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Carmen - Did I miss a previous email? Are you having trouble with RMD? Here is

what we did when they told us that they could not guarantee us a reservation

until one day prior (and we were flying from California).

1) Booked refundable tickets.

2) Called the month prior and made the reservation through Dr. H's office.

3) Called two weeks prior and asked for " Marilyn " at the RMDHouse. I explained

to her that we were going to be flying in from California. Carmen, tell her

that financially, you have no other options for staying and that your son's

health is critical at this point.

4) Try and schedule staying just 1-2 nights (fly in the evening before, stay

that night, morning appt at Dr. H's and fly out that evening). You will have

the best luck at staying at RMD if you are just there 1 night, maybe 2 nights.

5) Then, after really being SUPER SWEET to Marilyn, then call the week prior

again. Tell her you are just checking in, and that you are wondering if you can

get a confirmation prior than just one day, since you are flying in - remind her

that you have no alternative option for staying anywhere else.

Marilyn is the nicest. Our first appt we had a woman tell my husband the day of

our flight that " well, we can't guarantee your reservation. " LADY, WE ARE

GETTING ON A PLANE IN 4 HOURS!!! "

Wish you the best. Remind as sweet as possible on the phone with Marilyn.

Salem

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Carmen,

The hospital does have parking - right in the front. It is the easiest

place to " park " of all the doctors that we take Max to see. All you do is

pull up to the circle, stay on the left and wait for someone to come over

and give you a ticket. If that lot is full, they will tell you about two

others that are almost as easy, but this is the easiest of all. If you need

more details, let me know. We've been doing this for 12 years!

Jodi

and others

> Hi

> Thank you for your reply to my message about RMD house.

> I did write an email to Dr. H and I will call the office again tomorrow

and

> keep calling until I get someone to talk to me and get me some answers and

a

> reservation! I am so frustrated! First Storm decides to stop growing and

> now we may not even have anywhere to stay while we are there.

> Does the hospital have parking? We may end up driving in early that

morning

> and leaving to drive back to PA that night, get a couple of days rest then

> drive back home to TX.

> Storm has suddenly been having nose bleeds. Anybody else have this

problem?

> Could it be related to the Periactin. (You know just drying his nose up

too

> much?)

> Thanks again,

> Carmen Mom to Storm 5, RSS, 27.5#, 38 1/2 "

>

>

>

>

>

>

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Hi Carmen

I may be way off here....Adam is not on periactin (nor ever has been) but the

nose bleeds do

come with the dry air. Now Texas wouldn't get the dry, cold winters we do here

in Canada,

but perhaps the air is especially dry right now? Do you find you need a

humidifier to bring

humidity to the air??

Have you tried a vaporizer at night?

Just a thought

PS (Adam had a nose bleed at school last week, but when I got to the bottom of

all the

blood and crying I found he had shoved his pencil up his nose--he never has a

sharp pencil

except for that day--this kid is the reason I keep seeing more and more gray

hairs in the

mirror each day!!!! LOL)

Debby

& Carmen Snyder wrote:

> Hi

> Thank you for your reply to my message about RMD house.

> I did write an email to Dr. H and I will call the office again tomorrow and

> keep calling until I get someone to talk to me and get me some answers and a

> reservation! I am so frustrated! First Storm decides to stop growing and

> now we may not even have anywhere to stay while we are there.

> Does the hospital have parking? We may end up driving in early that morning

> and leaving to drive back to PA that night, get a couple of days rest then

> drive back home to TX.

> Storm has suddenly been having nose bleeds. Anybody else have this problem?

> Could it be related to the Periactin. (You know just drying his nose up too

> much?)

> Thanks again,

> Carmen Mom to Storm 5, RSS, 27.5#, 38 1/2 "

>

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I wondered about nose bleeds too because is the only one in our family to

ever get any.

He has only had a couple, but one was just yesterday at the dinner table. He

was crying and

refusing to eat and curled up in a ball on his chair. When he got up, the

whole seat was a

pool of blood. He doesn't have that much to spare right now after all the tubes

they took 2wks

ago!

Cheryl

Debra Baillargeon wrote:

> Hi Carmen

> I may be way off here....Adam is not on periactin (nor ever has been) but the

nose bleeds do

> come with the dry air. Now Texas wouldn't get the dry, cold winters we do here

in Canada,

> but perhaps the air is especially dry right now? Do you find you need a

humidifier to bring

> humidity to the air??

> Have you tried a vaporizer at night?

>

> Just a thought

>

> PS (Adam had a nose bleed at school last week, but when I got to the bottom

of all the

> blood and crying I found he had shoved his pencil up his nose--he never has a

sharp pencil

> except for that day--this kid is the reason I keep seeing more and more gray

hairs in the

> mirror each day!!!! LOL)

>

> Debby

>

> & Carmen Snyder wrote:

>

> > Hi

> > Thank you for your reply to my message about RMD house.

> > I did write an email to Dr. H and I will call the office again tomorrow and

> > keep calling until I get someone to talk to me and get me some answers and a

> > reservation! I am so frustrated! First Storm decides to stop growing and

> > now we may not even have anywhere to stay while we are there.

> > Does the hospital have parking? We may end up driving in early that morning

> > and leaving to drive back to PA that night, get a couple of days rest then

> > drive back home to TX.

> > Storm has suddenly been having nose bleeds. Anybody else have this problem?

> > Could it be related to the Periactin. (You know just drying his nose up too

> > much?)

> > Thanks again,

> > Carmen Mom to Storm 5, RSS, 27.5#, 38 1/2 "

> >

>

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Carmen,

I am so sorry to hear about Storm. (age 8- 2yrs ago) went through a

bout of nose bleeds for a week or so his ped said to stop all meds possible

for a week and force fluids and vitamans. It worked and I am clueless on why.

Good luck with Dr.H.

Please keep us posted .

dale:

mom to: Mike(16) (10,RSS,assemytry,periactin,GHT,button at the age of

10 (its never to late.

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