Re: OT- How is Marilyn feeling?

[Guest guest]

*drum roll in backgroung*

<Picture a sprawling red carpet for Missy's re-entry for all of us in

the ether of cyberspace!!>

Welcome home...

I am sure I can speak for everyone and say how happy and delighted we

are that -you- posted and are back home!!!

Mazal Tov on the trophy too.. Us SCD'ers totally have appreciation

for such a monumental trophy- pun intended. Heh.

Seems like you have quite the recovery ahead of you.

I was really comforted by the fact that you have a lovely and devoted

group of family and friends to help you.

Those pictures seem intriguing <devilish laugh>

I wonder what those draining tubes are called? How do they look? Can

you sit comfortably? I hope this whole episode will be over quickly..

Hang in there

Hugs,

Jodi

>

>

> >Was wondering how M is feeling and how she is adjusting being at home

> >and sleeping through the night? Can she eat totally normal?

> >

> >Is her sister still there helping?

> >

> >Thinking about her.

>

> Jodi,

>

> Marilyn is home, still feeling like a Mack truck

> ran over her, and being very, VERY careful about

> how she reintroduces foods and supplements, even

> though the doc has cleared her for regular food.

>

> So far, I'm still doing broth, meat purees, well

> steamed zucchini, and a very cautiously regulated half muffin twice

a day.

>

> Yesterday, I had my first post-op bowel movement

> -- a perfect trophy! (Only SCDers can appreciate

> what kind of a triumph that is.)

>

> I am split, literally from past the hip crest to past the hip crest.

>

> Despite all preparations, they weren't enough.

> (They warned me about the drains, but I wasn't

> expecting to have four two-foot long rubber tubes

> connected just above the pubic mound, and

> draining into vacuum bulbs. Yes, It's as

> difficult as it sounds. I may have these things

> for a mimimum of two weeks. I need to be a Moti,

> a science fictional character with three hands.)

>

> My gut doesn't hurt a lot except when I'm moving.

> Can't quite straighten up. I need two people to

> help me down onto and up off the toilet. What

> hurts the most is the fact that I normally sleep

> on my side, and I am literally split from just

> past the hip crest on each side in a deep curve.

> So I must sleep on my back, which results in hip

> and back pain which hurts worse than the surgery.

> The percoset doesn't touch it. (BTW, I understand

> people can have quite an issue with this stuff: I

> hate it, because for me, the chief side effect is a bad headache.)

>

> Marge, my sister is still here, but must return

> to Ohio on Wednesday. Her eldest daughter is

> having SCD Boy #2 the beginning of May, and her mom-in-law just

became ill.

>

> The paths came back negative. Apparently, the

> cancer had not spread. Of course, there is always

> the possibility it could come back. We'll discuss

> that with the oncologist when I see her in two

> weeks. (I have an appointment Wednesday, 9 days

> after the surgery with the plastic surgeon to

> maybe get some of the staples removed.)

>

> One thing I learned in the course of researching

> this is that the fat which is removed during

> plastic surgery is usually discarded as medical

> waste. However, it CAN be donated for use in stem

> cell research. So I signed the papers for that

> before the surgery. Perhaps my pain will help

> lead to discoveries which with help others. Oh,

> and the doctors took lots of entertaining

> photographs. I'll have a set, but I don't think

> they're quite suitable for a public Forum.

>

> The best thing is that I actually started

> dreaming this afternoon. I had no dreams at all

> after the surgery and while in the hospital, and

> even none last night. Very disturbing to someone with a vivid

imagination.

>

> Probably won't be able to answer much here, but I

> loved getting emails at the hospital, and I know

> that all the prayers, good thoughts, and pink

> lights, along with vitamins and acupuncture and

> SCD, were a major factor in my coming through

> this " challenging " (oncologist's description)

> surgery in as decent shape as I did.

