Re: Fatigue

[Guest guest]

,

Your email sounded very similar to an article or 2 that I recently read on

hypothyroidism.

" 43 y/o patient with the chief complaint of " decreased energy. " She

complains of fatigue, inability to finish tasks, sleeping more, yet always

being tired. She has also noticed a decreased cold tolerance, constipation,

and dryness of the skin. She comments that she is always cold, even in the

summer. She has a positive family history for thyroid problems, but does not

know the details "

" Hypothyroidism progresses very slowly and insidiously, making the diagnosis

difficult for physicians. In the more advanced and long-standing cases the

child may have other general symptoms of hypothyroidism, such as easy

fatiguability, mild weight gain in association with a reduction in appetite,

constipation, an intolerance of cold weather, dry skin, and either delayed

(usual) or early (rare) onset of sexual development at adolescence. "

Just a thought ...

Also, I had similar symptoms when I was on too much BP medication and it

forced my BP too low.

Remember, your thoughts are golden.

Best Regards,

Hodges

San Marcos, Texas

RE: RE: Fatigue

>

>

[Guest guest]

My husband had similar symptoms and finally went to the doctor after weeks of

sleeping 12 hours a day. He was so severely hypothyroid the doctor was

surprised he made it in to the office. It never hurts to have that level

checked!

Dana

In a message dated 6/13/03 2:25:12 PM Central Daylight Time,

.Hodges@... writes:

<< ,

Your email sounded very similar to an article or 2 that I recently read on

hypothyroidism.

" 43 y/o patient with the chief complaint of " decreased energy. " She

complains of fatigue, inability to finish tasks, sleeping more, yet always

being tired. She has also noticed a decreased cold tolerance, constipation,

and dryness of the skin. She comments that she is always cold, even in the

summer. She has a positive family history for thyroid problems, but does not

know the details "

" Hypothyroidism progresses very slowly and insidiously, making the diagnosis

difficult for physicians. In the more advanced and long-standing cases the

child may have other general symptoms of hypothyroidism, such as easy

fatiguability, mild weight gain in association with a reduction in appetite,

constipation, an intolerance of cold weather, dry skin, and either delayed

(usual) or early (rare) onset of sexual development at adolescence. "

Just a thought ...

Also, I had similar symptoms when I was on too much BP medication and it

forced my BP too low.

Remember, your thoughts are golden.

Best Regards,

Hodges

San Marcos, Texas >>

[Guest guest]

Dear Pierre,

That's very interesting. Do you know exactly what it is about obesity that

causes the hyperfiltration? I know high blood sugars cause hyperfiltration but

I didn't know about obesity without hyperfiltration.

Rotghi

>

>

> Date: 2003/06/13 Fri PM 09:24:16 EDT

> To: <iga-nephropathy >

> Subject: Re: RE: Fatigue

>

>

[Guest guest]

Hi ,

Believe it or not my Creatinine Clearance is 22 and has been so for the last

3 years! Thank the Lord! My S Creatinine is just under 3.0 and my protein

has varied from as little as 500mg/dl to 3000mg/dl in a 24 hour period of

time. I have had problems with my potassium going over 6 in the past, but

quickly got it under control by diet and medications (sodium polystyrene,

evil stuff!)

My BP is a nightmare and goes up and down at the drop of a hat. Mostly it

runs about 155/95 even with all of these medications, but my last

appointment was much lower at 140/85. Yea! My daily regiment is 35mg Altace,

240mg Diliazem, 160mg of Diovan Nephrocaps (kidney Vitamin), Ranitidine

(for acid reflux, which I attribute to all of this medication) fish oil and

Vitamin E. My Doctor even had me up to 50mg daily of Altace which I finally

had put my foot down on, it really didn't seem to lower my BP and I was

having severe side effects. We have gradually weaned me back to 35mg

Altace. My Hematocrit is slightly low @ 36. So there you have the long and

short of it. During my last appointment, my Neph was very happy with my

continued stability and he decided that I don't have to see him for 6

months. Even though I was very happy about the 6 month break, I'm hoping

that when I go back in the Fall the bottom hasn't fallen out. I realize

that there is a point of no return and once the numbers start to fall, you

can reach end stage very quickly. I've never experienced any weight loss

either. (Boo Hoo, spoken like a true woman) It does seem that you have a

tougher time of it than I do in regards to potassium, weight loss, anemia

and I know that you take EPO injections too.

