Re: JENN. F. undescended testicles

[Guest guest]

As far as I know from my reading I am the only one who's son had undescended

testicles. A

word of caution (not to scare you) but the urologist made a big deal that Adam

had to have

the surgery at 18 months. Later than that was not good but because he was so

small they

tried to wait as long as possible (but he wouldn't go past 18 months no matter

what!!)

I won't bother with all the details of the surgery now. It was discovered that

he had a

hernia that blocked the testes from coming down. All I remember the urologist

saying was

that whenever you examine a male the cold air etc. will cause the testes to go

" up " (normal

response) however, upon examination, the doctor can " pull " them back down to

feel them. For

someone with a problem with undescended testicles, no matter how hard one

" pulls " they won't

come down.

So they monitored Adam (this was noticed around 2 months of age) and hoped they

would come

down on their own. But they didn't.

Let me know if you need any advice or other details. It was many years ago

now--but not an

experience one forgets.

Oh out of interest--this is my personal " take " on the testes thing--the

testicles descend in

utero at 32 weeks of pregnancy. Interestingly enough, at 32 weeks I was

hospitalized for

bleeding (the reason for the bleeding was never determined) but when I found out

years later

that that is when those suckers come down I thought " ah Ha!!! no wonder " .

Anything strange

happen around your 32nd week of pregnancy??

Finally, Magic does list undescended testicles as one of the " symptoms " but in

rare cases. I

am reluctant to think it has anything to do with it really given what I said

above and the

fact that no other parents of boy babies have experienced it on this list serve.

Again, if I can be any help---just call

Debby

Fazzolari wrote:

> Hi - I think 's mother's name is ? I am

> still trying to get everyone's names straight. Thanks

> for your response. It wasn't your email that was

> overwhelming but more of my inability to know what to

> do or what is the right thing to do.

> Just an update - I haven't been on email for about 4

> days and when I returned I had 308 messages! It will

> take me awhile to read through all of them. Anyway, I

> took Dominic to the doctor on Saturday b/c he had a

> fever for four days and it spiked to 104. He was

> coughing uncontrollably, throwing up, etc. They

> thought he may have pneumonia but it turns out he has

> a upper respiratory infection and a urinary tract

> infection. He has lost 1 lb which puts him at 13.2 lbs

> (16 months old). I guess the good news is we finally

> know what is going on and can treat it. They are

> going to run tests on his kidneys to make sure the

> urine isn't going into the kidneys when he pees.

> ALso, they will check at that time to see if his

> testicles are descended. The dr. doesn't think so.

> Is this a common thing for males with RSS? Thanks for

> all of your help!

> F. from WV - mother of Dominic, 16mos, RSS,

> now 13.2 lbs.

> --- JBSalem@... wrote:

> > Jen F. - I am so sorry that my email overwhelmed

> > you, about being

> > hospitalized. To make you feel a bit better, this

> > is the first time in 4

> > years that she has been sick like this and had to be

> > hospitalized (she had a

> > 1-day visit when she was 13 months old for an IV for

> > rehydration).

> >

> > The stomach flu and its subsequent problems of

> > dehydration/hypoglycemia are

> > really the one major health problem that can be

> > scary for an RSS parent.

> > Colds, ear infections, etc. - these are all things

> > that all kids get - and

> > for our RSS kids, are just yuckier because our kids

> > tend to eat less during

> > that time and they lost a bit of precious weight

> > (which they usually gain

> > back pretty fast).

> >

> > Some other RSS kids may have other issues (such as

> > with some RSS boys,

> > hypospadius), but for the most part, the majority of

> > RSS kids are pretty

> > healthy except for when that horrible stomach flu

> > hits.

> >

> > It will be my action to get a standard explanation

> > and recommended protocol

> > regarding the RSS child who is experiencing lack of

> > eating/drinking for more

> > than 6 hours, written by Dr. Harbison that I will

> > then share with any RSS

> > parent who requests. I do believe that this is

> > something we all should carry

> > with us at all times.

> >

> > But all in all, as I sat in the hospital room that

> > last night, I had a brief

> > " why me " episode. Then I realized, I have the most

> > perfect little girl I

> > could have ever asked for. And although there are

> > issues we deal with that

> > most other parents don't (IEPs, speech), in the long

> > term, these are minor

> > compared to a parent who has a child with cystic

> > fibrosis. Or my friend

> > whose 3-yr-old son you all prayed for

> > last year - who after one

> > year is still going to 3-times-a-week therapy for

> > the 3rd-degree burns he

> > received.

