B12

April 21, 2003

> What benefits have folks seen for their children with B12?

>

We did b12 shots 2X per week for my son for 6 weeks - we saw nothing -

no improvements, no regression...

Carole

April 21, 2003

We have been doing methylcobalamin B12 shots daily for 2 weeks and it is the

best thing since the diet!!!! we tried other types of B12 injections and less

frequent with minor results but the past few weeks we have seen good things.

My son is a toughie, 6 yrs old and severely affected by autism. apraxic and

non-verbal and lots of other problems. he is babbling, making new sounds and

even said his first word last week. Now, after 2 years of trying to get him

to wear his prism glasses (with prescription for far-sightedness too) he is

finally starting to wear them!!!! This is a huge breakthrough for us since

he has visual perception problems that interfere with his schoolwork. he

knows more than he can communicate.

Also, potty training is much improved. he used to not pee all day, not even

frst thing in the morning. he would hold it all day until about 5 pm even

though he is put on the toilet often throughout the day. now he goes first

thing in the morning and then again after school and at bedtime. much more

reasonable and healthy schedule. I know none of these things sound huge to

everyone whose kids improve almost to normal with the diet and chelation but

that didn't happen for us. my son improved a lot with the diet and supps and

maybe a little with chelation but nothing big. I hope and pray we are on to

something. try methylcobalamin injections from Coastal compounding, very

small needle, no preservatives that sting.

karen

April 21, 2003

,

What great news. I am having the same experience with my 11 year old son.

The combination of daily B12 injections, OIG, and Lauricidin has been the

best treatment for him. My son was also a " toughie. " He wakes up every day

with a smile, and a great sense of humor. Tonight he was able to converse

with me about his day. No OCD, no crying, lots of language, and great mood.

We are also seeing changes in what he can tolerate. He use to strip his

pants off as soon as he would come home, (not very pretty with a 11 year old

200 pound kid) this week his is tolerating shorts....this makes my 14 year

old, very social son, ecstatic.

The injections are very simple for us. The first couple of doses I needed

assistance. Now Isaiah will help me get the supplies A few weeks ago I

had a Mom inject me to practice before injecting her 4 year old and I have to

say, it is painless.

Grateful for JM,

Pam

April 22, 2003

In a message dated 21/4/03 2:17:00 pm, hugsfam5@... writes:

> Can I get the same benefits orally & how much would he need to get? (he

> is 8-1/2yrs old & appx 50lbs).

>

Andy said 83 x the shot dose (can't remember what the shot dose is, 75 mcg),

but I don't know how he got to that figure. He mentioned Thorne does it.

marti

January 17, 2004

Hi Prue,

I started my son, age 4 and 34 lbs., on the methyl B12 shots this

past week. I give him one shot three times a week.

I got them through a Rx through his DAN doctor from coastal

compounding.

Something to consider is folinic acid. His doctor said giving him

this every day helps prevent the hyperactivity some kids experience

from the high dose B12. So far so good with my son.

You may be able to use folic acid, but with my son his body wouldn't

be able to utilize it in that form.

Hope this helps.

> Harry had cobalt high -off the scale- on hair test and high serum

B12. Have just realised the significance of this and the need for

methylcobalamin supp. Does anyone do this? Which product do you use

and the dose please?

> TIA

> Prue

>

August 23, 2005

look up dr neubrander. extensive info on web site. today, i just stopped my

son from b12 shots. OUT OF CONTROL AGGRESSION! dangerous stuff. per dr n's

protocol notes, if behaviors get THAT bad, STOP!

when you read the info/background on the b12 shots, a lot of people seem to

do pretty well on them. i have noticed that people who are chelating are on

the shots. just my two cents. vicki

August 23, 2005

It has to do with nerve function. B12 can be given by shots or

subliguals. It was talked about in this group before it became 'the

next great supplement'. However, it tends to give very good results.

It is found in protein foods like meat and dairy.

When the intestines are injured, B12 (as well as other nutrients)

can't be absorbed, so you would expect to see improvement. B12 in

shots and sublinguals is administering the nutrient by means other

than the digestive tract.

Here are some descriptions:

http://ods.od.nih.gov/factsheets/cc/vitb12.html

http://www.vitacost.com/science/hn/Supp/Vitamin_B12.htm

The general thinking is that the best type of b12 is methylcobalamin.

Hydroxycobalamin and cyanocobalamin need to be converted into

methylcobalamin by the liver in order for the body to absorb it. so

the B12 could be lost not only by digestion (hence sublingual is

better) but also in the processing of the other 2 B12 sources.

