he is so > headstrong. > > Anyone have any ideas how to get him to drink more? He > doesnt like > jello much. I have tried celestial seasonings tea and he > wont drink > that either > > Jenn > > Bill Barber wrote: > > > but it sounds that he needs a higher > > fluid intake > __________________________________________________

[Guest guest]

It freezes well. I used to melt the jello in the microwave. Add seltzer and mix. Add cream and oil and mix, and pour fast into the molds. I think the cream separates more from the seltzer, or something wierd...but not too bad. Haven't made them in years. You only need a tiny bit of oil, jello and cream...I think I used to make a 50 calorie snack at 4:0 ratio, or something like that. They can be for snack or dessert. Best part about dessert is that it cuts some fat out of the meal. Best of luck.

Barb Swoyer

Re: Has anyone experienced this??/Jenn

This is something I will definitely try. Pre-diet he loved cream-sicles. Does the oil seperate or freeze well with the other stuff? Jenn swoyer wrote: Will he chew on ice chips? Better than nothing. How about a popsicle, w/ melted jello, seltzer, cream and oil? Combine all and freeze in a popsicle mold, looks like the real thing.... Barb Swoyer "The Ketogenic Diet....a realistic treatment option, NOT just a last resort!" List is for parent to parent support only. It is important to get medical advice from a professional keto team! Subscribe: ketogenic-subscribe Unsubscribe: ketogenic-unsubscribe

[Guest guest]

I think I would not wait for your urologist appt/referral. If I were in your shoes I'd get him seen by a doctor, ASAP. It isn't normal for a young child to go 48 hours w/out peeing. You need to check dehydration and if he is dehydrated, then get an IV into him and rehydrate. Maybe it will kickstart him. Is he in pain? If I called my ER doc and told her that Jake had been dry for 2 days she'd have my A#$)()#U in there! Guaranteed. What does your pediatrician say?

Barb

Re: Has anyone experienced this?? > We have a referal in to a urologist but we dont have an appt as yet. I > didnt give Mike a suppository last night as I wanted to see how long he > could go without peeing - so far he peed approx 8:30pm on saturday night > and it is 2:15pm here monday afternoon and he still hasnt gone! I > dont know if he has an infection - we have tested him twice and they say > everything is fine. Do you have any insight into why bowel and bladder > are so closely related? If I dont "help" Mike out he can go a whole > week without having a bowel movement. I can deal with a day or two but > I get quite nervous if he goes a week. I am hoping once we get him on > phyllium husks that things will even out and he will regulate. Until > then tho I am thinking of using the colace since it worked quite well > for him - didnt help with the pee tho. > > Jenn > > > > > > > "The Ketogenic Diet....a realistic treatment option, NOT just a last resort!" > > List is for parent to parent support only. > It is important to get medical advice from a professional keto team! > Subscribe: ketogenic-subscribe > Unsubscribe: ketogenic-unsubscribe > > > >

[Guest guest]

I have talked to our GP here - and to the neuro and neurology nurse at

the hospital and they know the situation. They have all checked Mike

over well and do not find him dehydrated. After not peeing for 48

hrs - he peed twice in 18 hrs and now nothing again for 36 hrs (so far)

I am worried about this pattern. We have resumed the colace and hopefully

things will move so to speak and he will start to have BM's and regular

urine output in a day or two. If he is still like this on friday

I will phone the GP in the am and get him looked at.

What are the signs of dehydration? Mike's skin isnt dry and the

lining of his mouth is moist. What else do I need to look for.

Jenn

swoyer wrote:

I think I

would not wait for your urologist appt/referral. If I were in your

shoes I'd get him seen by a doctor, ASAP. It isn't normal for a young

child to go 48 hours w/out peeing. You need to check dehydration

and if he is dehydrated, then get an IV into him and rehydrate. Maybe

it will kickstart him. Is he in pain? If I called my ER doc and told

her that Jake had been dry for 2 days she'd have my A#$)()#U in there!

Guaranteed. What does your pediatrician say?Barb

[Guest guest]

Dry lips, no wet diapers, lack of urination, flushed cheeks, panting????????

This just sounds so strange to me, I can't imagine. How about....does the urologist have a nurse you could talk to?

If he's not dehydrated, how could he not be having to go? It doesn't make sense.

