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We had a gastro eppt today to follow-up on Tim's weight gain problem.

Besides considering going back to a tube (but truly hesitantly because of

his current 120 kcal/kg/day feedings and his similarity to a severe RSS

article where metabolism was just extreme in RSS skinniness), they also

suggested a new feeding clinic at this Children's. I have heard several

nightmare stories about feeding clinics accusing RSS parents of not feeding

their kids and giving them problems. I'm wondering if anyone has any GOOD

experiences to share about feeding clinics. Perhaps some tips might help

us watch out for setting the tone properly from the beginning, if we go

that route.

Inga

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