One thing Kurt Woeller (doctor) said in chat a couple times was that

when you start B12, start nothing else for 4-5 weeks so you can see

if it is helping. This includes any dietary changes. He seemed to

feel very strongly about that.

He also said that if you do a food elimination, named GFCF

specifically, and do not see it helping in 3 months, try something

else. I toss that out for those wanting an opinion on how long to try

that diet.

August 23, 2005

In a message dated 23/08/2005 03:05:52 GMT Daylight Time,

larsin@... writes:

I've noticed alot of people using methyl B12 shots. What is the

indication and is there alot of improvement noted?

>>>Dr Neurander (Mr MB12) would say a Dx of ASD is an indication for MB12.

You get detention for saying B12 and not MB12 LOL

Watch him here

_www.danwebcast.com_ (http://www.danwebcast.com) for free to start with

(about 50 mins)

then go to his site

_www.drneubrander.com_ (http://www.drneubrander.com)

Heaps of patient video feedback, the good the bad and the ugly

Be sure to watch Caitlin, awesome gains, though most see a gradual

improvement over time

All of the above video's are free, happy viewing!

Mandi in UK

August 24, 2005

> I've noticed alot of people using methyl B12 shots. What is the

> indication

Helpful for many kids, for language acquisition.

>>and is there alot of improvement noted?

For some kids, a lot. For others, a little. For others, not much.

For others, negative issues, especially if not taken with folic acid.

Dana

March 22, 2006

>

> I am new to this group. I have a 16 year old boy wit Autism. could

> anyone tell me how B12 helps the children and what other supplements

> are recommended.

> Please give me as much of information as u all can.

> thanks to every one in advance

>

I have done research with vitamins and mineral till blue in the face!

There is so much out there it's overwhelming! I have a 6 year old

autistic son. I recently just put him on Vibe supplement for all the

vitamins and minerals he needs. Vibe goes directly into cells and

also passes the blood-brain barrier (tablets do not do this). Visit

www.eniva.com

I'll try to find what I have on B12. I know the B vitamins are very

important.

March 22, 2006

--- I'll try to help but asking what other supplements is a lot.

There's thousands of messages here about all the supplements.

B12 helps with calming the person down. I'm not sure if it helps

produce stomach acid but it is absorbed in the gut. We need something

called intrinsic factor to absorb b12 from our food. Autistics often

are deficient in intrinsic factor and so we have problems absorbing

b12. There's several types of b12. One of them is cyanocobalamin.

This is b12 attached to a molecule of cyanide. Personally I don't

prefer this b/c any cyanide is too much. The best form I've found is

methylcobalamin and in the sublingual form so it won't have to go to

the gut. I also take vitamin b complex but I take those in sublingual

form also. Vitamin b orally makes my stomach problems worse.

Here is a good page I found:

http://www.tacanow.com/treatment_considerations.htm

March 22, 2006

Thank you for ecxelent description. I just want to add that Methyl form of B

12 is also more available for the brain as it does not have to be converted

from Cyanocobalomin to methylcobalomin. The resuly are improved articulation,

social interaction, general happiness, energy and reduction in anxiety.

Sounds pretty wonderful? Well it really is for all members of my family and

anyone I know who has taken it. I have heard of few cases that couldn't

tolerate it. Dana has mentioned that she needed to give it with folic acid for

her children to do well on it.

One of the things I love about Dana is that she can figure out the combos that

work rather than removing the supplement. We the spectrum people can really do

much better if not totally well on proper supplementation. If you ever come to

a problem with a supplement, please ask Dana about posible combination before

you give it up.

Best,

Haleh

--- manwithnoname37 <manwithnoname37@...> wrote:

> --- I'll try to help but asking what other supplements is a lot.

> There's thousands of messages here about all the supplements.

>

> B12 helps with calming the person down. I'm not sure if it helps

> produce stomach acid but it is absorbed in the gut. We need something

> called intrinsic factor to absorb b12 from our food. Autistics often

> are deficient in intrinsic factor and so we have problems absorbing

> b12. There's several types of b12. One of them is cyanocobalamin.

> This is b12 attached to a molecule of cyanide. Personally I don't

> prefer this b/c any cyanide is too much. The best form I've found is

> methylcobalamin and in the sublingual form so it won't have to go to

> the gut. I also take vitamin b complex but I take those in sublingual

> form also. Vitamin b orally makes my stomach problems worse.