>

> Oh, and my oncologist bought three copies of

> BTVC, one for herself, and one each for two

> relatives. My gynecologist also bought a copy. I

> think my absolute refusal to give up SCD even

> under very trying circumstances, and the

> logistics of doing so in the hospital impressed them.

>

> Thanks to all.

>

>

> — Marilyn

> New Orleans, Louisiana, USA

> Undiagnosed IBS since 1976, SCD since 2001

> Surgery for Endometrial Cancer, April, 2008

> Darn Good SCD Cook

> No Human Children

> Shadow & Sunny Longhair Dachshund

>

[Guest guest]

Glad to hear you are doing well, Marilyn. Get better soon.Adam Adam owCowell ('97)UR-Delaware1156 High StreetSanta Cruz, CA 95064 (fax)davidow@... Was wondering how M is feeling and how she is adjusting being at home and sleeping through the night? Can she eat totally normal? Is her sister still there helping? Thinking about her. Jodi, Marilyn is home, still feeling like a Mack truck ran over her, and being very, VERY careful about how she reintroduces foods and supplements, even though the doc has cleared her for regular food. So far, I'm still doing broth, meat purees, well steamed zucchini, and a very cautiously regulated half muffin twice a day. Yesterday, I had my first post-op bowel movement -- a perfect trophy! (Only SCDers can appreciate what kind of a triumph that is.) I am split, literally from past the hip crest to past the hip crest. Despite all preparations, they weren't enough. (They warned me about the drains, but I wasn't expecting to have four two-foot long rubber tubes connected just above the pubic mound, and draining into vacuum bulbs. Yes, It's as difficult as it sounds. I may have these things for a mimimum of two weeks. I need to be a Moti, a science fictional character with three hands.) My gut doesn't hurt a lot except when I'm moving. Can't quite straighten up. I need two people to help me down onto and up off the toilet. What hurts the most is the fact that I normally sleep on my side, and I am literally split from just past the hip crest on each side in a deep curve. So I must sleep on my back, which results in hip and back pain which hurts worse than the surgery. The percoset doesn't touch it. (BTW, I understand people can have quite an issue with this stuff: I hate it, because for me, the chief side effect is a bad headache.) Marge, my sister is still here, but must return to Ohio on Wednesday. Her eldest daughter is having SCD Boy #2 the beginning of May, and her mom-in-law just became ill. The paths came back negative. Apparently, the cancer had not spread. Of course, there is always the possibility it could come back. We'll discuss that with the oncologist when I see her in two weeks. (I have an appointment Wednesday, 9 days after the surgery with the plastic surgeon to maybe get some of the staples removed.) One thing I learned in the course of researching this is that the fat which is removed during plastic surgery is usually discarded as medical waste. However, it CAN be donated for use in stem cell research. So I signed the papers for that before the surgery. Perhaps my pain will help lead to discoveries which with help others. Oh, and the doctors took lots of entertaining photographs. I'll have a set, but I don't think they're quite suitable for a public Forum. The best thing is that I actually started dreaming this afternoon. I had no dreams at all after the surgery and while in the hospital, and even none last night. Very disturbing to someone with a vivid imagination. Probably won't be able to answer much here, but I loved getting emails at the hospital, and I know that all the prayers, good thoughts, and pink lights, along with vitamins and acupuncture and SCD, were a major factor in my coming through this "challenging" (oncologist's description) surgery in as decent shape as I did. Oh, and my oncologist bought three copies of BTVC, one for herself, and one each for two relatives. My gynecologist also bought a copy. I think my absolute refusal to give up SCD even under very trying circumstances, and the logistics of doing so in the hospital impressed them. Thanks to all. — Marilyn New Orleans, Louisiana, USA Undiagnosed IBS since 1976, SCD since 2001 Surgery for Endometrial Cancer, April, 2008 Darn Good SCD Cook No Human Children Shadow & Sunny Longhair Dachshund

[Guest guest]

REST UP!!! and get better soon

we miss you

eileen

>

> >> Was wondering how M is feeling and how she is adjusting being at

home

> >> and sleeping through the night? Can she eat totally normal?

