Guest guest Posted April 26, 2002 Report Share Posted April 26, 2002 Hi All, How do you handle the frustration of loved ones not believing you when you have symptoms like muscle burning that don't show? I "embarrassed" my husband in church yesterday because my legs gave out on me and I had to sit down. He kept telling me "get up! Everybody is looking at us!". I tried to get up and walk again but the burning and rubbery feeling in my legs was too much. I really needed to rest them so Jeff walked off without me to meet Alycia's CCD class in the recreation hall. Ironically, once I had rested for a few minutes and the crowd had moved on allowing me to take normal sized steps, I was able to walk well enough to get to the recreation hall. Didn't I feel like a total faker then! and I am sure I looked like one since one second I can't walk then the next I am walking just fine. Although, today my calves have that achy, itchy feeling that your muscles get after a "real" workout so something happened. Looking back, I think the reason my leg muscles burned out in line but were fine later is because I was being forced to take repetitive, tiny shuffling steps while moving through the line. I think these tiny repetitive steps must have been working the same group of muscles over and over to the point of burn out. Perhaps by taking larger steps, once the crowd passed, I wasn't working the muscles so hard. I am frequently having trouble writing and it is the muscles of my forearm that are burning out. Again, those muscles are getting used repeatedly by the short, quick repetitive motion of writing. I don't know why typing doesn't bother me though. It is only hand writing that causes muscle burn. Anyway, I am feeling like a total idiot for embarrassing my husband and I feel worse because I was able to walk normally a few minutes later. How does one deal with this? More importantly, how do I live like this if I can't write checks and I can't make it through a stupid line? Lori *********************************Lori Downs, OwnerHesperus Web Designhttp://www.HesperusWebDesign.cominfo@... *************** Get Free Web Site Marketing Advice:http://www.hesperuswebdesign.com/web_tips.htm Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 26, 2002 Report Share Posted April 26, 2002 It's the same thing I go through now. Sad part is that I'm not using my walker or wheelchair right now because my arms are too sore to do it. So I have to take slow, shuffling type steps to walk anywhere I need to go. I often hear " Hey you're looking better today! " They just don't know is all. Most people seem to have a mental image of someone in a wheelchair as always having to be in it. As far as I'm concerned I really couldn't care less what anyone else thinks. Just pace yourself. Rest when you need to. It's your life and at the end of the day, you and God know what you're been through. Nobody else really matters. Ed > Lori, > I know what you are going through. I confuse a lot of people by using my wheelchair one minute and than walking with my cane the next. They can't understand how one can do that. It used to bother me a lot, but then I started joking about it (I tend to deal with things by humor). After a while, it was more important to me that I listen to my body and rest when I need to, so I don't overdo and send myself into a crash, than care what the rest of the people thought. It is hard trying not to listen to what they think, but the main thing here is you need to take care of YOU. I know this isn't easy. Feel free to talk about it anytime! > > Smiles, > a > Re:embarrassment due to muscle burning > > > Hi All, > > How do you handle the frustration of loved ones not believing you when you have symptoms like muscle burning that don't show? > > I " embarrassed " my husband in church yesterday because my legs gave out on me and I had to sit down. He kept telling me " get up! Everybody is looking at us! " . I tried to get up and walk again but the burning and rubbery feeling in my legs was too much. I really needed to rest them so Jeff walked off without me to meet Alycia's CCD class in the recreation hall. > > Ironically, once I had rested for a few minutes and the crowd had moved on allowing me to take normal sized steps, I was able to walk well enough to get to the recreation hall. Didn't I feel like a total faker then! and I am sure I looked like one since one second I can't walk then the next I am walking just fine. Although, today my calves have that achy, itchy feeling that your muscles get after a " real " workout so something happened. > > Looking back, I think the reason my leg muscles burned out in line but were fine later is because I was being forced to take repetitive, tiny shuffling steps while moving through the line. I think these tiny repetitive steps must have been working the same group of muscles over and over to the point of burn out. Perhaps by taking larger steps, once the crowd passed, I wasn't working the muscles so hard. > > I am frequently having trouble writing and it is the muscles of my forearm that are burning out. Again, those muscles are getting used repeatedly by the short, quick repetitive motion of writing. I don't know why typing doesn't bother me though. It is only hand writing that causes muscle burn. > > Anyway, I am feeling like a total idiot for embarrassing my husband and I feel worse because I was able to walk normally a few minutes later. How does one deal with this? > > More importantly, how do I live like this if I can't write checks and I can't make it through a stupid line? > > Lori > > > > > > ********************************* > Lori Downs, Owner > Hesperus Web Design > http://www.HesperusWebDesign.com > info@H... > > > *************** > > Get Free Web Site Marketing Advice: > http://www.hesperuswebdesign.com/web_tips.htm > > > > Quote Link to comment Share on other sites More sharing options...
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