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GH impact

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Hi all,

I know everyone wants data on those of us who started GH recently....

I'm going to wait until we get official measurements to report on 's

growth velocity since starting GH in January. Our appt is on May 15. I

can tell you that whatever linear growth she is having, it's not as

dramatic as I hoped it would be. But, I don't have confidence in my wall

measurements. Our day to day focus is on improving eating skills and

gaining weight. Her weight gain has been pretty steady....but her g-tube

gets the credit for that!

I'll definitely share our data after her appt.

Irene

Mom to , 3

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