, I truly hope that with the change in your regiment it will stabilize

your numbers. Also, if I've remembered the information right, you have

really had a significant change in your numbers since the beginning of this

year is that right?

I attribute my stability to the power of my mind, my goofy personality, my

personal goals, aggressive renal care 3 years ago (when things looked pretty

bleak), the support and friendship from this group, and certainly the best

for last which is my blessings from God. I appreciate very much you asking.

Sorry to the group once again for being so long in the reply.

Connie

Re: Fatigue

Hi Connie,

I know our serum creatinine runs about the same, but I was wondering about

your creatinine clearance. Mine is down to 32, but I think I have more

problems

than you are having in terms of potassium, anemia and more recently, I have

started having problems with my BP rising. I used to always be 110/70 or

so,

and now even with Lisinopril it has been 135/90. I did stop Lisinopril 3

weeks ago to see if it will help lower my potassium, and started on Cozaar

to see

if that helps, but I was just wondering why I seem to have so many more

complications of compromised renal function than you do since we are pretty

much the

same serum creatinine. Perhaps your creatinine clearance is higher than

mine

is.

[Guest guest]

I've been away but just picking up on this subject of fatigue......one that

is a pet of mine!

I have suffered from a permanent unwell/feeling of flu coming on and fatigue

since my very early 30's. At that time it followed numerous UTI's and kidney

infections

but then became permanent and gradually has got worse over the years to the

point that

I have drastically altered my work load to very part time ( I am self

employed).

I should add that it took 10 years before I was diagnosed and put on

medication, so

although I do accept that the medications can promote tiredness/fatigue, in

my case I had it

for all those years before taking any medication. To begin with also, some

Docs said

that I may have Lupus and I did in fact have 3 positive ANA blood tests but

these were

dismissed as " red herrings " ....... but that is another story.

I have been on the meds for nearly 6 years now and I haven't noticed them

having any effect

on my fatigue at all. Waking and getting up is an effort and doing anything

that raises the adrenalin

like just going out for the day, tires me for at least a couple of days

after.

I find that if I can get 12 hours rest/sleep it does help and doing some

exercise can help too,

but I have to judge that one as if I'm too fatigued it makes me worse.

Finally my GFR 6 years ago was 79% so I don't think that this type of

fatigue can be attributed to failing kidneys.

I did do a poll last year on this question......perhaps as there are so many

more people who have joined

the group we should re do it?

Bye for now,

SallyUK

[Guest guest]

Hi Sally,

Boy we are sure all with you on the fatigue. I would think that the majority

of us do suffer with fatigue. Wouldn't hurt to do another poll since we have

grown so much.

[Guest guest]

I do find that exercise helps fight the fatigue too.

[Guest guest]

I've mentioned this before, but I take Co-Enzyme Q10, I did a three

day competition of orienteering, canoeing etc last year, including a

14 mile run across Exmoor on a hot day!

pipe dreams now, I've had to severely cut back, however the Q10 still

helps, it's used medically for chronic fatigue conditions. It's not

cheap but it's not in the realms of some of the rip off things either.

I've been urged to keep fit as it ironically helps with tolerance of

creatinine etc, I don't quite understand that one, but I like to stay

fit anyway and I've found exercise helps quell any kidney pain, down

to those endorphins I suppose.

[Guest guest]

Dear Sally,

My kidney function is pretty good too and I get fatigued very easily and need

more sleep than most people. I love to get 10 hours a night. If I am

especially tired, then 12 hours does the trick. Mostly I HATE getting up in the

morning. I have been this way my whole life and most of the time my creatinine

clearance has been totally normal in the 100s. My hematuria was traced back to

age 7. Diagnosed with IgAN at age 20.

Some things that have helped me are eating really well and exercising. I was

working nights and so tired all the time so I started Sugar Busters 6 years ago.

