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Update-Destiny

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Hi all,

I just thought I'd share with you where we're at with

Destiny's assesments and diagnosis. Cognitive-a little

ahead, actually I think she's smarter than the

developmental specialist, she would not perform

without applause and gave them such a look when they

were slow to respond! Speech-ok,

hearing-phenomenal,large motor delayed, but thanks to

all of your input I was not concerned. Also a week

after that assesment she just stood up and started

walking all over the house!

And the big one, the geneticst, gave us an either/or.

She wants to have Destiny tested for an M-CAD

deficieny because she was so listless with the

diarreha and vomiting a few months back. If that test

comes back negative, she has enough markers for RSS

that the Gen. considers that the only other possible

diagnosis. Anyone out there know anything about M-CAD?

It's apparently a fat-metabolizing enzyme, but that's

all I remember.By the time we saw the Gen. I was half

asleep, I work graveyard and the afternoon is the

middle of my night.

(mom to Destiny 17.1lbs 27and1/4 in 16mo and

walking,walking,walking!)

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