Re: Re: waking to feed

[Guest guest]

Debbie,

I have never woken Storm to feed him. He doesn't wake up to eat. (He does

wake up !) but not to eat. And as long as his blood sugar is good he is

great! Never gets in trouble in school. Likes being the good kid! I hope

this helps! Everyone he meets falls in love with him and he is extremely

cute. But he is also well behaved! No add or adhd.

Carmen, Mom to Storm, 5, RSS, 27.9#,38.5 "

Re: Re: waking to feed

>

>

> Meribeth Holec wrote:

>

>

> > At our last visit I asked if it

> > was necessary for him to be waking up to eat or was it just out of

> > habit. I was really hoping she would say he sh ould be sleeping

> > through the night however, she did not. Dr. H feels it is extremely

> > important to feed a child who has RSS during the night to ward off

> > blood sugar issues.

> >

> > She even went as far to say if TJ did not wake up on his own I should

> > wake him up.

> >

>

> Out of curiosity (did it really kill the cat anyway?? ) how many parents

out there once

> their child (RSS) started sleeping through the night DID NOT wake them up

for feedings?? And

> as a result how many have a " nice " disposition young child and how many

are having behaviour

> " issues " ?

>

> Count me as one of the mothers who let the kid sleep once he started

sleeping through the

> night (didn't even have an RSS diagnosis then) and now have behaviour

" issues " .

>

> I'd like to keep a tally going and see if all our kids were susceptible as

babies to the

> blood sugar issue (as a part of RSS) which has now caused these

neurological issues.

>

> Of course I'm hoping I hear from many who didn't wake and have little

angels with them now.

> But I'll let the stats stand for themselves.

>

> Thanks all

>

> Debby

>

>

> >

> > ,

> >

> > I can relate to your situation, wanting to sleep but knowing your

> > child needs the calories. My son, TJ will be 2 years old at the end

> > of this month. He awakes at least twice a night to eat. Sometimes

> > he takes a full 4 ounces and others just a few sips. We see Dr.

> > Harbison who sees a lot of RSS kids. At our last visit I asked if it

> > was necessary for him to be waking up to eat or was it just out of

> > habit. I was really hoping she would say he sh ould be sleeping

> > through the night however, she did not. Dr. H feels it is extremely

> > important to feed a child who has RSS during the night to ward off

> > blood sugar issues.

> >

> > She even went as far to say if TJ did not wake up on his own I should

> > wake him up. I sypathize with your situation in needing to sleep. I

> > was laughing to myself the other day as I probably will not be able

> > to sleep for more than 4 hours at a time when TJ outgrows this as my

> > body is so used to waking up!

> >

> > Hang in there and know you are doing the right thing for Darcy.

> >

> > Meribeth>

> >

> > Darcy is now 13 months old, still breastfeeding, and STILL waking 3-

> > 4

> > > hourly to feed during the night - it's driving me nuts. Most

> > nights

> > > he ends up feeding to sleep in our bed or I just don't get any.

> > > (Sleep, I mean)

> > >

> > > I read that hypoglycaemia (low blood sugar) is sometimes a problem

> > in

> > > RSS - I'm wondering if this could be the problem (ie low blood

> > sugar

> > > triggering hunger overnight) and if anyone else has has similar

> > > experiences?

> > >

> > > Also he had his GH test after 6 hours fasting his blood sugar went

> > > down to 3.9 (sorry I don't know what the measurement we use in OZ

> > is

> > > but the normal range is 4 - 8) and during the test went down to

> > 2.9

> > > Afterwards, its the only time I've ever seen him eat a decent meal!

> > > We get to discuss this with the endo tomorrow but I'd like to know

> > of

> > > any similar experiences.

> > >

> > > And to Jodi - I haven't been doing this long, but I too want to say

> > > thank you for your postings advice & support - where would we be

> > > without someone to lead the way? It sounds as if you've been

> > through

> > > some trying stuff and I wish you the best of luck for what the

> > future

> > > may hold

> > >

> > > Steph (mum of Darcy 13 months ?RSS and Tessa, 5)

> >

>

>

>