It's a book that tells you how to eat healthy. After two weeks of no sugar and

no refined sugars I felt like a new person and only needed like 6 - 7 hours

sleep even between night shifts. It was miraculous. Also, when I exercise

regularly I need less sleep.

Chronic illness can also be associated with depression which can cause excessive

sleeping or lack of sleep. I think there was another person in this group

thought that needs more sleep and has normal kidney function and is not

depressed.

Hope some of this helps,

Rotghi

>

>

> Date: 2003/06/17 Tue AM 04:59:22 EDT

> To: <iga-nephropathy >

> Subject: RE: Fatigue

>

> I've been away but just picking up on this subject of fatigue......one that

> is a pet of mine!

>

> I have suffered from a permanent unwell/feeling of flu coming on and fatigue

> since my very early 30's. At that time it followed numerous UTI's and kidney

> infections

> but then became permanent and gradually has got worse over the years to the

> point that

> I have drastically altered my work load to very part time ( I am self

> employed).

>

> I should add that it took 10 years before I was diagnosed and put on

> medication, so

> although I do accept that the medications can promote tiredness/fatigue, in

> my case I had it

> for all those years before taking any medication. To begin with also, some

> Docs said

> that I may have Lupus and I did in fact have 3 positive ANA blood tests but

> these were

> dismissed as " red herrings " ....... but that is another story.

>

> I have been on the meds for nearly 6 years now and I haven't noticed them

> having any effect

> on my fatigue at all. Waking and getting up is an effort and doing anything

> that raises the adrenalin

> like just going out for the day, tires me for at least a couple of days

> after.

> I find that if I can get 12 hours rest/sleep it does help and doing some

> exercise can help too,

> but I have to judge that one as if I'm too fatigued it makes me worse.

>

> Finally my GFR 6 years ago was 79% so I don't think that this type of

> fatigue can be attributed to failing kidneys.

>

> I did do a poll last year on this question......perhaps as there are so many

> more people who have joined

> the group we should re do it?

>

> Bye for now,

> SallyUK

>

>

>

>

> To edit your settings for the group, go to our Yahoo Group

> home page:

> http://groups.yahoo.com/group/iga-nephropathy/

> Visit our companion website at www.igan.ca. The site is entirely supported by

donations. If you would like to help, go to:

> http://www.igan.ca/id62.htm

>

> Thank you

>

>

[Guest guest]

Dear ,

Could you find out what your doctor meant by exercise increasing tolerance of

creatinine?

Thanks,

Rotghi

>

>

> Date: 2003/06/17 Tue PM 12:58:54 EDT

> To: iga-nephropathy

> Subject: Re: Fatigue

>

>

[Guest guest]

Hi Rotghi,

Thanks for your comments.....glad to say I'm not depressed. Re the food

thing I don't eat many sweet things

and have always eaten lots of home grown veg.......the medics even put me on

a no sugar no yeast diet thinking

I had Chronic fatigue syndrome.......that didn't reveal anything much

either. At my last visit to the Neph he said that

anti-malarials maybe a solution if I get to the point of not

coping.......something that sometimes works for Lupus.

Anyway there are quite a few of us in this boat but if you can stay positive

that helps.

Having it recognised as a symptom of IgAN in the UK would be great......even

though I know they can't do anything.

Moaning over.

SallyUK

RE: Fatigue

>

> I've been away but just picking up on this subject of fatigue......one

that

> is a pet of mine!

>

> I have suffered from a permanent unwell/feeling of flu coming on and

fatigue

> since my very early 30's. At that time it followed numerous UTI's and

kidney

> infections

> but then became permanent and gradually has got worse over the years to

the

> point that

> I have drastically altered my work load to very part time ( I am self

> employed).

>

> I should add that it took 10 years before I was diagnosed and put on

> medication, so

> although I do accept that the medications can promote tiredness/fatigue,

in

> my case I had it

> for all those years before taking any medication. To begin with also,

some

> Docs said

> that I may have Lupus and I did in fact have 3 positive ANA blood tests

but

> these were

> dismissed as " red herrings " ....... but that is another story.