>

> Here is a good page I found:

> http://www.tacanow.com/treatment_considerations.htm

>

March 23, 2006

I just want to add that B12 is not merely for calming the person

down, and absorbing the oral form requires sufficient stomach acid

and something called " intrinsic factor. " Otherwise it has to be

given by injection. I definitely agree about the methyl form being

better and safer. In addition to all the lovely benefits mentioned

below, without B12 you can develop macrocytic anemia and high

homocysteine, leading to all sorts of medical problems. That is why

it is called an essential vitamin. The reason some people lack

" intrinsic factor " and have to have injections is that they have an

autoimmune disease called, " pernicious anemia. "

Lack of B12 can also cause permanent neurological damage if it is

allowed to continue.

Peace,

Kathy E.

On Mar 23, 2006, at 12:54 AM, haleh niazmand wrote:

> Thank you for ecxelent description. I just want to add that Methyl

> form of B

> 12 is also more available for the brain as it does not have to be

> converted

> from Cyanocobalomin to methylcobalomin. The resuly are improved

> articulation,

> social interaction, general happiness, energy and reduction in

> anxiety.

> Sounds pretty wonderful? Well it really is for all members of my

> family and

> anyone I know who has taken it. I have heard of few cases that

> couldn't

> tolerate it. Dana has mentioned that she needed to give it with

> folic acid for

> her children to do well on it.

> One of the things I love about Dana is that she can figure out the

> combos that

> work rather than removing the supplement. We the spectrum people

> can really do

> much better if not totally well on proper supplementation. If you

> ever come to

> a problem with a supplement, please ask Dana about posible

> combination before

> you give it up.

> Best,

> Haleh

> --- manwithnoname37 <manwithnoname37@...> wrote:

>

> > --- I'll try to help but asking what other supplements is a lot.

> > There's thousands of messages here about all the supplements.

> >

> > B12 helps with calming the person down. I'm not sure if it helps

> > produce stomach acid but it is absorbed in the gut. We need

> something

> > called intrinsic factor to absorb b12 from our food. Autistics

> often

> > are deficient in intrinsic factor and so we have problems absorbing

> > b12. There's several types of b12. One of them is cyanocobalamin.

> > This is b12 attached to a molecule of cyanide. Personally I don't

> > prefer this b/c any cyanide is too much. The best form I've

> found is

> > methylcobalamin and in the sublingual form so it won't have to go to

> > the gut. I also take vitamin b complex but I take those in

> sublingual

> > form also. Vitamin b orally makes my stomach problems worse.

> >

> > Here is a good page I found:

> > http://www.tacanow.com/treatment_considerations.htm

> >

>

March 23, 2006

A few starting points for learning about supplements:

I wrote a file which you can find at autism treatment, a group

well worth joining. The file will save you time if you're just

getting started.

Use ONIBASU ( a search engine) to research each separate supplement at

autism treatment.

Buy the Pangborn and Baker book Autism: Effective Biomedical

Treatments. It has a whole section on supplements.

Read Dana's site.

Start taking your own notes right from the beginning and keep separate

files. There is a TON of information.

Anita

>

> I am new to this group. I have a 16 year old boy wit Autism. could

> anyone tell me how B12 helps the children and what other supplements

> are recommended.

> Please give me as much of information as u all can.

> thanks to every one in advance

>

March 23, 2006

I'm looking online at B12 choices to purchase, and found Source

Naturals has what they call Advanced B-12 Complex which " combines the

two active, coenzymated forms of vitamin B-12 - methylcobalamin and

adenosylcobalamin (dibencozide) - with folic acid. " This is the first

I've heard of adenosylcobalamin, and wonder if anyone has any

knowledge of or experience with it. Thanks! -- Lalita

On Mar 22, 2006, at 9:54 PM, haleh niazmand wrote:

> Thank you for ecxelent description. I just want to add that Methyl

> form of B

> 12 is also more available for the brain as it does not have to be

> converted

> from Cyanocobalomin to methylcobalomin.

March 24, 2006

Would all of you who use the supplement forms of the methl form of B12

please share where you purchase it and what brands you find helpful?

Is it something I can purchase at my local health food store?

Thank you in advance,

Re: Re: B12

Thank you for ecxelent description. I just want to add that Methyl form of B

12 is also more available for the brain as it does not have to be converted

from Cyanocobalomin to methylcobalomin. The resuly are improved

articulation,

social interaction, general happiness, energy and reduction in anxiety.

Sounds pretty wonderful? Well it really is for all members of my family and

anyone I know who has taken it. I have heard of few cases that couldn't

tolerate it. Dana has mentioned that she needed to give it with folic acid

for

her children to do well on it.

One of the things I love about Dana is that she can figure out the combos

that

work rather than removing the supplement. We the spectrum people can really

do

much better if not totally well on proper supplementation. If you ever come

to

a problem with a supplement, please ask Dana about posible combination

before