Re: Has anyone experienced this??/Jenn

I have talked to our GP here - and to the neuro and neurology nurse at the hospital and they know the situation. They have all checked Mike over well and do not find him dehydrated. After not peeing for 48 hrs - he peed twice in 18 hrs and now nothing again for 36 hrs (so far) I am worried about this pattern. We have resumed the colace and hopefully things will move so to speak and he will start to have BM's and regular urine output in a day or two. If he is still like this on friday I will phone the GP in the am and get him looked at. What are the signs of dehydration? Mike's skin isnt dry and the lining of his mouth is moist. What else do I need to look for. Jenn swoyer wrote: I think I would not wait for your urologist appt/referral. If I were in your shoes I'd get him seen by a doctor, ASAP. It isn't normal for a young child to go 48 hours w/out peeing. You need to check dehydration and if he is dehydrated, then get an IV into him and rehydrate. Maybe it will kickstart him. Is he in pain? If I called my ER doc and told her that Jake had been dry for 2 days she'd have my A#$)()#U in there! Guaranteed. What does your pediatrician say?Barb "The Ketogenic Diet....a realistic treatment option, NOT just a last resort!" List is for parent to parent support only. It is important to get medical advice from a professional keto team! Subscribe: ketogenic-subscribe Unsubscribe: ketogenic-unsubscribe

[Guest guest]

To check for dehydration, pinch an inch or two of skin on his arm. If when you release the skin you see that the skin holds some lines that look like wrinkles, then he is dehydrated. Try it on yourself to see what normal looks like.

Perhaps you could try ice chips or cubes and see if he will take some fluid that way. I don't like to threaten Danny, but I did once resort to telling him that if he did not drink I was going to take him to the hospital and have him put on an IV - that straightened him out very quickly.

Re: Has anyone experienced this??/Jenn

I have talked to our GP here - and to the neuro and neurology nurse at the hospital and they know the situation. They have all checked Mike over well and do not find him dehydrated. After not peeing for 48 hrs - he peed twice in 18 hrs and now nothing again for 36 hrs (so far) I am worried about this pattern. We have resumed the colace and hopefully things will move so to speak and he will start to have BM's and regular urine output in a day or two. If he is still like this on friday I will phone the GP in the am and get him looked at. What are the signs of dehydration? Mike's skin isnt dry and the lining of his mouth is moist. What else do I need to look for. Jenn swoyer wrote: I think I would not wait for your urologist appt/referral. If I were in your shoes I'd get him seen by a doctor, ASAP. It isn't normal for a young child to go 48 hours w/out peeing. You need to check dehydration and if he is dehydrated, then get an IV into him and rehydrate. Maybe it will kickstart him. Is he in pain? If I called my ER doc and told her that Jake had been dry for 2 days she'd have my A#$)()#U in there! Guaranteed. What does your pediatrician say?Barb "The Ketogenic Diet....a realistic treatment option, NOT just a last resort!" List is for parent to parent support only. It is important to get medical advice from a professional keto team! Subscribe: ketogenic-subscribe Unsubscribe: ketogenic-unsubscribe

[Guest guest]

His lips are a bit dry - but that usually happens to him in the winter -

they are not really really dry, no flushed cheeks, no panting. He peed

again today so things are doing a bit better since we started up the

colace again even tho he didnt have a BM yet.

I was wondering if it has something to do with electrolytes and sodium -

we had this tested a month ago and things were fine but I still think

there is something to this as he pees more when he gets more

sodium/salt.

I dont even know who the urologist is yet. I am going to call the GP

today and see if they have any idea as to when I will get an appt or if

they have a number I can call and the name of who they refered Mike to.

Thanks

Jenn

[Guest guest]

I threatened Mike with that as well - he got up and ran for his boots he

was ready to go to the hospital. I think he is better at reverse

psychology than I am LOL He loves the play rooms at the hospital and

all the attention he gets from the nurses but after being there a day he

is ready to come home I think he just doesnt remember the " bad " parts

like the IV etc..

Jenn

[Guest guest]

How about freezing diluted crystal lite in popsicle shapes with plastic

sticks to hold onto? Would be fun.

Bill

Re: Has anyone experienced this??/Jenn

> His lips are a bit dry - but that usually happens to him in the winter -

> they are not really really dry, no flushed cheeks, no panting. He peed

> again today so things are doing a bit better since we

[Guest guest]

Does the GP think that it's okay that he is not peeing? Not concerned?

Re: Has anyone experienced this??/Jenn

> His lips are a bit dry - but that usually happens to him in the winter -

> they are not really really dry, no flushed cheeks, no panting. He peed

> again today so things are doing a bit better since we started up the

> colace again even tho he didnt have a BM yet.

>

> I was wondering if it has something to do with electrolytes and sodium -

> we had this tested a month ago and things were fine but I still think

> there is something to this as he pees more when he gets more

> sodium/salt.

>

> I dont even know who the urologist is yet. I am going to call the GP

> today and see if they have any idea as to when I will get an appt or if

> they have a number I can call and the name of who they refered Mike to.

>

> Thanks

>

> Jenn

[Guest guest]

Nope he isnt too concerned - they all think it is due to the fact that

his fluids are being restricted. He isnt drinking the total he can

drink - altho I have finally gotten him close to that number. And

he is back to peeing once a day again (had a bit of a scare a while ago)

I have checked for all the signs of dehydration and the only one is that

he isnt peeing regularly. The lining of his mouth is moist, his skin

is not wrinkly when pinched, lips are a bit dry but he has always had a

problem with licking his lips so they are always dry in winter.