> >

> > And second, as parents of RSS kids who are 10 or

> > older will tell us, it DOES

> > get easier.

> >

>

> __________________________________________________

>

[Guest guest]

,

My son has undescended testicles too, but he also has hypospadias, so

I don't know if those two always go together or not.

> > > Jen F. - I am so sorry that my email overwhelmed

> > > you, about being

> > > hospitalized. To make you feel a bit better, this

> > > is the first time in 4

> > > years that she has been sick like this and had to be

> > > hospitalized (she had a

> > > 1-day visit when she was 13 months old for an IV for

> > > rehydration).

> > >

> > > The stomach flu and its subsequent problems of

> > > dehydration/hypoglycemia are

> > > really the one major health problem that can be

> > > scary for an RSS parent.

> > > Colds, ear infections, etc. - these are all things

> > > that all kids get - and

> > > for our RSS kids, are just yuckier because our kids

> > > tend to eat less during

> > > that time and they lost a bit of precious weight

> > > (which they usually gain

> > > back pretty fast).

> > >

> > > Some other RSS kids may have other issues (such as

> > > with some RSS boys,

> > > hypospadius), but for the most part, the majority of

> > > RSS kids are pretty

> > > healthy except for when that horrible stomach flu

> > > hits.

> > >

> > > It will be my action to get a standard explanation

> > > and recommended protocol

> > > regarding the RSS child who is experiencing lack of

> > > eating/drinking for more

> > > than 6 hours, written by Dr. Harbison that I will

> > > then share with any RSS

> > > parent who requests. I do believe that this is

> > > something we all should carry

> > > with us at all times.

> > >

> > > But all in all, as I sat in the hospital room that

> > > last night, I had a brief

> > > " why me " episode. Then I realized, I have the most

> > > perfect little girl I

> > > could have ever asked for. And although there are

> > > issues we deal with that

> > > most other parents don't (IEPs, speech), in the long

> > > term, these are minor

> > > compared to a parent who has a child with cystic

> > > fibrosis. Or my friend

> > > whose 3-yr-old son you all prayed for

> > > last year - who after one

> > > year is still going to 3-times-a-week therapy for

> > > the 3rd-degree burns he

> > > received.

> > >

> > > And second, as parents of RSS kids who are 10 or

> > > older will tell us, it DOES

> > > get easier.

> > >

> >

> > __________________________________________________

> >

[Guest guest]

Debby and Jenn.,

My son had undescended testicles and hypospadius. He had hypo

surgeries at 1 y.o., and at 2 y.o. His und. test. were done at 3

y.o. They do say the earlier the better so they don't really

remember much. did GREAT for #2 and #3 surgeries! I think the

first one was bad because he was a fussy baby and this made it

worse. He was up ALL night for his entire stay. It was really tough

of my husband and I. We had one son at home and one in the hospital

for a week. Whoever spent the night at the hospital (DH and I took

turns), wouldn't get any sleep for a LONG time... at home with ,

to the hospital and up all night, then back home with ....

Sue R.

[Guest guest]

,

I don't think undescended testicles and hypospadius always go

together. Many times hypospadius and chordee go together....

Sue R.

[Guest guest]

,

had a hypospadius, but his testicles were fine. They didn't come all

the way down at first, but by 5 months, when he had a double hernia repair,

the doc said they were down.

Take care

Nikki- 6, rss, and nala the cat

>

>Reply-To: RSS-Supportegroups

>To: RSS-Supportegroups

>Subject: Re: JENN. F. undescended testicles

>Date: Thu, 11 Jan 2001 14:07:29 -0000

>

>,

>

>I don't think undescended testicles and hypospadius always go

>together. Many times hypospadius and chordee go together....

>

>Sue R.

>

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[Guest guest]

I probably should know this, but what is hypospadius

and chordee?

-- Rawley wrote:

> ,

>

> I don't think undescended testicles and hypospadius

> always go

> together. Many times hypospadius and chordee go

> together....

>

> Sue R.

>

>

__________________________________________________

[Guest guest]

>> Fazzolari <jjfazzolari@y...> wrote:

> I probably should know this, but what is hypospadius

> and chordee?

Hypospadius is when the opening is not at the tip, but

rather " elsewhere " .. further down the shaft or at the base. In my

son's case, it was at the base.

chordee is when the penis is bent. In my son's case, the bottom part

didn't have as much skin as the top part.

both fixed, plus the undescended testicles, and he's in good shape!

we don't need to go back, says the urologist!

Sue R.