> >>

> >> Is her sister still there helping?

> >>

> >> Thinking about her.

> >

> > Jodi,

> >

> > Marilyn is home, still feeling like a Mack truck ran over her,

and

> > being very, VERY careful about how she reintroduces foods and

> > supplements, even though the doc has cleared her for regular food.

> >

> > So far, I'm still doing broth, meat purees, well steamed

zucchini,

> > and a very cautiously regulated half muffin twice a day.

> >

> > Yesterday, I had my first post-op bowel movement -- a perfect

> > trophy! (Only SCDers can appreciate what kind of a triumph that

is.)

> >

> > I am split, literally from past the hip crest to past the hip

crest.

> >

> > Despite all preparations, they weren't enough. (They warned me

about

> > the drains, but I wasn't expecting to have four two-foot long

rubber

> > tubes connected just above the pubic mound, and draining into

vacuum

> > bulbs. Yes, It's as difficult as it sounds. I may have these

things

> > for a mimimum of two weeks. I need to be a Moti, a science

fictional

> > character with three hands.)

> >

> > My gut doesn't hurt a lot except when I'm moving. Can't quite

> > straighten up. I need two people to help me down onto and up off

the

> > toilet. What hurts the most is the fact that I normally sleep on

my

> > side, and I am literally split from just past the hip crest on

each

> > side in a deep curve. So I must sleep on my back, which results

in

> > hip and back pain which hurts worse than the surgery. The

percoset

> > doesn't touch it. (BTW, I understand people can have quite an

issue

> > with this stuff: I hate it, because for me, the chief side effect

is

> > a bad headache.)

> >

> > Marge, my sister is still here, but must return to Ohio on

> > Wednesday. Her eldest daughter is having SCD Boy #2 the beginning

of

> > May, and her mom-in-law just became ill.

> >

> > The paths came back negative. Apparently, the cancer had not

spread.

> > Of course, there is always the possibility it could come back.

We'll

> > discuss that with the oncologist when I see her in two weeks. (I

> > have an appointment Wednesday, 9 days after the surgery with the

> > plastic surgeon to maybe get some of the staples removed.)

> >

> > One thing I learned in the course of researching this is that

the

> > fat which is removed during plastic surgery is usually discarded

as

> > medical waste. However, it CAN be donated for use in stem cell

> > research. So I signed the papers for that before the surgery.

> > Perhaps my pain will help lead to discoveries which with help

> > others. Oh, and the doctors took lots of entertaining

photographs.

> > I'll have a set, but I don't think they're quite suitable for a

> > public Forum.

> >

> > The best thing is that I actually started dreaming this

afternoon. I

> > had no dreams at all after the surgery and while in the

hospital,

> > and even none last night. Very disturbing to someone with a

vivid

> > imagination.

> >

> > Probably won't be able to answer much here, but I loved getting

> > emails at the hospital, and I know that all the prayers, good

> > thoughts, and pink lights, along with vitamins and acupuncture

and

> > SCD, were a major factor in my coming through this

> > " challenging " (oncologist's description) surgery in as decent

shape

> > as I did.

> >

> > Oh, and my oncologist bought three copies of BTVC, one for

herself,

> > and one each for two relatives. My gynecologist also bought a

copy.

> > I think my absolute refusal to give up SCD even under very

trying

> > circumstances, and the logistics of doing so in the hospital

> > impressed them.

> >

> > Thanks to all.

> >

> > — Marilyn

> > New Orleans, Louisiana, USA

> > Undiagnosed IBS since 1976, SCD since 2001

> > Surgery for Endometrial Cancer, April, 2008

> > Darn Good SCD Cook

> > No Human Children

> > Shadow & Sunny Longhair Dachshund

> >

> >

>