Jenn

swoyer wrote:

Does the GP think that it's okay

that he is not peeing? Not concerned?

[Guest guest]

How much fluid is he drinking a day? And how big is he?

When Jake began the diet, he was about 27lbs. The hospital told me that anything under 500cc of fluid a day would cause dehydration. Now he's allotted about 1100 per day, I'd say he actually drinks about 700-800. With this small amount, he still goes to the bathroom several times a day, and he now weighs about 44lbs. So, I would say that the amount is also restricted...yet he's peeing.

I don't know why I'm so stuck on this .... but I am. It just does not sound right to me that a child would only go once every 1 or 2 days....something has got to be going on.

Barb Swoyer, Jake's mom

Re: Has anyone experienced this??/Jenn

Nope he isnt too concerned - they all think it is due to the fact that his fluids are being restricted. He isnt drinking the total he can drink - altho I have finally gotten him close to that number. And he is back to peeing once a day again (had a bit of a scare a while ago) I have checked for all the signs of dehydration and the only one is that he isnt peeing regularly. The lining of his mouth is moist, his skin is not wrinkly when pinched, lips are a bit dry but he has always had a problem with licking his lips so they are always dry in winter. Jenn swoyer wrote: Does the GP think that it's okay that he is not peeing? Not concerned? "The Ketogenic Diet....a realistic treatment option, NOT just a last resort!" List is for parent to parent support only. It is important to get medical advice from a professional keto team! Subscribe: ketogenic-subscribe Unsubscribe: ketogenic-unsubscribe

[Guest guest]

Right now he is 40lbs and his allotted fluid amount is 1390mls - he drinks

approx 800mls a day (more if he gets soup that day) tho sometimes a little

less but we have at least been keeping him above 600mls ( this wasnt the

case earlier in the diet but he was still peeing 3-4 times a day when only

taking in 400mls) I too think something is going on and my GP - altho

I love him he is a super super doc - isnt informed enough about this and

just blames it on the diet. From the responses I am getting from

this list - this is NOT the norm on this diet. I will be phoning

the GP first thing Monday morning and requesting the phone number and name

of the urologist he wants to send my son to. I am going to phone

and talk to them and request that I get an appt ASAP as this has been going

on since Sept 28 ( only then he was still peeing twice a day but still

down from the 3-4 times a day.)

Thanks to everyone for all your help!

Jenn

swoyer wrote:

How much fluid is

he drinking a day? And how big is he?

[Guest guest]

I totally agree. This is not the diet -- it's gotta

be something else. . .unless it's something related to

kidney stones? FYI, my neuro told me that there are a

few myths about the keto diet. . .one was that fluids

needed to be restricted. That was a biggee with me

because we live in Arizona and it could be deadly to

restrict fluids around here. They did give me a fluid

number as a guideline, but it was huge, even more than

drinks typically, which is quite a bit (although

she drank more pre-diet because the options were more

appealing to her!).-D

--- swoyer wrote:

> How much fluid is he drinking a day? And how big is

> he?

> When Jake began the diet, he was about 27lbs. The

> hospital told me that anything under 500cc of fluid

> a day would cause dehydration. Now he's allotted

> about 1100 per day, I'd say he actually drinks about

> 700-800. With this small amount, he still goes to

> the bathroom several times a day, and he now weighs

> about 44lbs. So, I would say that the amount is

> also restricted...yet he's peeing.

> I don't know why I'm so stuck on this .... but I am.

> It just does not sound right to me that a child

> would only go once every 1 or 2 days....something

> has got to be going on.

> Barb Swoyer, Jake's mom

> Re: Has anyone experienced

> this??/Jenn

>

>

> Nope he isnt too concerned - they all think it is

> due to the fact that his fluids are being

> restricted. He isnt drinking the total he can drink

> - altho I have finally gotten him close to that

> number. And he is back to peeing once a day again

> (had a bit of a scare a while ago) I have checked

> for all the signs of dehydration and the only one is

> that he isnt peeing regularly. The lining of his

> mouth is moist, his skin is not wrinkly when

> pinched, lips are a bit dry but he has always had a

> problem with licking his lips so they are always dry

> in winter.

> Jenn

>

> swoyer wrote:

>

> Does the GP think that it's okay that he is

> not peeing? Not concerned?

>

>

[Guest guest]

Before we began this diet - Mike loved his water - that is the first thing

he would ask for when he was thirsty and still what he gets most of his

fluid from - just plain water. He has never really liked pop and

he can still have his koolaid but doesnt seem to want it too much.

I have had him checked for kidney stones - urine test or blood test I cant

remember which - how accurate are these?

He did also seem to want to drink more during the summer and does drink

more when he is more active however he doesnt really pee that much more

when he drinks more - maybe more volume but not more times during one day.

Jenn

DeEtte Person wrote:

I totally agree. This is not the

diet -- it's gotta

be something else. . .unless it's something related to

kidney stones?