>

> I have been on the meds for nearly 6 years now and I haven't noticed

them

> having any effect

> on my fatigue at all. Waking and getting up is an effort and doing

anything

> that raises the adrenalin

> like just going out for the day, tires me for at least a couple of days

> after.

> I find that if I can get 12 hours rest/sleep it does help and doing some

> exercise can help too,

> but I have to judge that one as if I'm too fatigued it makes me worse.

>

> Finally my GFR 6 years ago was 79% so I don't think that this type of

> fatigue can be attributed to failing kidneys.

>

> I did do a poll last year on this question......perhaps as there are so

many

> more people who have joined

> the group we should re do it?

>

> Bye for now,

> SallyUK

>

>

>

>

> To edit your settings for the group, go to our Yahoo Group

> home page:

> http://groups.yahoo.com/group/iga-nephropathy/

> Visit our companion website at www.igan.ca. The site is entirely

supported by donations. If you would like to help, go to:

> http://www.igan.ca/id62.htm

>

> Thank you

>

>

[Guest guest]

Hi ,

I remember you mentioning this........what is it exactly/how does it work?

When soon did you notice any difference after first taking it?

Thanks

SallyUK

Re: Fatigue

I've mentioned this before, but I take Co-Enzyme Q10, I did a three

day competition of orienteering, canoeing etc last year, including a

14 mile run across Exmoor on a hot day!

pipe dreams now, I've had to severely cut back, however the Q10 still

helps, it's used medically for chronic fatigue conditions. It's not

cheap but it's not in the realms of some of the rip off things either.

I've been urged to keep fit as it ironically helps with tolerance of

creatinine etc, I don't quite understand that one, but I like to stay

fit anyway and I've found exercise helps quell any kidney pain, down

to those endorphins I suppose.

[Guest guest]

Hi ,

I think I might repeat it again.

Thanks

Sally UK.

Re: Fatigue

Hi Sally,

Boy we are sure all with you on the fatigue. I would think that the

majority

of us do suffer with fatigue. Wouldn't hurt to do another poll since we

have

grown so much.

[Guest guest]

So, this CoQ-10 is a miracle drug then

In a message dated 6/19/2003 6:02:14 AM Pacific Daylight Time,

jeffrey.farr@... writes:

> it even gives my teenage son the ability to

> string a coherent sentence together

>

[Guest guest]

Hi ,

Congratulations on your weight loss! I know how difficult it is to do. I

don't in any way want to discourage you since you still have more weight

that you'd like to lose, but I agree with , you definitely need to

discuss this regiment with your Neph. Once when I was doing the Atkins diet

and I told my Neph how I lost 12 lbs he asked me to stop based on the

amount of protein consumption. So just check with him OK? Let us know what

he says.

Connie

Co-Moderator, USA

Re: Fatigue

Hi ,

I just wanted to check, have you discussed your Atkins diet with your

Nephrologist? If not, PLEASE do before continuing on the diet. Atkins puts

you in a

state of ketosis, which is not good for your kidneys. Also, it was my

understanding that if you have kidney disease, Atkins should be avoided.

I just checked out the Atkins website, and the questionnaire they have you

fill out asks you about kidney disease. It says you cannot proceed with

Atkins

if you do have kidney disease.

Just wanted to bring it up in case your Neph is not aware you are on the

diet.

[Guest guest]

I think it's just down to general fitness meaning that your body can

tolerate the by products better, I'll ask him if there is any science

behind this, but I think it's anecdotal, correct but anecdotal.

> Dear ,

>

> Could you find out what your doctor meant by exercise increasing

tolerance of creatinine?

>

> Thanks,

>

> Rotghi

>

> >

> > From: " jeffreyfarruk " <jeffrey.farr@v...>

> > Date: 2003/06/17 Tue PM 12:58:54 EDT

> > To: iga-nephropathy

> > Subject: Re: Fatigue

> >

> >

>

>

>

[Guest guest]

I'm a crytographer not a biochemist but Q10 is part of our metabolic

pathway for use of sugars. Results are pretty much straight away,

first few times I took it I was like tigger, it calms down but it

still really helps me, it even gives my teenage son the ability to

string a coherent sentence together

> Hi ,

> I remember you mentioning this........what is it exactly/how does

it work?

> When soon did you notice any difference after first taking it?

> Thanks

> SallyUK

>

>

>

> Re: Fatigue

>

>

>

> I've mentioned this before, but I take Co-Enzyme Q10, I did a

three

> day competition of orienteering, canoeing etc last year,

including a

> 14 mile run across Exmoor on a hot day!

>

> pipe dreams now, I've had to severely cut back, however the Q10

still

> helps, it's used medically for chronic fatigue conditions. It's

not

> cheap but it's not in the realms of some of the rip off things

either.

>

> I've been urged to keep fit as it ironically helps with tolerance

of

> creatinine etc, I don't quite understand that one, but I like to

stay

> fit anyway and I've found exercise helps quell any kidney pain,

down

> to those endorphins I suppose.

>

>

>

[Guest guest]

Thanks for that.......I think I'll try it.

SallyUK

Re: Fatigue

>

>

>

> I've mentioned this before, but I take Co-Enzyme Q10, I did a

three

> day competition of orienteering, canoeing etc last year,

including a

> 14 mile run across Exmoor on a hot day!

>

> pipe dreams now, I've had to severely cut back, however the Q10

still

> helps, it's used medically for chronic fatigue conditions. It's

not

> cheap but it's not in the realms of some of the rip off things

either.

>

> I've been urged to keep fit as it ironically helps with tolerance

of

> creatinine etc, I don't quite understand that one, but I like to

stay

> fit anyway and I've found exercise helps quell any kidney pain,

down

> to those endorphins I suppose.

>

>

>

[Guest guest]

Hi ,

A cryptographer huh? What an interesting profession. Do you work for

GCHQ? I know, if you did, you couldn't tell us. :-)

Marty

> > Hi ,

> > I remember you mentioning this........what is it exactly/how does

> it work?

> > When soon did you notice any difference after first taking it?

> > Thanks

> > SallyUK

> >

> >

> >

> > Re: Fatigue

> >

> >

> >

> > I've mentioned this before, but I take Co-Enzyme Q10, I did a

> three

> > day competition of orienteering, canoeing etc last year,

> including a

> > 14 mile run across Exmoor on a hot day!

> >

> > pipe dreams now, I've had to severely cut back, however the Q10

> still

> > helps, it's used medically for chronic fatigue conditions.

It's

> not

> > cheap but it's not in the realms of some of the rip off things

> either.

> >

> > I've been urged to keep fit as it ironically helps with

tolerance

> of

> > creatinine etc, I don't quite understand that one, but I like

to

> stay

> > fit anyway and I've found exercise helps quell any kidney pain,

> down

> > to those endorphins I suppose.

> >

> >

> >

[Guest guest]

Go for it Sally!

Connie

RE: Fatigue

I've been away but just picking up on this subject of fatigue......one that

is a pet of mine!

I have suffered from a permanent unwell/feeling of flu coming on and fatigue

since my very early 30's. At that time it followed numerous UTI's and kidney

infections

but then became permanent and gradually has got worse over the years to the

point that

I have drastically altered my work load to very part time ( I am self

employed).

I should add that it took 10 years before I was diagnosed and put on

medication, so

although I do accept that the medications can promote tiredness/fatigue, in

my case I had it

for all those years before taking any medication. To begin with also, some

Docs said

that I may have Lupus and I did in fact have 3 positive ANA blood tests but

these were

dismissed as " red herrings " ....... but that is another story.

I have been on the meds for nearly 6 years now and I haven't noticed them

having any effect

on my fatigue at all. Waking and getting up is an effort and doing anything

that raises the adrenalin

like just going out for the day, tires me for at least a couple of days

after.

I find that if I can get 12 hours rest/sleep it does help and doing some

exercise can help too,

but I have to judge that one as if I'm too fatigued it makes me worse.

Finally my GFR 6 years ago was 79% so I don't think that this type of

fatigue can be attributed to failing kidneys.

I did do a poll last year on this question......perhaps as there are so many

more people who have joined

the group we should re do it?

Bye for now,

SallyUK

To edit your settings for the group, go to our Yahoo Group

home page:

http://groups.yahoo.com/group/iga-nephropathy/

Visit our companion website at www.igan.ca. The site is entirely supported

by donations. If you would like to help, go to:

http://www.igan.ca/id62.htm

Thank you

[Guest guest]

Thanks! Let me know!

Rotghi

>

>

> Date: 2003/06/19 Thu AM 08:54:02 EDT

> To: iga-nephropathy

> Subject: Re: Fatigue

>

>

[Guest guest]

Holey moley --- you mean there's help for ???

Please - break out the Q10!!

Cy

Re: Fatigue

>

>

>

> I've mentioned this before, but I take Co-Enzyme Q10, I did a

three

> day competition of orienteering, canoeing etc last year,

including a

> 14 mile run across Exmoor on a hot day!

>

> pipe dreams now, I've had to severely cut back, however the Q10

still

> helps, it's used medically for chronic fatigue conditions. It's

not

> cheap but it's not in the realms of some of the rip off things

either.

>

> I've been urged to keep fit as it ironically helps with tolerance

of

> creatinine etc, I don't quite understand that one, but I like to

stay

> fit anyway and I've found exercise helps quell any kidney pain,

down

> to those endorphins I suppose.

>

>

>

[Guest guest]

Hello ,

That sounds a relentless work load for someone without IgA.......

I don't know how you do it, a lot of positive thinking and

will power.

Look after yourself

Sally UK

Fatigue

Sorry I haven't posted in a while; I've been very busy at work and haven't

even had enough time with my family these past several days. Thanks to all

who responded to my messages, and thanks so much for your concern and

kindness.

I have been doing pretty well on Atkins and have lost 19 pounds to this

point. I've been having dizzy spells when I stand up quickly, or when I

look upwards for any length of time, but that was already going on prior to

starting the diet, so I'm not sure it's related. I really have been eating

a lot of salads, and try not loading up on meat protein, but obviously on

Atkins I can't follow strictly the diet given me by my doctor originally. I

hope he knows what he's doing.

I realized that I wasn't quite correct in some of my previous messages about

the fatigue only starting with medications; that's when it really got bad.

I actually started noticing that I couldn't do as much as I was accustomed

to up to about 3 years prior to diagnosis. I love golf and used to play

often, but starting a few years ago I was getting to the point where I could

no longer last 18 holes walking in the summer heat (living in the Memphis,

TN area, it gets into the high 90's with 70%+ humidity every day from June

thru August); I still did OK in the fall and spring, but was forced to ride

in a cart in hot weather. I didn't think it was really all that unusual

since I steadily gained weight after getting married in '94. There's

nothing like 3 squares a day plus ice cream to pack on the pounds!

Gradually, even in cool weather, I just couldn't last a round. I completely

gave up raquetball, basketball, volleyball, etc. because I just didn't have

the energy anymore, again thinking it just because of being overweight. I

still could get by and be alert and functional on less than 8 hours sleep.

Starting perhaps a year prior to diagnosis, I started having a really hard

time getting up for work, but again, I had a ready excuse: I'm a network

engineer for a large bank, which requires a lot of night and weekend work.

I thought that working the 60-80 hour weeks was causing me my troubles.

Long story a little longer, then came diagnosis, followed by BP meds, and

the bottom literally dropped out. I don't think there is any amount of

sleep that would help me feel rested. Like I said in an earlier message, I

haven't awakened feeling sharp and energetic except when I forgot to take my

meds for that day. Amazingly, I'm still working those ridiculous hours, and

can't get a moments rest from the job. Even at home or on vacation, I am on

24x7 call and have to have access to a PC and the Internet to provide

support. The job situation and stress is most definitely adding to the

fatigue factor.

Sorry to be so long, but wanted to catch up, and thanks again for your

support.

To edit your settings for the group, go to our Yahoo Group

home page:

http://groups.yahoo.com/group/iga-nephropathy/

Visit our companion website at www.igan.ca. The site is entirely supported

by donations. If you would like to help, go to:

http://www.igan.ca/id62.htm

Thank you